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Post by Harry on Jul 26, 2011 14:32:41 GMT -5
Dear Mr, President I have an Illness parasitic in nature the C D C has done a haphazard study with little funds, over 200,000 people suffer with this Parasitic Disease& growing because it's Contagious & is a Public safety Issue known as Moregellons Disease, people endure painful lesions for year's with Fatigue, Muscle & joint pain & so much more, some of the lesions are very disfiguring & keeps people Isolated for the fear of this disfiguring along with the fact they can give it to other's because it's Contagious, most have not enjoyed their Family's,or their Grandchildren in the fear that they my infect their Loved ones. The Government & the C D C has done absolutely nothing to help these people, in fact most or all Doctor's write then off as Delusional & treat them with a great deal of disrespect, so not only are they the Victims of Morgellons Disease, but are Victimized by the very people that are supposed to help treat them,.Mainstream Medicine Professional's witch I find repulsive & with disgust, so many suffer a nightmarish Disease with no help in sight I find it unconscionable that the C D C,Mainstream Medicine is not doing anything what so ever, so many have committed suicide for this simple fact they are not taken seriously, Doctors say OH! it can't happen in the U S it's a third word Disease, well I beg to differ for so many year's the U S has been flooded by people from third would Country's and with them they bring Disease & parasites from their Native Lands. I have this Morgellons Disease I am not stupid nor am I uneducated, we need the help of the Governmental the help of Congress to elevate the pain & suffering of over 200,00 people!! people! we suffer in silents because of the Heath system & the inadequacy of the C D C to be effective as a Health agency of the Government. I understand we as a Country are in dire times, but when will our suffering stop?? some have suffered for over 15 year's & yet we suffer still. Sincerely:
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Post by Harry on Jul 26, 2011 14:38:35 GMT -5
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Post by pdidit on Jul 26, 2011 22:41:42 GMT -5
Great Harry--yes have written...wondered if we could all put our signatures on a letter and send it to him? Where are all these 200,000 people and how are we getting these figures, if no one is studying, interviewing us etc?
Obama used to have an open forum discussion once a week...does he still have this going on? Because I felt there is where this subject could be brought up, since I wonder how many of these emails he gets actually wind up in his lap for him to read?
good job and you rate high in my book for your tenacity, love pdidit
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Post by Baraka Obam on Jul 27, 2011 11:00:21 GMT -5
It is a good idea to contact the government officials. You may want to mention that you would like a answer. You may also mention there are groups of these people now forming, large groups.
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Post by bannanny on Jul 27, 2011 11:57:02 GMT -5
Yep... been there, done that too already!!
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Post by freakydeak on Jul 28, 2011 3:48:12 GMT -5
time for repetitive actions, as dull as that may sound.
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Post by Baraka Obam on Jul 28, 2011 11:08:43 GMT -5
Yes the squeaky wheel gets greased. It seems most times today its always a bad wheel that gets greased.
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Post by Harry on Jul 28, 2011 12:44:48 GMT -5
I encourage everyone to write the President & tell your story & please add that the C D C is a dysfunctional Agency & has not taken this Contagious Disease Seriously, Thank you all----also so copy your statement from that Email mail print a copy & send it to this address____ The White House 1600 Pennsylvania Avenue, NW Washington, DC 20500 . Thank you all Bam, Freakey, Baana Bannanna bo Nannas, Pdidit, I wish more or as many as possible do the same.
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Post by Harry on Jul 28, 2011 13:10:50 GMT -5
Great Harry--yes have written...wondered if we could all put our signatures on a letter and send it to him? Where are all these 200,000 people and how are we getting these figures, if no one is studying, interviewing us etc? Obama used to have an open forum discussion once a week...does he still have this going on? Because I felt there is where this subject could be brought up, since I wonder how many of these emails he gets actually wind up in his lap for him to read? good job and you rate high in my book for your tenacity, love pdidit Hi Pdidit, in 2006 the numbers at the MRF froze at 14,000 households I am sure the numbers could be even higher, average out a Family let say 4 to a Family 14,000 x 4 56,000 people, as I said the MRF clock stopped in 2006, I've been a member of 7 different proboard's since then for the last 5 years every single day new people have joined our ranks, Mother's & Father's have posted in tears worrying frantically about their children and other Family member's, take time & think of all the site's you folk's have been on & for how many year's, my question would be!, have you noticed New People come through the doors of these site's, Now!, how many proboard's & site's are on the Internet, and what about people that may not own a computer, how many people can't afford a computer, how many people don't like computers on and on and on. . Thank you & Love back at ya, be well all
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Post by Harry on Jul 28, 2011 13:21:57 GMT -5
Yes the squeaky wheel gets greased. It seems most times today its always a bad wheel that gets greased. >>>Yes the squeaky wheel gets greased. It seems most times today its always a bad wheel that gets greased. [/quote>>>>>>Thank you Bam & Lumpy your totally right, silents gets 0 I just hope enough people do write, if Government Official's don't understand the C D C is broken, how will they ever undo the injustice of the American People
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Post by Harry on Jul 28, 2011 13:27:35 GMT -5
Yep... been there, done that too already!! aahh Bannany Darlen I feel the same bout you also, you do more then you realize
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Post by Harry on Jul 28, 2011 13:34:15 GMT -5
I'm still thinking of a new Petition for a comprehensive study & program for not only Morgellons Suffers to sign but the General Public as well, power in number!! This is a Public Safety Issue also for the simple reason, the General Public will be infected some time in the future if nothing is done this is a fact!!!!!, so the General Public is part of this weather they want it or not
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Post by Harry on Jul 28, 2011 13:39:00 GMT -5
Great Harry--yes have written...wondered if we could all put our signatures on a letter and send it to him? Where are all these 200,000 people and how are we getting these figures, if no one is studying, interviewing us etc? Obama used to have an open forum discussion once a week...does he still have this going on? Because I felt there is where this subject could be brought up, since I wonder how many of these emails he gets actually wind up in his lap for him to read? good job and you rate high in my book for your tenacity, love pdidit it would be much better Pidit if everyone with morgellons Disease flood the White House with their own true story, this I think is a must
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Post by pdidit on Jul 29, 2011 10:33:19 GMT -5
yes I agree Harry...this would be better...but I wonder if people will do this on their own? I hope so. Twas hard enough getting people on board about entering where they lived. All in all, I agree a personal story makes it more powerful.
