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Post by freaky on Jun 23, 2011 4:15:01 GMT -5
Hi Guys,
Last Thursday was D Day, but life is funny like that, as here I am writing you. Sorry not to have written when I got back, but actually I feel just the same. It's hard to write when you haven't got a brain.
Another freaky story ~~hopefully a short one, but you know me.
Fortunately, for me, I've had a wake up call. That is, ask for help when you need it. There are some good, kind, people in the medical establishment, & I'm not just saying that because my dr. was way cute. Of course they are far, and few between, but they are running the show. This is the 2nd time I almost died because I was too resentful, and angry to get help, afraid to be humiliated again. It seems like I've been this way forever, health wise. I always feel like garbage, and never have a good day with any energy, unless I'm dancing, & totally forget how sick I am.
Thursday, , climbing up, and down the stair case became a challenge. I must have looked a little more listless, maybe my babble was starting to confuse Mr. Bill, my hub, because he had the foresight to take me to an emergency clinic. Within five minutes I was surrounded by all these people, and two drs, and they had called an ambulance to take me to the emergency at the hospital. Meanwhile I was being pumped up with steroids, & oxygen because I had almost quit breathing.
When I got to the hospital (emergency) I waited till 2:30PM, and I was finally admitted. They gave me more steroids, & oxygen, and I met the dr. the next day. He said I had to have a C-scan, because the X-ray didn't show enough. He then returned that afternoon to tell me I had a fifty/fifty chance of having cancer, but would let me know after they read the C-scan the next day, or the following Monday. He also said I had azama, ashma??duh (sp), and said that was a lifetime thing. I argued , and said mine went away when I was 6 when I had my tonsils out. Chronic bronchitis, & probably, of course, emphysema, was topped off with chronic obstructive pulmonary disease. Lung damage and inflammation in the large airways results in chronic bronchitis. It is defined in clinical terms as a cough with sputum production on most days for 3 months of a year, for 2 consecutive years. This has been going on for me for 7, but I found it questionable no one asked me about the giant long parasites I keep coughing up, and they just wanted to know the color of sputum, which was white.
Lung damage and inflammation of the air sacs (alveoli) results in emphysema. Emphysema is defined as enlargement of the air spaces distal to the terminal bronchioles, with destruction of their walls. The destruction of air space walls reduces the surface area available for the exchange of oxygen and carbon dioxide during breathing. It also reduces the elasticity of the lung itself which results in a loss of support for the airways that are embedded in the lung. These airways are more likely to collapse causing further limitation to airflow.
Of course cigarette smoking is the culprit for everything, & as I do smoke, I am guilty, although I've never had a smokers cough.-except the day I left for the emergency clinic. I could feel the damage to my lungs, but seemed more so to my heart when I started coughing.The effect of occupational pollutants on the lungs appears to be substantially less important than the effect of cigarette smoking.
Of course I can't rule out smoking, but I do snort a lot of detol by accident, cleaning my bathtub, & not thinking much about it. My brain started working slightly better while I was at the hospital. I had lots of oxygen treatments by an excellent pulmonary person. Before I left the dr. came in, & said good news. You don't have the big C, it was a piece of scar tissue. Hum. I asked for my records, which the nurse brought in, but accidentaly got mixed with my signed papers, and took back with her, as I don't have them. Somehow I recall, but am not sure that I had 5% oxygen in my body, but I may not recall. It was bad.
It seems I could go on, & on, but I have to get my beauty sleep. I have a lot of questions. I want to get better, but am real confused how. I'm going to the dr. (general) to try to get some oxygen to take home. I mentioned something about mold, & the nurse said that's not it. I replied, oh no, when I got home I worked on my face, & neck, & got a cup of mold out of my face, & neck. I've been killing the suckers with frankensence, & DMSO, just leaving it on all night, & picking them out the nexzt day.
