kitkat
Full Member
Together we stand...Divided we fall
Posts: 176
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Post by kitkat on Oct 22, 2010 23:59:53 GMT -5
I want to say goodbye to all my morgy friends on here that did nothing but offer me open arms, advice and much needed support for me, a possible newbie morgy. I'm leaving the forum, because I don't feel comfortable with the administrator of this forum constantly correcting my posts as if I have some hidden agenda behind them. There's always gotta be one bad apple in the bunch, doesn't there??? It's a shame. I want the same thing you all want... Answers. I have been forthcoming in all that I have written with the intent to find the truth to this madness and I have certainly learned allot. I will continue to search for the answers and a possible solution to this problem. If anyone is interested in taking this further than this forum, please let me know. I don't feel in my heart that I have written anything that has offended anyone, but if I did I am truly sorry, as it was never intentional. I feel it necessary to share with you the reason I am leaving. You may or may not be able to read it below before it will almost assuredly disappear tonight or tomorrow lol. Again, thanks all for your support. Good luck and Best wishes. My heart is with you. Perhaps I will see you on other forums, chat with you on personal email, or maybe even start a forum of my own. Thanks, Kat Please read below: Re: Completely Outrageous Guns drawn over milk! « Reply #53 Today at 10:39pm » -------------------------------------------------------------------------------- JJ, I don't appreciate the "warning" of getting kicked off a board in which I have openly expressed my views without offending anyone in the process. I instead choose to leave on my own recognizances. It has become clear to me that certain administrators of this board may be CDC biased, and get ever increasingly offended and defensive when the CDC's failure to handle this disease in the manner that it should be... is brought up. I have been warned???.... LOL I choose to leave. How about that??? I don't need to be corrected by you JJ every time you think I have some "hidden agenda". I think I have been very open on this site and have been secretive about nothing. It is very clear to me, and I'm sure a few others on the board that you, JJ, are very CDC biased, and therefore I no longer wish to engage in this forum since I cannot speak openly about the truth. I can only assume at this point that this forum serves no purpose other than to monitor the inflicted of this disease, their thoughts, their anecdotes, and their plans on it etc... And to keep quiet the CDC's obvious cover up of this terrible disease. I enjoyed very much the friends that I have made on this forum, and the helpfulness you have all given me. I will always remember the wealth of information, and your loving open arms as I am a new comber to this disease. I will miss you all. Feel free to email me at my private email. The private message I received from JJ today below: Kitkat
Interesting following your evolution on this board. I just don't miss much.
Quote: Funny, I just opened a dove chocolate and the message inside is "When you can't control the wind, adjust your sails"
Do not attempt to control the direction of this forum with your extreme bias or your sails will be adjusted back to where they came from.
You have been given a warning here in private that is viewable by you and admins only. My response to JJ's private message: JJ, I was simply implying that since the CDC is not helping us that we have to help ourselves.
I don't know what your problem is with me. I have never been anything but interested in finding out information about this disease.
It has been discussed by some, that you favor the CDC, and become irate when someone speaks against them. This is not just my opinion, but the opinion of others I have spoken to privately on my own private email.
I'm sorry that my little chocolate quote offended you. It seems that it doesn't take much.
If you don't want me here any longer, then just say the word. I don't believe I have done anything to get kicked off the board, but if you are CDC biased, then I don't want to be here anyway.
I want the chance to speak my mind just as others do without being corrected constantly. I also don't feel that I have treated anyone with any disrespect.
If this is the way that you run your forum, then perhaps I will start one of my own in which people are allowed to speak their minds as long as they are not offending anyone.
