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Post by lilsissy on Jan 28, 2010 20:55:08 GMT -5
Those are some really heavy decisions glen , the same ones Karen is facing and asking me to help give her data on.
I have been researching data on the effectiveness of chemo and I must say I am not at all empressed with chemo results. It stops cells from dividing . I have found some interesting articles on this I will send you but I am just starting to try to weight both sides of the chemo issue.
I suggest you really look at chemo results for your types of cancer , the pro and the con . I also have read of some other agents that show promise. I will send you the articles as they are numerous and I do not want to post them all here.
It is a lot of research but so much depends on it that it is so worth it .
Jen
Have you considered having tests run on your specific cancer to see what it responds to the most .
When I find that article I will send it to you.
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Post by mfromcanada on Jan 28, 2010 20:59:25 GMT -5
I think there is a survey out there and most doctors would not undergo chemo. Its not their life though and its your decision. I would check out Pool Shock (MMS 2) or antibiotics as some believe cancer is a form of bacteria.
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Post by lilsissy on Jan 29, 2010 1:04:33 GMT -5
Does he believe you still have both types?
from your post, The cancer was diagnosed from the tissue of the enlarged lymph node that was removed from my groin area.
After looking at the initial path report my oncologist said I appear to have two types of Lymphoma, Non Hodgkins b cell lymphoma and follicular lymphoma.
The NHL type has a cure rate of about 60%, meaning that after chemo therapy about 60% are still alive after 5 years and in remission. The Follicular Lymphoma does not really have a cure, but it can be slowed down with chemo. The Follicular type is slow growing so a person could have it for years before having problems. The NHL type is considered to be aggressive and fast growing.
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Post by glennb on Jan 31, 2010 1:39:59 GMT -5
Yes he still believes I have both NHL and follicular lymphoma based on the pathology reports from the excised lymph node.
One thing I am finding confusing about cancer cure rates is that a 60% cure rate is claimed for using R-CHOP against NHL.
Two recent trials supervised by the FDA at Dr Burzinski's clinic claim a 62% cure rate using the angioplastin treatment. When I questioned one of their counselors about what this meant exactly he replied that in 25% the tumors had shrunk and an additional percentage had complete remission.
I don't think there are statistics on the five year cure rate at the Burzinski Clinic for this type of cancer as the two clinical trials were completed just last year.
I am wondering how to do a fair comparison in the cure rates for the chemo vs the Burzinski method.
I am not sure if the five year cure rate for chemo means complete remision, partial remmision,no progression of disease or that 60% of those who endured this treatment are still alive (which could mean anything from still just barely breathing and at death's door to fully recovered)
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Post by bannanny on Jan 31, 2010 17:19:47 GMT -5
I sure don't know anything about it glennb, but I'm praying for you everyday and for God to shine his light for your docs to find a way to the path that will give you complete remission. I wish I could do more for you sweetie... but God is good and I know He's listening.
Hang in there and stay strong. We're here for you...
I love you ~~ bannanny
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Post by glennb on Feb 2, 2010 23:14:40 GMT -5
Thank you for your prayers.
I had been dreading today. I had my appointment to have bone marrow removed as well as a piece of bone and I truly was not looking forward to it.
I have heard that this procedure can be so painful and I am no stoic.
I said a prayer as I lay on the examining table waiting for the needle insertion. I prayed that the procedure would not be too painful and that the doctor would be able to extract the marrow. The doctor had told me previously that he thought I was a difficult candidate for bone marrow extraction and that he might not be able to get any. He said that if he didn't get any marrow after the first few tries he would stop as he did not want to torture me.
Much to my surprise it was not painful at all. Everything went smoothly and the doc got the samples on the first try. My prayer was answered.
I was given Versed (similar in effect to valium) right before the procedure and that helped relax me. Will post path. results as soon as I get them
In two days I go in for my second echocardiogram.. This should tell if I still have that 3 cm lump above my left lung. This lump did not show up in the cancer scan so it must be something else. Perhaps a parasitic cyst or a fungal ball, probably related to Morgellons.
