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Post by mfromcanada on Feb 15, 2010 16:11:06 GMT -5
glennb, Have you looked into swimming pool shock or miracle mineral supplement 2. Perhaps it would be safer than chemo.
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Post by glennb on Feb 15, 2010 19:35:39 GMT -5
I have joined this lawsuit against Monsanto as I was exposed to pcbs many years ago when an old transformer on a fluorescent light exploded in my basement sending droplets of pcb contaminated oil everywhere. I had to call the fire dept. as the smoke was really bad.
At the time I didn't know about pcbs. I broke out afterwards in a rash that is typical for pcb exposure.
Two other individuals that were here at the time of this accident passed away some years ago.
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Post by lilsissy on Feb 15, 2010 22:44:39 GMT -5
glen,
You are aware of Cliff Caricorns work right. Maybe you could talk to this lawyer abour checking your blood work to see if they get he same results as Cliff.
I bet they would be interested.
Jen
Do they know about Morgellons and did they single us out as a group to advertize to?
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Post by ibzahp on Feb 16, 2010 14:16:12 GMT -5
Jen I wondered about the same thing. Are these lawers ones that may be sensitive to our cause. I am so sorry Glen, that you are going through this. I really hope that you are feeling better soon. I wish that so many of us were not going through this. Do you feel like you have a solid specialist?
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Post by justhanginin on Feb 17, 2010 12:24:19 GMT -5
Sounds like good news all around Glennb. Glad you got a doc that knew what he or she was doing on the bone marrow extraction. Since the cancer didn't show up anywhere else, maybe just dietary modifications will keep it at bay. Why mess with chemo especially with what knocking down your immune system could do with the Morgs symptoms.
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Post by bannanny on Feb 17, 2010 17:44:08 GMT -5
There's another friend of ours on the board here who has cancer but didn't want it to be known. Actually, this person's in remission now and swears by the Budwig Protocol for fighting cancer. I couldn't find the file, but just google any part of this...
Healing Cancer Naturally Authentic Information On Dr. Johanna Budwig's Diet & Healing Protocol Based On Her Original German Works.htm
...and you should be able to find it easily. Just thought it might be something you'll find may help you and for you not to have to go the chemo route. Let Karen know about this too sissy!
hugs ~~ bannanny
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Post by lilsissy on Feb 17, 2010 18:16:23 GMT -5
done, Jennifer
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Post by bannanny on Feb 17, 2010 18:59:25 GMT -5
Good!
me
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Post by glennb on Feb 17, 2010 19:47:00 GMT -5
Thanks for the info Bannanny
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Post by bannanny on Feb 18, 2010 20:05:46 GMT -5
You're more than welcome glenn!
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Post by glennb on Apr 1, 2010 20:02:12 GMT -5
RE my NHL & Follicular Lymphoma cancer: I started the DCA/caffeine/Vit B1 treatment 3 days ago. I started on a low dose. 10 mg/kilogram of body weight. I take it in the morning. 480 mg of caffeine is recommended and Black Tea is recommended over coffee as it is less acid forming.
One man who beat his NHL using this protocol drank 8 cups of tea a day (used double tea bags for each cup). I am having trouble drinking this much tea. My only problem so far is insomnia at night. Good results with this protocol happen fairly quickly, some reporting positive results in as little as 4 days!
I am continuing to take Essiac tea twice a day. Have also added Vit B17 (Laetrile) with emulsified Vit A, modified citrus pectin and have upped my antioxident supplementation.
I am also taking more magnesium and Omega three oils although I am no longer using fish oil because of the possible problem with heavy metal (mercury in particular) contamination.
Additionally I am making a serious attempt to try and increase the alkalinity of my body . Plan on going to the pharmacy later today and picking up the Ph test strips so I can test my saliva.
I read that people with cancer tend to have saliva that tests in the 4 range while those who are healthy have saliva that tests in the 7 range. This high acid saliva may explain why so many of us Morgies have lost numerous teeth.
My teeth just seemed to disintegrate. So far I have lost 5 teeth with a 6th tooth so damaged it needs to be pulled.
I fill a one quart glass bottle with spring water and add a teas. of baking soda. I try to drink most of this every day, especially after eating something that is acid forming (like choc or meat, sugar, white flour, etc). I have changed my diet to include more vegies but am still eating foods that are said to be acid causing. I don't have the moral fortitude to give up all my vices at once.
The only thing about the baking soda water is that it is probably not a good idea to drink it with meals or right after eating as the stomach needs an acid environment to properly digest food. As we get old stomach acid tends to decline so I have also been taking hydrochloric acid supplements (purchased from Hulda Clarke). Keeping one's stomach acid at the right level is also said to be protective against parasites as a good level of acid in the stomach will kill them whereas they tend to multiple and thrive in the gut when stomach acid is too low.
I have started drinking Kombuchu and have fallen in love with the stuff. It helps alkanalize the body and contains cancer fighting substances. It is effervescent like fine champagne slsightly sweet and only 30 calories a serving. I have come to prefer it over the stuff I used to drink (rootbeer, sprite, coke)
Only thing is at 3.00 a bottle (and I like to drink 2 bottles a day) it has become too expensive so I am going to make my own at home. I found someone on craigs list who is giving away the Kombu babies. The process from start to finished product takes about 30 days so it will take a while to gear up and make enough to satisfy my habit. I will save about 200.00 a month making my own.
At long last I have secured an appointment with a world renowned Lymphoma expert. His secretary finally called me earlier this week to offer me the "opportunity" of an appointment in mid April. His holiness did an extensive review of my case before deciding whether or not I was appointment worthy. I am delighted he has deigned to meet with me.