This is so confusing. The dr. let me off for Father's Day, what a doll, but said to come check back in if I didn't feel any better. They sent me home with more steroids, giant snooker pills, & a ventilator. My legs hurt bad. I believe this to be from excessive mold I can tell has reached great porportions in my body. My back is hideous, my arms are worse, my neck hangs down, and I can see well the worms on my face piled up on top of each other. Because I'm not well at all, & my fear of telling them at the hospital I was full of mold?, I fear if I can't get better? Is there really nothing to reduce the mold in your body? I am so tired of living like a vegetable, but enjoyed all the nurses, & the attention, and hope, I was given over not much, because In my heart, they were doing the wrong thing, although I had my mouth zippered. I am still ticking though, wearing the patch still, & smoking Indian cigarettes. I am considering quitting until I start to gain weight. I am a little vain. Thing is, we grow up, & I partied hard till I was 50. It's been easy to not smoke like I was before. I was once a determined, strong person. If anyone tells me to quit smoking, my feathers get tied up in knots. After 50 though, you do start going down back to that baby phase of your life where people have to take care of you if you don't take care of yourself. Oh ugh.
Tonight I wanted to go back. My mind slightly cleared al little while I was there. I think my narcolepsy attacks, my cramps in my legs, are all due to the thick white gook inside all of my body, & brain. You guys know my brain is not in full working order, but I do thank and, appreciate you finding some humor in it at times.
Have I damaged myself more taking these steroids? At this time, I'm not fighting the system, although may get my spunk back.
If you have any suggestions, I'd appreciate them, but I don't think I'll be able to respond for awhile. I have high hopes to get on a good sleeping schedule, change my life, and get better. I don't quite see how it will work though. Nevertheless, I'm going to check back in. Reminds me of a song. "Oh my bags are packed, I'm ready to go......................................"
Love you all, & thank you for all your help. Do I start jogging?, freaky
The topper is the COPD-did I mention this? Sorry, I will nest time if I didn't. Smackers, & Hugs
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Post by Lynn on Jun 23, 2011 7:49:08 GMT -5
Hi Freaky
I am very sorry about you having all that. I hope the oxygen helps when and if you get it. I said a prayer that you find a way and that you do not have cancer. Take care of yourself please.
In Light Lynn
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Post by kammy on Jun 23, 2011 12:57:31 GMT -5
There you are! I was worried about you not being around and being in the hospital. I'm hearing more and more about people and some who have never smoked coming down with COPD. They took a chest x-ray in the ER and my lungs had changed dramatically from one year to the next and they said I had COPD all of a sudden. I can't say that I had any symptoms but I'm not out jogging either. And, it was like when I saw my doctor next, she didn't seem concerned. I asked her about it and she said that anyone who had smoked was due to get it... Well, we know the warnings on the side of the cigarette packages tell us that it can kill us and I think over the past few years with all the pollution, we have to be smoking a more toxic tobacco than ever and they basically have a license to kill us and they are even giving us a fair warning. I'm not harping on ya', I'm still stupidly smoking myself, it's like there's crack cocaine in them or something that makes it almost impossible to quit... I know. We should have been wearing masks like those smart people in Japan years ago, have you seen the smog haze hanging over the bigger cities? You think Michael Jackson knew something that we don't, when he went out in public with gloves and a mask on? I even noticed that The Queen had gloves on the other day when shaking hands with a long procession line. But, of course, we're not going to get any such warnings. I would think you'd need to find a doctor that will give you a 30 day supply of an antifungal to see if you show any improvement, my derm did here and I think it helped.
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Post by freaky on Jun 23, 2011 13:20:44 GMT -5
Thanks lynn, especially for your prayer. Not to worry. The cancer was determined not to exist. It's probably a big morg snoozen in my lung.
Please excuse my post. It doesn't make all that much sence, not exactly what I wanted to say, and spellcheck didn't work.
I'm doubtful of their diagnosis.
Can someone please explain why the steroids are bad, even though I think that was the only thing to revive me then?
Does anyone know how I get oxygen back in my lungs? or is that just by using the mask?
