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Post by nikyf02 on Jul 30, 2011 1:21:35 GMT -5
Hi, Nice from all of you to share info, I have Morgies since 2005, long story, got it from a client and keep sharing all over the world. Sadly , just I infected maybe over 50 persons, most of them my friends and family, I feel as a silent killer seeing around me the damadge I made not knowing what the heck is going on with my self.Now I can say I am a pro in this research, I got all my tests over in Europe and my situation is really bad, counting days.Did you ever look with the doppler into your heart? Forget about the brain, that is all gone almost, but in the heart you can see the worms crawling and ... well if anybody need more medical info, I have it all, all on the papers , that is my testament for the nice US doctors which refuse to treat me so many times, not even look into the ,,white substance (unknown)in my brain''. Thanks for reading.
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Post by Lynn on Jul 30, 2011 1:47:43 GMT -5
Hi to all the new people this week.
Very sorry you are caught in this disease. Almost a new moon and everyone seems to have gone dark. I see a lot of folks here suddenly having some troubles with thought process.
Lolo and Nikfy I am in central California. Had this stuff sense 2 years ago. Was real bad at first and felt like I was loosing my life. Am mostly well and know I will be all the way out of this one day. It took the patience of job and I am still steadly working at it. Doing a cha cha. Get better for a while and then get sicker for a while, but every few months I gain a notch in the right direction.
Everyone take care and love all the video links. Great fun.
TorpedoLynn
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Post by Baraka Obam on Jul 30, 2011 8:28:09 GMT -5
My friend I have to say I do really doubt that you have spread this to 50 of your friends unless you have had sex with them or are possible drinking out of the same containers type thing.
This issue we face has spread all through the populas.
For 39 years I watched as this changed in my body from one seemingly small unconnected issue to another.
The issue with this disease is doctors seperate the symptoms as the symtoms manifest as so many different items, exzema, hair loss, red cherry anginomas, pimples, eye problems, itching, damaged nervous system, paralasis, you name it this has its foot in the door as either a helper or the issue.
YOU, did not cause this to happen in 50 people. that is unless this has changed or been mutated beyond my disease capability.
Can it now use another easy to transfer patogens mutated DNA to transfer this, I do not know, but I would doubt that you transfered this to 50 people.
I watched really every day, at peoples skin, I looked for my symptoms, no matter what the doctors explained them away as normal, believe me I am very articulate this disease is in the population already.
Seeing that I contracted it during the Vietnam war and at the time all these things started I was in Asia, and the military tried to bury the fact that so many soldiers were coming home ill from Vietnam, my contention is this, either Agent Orange was a coverup of a biological agent or the military slipped us somthing in our innoculations.
If it is not quite clear to you how many soldiers came home with issues that are very similar to ours you need to just walk into a Veterans hospital and sit there for, lets say 1 hour and look at the veterens skin and overall conditions.
You will see all the white spots all over their skin, you will see the lesions all over their legs and arms, you will see the nerological damage to their bodies, so many of the hobbel in there.
There is more does it not seem strange to you also, with every deployment we have soldiers coming home in mass with issues, then their families also get the condition.
Let me present this to you, why, why did the Vietnam veterans familys also get ill if it was a herbaside that they were afflicted with, why, why were their children born with so many birth defects and later problems in life, if chemical were the problem why arent more people that work in chemical factories children birth defective or for that matter any petro chemical factory or manufacturing plants that use petro chemicals, after all, there has to be some other super destructive chemicals and we do know there is.
It was a coverup and I have called as many of my fellow veterans that I could find that were there with me they are all sick, but they could not imagine it was from exposier even though they went to Asia healthy and came back sick, doctors explained it away for them all.
One man was from Utah, UTAH he was from a tiny little city out in nowhere, his skin was perfect when he got to Asia, when he left he was cover with skin problems. Yes he was.
My contention, it was the citys of prostitution set up outside military posts, where the sons of all mixed with women of a third world nation, antibiotic use in one year was 10,000 fold what it would be in the sickest citys of the United States, not only that, they were used on the same exact for more then 15 years.