Thanks, Kat Goodbye all, and good luck. Please keep in touch if you can P.S. My WARNING of JJ being completely CDC biased? 100%
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Post by jj on Oct 23, 2010 8:58:42 GMT -5
I want to say goodbye to all my morgy friends on here that did nothing but offer me open arms, advice and much needed support for me, a possible newbie morgy. I'm leaving the forum, because I don't feel comfortable with the administrator of this forum constantly correcting my posts as if I have some hidden agenda behind them. There's always gotta be one bad apple in the bunch, doesn't there??? It's a shame. I want the same thing you all want... Answers. I have been forthcoming in all that I have written with the intent to find the truth to this madness and I have certainly learned allot. I will continue to search for the answers and a possible solution to this problem. If anyone is interested in taking this further than this forum, please let me know. I don't feel in my heart that I have written anything that has offended anyone, but if I did I am truly sorry, as it was never intentional. I feel it necessary to share with you the reason I am leaving. You may or may not be able to read it below before it will almost assuredly disappear tonight or tomorrow lol. Again, thanks all for your support. Good luck and Best wishes. My heart is with you. Perhaps I will see you on other forums, chat with you on personal email, or maybe even start a forum of my own. Thanks, Kat Please read below: Re: Completely Outrageous Guns drawn over milk! « Reply #53 Today at 10:39pm » -------------------------------------------------------------------------------- JJ, I don't appreciate the "warning" of getting kicked off a board in which I have openly expressed my views without offending anyone in the process. I instead choose to leave on my own recognizances. It has become clear to me that certain administrators of this board may be CDC biased, and get ever increasingly offended and defensive when the CDC's failure to handle this disease in the manner that it should be... is brought up. I have been warned???.... LOL I choose to leave. How about that??? I don't need to be corrected by you JJ every time you think I have some "hidden agenda". I think I have been very open on this site and have been secretive about nothing. It is very clear to me, and I'm sure a few others on the board that you, JJ, are very CDC biased, and therefore I no longer wish to engage in this forum since I cannot speak openly about the truth. I can only assume at this point that this forum serves no purpose other than to monitor the inflicted of this disease, their thoughts, their anecdotes, and their plans on it etc... And to keep quiet the CDC's obvious cover up of this terrible disease. I enjoyed very much the friends that I have made on this forum, and the helpfulness you have all given me. I will always remember the wealth of information, and your loving open arms as I am a new comber to this disease. I will miss you all. Feel free to email me at my private email. The private message I received from JJ today below: Kitkat
Interesting following your evolution on this board. I just don't miss much.
Quote: Funny, I just opened a dove chocolate and the message inside is "When you can't control the wind, adjust your sails"
Do not attempt to control the direction of this forum with your extreme bias or your sails will be adjusted back to where they came from.
You have been given a warning here in private that is viewable by you and admins only. My response to JJ's private message: JJ, I was simply implying that since the CDC is not helping us that we have to help ourselves.
I don't know what your problem is with me. I have never been anything but interested in finding out information about this disease.
It has been discussed by some, that you favor the CDC, and become irate when someone speaks against them. This is not just my opinion, but the opinion of others I have spoken to privately on my own private email.
I'm sorry that my little chocolate quote offended you. It seems that it doesn't take much.
If you don't want me here any longer, then just say the word. I don't believe I have done anything to get kicked off the board, but if you are CDC biased, then I don't want to be here anyway.
I want the chance to speak my mind just as others do without being corrected constantly. I also don't feel that I have treated anyone with any disrespect.
If this is the way that you run your forum, then perhaps I will start one of my own in which people are allowed to speak their minds as long as they are not offending anyone.
Thanks, Kat Goodbye all, and good luck. Please keep in touch if you can P.S. My WARNING of JJ being completely CDC biased? 100%KitKat, I hope you can find a place where you feel comfortable and can speak your mind unhindered. It's unfortunate you felt "corrected". Starting your own board might be the best situation for you or maybe you could find a place where other like minded individuals can gather and revolt against whatever you choose. What you have concluded about me is incorrect and I won't have you misrepresenting me or this board. That said, I'm not the least bit surprised you concluded what you have regarding what I share here when the CDC is discussed. All in a position such as mine have been accused of being part of a coverup because they dare to oppose another. To say that I become "increasing offended" or "irate" when others have views they think differ from mine couldn't be further from the truth. No one on this board has seen nor heard me become irate and certainly not in reference to discussions about the CDC. There is no doubt I do participate in discussions about the CDC and bring different views to the table. If anyone feels I am being overly defensive, biased or irate because I do ................. you need to RETHINK your position. KitKat you said the CDC participated in an action that they did not and clearly you did not like being corrected. When someone takes a stand about anything and without question they are incorrect someone in the very least should bring another view to the table. If you don't like the "feeling" of being corrected then it's something you need to work through. If anyone makes a habit of making misleading statements here and come back with a screw this board and its administrators attitude *they will be warned* in the very least. If they choose to come back in this manner it will be further addressed.
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Post by friskers on Oct 23, 2010 12:10:32 GMT -5
I just breifly skimmed this post . My concentration isnt so good these days .I dont like to get involved in peoples disagreements anyway. JJ I have found over the years has been a most tolerant administrator and you can work this out if you choose to . I will say im sorry there was a conflict and your leaving Kitkat and wish you luck . making public private PM's however is just not cool . Everyone should know this! Good luck
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Post by bannanny on Oct 23, 2010 13:43:19 GMT -5
As I said in my new thread... I want to be able to speak what I feel about the CDC as well. I want to know that I can without being warned not to... and that's why I posted what I did.