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Post by mfromcanada on Feb 2, 2010 23:40:12 GMT -5
I am really glad to hear that the procedure went well, glennb.
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Post by Sidney on Feb 3, 2010 0:37:47 GMT -5
Thank you for your prayers. I had been dreading today. I had my appointment to have bone marrow removed as well as a piece of bone and I truly was not looking forward to it. I have heard that this procedure can be so painful and I am no stoic. I said a prayer as I lay on the examining table waiting for the needle insertion. I prayed that the procedure would not be too painful and that the doctor would be able to extract the marrow. The doctor had told me previously that he thought I was a difficult candidate for bone marrow extraction and that he might not be able to get any. He said that if he didn't get any marrow after the first few tries he would stop as he did not want to torture me. Much to my surprise it was not painful at all. Everything went smoothly and the doc got the samples on the first try. My prayer was answered. I was given Versed (similar in effect to valium) right before the procedure and that helped relax me. Will post path. results as soon as I get them In two days I go in for my second echocardiogram.. This should tell if I still have that 3 cm lump above my left lung. This lump did not show up in the cancer scan so it must be something else. Perhaps a parasitic cyst or a fungal ball, probably related to Morgellons. How you must have dreaded that procedure. It makes me cringe just thinking of extracting bone marrow. You are very fortunate as you know and I'm so thankful that it wasn't a horrible procedure for you. The son of a lifelong friend of mine was diagnosed with NHL when he was only about 27 years old. It was a very scary time for all, and now he's 40 years old and totally cancer free. My husband has beaten cancer twice. First a parotid gland then prostate cancer. He had lots of radiation, but no chemo. When you get these next results you and your doctor will have a better idea of the options available to you. We will be praying for you, Glenn. Hang in there and know we are here for you.
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Post by bannanny on Feb 4, 2010 23:33:30 GMT -5
YES!!! I don't know how I missed what you said on page 3 about no more tumors being found glenn, but I did. I started reading on that page tonight cuz that's where I thought I'd left off before... and I was so happy to read what I'd missed!
You know more than I do about chemo tho sweetie, but if you feel you don't need to go there, I'm behind you all the way. Ask God to tell you what to do. If you believe He hears you, you'll hear Him answer you too. It'll just come to you by that inner voice we all have and you'll know it's right. That's how it happens for me when I open up to my faith anyway... which (having complete faith) is harder to do than I ever thought. But it works if we just believe He CAN give what we're asking Him for... I think that's when miracles happen too. In fact, I'm beginning to think faith is the miracle itself. It sounds like yours is pretty strong glenn... it was strong when you prayed before the bone marrow procedure! I just love it when stuff like that happens...
and I love you too ~~ bannanny
P.S. I hate to have to say this, but I can't read anything that's ever printed in red here on the board. I don't know why, but I have to squint (even with my readers on) and then get to an exact distance from the screen to be able to make it out... and even then it's not what you'd call clear. Don't want to say stop printing in red, just lettin you know I may not be able to read it!
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Post by friskers on Feb 5, 2010 13:43:20 GMT -5
Glen that is great you didnt have to suffer !!! The power of prayer and a skilled doctor working together ! Bannana.........highlight the red as if copy and paste and you will see it clearly,I cant read red either .........its all a blur!
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Post by bannanny on Feb 7, 2010 1:58:58 GMT -5
Well how cool is that? Thanks freakerdeeks... red problem solved! Did you take some smart pills or somethin? Can you send me some if you did?
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Post by glennb on Feb 11, 2010 20:44:51 GMT -5
Oh Joy! I just got a call from my oncologist regarding the results of my bone marrow and bone biopsy and both samples came back completely free of cancer!
This does not necessarily mean I am completely free of cancer, it is just not as advanced. My diagnosis is now stage one mixed Lymphoma (b cell NHL & follicular)_
After giving me the good news my oncologist asked me if I still planned on starting my chemo next week. There was a trace of hesitation in his voice and under the circumstances I am hoping he will support my decision not to go through with chemo at this time but to do other less invasive treatments, keep an eye on things and reconsider the chemo later if necessary.
