|
Post by itchin4answers on Jun 25, 2011 17:39:42 GMT -5
Hey itchin, I'm confused about CCF. Did you mean CFIDS? You got quite a Grandmother. My parents are both 92, and since all their friends have gone, & passed, they're pretty much ready to do the same. Your Grandma sounds like a spunky gal. 18 months is a really long time. Bless your heart. Was the buffalo hump based solely on the steroids, or did lack of estrogen have anything to do with it as well? Was that a permanent side effect? I'm so sorry if it was. I was over menaupause long ago, in fact I've been so sick, I never knew I was going through it. I used to study that too, but now I know nothing. I don't know if I should be on hormone replacement (herbal), or what. I just want to avoid the broken bones, hip replacements, etc. that we're all going to get if we don't acknowledge we need to pay attention to preventing it. I just wish I could have a face lift, a boob job, and the desire to jump in bed, & scream my head off, but I'm not thinking that's a possibility anymore. It's not, is is? Went to the doc today, & he wouldn't give me any oxygen until I go have the pulmonary tests, and it's documented how little I have. the same dr is also an allergist I think, so maybe they could check my mold/ fungal counts, I wonder if that's possible. Not real excited to have them tell me there's nothing they can do. Maybe I'll just repeat, "All is good while" I do my deep breathing, & I'll become enlightened. I had to steal my daughter's nanny from her babies. I get her once a week to help me clean up the mess I made the previous week. Every single thing in my life is related to my oxygen depletion, and it's been a real trip to discover this. The fatigue, narcolepsy, loss of memory, inability to sort things, or arrange them, or pack to go on a trip, or unpack when I get back, or make an appointment on time, I've totally lost myself, & I'm not at all the person I was 7 years ago. I'm just a used to be artist, & now the only art work I do is re-arrange the worm like creatures on my face, & neck. I apologize for being depressing. At least I'm doing that well, but it's not really what you all need right now. I did get my records, & will check back in if I see anything of interest. Much love to you itchen, & all u guys. Appreciate, & love you all. Sorry if I should have written much of this on other threads. I'm just behind. xoxoxox Hi freaky, no - I'm confused! CCF stands for Congestive Cardiac Failure. The buffalo hump I spoke about wasn't the "typical" buffalo hump that steroids can cause. My back looked like a swimmers back, though I am only small boned. I was on anti-psychotics at the time so I have no idea what was causing what. I was still on the steroid when I found out I was pregnant, so I had to quickly wean myself off them. Whatever happened to my body physically back then wasn't permanent - my body size, shape & weight now is what it should be. I have no explanation for what happened back then - oestrogen? no one ever thought to check any of that. Freaky are you able to stop yourself from re-arranging these worm like creatures on your face? I know how painful the pick cycle can be, however if you can break that cycle, it may help. Sorry - I'm a bit all over the place, but wanted to reply to your post. Lots of Love - itchin
|
|
|
Post by freaky on Jun 27, 2011 3:49:05 GMT -5
pdidit, just wanted to say a word or two before I crash. You've saved my life literally, well, I think. I'm not dead yet, but as miserable as I can be. The video, & the site you sent me to was the info. I needed, & what they talked about was as though they were talking to me. What they talked about has happened to me.
That's what I thought. What I think is that the 10 days of steroids has really screwed me. I can't take them anymore. Bill is so on my back. He can be the biggest, fricken, two faced creep about morgellons. I said I'd take it till it was gone, but I can't bend my knees. It's killing me to walk upstairs, & downstairs, & just walk. My knees don't match. There's extra mounds of skin, & a thing that sticks out about 2 X 4"wide. I can only think it's globs of parasites. What else could it be? On the back of my knees it feels like golf balls swollen under my skin. Boy am I bitchen. In short it's just like I was in a major car wreck, & I damaged my two knee caps. My neck is sore, & funky too, too funky. Somethings happening to me. I'm cleaning my house, but it's time for bed, because I have to get up, & call the stupid dr. because they didn't call me to give me the name of the dr. I'm supposed to call, And he better see me tomorrow. Oh, I'm being nasty. I'm sorry. Bill isn't allowed to be on the opposition side of morgellons. I won't tolerate it. I know he's got to be doing it to prick me. He's not that stupid.....or is he?