So Super Strain disease would only take lets say 6 months in such a arena instead of 80 years.
You can only treat disease so many times especially in the same exact people before the pathogens mutate, this was a breeding ground for all kind of Super Strain disease.
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Post by Lynn on Jul 30, 2011 9:54:48 GMT -5
Baraka I agree with part of what you say, but I have to tell you I know someone who spread a portion of his problem to 3 elderly men in my moms church. They will not let him anywhare near them as they know their problem stemmed from a man who though he only had Scabies. It was my talking to him about his bizaro syptoms that finally opened him to looking into Morgellons. He has little flys hatching and flying out of his skin. Than at the begaining stages of the disease when the three elderly church members came down with portions of his disease. The awefull thing about this disease is it can invite other things to latch on and it could be those other things that others are exposed too and they become a victum. It would be interesting to here what the person who has spread it has seen happen in symptoms on others. Because I do know that the man I know who spread parts of his problems at the begaining were somewhat different and then after it really set in he no longer spread it. He also has been sick with the infliction for over 2 years and no one sense those begaining months contacts his disease. I personnaly think that if you are a walking billboard for bugs that deal with fungas, mold and such that some bugs will bite you and go bite the next person. So taking a wild guess at how one could pass this along without the sex is that certain people have a bigger problem with a type of bug that is more prone to biting you and biting those nearby transfering part or all of the disease. Did that make sense?? All things are possable and unfortuantly we are stuck trying to figure it out. Sex does not always spread it either. I have sex with my hubby and he never gets it even though at times I wonder if I see pre-stages. But his body must be able to fight it off. Go figure. You would think he would get this before me because he has had long bouts in his past of broncitus which I keep controlled to nearly nil with Ester-C. He also has low testosterone. I was so fearful when I had five different kinds of bugs living on me and anyone in the same room would start itching. Glad those days are over. In Light Lynn/TorpedoLynn
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Post by nikyf02 on Jul 30, 2011 10:49:29 GMT -5
Well, I got the L/M at work, not having sex, just working as esthetician, touching the wrong person at the wrong time if you can say that. She was a nurse , very nice lady, I knew she was sick but she never disclosure her medical problem.I found her 2 years later on Morgies site. My bad luck, but I am taking this as it was written in the books for me to be...I will not stop here, I will scream to be heard by the world from now on, specially that in my brain ,the emotional centre has been eraised by the disease, so I have no more shame, emotions, and all the criteria to feel things, not even love or hate etc. I am treating my self with all kind of medication since many years ago, changing and rotaiting them, trying to keep all in one place, I do better than most by having the abillity to buy medication and special treatments which for some of us is hard to get in US. I take all medication and research, see the outcomes and all the criteria. I do not like medication but in the stage I am now, it seems that I do need it, brain is OK, latent stage but the heart is rapidly going off the truck if I let the worms to fill it. Skin is OK if I keep sun and salty water on, I reversed my pool into a salty pool and each time I get to the natural salty lakes I do better.Demyelination makes my nerves to cut all my moving with lots of pain for few sec, but I got use to it, is not that bad unless I falling on the groung as sometimes I do. It seems that majority with the type blood 0 get this much easier than other ones type. Saying about the worms, yes we can give it to others only by touching, sharing a towel at the beach or be in their space, having sex is prompt and 100% sure. I read a lot and search and research all over the world and I found a hospital in Istanbul which is familiar with this Morgies to treat, it seems that as today they have 2 man from Arizona in treatment there.I do respect all our medical stuff ( Dr, in Texas was excellent), but I can not forget, but forgive, the bad and unprofessional treatment I got in all 3 times to the emergency room with this matter, making fun of me, repeating to me instead of Morgellons...More gelous(hahaha) go figure that! And I had 7 blood vessels bleading on my brain, all the white matter visible and many more.Sorry for any miss spell or deviation, but in my case is normal. God is with us.