I simply don't see anything wrong at all in what kat said... and what others have said about the CDC. So why the problem? I just don't understand.
You've been an asset to this board IMO kitkat... and I'm sorry to see you leave. However I do think you and JJ can work this out. So please try to discuss this between yourselves and please try to come to an agreement. Too many people have left this board for this very reason and I'm gettin tired of it.
I hope you decide to stay and you and JJ can work this out kat... it IS possible and you've become very well liked here.
big hugs ~~ bannanny
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Post by jj on Oct 23, 2010 14:02:10 GMT -5
As I said in my new thread... I want to be able to speak what I feel about the CDC as well. I want to know that I can without being warned not to... and that's why I posted what I did. I simply don't see anything wrong at all in what kat said... and what others have said about the CDC. So why the problem? I just don't understand. You've been an asset to this board IMO kitkat... and I'm sorry to see you leave. However I do think you and JJ can work this out. So please try to discuss this between yourselves and please try to come to an agreement. Too many people have left this board for this very reason and I'm gettin tired of it. I hope you decide to stay and you and JJ can work this out kat... it IS possible and you've become very well liked here. big hugs ~~ bannanny Bananny Correct, you don't understand. That is part of the problem. NOONE has ever been banned here because of the way they spoke about the CDC ever. Do you understand? NEVER! They may think that is the case but it's not. Ya'll are making something out of this it is not without being able to see the whole picture. There IS a bigger picture you just can't see it. If this makes ya'll feel like your doing something productive and supportive have at it. I'm used to it. JJ
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Post by bannanny on Oct 23, 2010 14:33:42 GMT -5
Tell me what the bigger picture is then JJ... I'm always open to sorting things out. I'm NOT attacking you either... but I've read with my own 2 eyes things that've been said to people for making certain remarks about the CDC for a long time now. I've seen threads blocked becuz of it too... so what is it I'm not understanding about the subject? Please help me understand...
hugs ~~ bannanny
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Post by toni on Oct 23, 2010 14:40:35 GMT -5
I just breifly skimmed this post . My concentration isnt so good these days .I dont like to get involved in peoples disagreements anyway. JJ I have found over the years has been a most tolerant administrator and you can work this out if you choose to . I will say im sorry there was a conflict and your leaving Kitkat and wish you luck . making public private PM's however is just not cool . Everyone should know this! Good luck I sure agree 100% Friskers with your post. I believe too, what we "see" here on the board, isn't always everything of what's going on behind closed doors. There IS more than meets the eye here happening. And I know we've ALL talked about CDC too here many many times, "good, bad and ugly" about them, and that is not the reason for all this. And also something I'd like to add, for whatever it's worth. Anyone (DELIBERATELY posting PM's on the board without permission) imho - should be INSTANTLY banned.
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Post by bannanny on Oct 23, 2010 14:56:45 GMT -5
Totally disagree with that toni... that someone should be instantly banned for posting a PM. NOT when it pertains to a reason you're trying to explain for why you've been given a warning that you could be banned. And a warning I might add that was uncalled for in this situation. I do however feel that most PM's should be kept where they belong... in a private manner. But not this one... cuz IMO, it wasn't just. Kat's new here and simply trying to understand like we've all done... it really irks me that she's being treated like this for a simple silly chocolate quote. She wasn't trying to control the direction of this forum for pete's sake... she was referring to the CDC, and that's all.
I may be getting myself in trouble here, but I just don't think she deserved any of that. I'll stop now... and if you feel I've taken it too far JJ then I'm open for discussion, or not.
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Post by fritolay66 on Oct 23, 2010 15:03:40 GMT -5
I value this board and its members. There are many things I haven't done due to that consideration. And in that light, I must comment.
I have seen the previous threads concerning the CDC. And although I have not been a member as long as some of you, this is what I have seen.
When the difference of ideology concerning the CDC is expressed, the other viewpoint brought to the table, the person bringing the other viewpoint, the opposing viewpoint is attacked on a personal level by the original poster. It usually is twisted to where the attacker tries to invoke the exact same thing occuring now.
JJ's views may differ, but KitKat has changed the premise. And here we are again. Same thing in the past that I have seen as well. Think for one moment please.