He's pretty dom stupid to take the drs. side, which he usually does. From the video, I now know for sure, (well, at least I think so) that the morgs are in my back making way to my head to give me brain damage. I can't hardly walk because the morgs are playing havoc with my immune dysfunction, and are presently trying to destroy me. They talked about humaworm which is what I took in the very beginning that was so fantastic, but I had brain fog so bad, I waited too long to reorder, & forgot the name. The site you recommended has excellent suggestions how to rid yourself of this mess, so while my insides are being eaten up, I can look foreward to getting the stuff i need to KILL the suckers.
Without this knowlege, Bill perhaps would have convinced me to continue with the steroids, & maybe even killed me. Unbelievable they can do this in such sort time (the steroids), & awesome news how the morgs go at the lungs first. I have much family I will enjoy laughing back in their face.
Only time will tell if I have enough time to recover before I croak from this, as it's so bad, & I don't think I'll get much help from a dr. although I will try, especially to be tested for fungus, & mold to get it out of my arms, & neck.I'm so embarrassed wearing short sleeve shirts. No one believes me in my family. It's really late again, so I hope this makes sense, & I have a super headache, & neckache. I'm going to go look for my vicks, (fat chance).They're running up my chest big time to get to my neck. They are so fast.
Oh do I love you for your help, & the other suggestions you had. And yes, I'm not too far gone yet to quit picking my face. I'm afraid it may be scarred already , but the morgs have a healing quality to them which, has gotten me thru till now, but no more. The pigment is changing, so I must quit, although that will be rough with so many worms in my face. I say worms, but I'm not sure, they just act like worms. I've had various worm friends throughout life. I had a major fight with them last night, & Id say they won. It kept me up until 4, & I said "no more."
Well, huge smackers, & love for enlightening me, & I'm sure my hub will be just as grateful. haha
THANK YOU SWEETIE PIE. I AM SO GRATEFUL. Others probably told me the same, but your references sunk in.
Smackers, & giant hugs, freakydeaky
|
|
|
Post by kammy on Jun 27, 2011 11:42:36 GMT -5
Freaky, you're freaking me out with worry... my mother hen instincts are kicking in. Something ain't right. Some have said that steroids only made their 'Morgs' worse... don't know for sure, just saying. I think you're in a bad herxing place? What can she do for herxing besides stopping the steroids?
I wanted to say that this happened to me one time, during what I call 'the body takeover'... is what you're feeling anything like this?
I was taking Ivermectin on a regular basis for a few months and along with something else I was doing, I started herxing.
Anyway, it caused me to have bad face zits. I never had 'zit' issues, even as a teenager, these places coming up on my face were like boils but they contained something inside them that until I could get these 'worm-like' things out of the pores, my face was miserably sore, they wouldn't go away... I call it a 'worm' because that's what it was - for me. Every now and then, I could get a piece of one out somewhat intact, they usually break in the process, they are in a fluid sac and cause more lesions, etc... they very hard to extract intact.
I remember putting something on my face... something they didn't like. As if one of them blew a whistle (quorum sensing) - they all ran together collectively down to my neck. I was alone, I was in front of the mirror in the bathroom when this happened, I actually saw physical movement under my skin! I was totally flipped out and knew that after my previous doctor's trips, ER trips, talking to friends, that I was already considered 'DOP' and to talk about this particular event to anyone would just make me seem that much crazier.
Thank God this only happened one time with me!!!! - it is the worst feeling in the whole world, I know this is a living hell what you're going through. I was at my whit's end on what to do to help myself, I was crying and praying for answers and then I went to 'war'.
I did an experiment on myself which I've never told anyone. I don't know if it worked but it ran them out from under my skin to where I could actually see what the culprits look like. It is a white shape-shifter and looks like a small elongated grain of rice. (It is in this form at some time in some of us, I don't know if this is true for everyone.) I say it is a shape-shifter because it can elongate itself to be more worm-like to come out of the pores, outside the pores - it is much too large to fit back in so it had to elongate itself for me to actually see them on my arms upon exiting.