Love ya lynn, freaky
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Post by toni on Jun 23, 2011 13:55:26 GMT -5
Thanks lynn, especially for your prayer. Not to worry. The cancer was determined not to exist. It's probably a big morg snoozen in my lung. Please excuse my post. It doesn't make all that much sence, not exactly what I wanted to say, and spellcheck didn't work. I'm doubtful of their diagnosis. Can someone please explain why the steroids are bad, even though I think that was the only thing to revive me then? Does anyone know how I get oxygen back in my lungs? or is that just by using the mask? Love ya lynn, freaky Hi, No one should go through what you've been through, and I'm sorry that you have. I'm sorry for all of us being in this position/condition/situation and circumstance. I want to help where I can, and you'd asked about steroids. Steroids suppress the immune, and cause a release basically of fighter cells that then become over abundant in the body, which could actually cause the body to do an "attack on itself". Sort of like an autoimmune disease situation. Like what AIDS does "in a great similarity". The body has too much of one thing going out to try and attack what it thinks is invading it, and all it really ends up doing is turning on itself. The other thing and this is only my thoughts on how to keep ones lungs "in real good condition without the use of an oxygen tank" is while sitting at the computer or doing just about anything, take a moment and take in air: long, deep and very slowly, and exhale the same way, allowing the air to come out sloooowly. Deep breaths, in and out. Not too many or too fast, but do this many times throughout the day, because the lungs are no different than our arms as an example. When we want a body part stronger, we exercise it. And deep breathing is a GREAT way to expand and cause the lungs to be strengthened. Like divers too. They can take in tons of air, because they've conditioned and exercised their lungs which causes an incredible strenthening of them. We can and need to do that too, because every cell in our body depends also on getting fueled that oxygen, and that's how we get it. Breathing good deep purposeful breaths nice and slow, and letting it out nice and slow too. And that's easy to do while sitting here at the computer. Revising (adding something in today) It just struck me today, who told me about the deep breathing which is soooo beneficial - and it was one of our members here (Mercury) who is a very sweet person and I've not seen her post in awhile, and Merc, if you're there, you're missed.
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Post by Lynn on Jun 23, 2011 15:50:38 GMT -5
Hi Freaky Loved Tonys answer because that is what I do and my lungs rarely have trouble and I like to smoke cigars. Before ill I might smoke a cigar to pipe every other week end. Sense ill I smoke almost every other day. I give myself breaks from it though. In shower and when ever I use the toilet is when I do my slow deep breathing. Suppose to do 25 per session, but start out with a low number and work up. Also CoQ-10 with help with oxygen and not to long ago someone had posted a vitamin or some suppliment that oxygenates the body. Cayenne Pepper drops slowly built up in water on a full tummy increase circulation and will help greatly. Not only does Cayenne increase over all circulation it does many other jobs. It kills Bacteria or virus. One or both of those. It levels out the blood. So thick blood will be made thinner and thin blood will be made thicker. If blood clots it will desolve them. If you are a bleeder it will stop bleeding. I am living proof of that last one. Uh oh here goes one of my life events again. After I had my first child at home intentionally. I hemmoraged. In fact I had a near death experience right after he was born. After that I hemmoraged for 4 months. Durring that time the doctors gave me this or that trying to get the bleeding to stop. The last pill given was very tiny and it made all my muscle clinch which was very painful. The Doc said flush them because it could cause my heart muscle into a heart attack. I was so scared I called my midwife and asked her what to do. Little did I know she was more into natural stuff then I was at the time. She told me to go to a health food store and buy out of a bulk barrel the hotest Cayenne I thought I could stand. So I bought the hottest and the most mildest and combined them. She said to put a heaping Tablespoon into half a cup of apple juice twice a day on a full tummy and do not throw it up no matter what. I had to plug my nose and swallow it whole in one gulp with the milk on stand by to cool my mouth and throat because there was no way I could get a secound gulp down. I had a cast iron stomach back then also because of a controlling father so I knew how NOT to throw up. We were not allowed to throw up when we were young. So it hurt like hell and if I had let myself I would have threw up, but can you imagine the hot pain that would cuase comming back up. I sip very slowly a small glass of milk before and after each session. By the secound day after my third dose all my hemmoraging stoped. I was so shocked after letting Doctors have their way I went to a library and read up on Cayenne and have used it off and on all my life. Dr. Shultz of the www.herbaldoc.com sells a very strong tincture and he uses it to save people durring big heart attacks and strokes. Cayenne also stops hardening of the arteries and helps clean out any build up from cholesteral. Big hugs to you. In Light Lynn
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Post by justhanginin on Jun 23, 2011 19:58:23 GMT -5
Hi Freaky , Sorry to hear of your health troubles. you asked about what the steroids might do so here goes. Having gone to the regular MD in January because I was having some trouble breathing while cutting back on cigarettes I was given a steroid inhalation treatment in the office. It kicked off a flurry of Morg activity that went on for months. Things have calmed down now but I never want to do that again. The thought of COPD scares the hell out of me, but I am an addicted long-term smoker and anyone I have seen quit after 40 plus years just seems to get sicker. Saw a close friend being treated with steroids and oxygen and finally she just threw the towel in and instructed her doctors and family that they were only to give her palliative care and keep her comfortable. The side effects from the steroids she had been using were pretty G-d awful. Her bones were collapsing and she could not walk well. After she had a fall and fractured her cheekbone and collar bone I gave her some leftover homeopathic meds from my own injury. Her orthopedist was amazed at how quickly she healed. BTW my own osteoporosis diagnosis has been reversed by four months of homeopathic calcium. It's a maintenance dose. Boy was my gyn floored when the results came in. OK I'm rambling and tired , guess I am trying to make the case foralternative medicine with you. I just don't see allopathic medicine as helpful, unless you've broken something or need surgery.