This is not about the CDC. This is on a personal level brought about by KitKat. And the fact that sharing of private emails only strengthens my own opinions and the only function of doing such a thing, is to discredit and cause strife where it should not exist. When we share opposing viewpoints here, its function is to see both sides of the coin. It is not a personal agenda and it should not be on this personal of a level. period.
KitKat, please examine exactly what it is that you would really like to accomplish. To be part of the problem, or part of the solution. Your lack of respect is quite perplexing, and your actions further confuse the issue.
Good bye and good luck.
Frito
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Post by rhorn2006 on Oct 23, 2010 16:28:47 GMT -5
"Kitkat
Interesting following your evolution on this board. I just don't miss much.
Quote: Funny, I just opened a dove chocolate and the message inside is "When you can't control the wind, adjust your sails"
Do not attempt to control the direction of this forum with your extreme bias or your sails will be adjusted back to where they came from.
You have been given a warning here in private that is viewable by you and admins only."
>>>>>>>>>>>>>>>>>>>>>>>>>>>>>
Wow!! The comment JJ quoted that "apparently" fueled a "ban warning notice" to Kat,, was directed to me "only"... As the thread clearly showed, Kat and I were posting back and forth to each other.. The "dove chocolate" thing was in response to my posting to her, telling her "try and clear her mind of all this government agenda stuff,, before it ends up consuming your mind completely"... She was only remarking "to me" about a quirky happenstance that coincided to what I was saying to her.. How would that "in any way" prompt such a stern "ban warning notice" to her?? Did that violate some kind of board rule that I, and no one else, is aware of??
I personally feel that "member to member" private messages, should "never" be posted in the open forums "for any reason" without the permission of the person who wrote the PM. But, I do think that "ban warnings" are an exception "if there wrongly given, based only upon a MOD's personal opinion, not in violation of any known board rules. We, the members, have the right and the need, to know what will prompt a "ban warning notice" based upon a MOD's personal opinion, not upon the stated board rules.. I have read all of KITKAT's posts and responded to many of them. She has a strong opinion about a lot of controversial issues and freely states them, but unless "I have missed it" she has never aggressively attacked another member for there views, even when they differ from her own.
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Post by ed on Oct 23, 2010 17:17:03 GMT -5
ah........from the rules:
Much time and effort is put into this forum so we can help as many as possible. We appreciate and enjoy the membership here but the fact remains that we are moderating it and when we do something, it's for good reason. You may not agree and most likely you don't have all the facts, but it's still our right as Moderators to act on disturbing situations as we see fit. Please know that as of this date, we have not banned anyone without good reason.
..................Ed
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shaun
Junior Member
The white horse rider goes out to battle against the forces of darkness...
Posts: 78
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Post by shaun on Oct 23, 2010 18:04:47 GMT -5
Guys, everybody...I have never seen such utter derision and fragmentation as of here. Is all of this just over because someone made "negative" remarks about the CDC? I could have personaly called them alot worse things than anyone on this board has so far.... That would just by my opinon of cause. I don't fully understand why this would make anyone feel they have to leave the broad.
It kinda makes me believe what i already now. That there are certain people on this board and others who's primary goal it is to cause divisons...i an not saying who it is, i'm only saying that unfortunately there are individuals who are sent to cause these types of fragmentatons...I've seen it too many times. Anything which has a touchy subject such as morgellons or anything with suspicous governemnt involvement is going to be subject of monitoring and diversons. saddly it's just the way things are.
I am not being intolerent or anything either. I am simply speaking want i have seen far too often. There are those who have morgellons and there are those who are something else completely...Who is who? This is exactly why nothing EVER moves forward.
I would really like to see all the true victims of morgellons including myself move forward in one direction. It's such a shame that so many layers would have to come down to make that a reality...I pray that at least some will see the light in all this darkness.
Shaun
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Post by rhorn2006 on Oct 23, 2010 19:02:30 GMT -5
ah........from the rules: Much time and effort is put into this forum so we can help as many as possible. We appreciate and enjoy the membership here but the fact remains that we are moderating it and when we do something, it's for good reason. You may not agree and most likely you don't have all the facts, but it's still our right as Moderators to act on disturbing situations as we see fit. Please know that as of this date, we have not banned anyone without good reason. ..................Ed Thank's for enlightening us ED ;D That's a friendly explanation of the rules and the reason that actions are taken.. I'm just wondering (as I thought you might have been also) what would be the criteria of a "disturbing situation"?? Is it being argumentative, attacking other members, voicing opinions about morgellons related issues, disagreeing with a MOD's personal prospective on a given topic, or what ever else?? A "disturbing situation" with no listed definition of what a "disturbing situation" actually is, is hard to follow because it could be just about anything.. Even the topic of Morgellons is disturbing.. Many members post about things they have picked out of there own feces, even posting pictures of what they found. Would things like that not fit into the criteria of being disturbing? Is there not a listed definition of what LB considers a "disturbing situation" to be? Or are there no specific rules and ban-warnings are just up to a MOD's moods and personal opinion?? Some clarification here would be good.. As far as I can tell, Kat received a "ban-warning" for raging about the CDC's reluctance to help us.. I think it's a reasonable reaction to voice anger "with others in the same boat" who have done the exact same thing "at some point in time" in the past.. We all paid "out-of-pocket" for that study, and have every right to be foot stomping mad that there holding the results back.....