I never experienced this collective hive running under the skin experience again, my face has never broken out like that since... I only had to do this controversial treatment one time. I don't know if other factors contributed to me never having this experience again, or if this treatment made any difference or not - other than... they didn't like it to the point of leaving the skin where I could just wipe them away.
I never said anything because it is controversial and could cause harm and I never intentionally put out any recommendation that can cause harm.
I'm going to PM you with something to try, think about, discuss with Bill...
|
|
|
Post by kammy on Jun 27, 2011 13:41:38 GMT -5
These patients typically refer to this condition as "herxing," a colloquial term for the Jarisch-Herxheimer (J-H) reaction... www.mdjunction.com/forums/lyme-disease-support-forums/studies-research/1186591-jarischherxheimer-reaction-symptomstreatment"Symptom reduction Two common strategies: improving the blood flow to clear the toxins faster (see vascular constriction), or, neutralizing the toxins (or both). antihistamines, relaxation techniques, Enemas, Colemas, Colonics, increase in blood thinning supplements, Lemon/Olive Oil liver/gall bladder cleanse, 2 Tbsp Lemon Juice (Organic) or 1/2 lemon rind), 1 Tbsp cold pressed Extra Virgin Olive Oil, flavanoids (widens blood vessels), aerobic oxygen supplementation, lymphatic massage, anti-inflammatories, bentonite clay, charcoal tablets, diatomaceous earth, pain medication, muscle relaxers, hot baths / hot tub, steam bath or dry sauna, infrared Hot House treatment, a cleansing bath: add 1 cup salt, 1 cup soda, 1 cup epsom salts, 1 cup aloe vera, to a hot bath, remain in and keep hot for about 1-1/2 hours all the while consuming about 2 quarts of warm water." Activated charcoal and hot baths...
|
|
|
Post by pdidit on Jun 27, 2011 15:48:47 GMT -5
Oh I am so happy this helped you!... but Freaky, you poor baby...am so sorry that you are going through this! But hopefully this will help you feel better by getting off of those steroids and then you can be on the mend for newer ideas and products to try. I hope that soon you will be 'singing in the rain'...little by little we have to 'chip' away at this until we can claim back our health and lives! Keep strong and please keep updating us! We are all worried-- And btw, everything you said made sense and I know how horrible it feels to have all this going on at once. Might have told you that I just had a minor issue with steroids in comparison to your experience...I used a topical steroid scalp oil...ya know, the general one that dermatologists throw at you when they don't know what something is, and my head started losing patches of hair, with red round welts. I was in miserable pain and couldn't go out for months without a cap, then a hooded vinyl rain jacket on top with tightly pulled strings on the hood to hide the plastic--really attractive Well onward and upward and will send light and prayers... Love Pdidit P.S Hi Kammy...you sparked my curiosity and wondered if you could could send me the info too, about the controversial product you are talking about?
|
|
|
Post by kammy on Jun 27, 2011 17:23:30 GMT -5
Ok, PD, I'll send you a copy of what I sent Freaky but I don't want it published. Maybe, if a few of us try it and it works then we can publish it?... I hate putting something out that might not be safe... like these drug recommendations are!... whoops! I DID NOT SAY THAT! (Please don't put me on the "A" list... I didn't mean it!)
|
|
|
Post by skizit on Jun 27, 2011 21:05:25 GMT -5
Dearest Freaky, A Morgellons sufferer who contacted me regarding what she's done to cure herself showed me that tobacco is loaded with parasites and fibers. People who are having remarkable symptoms may be reinfecting themselves every time they smoke. She said Thing one jumped out of the cigarette into her nose and came out the back of her neck, it sounds in a hurry to get away from the heat!
She also took some pictures of Starbucks coffee under the scope and it has parasites in it. She hasn't sent me pictures of that yet.
You might want to irradiate your tobacco if you are going to keep smoking. Either microwaves or UV.