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Post by itchin4answers on Jun 23, 2011 21:20:14 GMT -5
Dear freaky, I'm sorry to hear you're so unwell. If it helps you any my Grandma has CCF & COPD & she is still going at 95yrs! Her doctor said that she has these conditions because she was a smoker, I think she gave up around 60yrs. Little does the doctor know my Gran never inhaled the cigarettes, just had them hanging out of mouth all the time & everyone else around her suffered the effects of her smoke. She gave smoking away no problems & I think it was because she never inhaled. I am a smoker too, I know the dangers & have tried to quit. The patches send me queer! I was on a steroid about 6 yrs ago for 18 months, not a pleasant experience, many side effects, buffalo hump on my back, changed the appearance of my body & I started to have rage outbursts. Please get well soon. Lots of love - itchin
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Post by freaky on Jun 23, 2011 21:52:28 GMT -5
Tony, thank you for your sympathy. I'm feeling sorry for myself right now. Parts of this are all scrambled. Seems like every dr. gave me a different diagnosis. I still am thinking my lungs are full of fungus/mold. They decided I had ashma? when they listened to my chest. That I know is the morgs in my throat, & everywhere else clanging together. The hospital cost $1,000 a night. Guess that's why I'm not in the hospital today. I think, or hope I get my oxygen mask tomorrow. I'm hoping the morgs won't take a fancy to that, will they?
Hum, wrote this this morning, & I forgot to send it. I just saw it on the other page.
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Post by kammy on Jun 24, 2011 7:03:12 GMT -5
Are you feeling better after the oxygen and steroid treatment, Freaky? You sound worried that they failed to diagnose, misdiagnosed... I'm just glad to hear that the hospitals and doctors are treating people somewhat humanely and taking us seriously. I know you didn't go in there and complain about 'the Morgs'... or we end up in the psychiatric ward. Did you get some blood work done? What did it say?
On smoking... I have cultured tobacco, the paper and the filter portion of a cigarette separately. The filter and paper both grow our mystery 'sphere' and I forgot what the tobacco did but, it is strange too. The paper has a glue on it too, so we're smoking glue. I was telling Jeany that I was thinking about getting a pipe and a better known quality of tobacco and smoke it, instead of the cigarettes to eliminate the paper and filter. The filters are cut with a machine, I read at one time, that this cutting process can leave very small shards of the fibers in the ends of them which end up in our mouths and lungs. I know that pipe smoking is not very 'ladylike' but, it's something we could do in the privacy of our homes if we don't go out much and cut down on our paper, glue, certain chemicals? and fiber intake or as a sometime alternate to cut down on the amount of actual cigarettes we smoke. Just saying...
Jokingly... since cigarettes are over $7 a pack here, I was really thinking about getting a water pipe, like in the opium dens that have several smoking tubes running from them and smoke our tobacco that way to save money! Tax the smokers more than anyone but try to kill them quickly at the same time... what kind of logic is that? We're their 'cash cows', we're the ones building the roads... when we're all dead - who's going to pay for the stuff?
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Post by freaky on Jun 24, 2011 20:16:03 GMT -5
Hey kam. Ya know, you're an absolutely amazing writer. I knew that, but I guess I forgot. I'm shocked at how scattered my post was I wrote, but hopefully it's just because I'm under the weather right now. LOL. Just forgot exactly what all you said though, so I'll try, & write later.