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Post by jj on Oct 23, 2010 19:18:25 GMT -5
Kitkat was not warned because of a dove chocolate quote. It didn't "apparently fuel" anything or "prompt a stern ban warning" either. I happen to love quotes, fortune cookies, and love chocolate too. The quote actually brought a smile and was easy to apply to instances in life in general. It was referred to simply because it was there. It was used to address the situation because it was fitting at the time. It did not fuel anger or negative reaction. Quite the contrary. MOD actions here are NEVER EVER based solely on personal opinion. Personally, I go to great lengths to do the opposite. Rhorn I respect your attempts to comprehend and wanting to know limits that would apply to you and other members. The rules are there that apply to everything. If anything is uncalled for this statement by kitkat is; What's based on personal opinions Rhorn? Kitkat made no attempt to handle this or "work it out" in person, none. They opted to take it public and further mislead and to discredit lymebusters and it's administrators because we gave them no choice but to assume what our attentions are? Excuse my french but thats B U L L S H I T and THAT SUX. It's a tactic that has been used by many here before. Wow!! The comment JJ quoted that "apparently" fueled a "ban warning notice" to Kat,, was directed to me "only"... As the thread clearly showed, Kat and I were posting back and forth to each other.. The "dove chocolate" thing was in response to my posting to her, telling her "try and clear her mind of all this government agenda stuff,, before it ends up consuming your mind completely"... She was only remarking "to me" about a quirky happenstance that coincided to what I was saying to her.. How would that "in any way" prompt such a stern "ban warning notice" to her?? Did that violate some kind of board rule that I, and no one else, is aware of?? I personally feel that "member to member" private messages, should "never" be posted in the open forums "for any reason" without the permission of the person who wrote the PM. But, I do think that "ban warnings" are an exception "if there wrongly given, based only upon a MOD's personal opinion, not in violation of any known board rules. We, the members, have the right and the need, to know what will prompt a "ban warning notice" based upon a MOD's personal opinion, not upon the stated board rules.. I have read all of KITKAT's posts and responded to many of them. She has a strong opinion about a lot of controversial issues and freely states them, but unless "I have missed it" she has never aggressively attacked another member for there views, even when they differ from her own. Oh ............... Bannanny show me one place when I said Kitkat could not voice her opinion about CDC. I "simply" can't find it. Rhorn your missing something and that all I have to say on the subject without getting into whats really personal. This isn't about me and I believe you know that too.