If you have Morgellons, you are not going to get better if you don't stop the source of the pathogens. Smoking may be a source of comfort but it may also be your worst enemy. Just saying this because you're so loved, Freaky, Skizit
|
|
|
Post by Lynn on Jun 28, 2011 13:28:50 GMT -5
Hi again Skizit
I agree with you friend. I go through periods of smoking cigars and if I smoke to many days in a row I will start to feel something in the back right side of my throat. If I do not kill what ever is crawling up and down back there I notice within a few weeks I will absentl mindly give a short quick cough and a tiny creamy white fly with pop out and fly away. Happened to me once a month for that last three months. March, April, and May. Nothing in June but I have really limited my cigars.
In Light Lynn
|
|
|
Post by kammy on Jun 28, 2011 19:05:54 GMT -5
I tend to agree that the whole cigarette is a bad invention. Jeany said she knew someone who grew it and they say all kinds of stuff ends up in the mix. They just grind up the bugs, pesticides, and add 50 chemicals?... it's not good. And, with what we know with the baculovirus could be in there and no telling what else. I think it's mighty strange that all the non-smokers are totally paranoid about us smoker's smoke being in their presence, too - like they know something we don't.
I also know that the American cigarettes are much stronger and more potent, nastier tasting than these over here. We've got to be a little bit smarter than just allowing them to kill us out and out - curing them somehow before we smoke them is probably not a bad idea.
|
|
|
Post by freaky on Jun 29, 2011 2:19:15 GMT -5
Oh no. I just spent the last hour writing to you guys, and hit alt + S, got the lymebuster chat, post message, clicked on that, & my post was posted, so I thought. It's gone, not there, & way past my bed time, although I'm not confused, just hungry.
My life, or luck, seems to reek at times.
Well for now, I'll just say, I continue to have parasite overload, but believe I can fix it with the iver, fenben, and albendazole, MAYBE. I've slept since Sunday, & woke up today at 2:30. I think I'll be OK. Asked my other doc for oxygen, & she didn't call back today.
pdidit, I'm so sorry to hear what you went through. That is horrifying. Bless your heart you sweetie pie.
Thanks skizit for your discussion on parasites, fibers, & cigarettes. Just wondering, do chopped up parasites make brand new parasites with no scar tissue? I know the answer to that. Nevermind.
kam, thanks so much for trying to help. Now that you discussed it I realized there's no way I can stop picking. People tell me to quit, & it always sounds like a good idea. In fact, didn't I say never again above. haha no way. What was I thinking? I wasn't. You made me remember kam, the pain is too horrible at some point, & you can't take it. You have to attempt to get them out.
I don't know if I'm herxing. I don't think so. That's a good thing isn't it? Doesn't it mean you did something right, but maybe too fast? I think they just got all jumbled up in my knees, forming lumps. Previously, i THINK They were in orderly lines with each parasite holding another in it's mouth. I think the steroids made them freak, let go of the parasite in it's mouth, consequently breaking the line, turned backwards, upside down, kind of like bumper cars, only instead of driving on a flat surface, with so many there were major collisions, causing them to pile high on top of each other randomly, rather than orderly, thus causing the lumps on the backs of my legs. Deformed knees on the front - I'm sure they will get back to normal. Tonight though, I have an extra little pain in both of my kidneys. Can't relate to that, or say much. That above was the longest sentence I've ever written. ha ha I'm sorry, I just realized I didn't even take a shower today, & it's so late. I'm doing the kam special tomorrow though, so I have high hopes. I do feel it wouldn't be so bad cuddling up under the wings of a big, angelic hen, that smelled good, & didn't say squaaok, right now. I'll write tomorrow. I don't think I have COPD. I believe they didn't have what it took to give me a valid observation. It's just parasite overload.
Much love, & thanks, freaky
|
|
|
Post by skizit on Jun 29, 2011 3:12:58 GMT -5
I think microwaving cigarettes or sterlizing them with UV light wand (they are made for sterlizing fabrics and you can get them at JoAnns) may kill the living bugs. That's the only think I can think of to kill any living animals or microbes. Quitting smoking would be a better thing. I know its hard but it may be 90% of the reinfection problem.