Upon meeting him for the first time I am not sure if I should prostrate myself in gratitude, genuflect or just kiss the hem of his trousers. Possibly all three.
I am very interested to hear what he has to say about my not doing chemo and instead using DCA, Essiac and Laetrile.
I will post a full report after
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Post by ctbarb on Apr 1, 2010 20:29:57 GMT -5
Dear Glenn, Very informative post. My advice for your meeting with his holiness...just kiss his ring and bring a white dove! Love, Barb
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Post by lilsissy on Apr 2, 2010 13:46:03 GMT -5
glen,' you said Additionally I am making a serious attempt to try and increase the alkalinity of my body . Plan on going to the pharmacy later today and picking up the Ph test strips so I can test my saliva.
The test strips also helps to test for tumor lysis syndrome.
Jen
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Post by bannanny on Apr 2, 2010 18:05:59 GMT -5
You go glenn!! You sound so positive... which I gotta say I admire so very much! Hope you and your new doc will hit it off the second you meet. Just be your loving, kind and caring self and that should happen! Wishing you the best of luck and still have you in my prayers!
big hugs ~~ bannanny
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Post by glennb on Apr 4, 2010 1:09:56 GMT -5
Thank you barb ,lilsissy & bannanny.
I am very happy to know the test strips will help to test for tumor lysis syndrome. Do you know what it is I should be looking for?
I am a bit concerned about this as lymphoma is one of the cancers that is known to have a higher rate of tumor lysis syndrome.
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Post by bannanny on Apr 4, 2010 18:45:26 GMT -5
You got me glenn! I don't know anything about that stuff... hopefully someone else here will know what to tell you. Hope you're feeling better sweetie... always praying for you!
big hugs ~~ bannannas
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Post by lilsissy on Apr 4, 2010 23:09:01 GMT -5
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vasue
Junior Member
Posts: 63
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Post by vasue on Apr 5, 2010 11:26:58 GMT -5
The amount of Essiac for serious conditions is generally considered 4 doses a day. Each dose consists of 2 ounces of refrigerated tea mixed with 2 ounces of warm water on an empty stomach, taken 10-20 minutes before a meal. (A 2 ounce shotglass makes an easy liquid measure.)
Perhaps you are currently working your way up to that amount?
When I was first affected by Morgellons, began the stovetop-brewed tea & hit four doses a day within 10 days - before each meal & again before a light bedtime snack. Kept it up for 5 months - 2 months past active symptoms - and then dropped back to 3 times a day. Still take it at that level for the detoxing & supportive benefits.
One to two doses a day is considered maintenance level.
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Post by glennb on Apr 24, 2010 19:47:02 GMT -5
Thank you for the info vasue. My problem is there have been no times in recent history when my stomach has been empty four times a day. I have been taking a dose when I wake up in the morning and the first time I wake up to pee at night.
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Post by glennb on Apr 24, 2010 20:07:53 GMT -5
I finally had my appointment with the Lymphoma specialist day before yesterday. Since my last scans were 3 months ago he scheduled me to be scanned again yesterday. I had a full body spect or pet scan in nuclear medicine. Bad news was that they could not give me the contrast dye because my creatine level was too high. They did shoot me full of radioactive glucose. The whole procedure took over 4 hours.
I am not completely impresssed with the lymphoma specialist . Right off the bat he told me I needed to do the chemo or I would die. When I mentioned DCA he said none of that stuff would cure this cancer. Then I mentioned that clinical trials were starting right at the medical center he works in using DCA for breast cancer. After I mentioned this he asked me what DCA stood for!
So I am sending him info on DCA and all the success tories with various types of cancer, even after Chemo had completely failed, including several people with my type of cancer that Chemo did not cure long term but were cured by the DCA protocol.
Hopefully he will have a more open mind about my not wanting to do chemo and to try DCA and other methods to treat this cancer.
I don't even want to tell my family what the doctor said. They will be all over me to start chemo immediately.
I have a very bad feeling about the chemo. The Dr. said there is a 50% cure rate. Considering that there is only a 50% chance it will work and even if it does I will pay the price of having my body and brain damaged by chemo and will probably fill sick and miserable for the next 8 months....My kidney function is already declining. I am wondering what all the super toxic stuff in chemo will do to my kidneys and my already damaged heart(Congestive Heart Failure) and lungs. As it is my chronic fatigue is so severe if the chemo makes me feel even more tired and sick I simply won't be functioning very much for the next 7-8 months Whatever amount of life that I have left quality of that life is very important to me..
I am thinking that if anything is going to kill me it will probably be Morgellons. I suspect the chemo could leave me worse off than I am now.
I should have the results of my scan in the next couple of days.
Both the doctor and nurse were quite shocked when they realized I had not already had chemo.
Maybe I am just being stupid and am in denial. I just have a really bad feeling about the chemo, I dread doing it.
I am continuing on with the DCA/caffeine/b1, occasional Laetrile (take it too often and I feel sick)< Rife therapy, Essiac tea, Modified Citrus Pectin and a good supplement & antioxident program plus more healthful eating. (Still could improve my eating). My worst symptoms from what I am using are numbness and tingling in my fingers (more B1 should help that) and insomnia. I have been having a very hard time falling asleep , then when I do I have nightmares and panic attacks. I got a prescription for Ativan and that is helping. I had my first good night of sleep in two weeks last night.
Well, I am anxious to know if this latest scan will show any tumor development. Will keep the board posted.
Thank you for your love and support.
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