But, ha ha, I agree they have tinkered around with our cigarettes a little too much. You have some great ideas. They cost $48 a carton here, and in TX, they really screwed them up so us people who need the government to hold our hands as we go through life, made it so you have to keep lighting up. That's so we won't start so many forest fires. They just continually go out.
Thanks for looking for me. I'm here now.
Love ya, freaky
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Post by freaky on Jun 24, 2011 20:42:10 GMT -5
torpedo, what a woman. You go girl. I love the smell of pipes. You certainly have been through hell, & back. I'm glad you made it, and sorry you had to suffer so. Although I take my fair share of drugs, I believe. & prefer alternative medicine, & used to study it all the time a while back. I even went so far as finding a shrink I went to because I didn't have anyone to talk to about my research, & he would. That had to be in the olden days. Oh, that was re:drugs, but anyway, you don't have to convince me. Oh whoops, I'm so sorry. The last part of this paragraph was meant for justhanginin who was trying to make the case for alternative medicine with me. I just got confused, so starting with the word although written above, will you please just give the rest of that paragraph that to her? I just love being a ding bat, it's so refreshing. haha
I did try the cayenne once. You do have an iron stomach, and I really feel for you having to go through that. What an ordeal, & especially with a new baby, too. The cayenne corrupted my stomach, but it really has a lot of good things it does, especially bringing you back to life. I have oxygenated tablets called Opaline, Dry Oxy. I think that may be a scam, or else mine are made by a bad company, but I'm not positive on that. Thanks for your Co Q 10 tip. I'll start that for sure. That was an intense story. Your dad will pay when he, or if he has gotten to the pearly gates. Stay well, & thanks for writing, freaky
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Post by itchin4answers on Jun 24, 2011 21:24:40 GMT -5
Hey kam. Ya know, you're an absolutely amazing writer. I knew that, but I guess I forgot. I'm shocked at how scattered my post was I wrote, but hopefully it's just because I'm under the weather right now. LOL. Just forgot exactly what all you said though, so I'll try, & write later. But, ha ha, I agree they have tinkered around with our cigarettes a little too much. You have some great ideas. They cost $48 a carton here, and in TX, they really screwed them up so us people who need the government to hold our hands as we go through life, made it so you have to keep lighting up. That's so we won't start so many forest fires. They just continually go out. Thanks for looking for me. I'm here now. Love ya, freaky We have the same issues with the cigarettes going out, apparently they did something to the paper to stop them burning quick. We pay $20 for a packet of 40 cigarettes & that's from a supermarket which is the cheapest place to buy them. If you buy from a gas station the mark up is about an extra $5. No one is aloud to show cigarettes on sale ie. supermarkets, tobacconists & gas stations. You have to know what you want to purchase...ie. you can't ask the shop assistant if they have a particular brand, they aren't aloud to discuss that with you. The whole thing is really weird & now they are arguing about the plain packaging. If the government do allow it we will have to quit, coz no one will know what is really going in their cigarettes.
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Post by freaky on Jun 24, 2011 22:38:49 GMT -5
That's unbelievable. Wonder how much a carton would cost. We brought home about 10 cartons from St. Martin. One guy was selling them for $7. We didn't have time to find him, so we ended up paying $15.
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Post by freaky on Jun 25, 2011 0:38:17 GMT -5
justhanginin, I wrote some of my response to you on lynn's post. I asked her to give you the paragraph. I was agreeing with you on alternative medicine, but after thinking about it a little more, that was a little hypocritical as I couldn't do without my drugs, especially my pain pills, & sleeping pills. As for Clonazepam, I'm just plain addicted to it. And, right now I can't find a dr. who will prescribe pain pills to me for FMS, & that is a necessity. I don't think any tincture would be comparable, but I certainly respect your opinion, and wish I thought the way you did. FMS is becoming a profitable, political disease rather than one based on fact.
That's so sad about your friend, but terrific about your osteo diag. Would you mind telling me exactly what you took, and how much? Calcium tablets don't assimilate well in your body, & having strong bones seems to be something you can control. I'm amazed you did. That's most admirable. Please let me know if you've posted this info. already, and I'll go there, & look it up.