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Post by pdidit on Jul 30, 2011 11:00:38 GMT -5
Hi Harry, First of all, am so glad you are feeling better--I did not know this so it is encouraging to hear! Secondly, I will gladly post this elsewhere, where I travel on the internet. I don't know why we as a group are not focusing more on this--think it has to do with the demands this disease places on everyone. Most seem stretched to our limits. Thirdly, very interesting info from the Morgellons foundation -- wish there was a way we could raise funding. Maybe do a search on ways to fundraise, perhaps even reaching out. educating and appealing to huge corporations--a pipe dream I know. Wonder how the AIDs organizations did this? Before Morgs, I had even thought about the great success of "The Great American Bake sale" and this is where many people have sent in money from their own bake sale and it raised quite a bit of money, for the cause of ending childhood hunger within our country. That has always been a disturbing fact / pet peeve for me to hear and wanted at some point to contribute in some way, then of course, got this disease. But from all I can gather, it is one in the same non-profit organization of the 'Share our strength' campaign to end hunger www.strength.org/about/our_history/Unfortunately now with this morgellons going on, it is a ridiculous idea--there are many afflicted morgs people like myself, who are in no position because they look sickly with unslightly lesions etc. not to mention the possibilty of passing this on to others...so to be presenting themselves to the public and trying to sell baked goods would not be feasible. But boy, I have some yummy recipes for desserts etc. And I know this is more of a silly 'girlie' idea that I thought of that would have been fun to do with my children...and I assume this would appeal more to women [or am I stereotyping? But there must be so many other ways that we could look into that would also raise awareness at the same time. Anyone know of a fundraiser who knows how to 'work the system'. And speaking of petitions, saw one the other day and saved it for later viewing--will post it here but looks like only 45 have signed in : www.thepetitionsite.com/3/stop-people-from-suffering-from-morgellons/ love Pdidit
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Post by Harry on Jul 30, 2011 13:36:23 GMT -5
Hi, Nice from all of you to share info, I have Morgies since 2005, long story, got it from a client and keep sharing all over the world. Sadly , just I infected maybe over 50 persons, most of them my friends and family, I feel as a silent killer seeing around me the damadge I made not knowing what the heck is going on with my self.Now I can say I am a pro in this research, I got all my tests over in Europe and my situation is really bad, counting days.Did you ever look with the doppler into your heart? Forget about the brain, that is all gone almost, but in the heart you can see the worms crawling and ... well if anybody need more medical info, I have it all, all on the papers , that is my testament for the nice US doctors which refuse to treat me so many times, not even look into the ,,white substance (unknown)in my brain''. Thanks for reading. Hi Nikfy welcome to L B I have not found a site with so many caring people since I've been active here & 7 other site's, your in good hands here at L B, I feel the same as Bam, I've had this for 7 years told my best friend what I was dealing with, he said don't worry about it come over, he is 13 years older then me I knew & was active with all of his family for many years, so it took me a while to accept his invite, I went to his grandchildren's birthdays, Christmas, thanksgiving & huged all of his kids 5 in all, & his grandkids for over 6 years & they never had a problem, I feel as long as they don't sleep in your bed or come in contact with a bloody open lesion they will be fine unless they have an immune problem this might be a situation for infecting of that individual. be well. I feel casual contact is not a problem. I beg to differ Lynn!, I think in close interment contact their is a possible way of infecting other's, this is my view
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Post by Harry on Jul 30, 2011 13:58:08 GMT -5
This is for everyone here on this Issue for help thank you. I'm doing what I can to get people to realize they are not powerless, I'm Hopping to work on a new Petition not only for Morgellons suffers to sign but also the General Public, ...they will get this Disease some time in the future so!, it's a Public Safety Issue as well, in all the year's I have been on all of these site's would it be a lie to say new people walk through those doors every single day with Mothers & Fathers in tears worried about the plight of their Family's & Children, it will take some time & work, but I'm trying to get Major Morgellons Disease Players to the table in order to make this a reality, so people can download pictures, information & take their lawn chairs to the City hall or supermarkets, Collages to educate the public & get their signatures, they are at risk if nothing is done & we will suffer still. Their is power in numbers we need the Public to be involved in order to push the Government for a Comprehensive study & program by the C D C witch I feel is a dysfunctional broken agency of the U S Government & does not serve the Public's Interest
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Post by skizit on Jul 30, 2011 15:31:23 GMT -5
I am wondering if the CDC is not responding because it is first responsibility o the state to investigate, then they call the CDC in. This is the protocol and it has not been done. I'm trying to find where I read this but I have not found it again yet.