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Post by rhorn2006 on Oct 23, 2010 22:04:24 GMT -5
Kitkat was not warned because of a dove chocolate quote. It didn't "apparently fuel" anything or "prompt a stern ban warning" either. I happen to love quotes, fortune cookies, and love chocolate too. The quote actually brought a smile and was easy to apply to instances in life in general. It was referred to simply because it was there. It was used to address the situation because it was fitting at the time. It did not fuel anger or negative reaction. Quite the contrary. MOD actions here are NEVER EVER based solely on personal opinion. Personally, I go to great lengths to do the opposite. Rhorn I respect your attempts to comprehend and wanting to know limits that would apply to you and other members. The rules are there that apply to everything. If anything is uncalled for this statement by kitkat is; What's based on personal opinions Rhorn? Kitkat made no attempt to handle this or "work it out" in person, none. They opted to take it public and further mislead and to discredit lymebusters and it's administrators because we gave them no choice but to assume what our attentions are? Excuse my french but thats B U L L S H I T and THAT SUX. It's a tactic that has been used by many here before. Wow!! The comment JJ quoted that "apparently" fueled a "ban warning notice" to Kat,, was directed to me "only"... As the thread clearly showed, Kat and I were posting back and forth to each other.. The "dove chocolate" thing was in response to my posting to her, telling her "try and clear her mind of all this government agenda stuff,, before it ends up consuming your mind completely"... She was only remarking "to me" about a quirky happenstance that coincided to what I was saying to her.. How would that "in any way" prompt such a stern "ban warning notice" to her?? Did that violate some kind of board rule that I, and no one else, is aware of?? I personally feel that "member to member" private messages, should "never" be posted in the open forums "for any reason" without the permission of the person who wrote the PM. But, I do think that "ban warnings" are an exception "if there wrongly given, based only upon a MOD's personal opinion, not in violation of any known board rules. We, the members, have the right and the need, to know what will prompt a "ban warning notice" based upon a MOD's personal opinion, not upon the stated board rules.. I have read all of KITKAT's posts and responded to many of them. She has a strong opinion about a lot of controversial issues and freely states them, but unless "I have missed it" she has never aggressively attacked another member for there views, even when they differ from her own. Oh ............... Bannanny show me one place when I said Kitkat could not voice her opinion about CDC. I "simply" can't find it. Rhorn your missing something and that all I have to say on the subject without getting into whats really personal. This isn't about me and I believe you know that too. I don't think I am missing anything, then again "I just don't miss much" but I'm not in a position to know everything,, and really don't want too.. I was just going by what was written in your warning PM to Kat.. I made no assumptions,, just going by the facts as they were presented. You posted >>>>>>>>> If anything is uncalled for this statement by kitkat is; "I can only assume at this point that this forum serves no purpose other than to monitor the inflicted of this disease, their thoughts, their anecdotes, and their plans on it etc... And to keep quiet the CDC's obvious cover up of this terrible disease." What's based on personal opinions Rhorn? >>>>>>>>>>>>>>>>>>> Where I defiantly feel that the above sited statement (by Kat) is well worthy of a warning notice, because it degrades the intention of the forum and it's value to it's members,, I can also see that the harsh statement was made (by Kat) in anger and retaliation "not before, but after" she had received the warning notice from you. So it's not the reason she received the warning.. Like I said,,, I am just going by the facts as there presented. I don't know any more than that and don't really want too.. Why or what happened between "you and Kat" is not my concern nor any of my business.. But, if I am going to continue participating on the forum, I would like a clearer understanding of what the boundaries are that define a rules violation..
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Post by ctbarb on Oct 24, 2010 0:29:18 GMT -5
Dear Folks, I'm just reading all of this hullabaloo for the first time in days...was too busy having to put down a beautiful member of my own family that was riddled by Morgs...my beloved Niki, the bright light in my life. For days now, we have been holding him in our arms 24/7 to keep him close as he wanted to be, give him the love and comfort he so deserved and the love and peace to be free from this devastating disease. If he could talk, I think he would have said, "Momma, I need to go now and be free of this pain...I need to be free and beautiful again without that huge hole in the side of my head...where the Morgellons fuzz balls came out daily and floated around the room...that I tried to see and chase, but my eyes were blinded from this disease...let me go, hold me close, and respect my wishes to be free..." It was with those feelings that I was able to release something so precious to me and to my life and well-being. May he rest in peace. Now, that being said, it has several purposes here; all of us here on this board deserve the right to be free - in our speech, our feelings, our thoughts and still have the respect and give that same respect to others. Sounds simple, doesn't it? But when you are in the throes of such an invasive, debilitating illness with no where to turn, and when you do, it turns against you i.e., the medical community, our own governmental facilities, our families and friends, what do you have left? You find yourself grasping at every straw you can find - we all have, especially in the beginning of this nightmare. To find a group of folks, who like yourselves are looking down every avenue, around every corner to find the truth...