It seems that if you quit smoking after smoking all your life like I have, that it has a great effect on your body in that it doesn't get what it thinks it needs anymore. The info. I read on COPD said it may not help at all, and they've done test studies that inferred the same. It's weird that so many of us smoke. It makes me happy though because it lessens the guilt trip the non-smokers put on you. I appreciate support for my bad habit by all the addicted morgies, not that I don't wish we could all quit without grief, and become healthy.
Big hugs, & much love~~me
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Post by freaky on Jun 25, 2011 1:31:45 GMT -5
Hey itchin, I'm confused about CCF. Did you mean CFIDS? You got quite a Grandmother. My parents are both 92, and since all their friends have gone, & passed, they're pretty much ready to do the same. Your Grandma sounds like a spunky gal.
18 months is a really long time. Bless your heart. Was the buffalo hump based solely on the steroids, or did lack of estrogen have anything to do with it as well? Was that a permanent side effect? I'm so sorry if it was. I was over menaupause long ago, in fact I've been so sick, I never knew I was going through it. I used to study that too, but now I know nothing. I don't know if I should be on hormone replacement (herbal), or what. I just want to avoid the broken bones, hip replacements, etc. that we're all going to get if we don't acknowledge we need to pay attention to preventing it. I just wish I could have a face lift, a boob job, and the desire to jump in bed, & scream my head off, but I'm not thinking that's a possibility anymore. It's not, is is?
Went to the doc today, & he wouldn't give me any oxygen until I go have the pulmonary tests, and it's documented how little I have. the same dr is also an allergist I think, so maybe they could check my mold/ fungal counts, I wonder if that's possible. Not real excited to have them tell me there's nothing they can do. Maybe I'll just repeat, "All is good while" I do my deep breathing, & I'll become enlightened. I had to steal my daughter's nanny from her babies. I get her once a week to help me clean up the mess I made the previous week. Every single thing in my life is related to my oxygen depletion, and it's been a real trip to discover this. The fatigue, narcolepsy, loss of memory, inability to sort things, or arrange them, or pack to go on a trip, or unpack when I get back, or make an appointment on time, I've totally lost myself, & I'm not at all the person I was 7 years ago. I'm just a used to be artist, & now the only art work I do is re-arrange the worm like creatures on my face, & neck. I apologize for being depressing. At least I'm doing that well, but it's not really what you all need right now. I did get my records, & will check back in if I see anything of interest.
Much love to you itchen, & all u guys. Appreciate, & love you all.
Sorry if I should have written much of this on other threads. I'm just behind. xoxoxox
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Post by freaky on Jun 25, 2011 1:50:54 GMT -5
tony, & justhanginin, thanks for taking the time to answer my question on the steroids.
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Post by Lynn on Jun 25, 2011 2:23:20 GMT -5
Hi Freaky
You are a sweetie. My favorite pipe tobbacco is Sherlock Holmes mix. About ten years ago you could get a strong version which was a oriental spice mixed with a woodsy blend. The company I bought it from changed to a mild mix with way less flavor. I have search the net for the strong version. I guess if I ever get rich I will have to go to the company that use to make the blend and learn how to make it myself. I had a moon pie blend from my local tobbaconist. It tasted just like a moon pie. I love the smell of tobbacco and some cigars so thats why I took it up some. Some day I want to collect carved pipes with whismical faces.
In Light Lynn Love that you are a goof ball, I am too.