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Post by Harry on Jul 30, 2011 15:46:16 GMT -5
I am wondering if the CDC is not responding because it is first responsibility o the state to investigate, then they call the CDC in. This is the protocol and it has not been done. I'm trying to find where I read this but I have not found it again yet. I feel Skizit their are not enough people involved so the C D C doesn't feel the numbers are adequate or justified for them to take this as serious as they should, they aren't worried about thousands of people that die every single year due to food contamination, until the people and the Major part of Government is pushed to take action, so that's what is necessary we need to get the Public involved, I will say it once more Morgellons Disease is a Public Safety Issue they will join our club if nothing is done, this is just a fact, we need to push & push hard to get the wheels of Government to work the way it should
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Post by skizit on Jul 30, 2011 20:45:40 GMT -5
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Post by Harry on Jul 30, 2011 21:28:50 GMT -5
Skizit!, your link seems to be broken, we can bring up why & who all day long about about blaming the cause's of this dreaded Disease, my point is if we can draw up a Petition get the Public involved for all the reason I explained, & get the wheels of Government to work to get a comprehensive study & program that deals with the problem, I have heard for the last 6 year's who, what & why, if we keep talking about what we think rather then getting something done, we will be sick with this till the day we die witch isn't a pleasant thought
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Post by bannanny on Jul 31, 2011 12:38:22 GMT -5
It's still so hard for me to see this as contagious... none of the people (family and friends) have gotten this from me and they were in close contact with me from the beginning and right into the nightmare stages. My husband has been with 2 of us now... with our dear Sue and now me. For those of you who don't know our story I'm sure that sounds a bit strange eh? Long story short... Sue had become a dear friend to me and when she knew her last bout of cancer was going to call her home, she asked me to take care of her husband and girls for her once she was gone. Somehow she knew Tom and I would share the same love they shared together... and it ended up being she was right. We were married in Feb on the same beach we released her ashes on... she gave me life again when hers ended.
BUT... still, Tom shows no signs of morgellons, nor do the girls or our grandson or my mom, or the rest of my family and friends. So how it can be contagious is beyond me. All I do know for sure is you have to "rise above" this morgellons. You have to take back the controls and become as positive and happy as you can while ignoring it as much as you can. It's worked for me... it seems the less attention I give it, the weaker it becomes. I don't take anything anymore either... I'm letting my body fight the way it was intended to fight, and it seems to be balancing itself out again after 7 yrs of trying everything and anything else. So have faith... and fight it with your mind, heart, and soul!! If it worked for me, I know it can work for anyone!!
big hugs ~~ bannanny
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Post by skizit on Jul 31, 2011 23:30:10 GMT -5
Hi Bannanny, From studying the various people who have shared their specimens and stories with me, there seems to be different infection methods and depending on those and what the vehicle carrying the infectious material was, whether hexagon or arthropod or fibers, there are definite groupings. The group that has the large sores, fibers, insects etc. seem to have the infectious kind.
One lady I've talked to a long time and who has sent me many things, is infectious, in fact infected a doctor who was studying her original specimens and so stopped helping her.
Another group just has the mite bites and I don't know what all they inject, I think possibly a polymer which forms a network.
So I think that some are infectious and some are not. I'm happy yours is not.
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Post by ivanhole on Aug 1, 2011 0:41:16 GMT -5
if this 'condition' is so contagious, then why am i the only person i know who has it? i have had the same massage therapist for 5 plus years - nothing. none of my family exhibits symptoms nor do my friends.
unfortunately, the general discussion of morgellons is full of woeful anectdote and no fact. there is no documented evidence of whats and where froms. i am overcome with this stuff, and it's pretty bad, but i need to keep a level head about it. to make uneducated statements to the public as to our contagiousness is really irresponsible on our part. it fuels fear and hinders our credibility.