(if it exists), is like finding Nirvana! Your own feelings are catapulted to a new dimension - excitement consumes your conversations, the need to find every answer is your breath of life; when those answers are taken from your grasp by entities that control the situation (and you have paid for them), you are MAD AS HELL! And rightfully so! Haven't we all had those feelings? Sure we have, and we still do! That is our right; it should be our right to be able to share, comfort, and explain how we feel, especially here with out own kind. As in times past, I have been the recipient of less than kind words by others, and have shared my opinions on those occasions...like spending too much time examining my feces and sharing those photos here (not you, Rhorn)...but that is an excellent example and thank you for reminding me...That's how we find out what's wrong inside of us! I hope I'm not losing you here..... I guess the point, (as obscure as it may seem), is that we all have our opinions and the right to share without hurting others or violating what is "private" and not of others' concern... In this vain, I will make the following statement: "The CDC has violated the sanctity of our trust, destroyed our belief in what we were being told, and did not deliver what was promised." Because of these violations, people have died, taken their own lives, been forced to lose their homes, their families, and their dignity. The choice of each of us is whether we continue to fight for our beliefs, protect our honor and dignity and retain our respect for others, while still saying what needs to be said. I, too, have left this board (in my own way) because of difference of opinions, however, the Admins were fair, just and offered solutions to problems that had arisen. Had they not been, you would not be reading these thoughts now! Someone recently was told to "Put your big girl panties on and have a glass of wine." I wasn't gracious enough to share my chocolates with anyone! ;D Peace and Blessings, CTBarb
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Post by zabrubon on Oct 24, 2010 2:33:48 GMT -5
Kitkat, I have been reading your post for a few days now. I am sorry to see you go. You are relatively new to this board, and I have, unfortunately, not had a chance to get to know you. I am sorry for that because the few of your posts I have read have been informative, funny and interesting. I encourage you to think before you act. It takes much courage to tolerate adversity. I am sorry you feel the moderator is unfair with you. I personally do not know if that is true or not, therfore, I can not voice my opinion. I believe you can work this out. I truly believe that no matter what, not matter if it is you, me or anyone else on this board, that there will always be adversity and hardships. THere will always be disagreements and upsetting remarks from others. In fact the biggest problem on the face of this earth is communication. Just look at history and all the wars. Mostly from lack of commuication or misunderstood communication.(or a woman, but of course, that is worth it) Recently, while at school clinical, the instructor pulled me aside and talked to me about an issue. I was embarrassed, humiliated, mad, and felt picked on. I felt innocent of the accusations. Was it me or was it her? I have no clue. Maybe it was both of us. She did respect me enough to hear me out. Everything in me wanted to quit. I thought, "forget it" I'm moving on. Then I remembered my friends in the program, and I thought about how they feel. They would be hurt, I would be hurt. I decided to stay and work things out and I let it go. I finally got my grades yesterday, an "A" imagine that instead of an "I" for withdrawal. I nominate you to stay on board and get past this tough time. Maybe you and the moderator could have a pow wow. That may help. Maybe someone else could sit and listen and make a determination or help with a resolution. That would help. Kitkat, "Stay the course" with us. You have made a lot of nice friends here. You will be missed if you go. Bite the bullet and stay with us please. I know that is tough to do. I know you are probably saying why should I when they were in the wrong. Why? Because you are loved and accepted here and we don't want you to go. Think about your friends here. I am sure you will make the right choice. With love and respect, ChicagoBonnie
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tom
New Member
Posts: 48
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Post by tom on Oct 24, 2010 7:18:19 GMT -5
Hi everyone, a good deep breath is needed here. As a person who does not have morgellons but has lived in the arena for 9 years and witnessed the distruction that this disease causes the afflicted, too the body and the mind, fatigue, brian fog, depression etc. it is easy to see that at times people write things when they are at there worst (with morgellons) and when they feel most alone and in pain, when they are angry, so maybe a little more tolerence is needed. what they say today may not be what they say a couple of days later when some of the symptoms have subsided a bit. everyone with morgellons should understand this, in the heat of the moment things escelate quickly, maybe instead of continuing the thread in the heat of the moment a days rest would difuse the situation, of if not and it continues then the moderators could simply make the thread go away. but you all do need to vent at times, after all you are the only ones who truly understand what it is that each of you are going through. as a spouse of this disease I have witnessed the affects, the rage the anger, in the end though this group kept Sue and many others going, it was her family and all familys have disagreements at times , one should not be banned, we may not like what they say, so just go read another thread and avoid the ones that will make you mad. it really is that simple. Also one should not quit the board just because you got spanked, we all do at times get over it, this group of people has been the lifeline to so many and many of them are no longer with us, many wonderful people have gone from us. please take a deep breath, support each other as you have always done, in the end, this board is all some of you have thank you for your time respecdtfully tom
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Post by bannanny on Oct 24, 2010 12:59:44 GMT -5
Thanks honey... you said it so well too. I know some of the reason I've jumped in here like I have isn't only becuz kat reached out to me, but becuz I'm in a nightmare cycle right now which fortunately finally seems to be slowing down. But when I do cycle, I find myself getting grumpy, angry, and fast to react to a bad situation. Tom's watched me go thru it too... so even tho he doesn't feel the effects of morgs, he knows what he's talking about. After all, he's endured 3 of us in his lifetime now... bless his beautiful heart! But now back to my feelings about this situation one last time and then I'll give me and it a rest. To quote rhorn... Where I defiantly feel that the above sited statement (by Kat) is well worthy of a warning notice, because it degrades the intention of the forum and it's value to it's members,, I can also see that the harsh statement was made (by Kat) in anger and retaliation "not before, but after" she had received the warning notice from you. So it's not the reason she received the warning..