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Post by pdidit on Jun 25, 2011 9:55:28 GMT -5
Hi Freaky I am sorry to hear what you have been through too--seems I am a bit late in finding this out, but see you have lots of good suggestions from everyone. I agree with Lynn about the cayenne pepper oil, which I put in lemon juice every morning. I don't seem to have any problem with my stomach and/or burning when using this. Maybe because of the lemon juice turning alkaline in combination with cayenne? I dunno, but from all I have read, this helps to clear out mucous and toxins. I finally tried to simplify ordering things and just get as many supplements as I can from one online place now, but used to order from Dr. Schultz--he has great products though and learned much about him on curezone. I have a lot of phlegm, both in my lungs and sinus cavities and I am trying different enzymes to break this up. One is called Mucostop and it helps somewhat but I am also always on decongestants and antihistamines too...seems everything is needed right now to keep my airway passages open and draining. Your situation is obviously a much more dire one, and would weigh this carefully; I would agree that taking an antifungal like diflucan or sporanox, would be helpful to see if it addresses some of this fungus that I think we all have with Morgellons. This and perhaps maybe a powerful enzyme...I am exploring these now. Research has indicated that the enzyme Lysozyme is proven to help fight biofilm attachment and is more effective if taken with an anti-fungal drug. These are just some possibilities to address the fungal part of your COPD. I cannot vouch one way or another yet for lysozyme yet..think all of this takes time and to be used in conjunction with an antibacterial/ antifungal. There are other enzyme formulas to explore and this might be well worth experimenting with. Some suggestions are celluzyme [high amounts of cellulase, which is good for breaking down fungus and also has lysozyme in it], Neprinol is good for circulatory, since it allegedly breaks down fibrin in your blood...biofilm defense is yet another. But any systemic enzyme might help all of us, IMO if taken with meals and in between meals. These last three I mention are very high priced btw. Nothing to sneeze at when making a decision for a trial experiment. But we are all just guessing here....could you get them to culture your sputum? That way we would know for sure if or what mold spores/ fungus were involved and/or parasites involved? From my own experience, I do happen to think that I have a systemic fungus that is also in my lungs...and therefore am spewing out fungal spores that then become airborne and grow in the environment. Just a hunch from what I have seen and cannot explain any other way. I think it is safe to say that we don't know where Morgs begins and ends...meaning whether this M infection is the main reason for your lack of oxygen etc. or whether these are just secondary problems you would have had anyway, that require some different means to control. i. e. the oxygen...sounds like a good idea to keep on that, if you can get something to keep at home. Especially since it makes you feel better, think clearer etc. -- go with what your body is responding to. Supposedly, there is much less oxygen in the air now for all of us even without pulmonary problems, so who knows...maybe someday we will all have to go around with a breathing apparatus! Other people have gotten help with a nebulizer...? some have experimented with putting c. silver in the nebulizer...I know that after taking c. silver, I often have a coughing spell that brings up a lot of junk. But this is obviously no cure. So perhaps the parasitic aspect of this has to be addressed at the same time as the fungal one [ i.e. killing off the possible parasite in your lungs and breaking up/killing the fungus /parasite after you cough it up]. Just a guess that makes sense to me. Revoxil is a good natural antiparasitic / antifungal to take, but here again, not knowing what you [we] are dealing with makes it difficult to pinpoint treatment. There is one thing I wanted to mention on the topic of steroids, which I know very little about: There was a video produced by nanotransformation at one point [youtube--since taken down], where one of the women involved in their journey to wellness from morgs, had an asthma type attack and one of her lungs actually had collapsed. She was rushed to the hospital where they wanted to put her on steroids, but she refused. She remembered someone telling her that if you had a strongyloides type worm infection, which she felt she had [don't know why or how she knew this] then the steroids would actually accelerate and spread the infection which could be quite dangerous. She actually recommended having just one cigarette a day, to calm down the worm invasion her in lungs ! here is a video from another site: www.youtube.com/user/birdmitesandscabies?blend=1&ob=5#p/u/28/gCNqvyYucYEone woman's experience that is similar: simplydebhealth.blogspot.com/2011/03/this-is-just-scarylarvae-coming-out-of.htmlI think one can get a strongyloides blood test done. We all obviously need more tests done specific to Morgs, but the question remains...how to get this from a regular doctor? Not possible from my experience --think that a good chronic lyme doctor with acknowledgement of morgellons is our best bet right now and/or a naturopath--both are willing and able to 'think' out of the box. I hope you start to feel better soon...was just going to PM you to see how you were doing! Stay on 'the mend' and rest up -- hope to hear from you soon when you are feeling stronger... Love Pdidit
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Post by justhanginin on Jun 25, 2011 15:29:36 GMT -5
Hi Freaky ,will PM the form of calcium that I take. I also have a dx of asthma since Morgs, no prior history,and find that cutting back on my 15 or so cigarettes a day leaves me congested to the point that I wake up choking, especially during allergy season. So I keep an albuterol inhaler around, just in case. Haven't used it in three years but ya never know.
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