Freaky, I'm not sure what you meant. There are worms, I have some pictures in one of my videos, that hook together in a long chain. They have been found in the parts of the little pieces of fibrous materials in cigarettes. I'd bet on the cigarettes being the source of your worms. I have not been able to put a name on these worms.
|
|
|
Post by pdidit on Jun 29, 2011 10:32:18 GMT -5
|
|
|
Post by kammy on Jun 29, 2011 10:54:06 GMT -5
Wow! PD! What's up with the plastic bags?... gosh, already! Should we call the media? Do you think they'd listen... no... lol - they're paid for.
It's just the plastic bag people's turn this week, we hope? Anyone else notice this?... They should be ok soon, seems stuff moves in and out of infestations.
On the computer mouse/screen jumping around - mine did/does that too, I vacuum mine almost daily and wipe it down quite often. (You have to turn your laptop upside down and hit those vents on the bottom with the vacuum, too.) I completely destroyed one keyboard already with the Morgs. I think sometimes we're more electric than others and are affecting it somehow?
Freaky, you can herx yourself to death, ya' know? It can be serious - but, if you don't think that's it, that's good... I was just worried about you.
|
|
|
Post by freaky on Jun 29, 2011 15:29:33 GMT -5
I got the same white worms and gook out of my legs last night when I took my shower. I have them all over my body. I'm writing my dr. to tell her this in my plea for oxygen. They don't like too much oxygen. My doc is very open. There isn't any reason I should not write her, & tell her what happened should I? I'm not thinking well, as I was up most of the night with this new discovery. It seems like my pulling the worms out will be sensational, & was wondering if you'll knew someone in Austin who may want to record me doing this, for a documentary, or a horror flick.
Thanks for any input, freaky
|
|
|
Post by bannanny on Jun 29, 2011 15:59:31 GMT -5
Oh my little freekerdeeks... you've been thru so much and I'm so sorry I haven't been around til now. You know our family's have been visiting the entire month of June tho... but I'm back to tell you I know how strong you are, even when you don't think so. You can get thru this... but you've also got to start getting some rest sweetie pie. Sleep heals the body... and from looking at the times of your posts, I know you aren't getting enough. The best time to get the full and beneficial efffects of sleep is going to bed BEFORE midnight.... or ten o'clock actually. So try to re-adjust your hours if you can and see if that helps you fight all these things you're going thru.
Have you ever taken Ginger? It's really great for all kinds of things, even acts as an anti-fungal for infections in the lungs. So it might be a very good thing for you to start taking...
Ginger contains anti viral, anti toxic, and anti fungal properties, and is used for the prevention of and treatment against the common cold.
Ginger acts as an antihistamine and aids in the treatment of allergies.
Ginger displays anti inflammatory properties and can be used to treat rheumatoid arthritis, osteoarthritis, and various other muscular disorders.
The chemical components of the root are instrumental in inhibiting the biosynthesis of prostaglandins which are responsible for causing inflammation.
Thus the root has proven to be a highly effective form of treatment, in some cases, even more so than the NSAID's that are traditionally prescribed.
So eating ginger may help to prevent cancer and aging disorders.
Ginger contains special enzymes responsible for catalyzing the proteins in your food, thus aiding in digestion and the prevention of cramps.
Good for those with constipation!
The ancient Greeks used to eat ginger after a large meal, in order to ease the digestion process.
Ginger has proven to help lower your cholesterol levels and prevent the formation of blood clots.
As a mood enhancer, ginger's cineole content may help contribute to stress relief.
Also used for migraine headache.
Ginger can also be used for reducing toothache and the discomfort which arises due to the infection in the upper respiratory tract due to its antibacterial and antifungal nature.
Chewing on fresh ginger,, can help freshen the breath.
Being a warming herb, ginger can help knock out a fever. This property also makes it effective in stimulating circulation of the blood.
It can also help relax muscles around the blood vessels and is said to help prevent blood clots from forming. The warming effects make it a natural decongestant as well as an antihistamine, making it the perfect remedy for colds.
Some studies show that it can even help inhibit the replication of the herpes simplex virus.
Recent studies show that ginger might also have a role in lowering LDL cholesterol because the spice can help reduce the amount of cholesterol that is absorbed.