I told him I would talk to him tomorrow afternoon when I am feeling less scatter brained as I do have a lot of questions for him.
Thank you to everyone who has been praying for me. Without my own prayers and the prayers of others I think my test results could have been quite different.
I am continuing to pray for others on the board who are not doing well and will be happy to include anyone else in my prayers if they like.
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Post by lilsissy on Feb 11, 2010 21:41:47 GMT -5
I am so happy for you , yes prayer is the most powerful. It kind of works like this I think. BUT BETTER www.witricity.com/Jen
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Post by friskers on Feb 13, 2010 1:58:57 GMT -5
So glad to hear that Glen, this is positive news! I will still be praying for your complete recovery
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Post by mfromcanada on Feb 13, 2010 13:23:58 GMT -5
happy to hear the good news glennb. In 1973, shorty after I married at age 19, husband age 21, he got hodgkins disease. He had a walnut sized tumour growing right on his spinal cord and one on his neck. He had 6 months of radiation and 6 months of chemotherapy. He is still alive today. Based upon his results if I got cancer I would consider chemotherapy.
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Post by bannanny on Feb 13, 2010 16:20:43 GMT -5
Well praise the good Lord above! That's the best news ever glenn! You're right too, prayer works... all we have to do is believe it does and bingo, He's right there. Even if we don't get the answers we're looking for at that very moment, He's still there. I'm really happy for you and I know you're being led in the right direction!
love you ~~ bannanny
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Post by glennb on Feb 13, 2010 23:16:01 GMT -5
mfrom canada,
maybe I should be doing chemo. I have to admit I am a bit terrified of the chemo as I have read so much negative press about it. Plus I am already suffering from severe chronic fatigue. I am afraid the addition of the chemo would turn me into pretty much of a corpse. Plus I already have congestive heart failure and left bundle branch block. There is a risk for heart damage with the chemo. I could end up needing a heart transplant.
Plus my kidney function is not perfect and I wonder if my kidneys would be damaged. And then I recently read the results of study that concluded a certain about of intellectual function is lost and never regained after one undergoes chemo.
I am reading about other therapies that seem very promising, DCA for one, also Dr. Burzinski's non-toxic gene treatment. Based on two clinical trials this therapy is just as effective as chemo, if I am understanding the results correctly.
Well these are all concerns I need to discuss with my doctor.
I have no tumors currently and nothing showing the cancer has spread so I am a little reluctant to do the chemo....maybe this is wishful thinking but perhaps I could fight this with less severe therapies and reconsider later if the cancer comes back.
Honestly, when it comes to the chemo I feel damned if I do and damned if I don't.
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Post by lilsissy on Feb 15, 2010 2:08:46 GMT -5
Yes, glen Chemo is pretty rough,
have you heard of serrapeptase. It helps with the heart as well as Cancer.
Jen
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Post by lilsissy on Feb 15, 2010 2:11:42 GMT -5
OH MY LOOK AT THIS FROM THE LINK AT THE TOP OF LYMEBUSTERS, YOU KNOW THE ADVERTIZEMENTS THT FLASH AT THE TOP MONSANTO ATTORNEYS THAT FIGHT MONSANTO THEY COME RIGHT OUT TO YOUR HOUSE , WHAT? IS THIS REAL? www.nonhodgkinslymphomalawsuit.com/lp/?utm_source=adwords&utm_medium=cpc&utm_content=nhl_newset&utm_campaign=lymphomaToday, Monsanto is an international agriculture and biotechnology corporation, with a workforce of approximately 22,000. Monsanto is also one of the most controversial corporations in the world, due to its production of genetically engineered seeds, rBGH (bovine growth hormone), and the company’s highly litigious nature. FROM THEIR LINK Monsanto is also responsible for manufacturing and selling Aroclors – a trade name for polychlorinated biphenyls, or PCBs, which recent studies show can cause non-Hodgkin’s lymphoma. For more information about PCBs and cancer, call 800-401-7497 today.
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Post by lilsissy on Feb 15, 2010 15:17:39 GMT -5
bump,
Jen
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