Like I said,,, I am just going by the facts as there presented. I don't know any more than that and don't really want too.. Why or what happened between "you and Kat" is not my concern nor any of my business.. But, if I am going to continue participating on the forum, I would like a clearer understanding of what the boundaries are that define a rules violation.. ...and why I didn't see a problem with kat posting the PM from JJ either rhorn. It was unfounded and not in any way an attack or breaking of ANY rules on this forum. It was kat's only way of explaining what's happening to her. I just wish you could make me understand why you did what you did JJ. I'm sure you didn't expect kat to post your warning publically... but she did becuz it makes no sense. Why did you take a simple quote about chocolate and turn it into what you did? Please, please help me understand. I gotta say if it were me, I'd have made it public too becuz it's not just in any way and it would be my only way to try and get some help to resolve my being given a warning. A warning that came out of nothing IMO... but being an admin gives you the right. Then again, when it's unfounded it needs to be explained. You used the chocolate quote saying she was using it against this board when in reality she was using it towards the CDC. You did not mention ANYTHING else in your PM to her about the above quote you just now posted... and like rhorn said, it wasn't the reason she was given a warning. It's right there in black and white JJ... I sure wish I could understand, but I guess I never will. Not without you explaining it to me as it was written initially. As far as the whole situation goes and as I just said on my CDC post... kat is new here, she's only looking for support. But she's scared right now just as we all were in the beginning. She certainly didn't need a warning for a simple quote or even for stating her views AFTER being warned. The way I see it... she did nothing wrong at all to begin with. I'd hate to see this forum get a reputation (again) for being so closely monitored that you can't say much of anything here without being banned. IMO, we need to open up and lighten up a bit more around here or pretty soon no one will want to come here and seek help. Let's get back to where we were when I joined this board 6 yrs ago... back to when you didn't have to watch what you said and you could talk about anything. Back to when it was a lifeline and a place to find comfort... back to when it was what it's supposed to be. Back to welcoming newbies with open arms and understanding their frenzy. We've all been there before and we all know what they're searching for. So let's stop this and get on with life... and loving our fellow morgello's unconditionally. I apologize for my part in this if I've made anyone angry in doing so... but I stand by what I've said and what I feel in my heart. If I can no longer feel I can do that, then I'll have to say goodbye too. It's one of the reasons I stopped posting on all the research threads and the theories threads (for the most part) and decided to bring a more positive attitude back to the board. Things are said every single day here that are mistaken as factual... and most times are resolved in one way or another. But it is becoming a little too political for me anymore... and I miss the love we all used to share over everything else. But time will tell how this story ends I guess. I also want to say how very sorry I am barb for your loss. I know exactly what you're feeling right now as I went thru the same thing with my 3 dogs. It's one of the things that keeps me going in my fight... to revenge their deaths. My heart had such an empty place in it for so long and I swore I'd never be around another animal again as long as I had this mess inside of me. But then Blizzard and Ladybug (Sue's dog) came into my life along with Tom and I don't feel that way anymore. Dogs are just like people... they're either gonna get this or they aren't. Sure, I see it in them... but my attitude has changed so much now that I'll love them no matter what. It's what keeps these symptoms at bay more than anything else I've found. So I know you too will have another Niki one day... and you'll love him/her just as much as you loved your Niki. I've learned that much anyway... that love and a positive attitude is the best fight I've found against this disease. Just know that your Niki is at peace now and romping thru the fields with my Spanky, Spirit, and Bandit... and Annie too (she died of cancer) but I know we'll all see our precious creatures again one day too. Heaven wouldn't be Heaven without animals!! I love you guys ~~ bannanny P.S. I love you too JJ
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Post by ctbarb on Oct 24, 2010 22:25:37 GMT -5
Dear nanners, Thank you! Our furry friends are sometimes all we have...to be close to and to receive and give love so unconditionally without reprisal, and disloyalty. I wish more people could be this way...Yes, I'm sure that Niki is running and playing with his friends and is beautiful of face once again! I miss him terribly as we all do when we lose such a dear, close companion. Again, thank you Nanners for caring. Love an Blessings, CTBarb
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