dina
New Member
Posts: 2
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Post by dina on Jul 25, 2006 12:08:43 GMT -5
I am writing on behalf of my family mebers who are ill. My parents in law and sister in law have morgellons and my husband has had chronic fatigue for about 8 years.
They sent off the Bowen test last week and these are the resuts:
My father, mother and sister in law all have exactly the same result:
Serial Dilution: Q-RIBb: Positive Serial Dilution Value: 1:128 (Pathogenic E. Coli control test): Negative Buffy Coat Smear: Babesia: None Seen Ehrlichia:None Seen
My husbands result is:
Serial Dilution: Q-RIBb: Positive Serial Dilution Value: 1:64 (Pathogenic E. Coli control test): Negative Buffy Coat Smear: Babesia: None Seen Ehrlichia:None Seen
They do not have a lyme doctor, a friend sent it off for them.
Do they all have lymes? How is this possible???
Any help would be really appreciated.
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Post by questionhair on Jul 25, 2006 13:26:51 GMT -5
I am writing on behalf of my family mebers who are ill. My parents in law and sister in law have morgellons and my husband has had chronic fatigue for about 8 years. They sent off the Bowen test last week and these are the resuts: My father, mother and sister in law all have exactly the same result: Serial Dilution: Q-RIBb: Positive Serial Dilution Value: 1:128 (Pathogenic E. Coli control test): Negative Buffy Coat Smear: Babesia: None Seen Ehrlichia:None Seen My husbands result is: Serial Dilution: Q-RIBb: Positive Serial Dilution Value: 1:64 (Pathogenic E. Coli control test): Negative Buffy Coat Smear: Babesia: None Seen Ehrlichia:None Seen They do not have a lyme doctor, a friend sent it off for them. Do they all have lymes? How is this possible??? Any help would be really appreciated. Another good place to ask about test results is here: flash.lymenet.org/ubb/ultimatebb.phpThis Morgellons board is a very good message board to find tips on what has worked to reduce symptoms for people. For technical Lyme related questions, the LymeNet message board will come up with a greater number of very specific and medically-oriented answers from people who have spent a lot of time thinking about these tests and getting them too. I'm still figuring things out myself, but I'm thinking that the Lyme boards have some people that don't want to think about Morgellons. And for the Morgellons people, not all think Lyme is applicable, and that may be so for a few people. However, I read both boards and have found there are a lot of posts at the LymeNet board where people discuss the possible meaning of test results. Some people discuss their own symptoms along with their test results, and compare them to the test results asked about. So, if you want extra information, that would be another route to try. There are good tips here - please refer to the Supplements section and go back back in pages - there are a lot of good tips buried back there. Also, if you mention specific symptoms, you can get pointed more quickly to symptom-relief tips. Most importantly, read the MRF website (Morgellons.org in the tab above) entirely as time allows. If you post the same question at LymeNet, in the Medical Questions section, be sure to mention about the doctor - and if you are interested in getting a LLMD, it would make things faster if you mentioned on the other posting where you are located. I've seen posts there where a person has a non Lyme Literate MD who has said the tests were "negative" but when they posted the exact results on LymeNet they were given very good answers explaining the test results (which were actually positive.) So, I am not able to answer your question - still learning a lot myself - but have found where the best places are for certain answers. This is a great message board for Morgellons specific symptoms and relief, and LymeNet is good for test results and lyme-specific questions. I think there are some people at LymeNet who have Morgellons specific symptoms but either don't know it or want to think it's possible. Hope all works out well for your family - it's a good thing you are doing - when people have this many are too tired to do much about it. Best Wishes, QH
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dina
New Member
Posts: 2
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Post by dina on Jul 25, 2006 14:55:19 GMT -5
Thank you very much for your reply. I will write something on the limenet message board.
I spoke to a lyme doctor today in England and she said they dont use the bown test as every result comes back positive.
My relatives are gonna go to this hospital to get some more tests for lyme done.
Can it be passed on person to person or through mosquitoes?
Thanks
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Post by questionhair on Jul 25, 2006 16:06:37 GMT -5
Hi: Read about Lyme - it's very important that the doctor understands it and the the labs that do the testing know what they are doing - and that the right tests are done.
ILADS has good information. The above link - in the Medical Questions section you will see pinned near the top of the message board a thread for "newbies" - it has EVERYTHING you could possibly want to know about Lyme and more in there. Your questions can be answered there.
For dealing with doctors, you'll want to focus on the more "traditional" information - via ILADS.
For dealing with questions of how do deal with symptoms - message boards and websites where other people deal with this will help you all the most.
If going to the hospital for more tests, make sure to read up on the tests and understand what goes into doing the tests properly.
There's also a thread in the General section of this board (see tab above) titled Lyme Stuff your Doctor should know - scroll down to the bottom and there's some info recently posted about getting tested for Lyme disease.
For your last question, yes - it's said to be passed via semen or breast milk, read for more ways - and for the mosquito question . . . I don't know for sure. University and government researchers have been experimenting with all kinds of insects to see how they can use them as bioweapons, or for agricultural purposes. I don't think insects are the same as they used to be - but I don't know if Mosquitoes in particular pass Lyme disease.
I recently saw a science program on tv that said that mosquitoes don't have the capability to carry certain things from one animal to another, but it was too scientific for me. However, weren't they able to carry malaria? Who knows anymore?
QH
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Post by jwf on Jul 25, 2006 16:49:20 GMT -5
Hi Dina,
Did you say where you live? That's important when testing. For example in Europe there are different strains of the Lyme bacteria than we have in the US-- so the tests should reflect that if measuring antibodies to the Lyme bacteria, as with IgeneX.
With the Bowen test one looks directly at parts of the protein wall (antigens) of the bacteria that are common to all strains so there is no variability to worry about.
It is a false statement that the Bowen test is always positive. It isn't.
Your test results from Bowen are given in the range below. If you test 1:128, then even when your blood is diluted a great deal, the Lyme bacteria can be identified.
As you move to the left in the range of possible results, the Lyme bacteria can only be found in lesser dilutions, so you have fewer Lyme bacteria in your blood.
Direct Specific Fluorescent Antibody Method Quantitative Rapid Identification of Borrelia burgdorferi (Q-RIBb)*
(Lowest) Range: (None found -----1:2---------1:4--------
-1:8---------1:16---------1:32---------1:64-------- 1:128) (Highest)
For example in successive tests my results moved from 1:64 to 1:8. At that level I am symptom free, but of course treatment will continue until my results are 1:2 or none found.
Hope that helps.
Blue Skies..................John
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Post by betsy on Sept 12, 2006 1:20:45 GMT -5
John, You said you are close to being symptom free (Lyme test results)-- correct? My question --Did you take antibiotics? If so, which ones and how long? This is probably repetition for some but new to me. Thanks Betsy
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Post by jwf on Sept 12, 2006 15:25:14 GMT -5
Hi Betsy, My wife and I both are symptom free from Morgellons and Lyme disease. We both took a 30/day supply of doxycycline low dose. That probably didn't do much for us and didn't feel like it did. Our symptoms for both conditions only began to improve with the herbal supplements that we started 1 1/2 years after getting Lyme and about 1 year after the Morgellons symptoms started.
The Herbal Treatment thread in the General Health section gives most of the details about supplements and other aids.
We will probably wait until March '07 to test with IgeneX and Bowen again.
Blue Skies...............John
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