It has also been shown in animal trials to help slow or even prevent cancerous tumor growth.
To discover the health benefits of ginger for yourself, simply make a tea by steeping about 5 slices of ginger in hot water.
If you prefer it in your food, Ginger is excellent in many dishes and is perfect when combined with garlic.
Ginger doesn't only spice up your food it can also help to put some extra spice in your intimate life too. It improves blood flow to your sexual organs, and contains Vitamin C, zinc and magnesium.
Ok kiddo, I'm gonna give you a call in a bit... and please don't think I'm hounding you about not getting the right amount of sleep ok? I just love you very big and want you to get better as fast as you can... and I know if you start re-arranging your hours it WILL help you become stronger and stronger and enable you to fight fight fight!!
big huge hugs ~~ bannanny
|
|
|
Post by skizit on Jun 29, 2011 22:54:49 GMT -5
Freak, you need an oxygen tent, that would do the trick I beleive. You are right about the oxygen. I read it creates an internal atmosphere which all synthetic materials and bugs can't tolerate. I can't believe you have to plead with a doctor for therapy. Turmeric may help with those worms. no worries, reply when you can. If one idiot doctor/god doesn't help, keep trying another. If you were in my old neighborhood, I would have you go to my doctor who is the kindest, smartest doctor in the world. He never questions your symptoms and thinks them through until something works. And he helps with the money aspect by making his services affordable.
|
|
|
Post by freaky on Jun 30, 2011 15:27:49 GMT -5
ok, I'm going to call my doc right now. What a run around. I'd write but I'm having a big narcolepsy attack. Thanks so much for the info.
HUGS +Smackers
|
|
|
Post by bannanny on Jul 1, 2011 9:54:28 GMT -5
Like I said when we talked on the phone honey pie... I really think you need to get a second opinion. Maybe then you'll find a doc with a bit more compassion too. I'm praying for you girlfriend... and I love you very very much! Hang in there freekerdeekers...
big huge hugs ~~ bannanny
|
|
|
Post by freaky on Jul 2, 2011 1:16:26 GMT -5
Ah, did you see that commercial for the Heartguard on the 1st page? It was so cute. This little girl is holding a little puppy whose licking her, and its tongue is going back, & forth.
I sat her for 2 minutes, & started falling asleep.
Therefore I'll just get right to the point.
HELP ME PLEASE!!!!!!!!!!!!!!
It's truly pathetic of me not to know the solution to my PAIN PROBLEM, but maybe I'm in too much pain to be thinking right now. I just don't know what to do, although I bet a couple of you have had this happen, certainly so.
If I already told you this, this is just a review. This is an all over body nightmare, but I'll just narrow it down to my knees to simplify things. Dang though, my arms are killing me, and my back. Remember I said it was caused by morg build-up, plus the white gook? There seems to be so much of this stuff that it makes the skin hang down, firstly stretching my skin to accommodate the large morgs. It's like when a morg rises to the surface on your face, and it burns with pain until you get it out. Can anyone relate?
It seems that there are so many morgs, one lying on top of the other, that when I'm lying down, my bones, and muscles squish the morgs, and cause the worst pain, I can barely take it. I'm afraid this is so bizarre that y'all can barely believe me. Not being scientific about this is embarrassing, but explaining why I am in intense horrible hideous pain is up the scientist's alley. One good thing is my husband remembered , he had bought a machine that blows air up his nose to help him not snore so bad. l found this fresh air mask to be of some value, plus more pain pills,, but it's still not enough relief. This is so bad, I've even screamed walking up the stairs, or when I move my leg wrong in the shower, etc. If I don't post this now, it's going to disappear.
Big hugs, freaky
If I was confusing, What will stop the pain? My knees are swollen, and all full of lumps. I put milk, & flour on them, & out came the white, & wormy stuff that's in my face.
|
|
|
Post by freaky on Jul 2, 2011 2:05:12 GMT -5
nanners, & skizit, & kam, I lovs U guys, but nanners, or was it skizit says I need my beauty sleep so I have to sign off. Smackers
|
|