"Morgellons is not a skin disease. It is a systemic condition affecting multiple organs. It does not seem to be highly contagious." - - Randy Wymore, U of Oklahoma.
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Post by Lynn on Aug 1, 2011 10:14:06 GMT -5
Hi Skizit I Like what you said and makes a lot of sense. I wonder if those who are not as contagious might get to that stage if not put into remission or cured??? I worry I might get to some contagious stage even though I have come a long way sense 2 years ago. In Light Lynn P.S. For two days my adult kids have been getting some bites. They say spider bites while they sleep. I have noticed more spiders. In fact I had one little guy run all over my right leg huttin something. It never bit me, but stayed on my leg runing around and up and down looking for something. I fell asleep with that little spider running about. I think it will pass though I have a nudge of fear on the back burner. I live in a tiny farm house out in the middle of a peach orchard and there is not a stick of instulation in the thin walls. My heating and cooling bill are out the roof. Going to save up and move next year for more then one reason. When I see the spiders I feel releif in a way that they will catch alot of what I am attracking and finish them off before they homestead on me. Certain spiders eat mites. Those beastly Sun Spiders that look like scorpions do to and as I first started attracking the mites those ugly beast started living in my house on a regular basis. Scariest looking bug. www.spiderzrule.com/sunspider.htm
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Post by bannanny on Aug 1, 2011 11:09:19 GMT -5
I'm happy mine doesn't seem to be contagious Skiz... but I still have a hard time believing any of the morg strains are. Reason is becuz the environment is saturated with it... so it's that which is contagious, not us. That's just how I feel tho... and soooooo very grateful I've never passed it on to anyone else.
We had alot of those same spiders in your pic Lynn when I lived in California. I was also living on farmland in the foothills of the high desert just before you reached the mountains. They were known as Camel Spiders there too... and were deemd non-venomous, altho they look like they could put you down real fast!!
love ya's ~~ bannanny
P.S. Sorry for getting off subject here... carry on!
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Post by Harry on Aug 1, 2011 14:41:47 GMT -5
if this is not Infectious then how did I get it from helping a friend & her 2 flea infested cats, that had this Disease, this is a fact no fallacy, and why are their more & more people getting it, theorize that away ivanhole, I belonged to 8 different site's for over 5 year's & every single day more & more people came to these site's, say what you will but what I posted was 1st hand experience & in no way irresponsible, answer the question why more people are contracting this for the last 10 year's??, do you know how many site's are on the internet with new people that have been infected, I'm sure their are infectious periods, if some one comes in contact with a bloody open lesion, or have slept in the bed of an infected person, depending on their Immune system & more, play that one down Ivanhole, is it right to say it is not?? then why are more being infected?? .infecting 50 people is surely beyond my thinking & don't think it likely
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Post by Harry on Aug 1, 2011 14:49:45 GMT -5
hey Bannanny I'm glad your Husband has not been infected with this, but if he was sick, had another Disease this could have been quite different, I wish you & Tom the best always, but their are instances where people infect others, like in my case.
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Post by Harry on Aug 1, 2011 15:07:08 GMT -5
if you had this for many year's don't be worried, in my case the cat's I came in contact with had open lesion, I was unaware of, one of my friend cats tried to run past me as I walked in to help out thus infecting me, in 5 weeks I had lesions just like my friend, I was getting my hair cut by a guy I new for year's, after I was infected he got cancer & was not well for some time, well!, he was cutting my hair & he pulled back as if he was surprised or bitten, this was the 2nd week after my 1st lesion appeared, so to some this up, I was infected by a friends cat she had lesions from head to toe, I thought she had an allergic response to fleas, then two weeks after my 1st lesion appeared I feel I gave it to my sick barber, explain this away ivenhole
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