[am in so much pain today...so am typing with one hand while holding an ice pack to my ear--so might be mistakes.]
I hope you understand that I wasn't questioning you about statistics either--was just making some statements that have left me with question marks. I too, am inclined to believe there are more out there that have not registered, but these people are not online either as it seems only @ 4,000 are actively seeking answers...yes, with lots of newbies, so this does indicate this is a growing concern. And I am pulling this 4,000 number out of my hat too--seems about this amount though whenever you go to the main morgellons sites --not many posting/or online as guests, in relative to how many others we suspect are suffering from this...so it baffles me...if there are relatively few decent doctors to help us fight this, where are these people getting treated?
Just wish there was some way we could compile a database but most are either afraid to be labeled or fear being on a database. Marc Neumann says there are over 100,000 too, but again, am wondering if he is guesstimating or is he tracking this somehow? Maybe with his stats software, he can tell how many have hit his site, although still not confirmation that these people have it--maybe just curious people. Wish we really knew. I think that the MFoundation just updated their number to around 15,000...and to complicate the issue, Randy Wymore left this Mfoundation [right?] to start his own registering process with Oklahoma State U so maybe they too would have a number for us, but I see nothing making reference to this on their site.
While not to play down the severity and infectious spread of this disease, I am just trying to keep a balance of what we are told, what we assume and what we see--there are seemingly so many healthy people, especially where I live with no signs of this disease--or any disease. Want to be part of that group again...don't we all!
Love Pdidit
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Post by bannanny on Jul 29, 2011 10:50:44 GMT -5
I've got my stories all over the internet... and have sent them to the White House, Congress, Senators, you name it. Will continue to do so too. I remember when I first found this board there were only about 300 something people registered at MRF with morgellons. So that right there tells you how it's continuing to contaminate us and everything around us. I still don't believe it's contagious tho... I think we're feeling the effects becuz we lack that gene that enables the body to fight off all these new environmantal toxins. But I also believe that after the first 5 years of the nightmare, your body CAN begin to balance itself out again. Mine did when I changed my attitude and stopped obsessing and stopped putting everything and anything into my body to try and fight it off.
Anyhoo, didn't mean to get off subject there!
love ya's ~~ bannanny
P.S. I hope you feel better pdidit... give me a call if you wanna talk ok?
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Post by pdidit on Jul 29, 2011 11:31:16 GMT -5
Ok, will do thanks Bannanny. I keep thinking about how your attitude change has helped you...yet don't think I can ignore this protozoan infection. I believe it was killing me with each year taking over more and more metabolic functions within my body--it left me weak and frail after dropping about 25 llbs. Otherwise, if just morgs, would try to do just what you are doing!
Will talk to you soon Love Pdidit ps/ have you talked to Freaky lately?
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Post by Harry on Jul 29, 2011 20:44:54 GMT -5
yes I agree Harry...this would be better...but I wonder if people will do this on their own? I hope so. Twas hard enough getting people on board about entering where they lived. All in all, I agree a personal story makes it more powerful. [am in so much pain today...so am typing with one hand while holding an ice pack to my ear--so might be mistakes.] I hope you understand that I wasn't questioning you about statistics either--was just making some statements that have left me with question marks. I too, am inclined to believe there are more out there that have not registered, but these people are not online either as it seems only @ 4,000 are actively seeking answers...yes, with lots of newbies, so this does indicate this is a growing concern. And I am pulling this 4,000 number out of my hat too--seems about this amount though whenever you go to the main morgellons sites --not many posting/or online as guests, in relative to how many others we suspect are suffering from this...so it baffles me...if there are relatively few decent doctors to help us fight this, where are these people getting treated? Just wish there was some way we could compile a database but most are either afraid to be labeled or fear being on a database. Marc Neumann says there are over 100,000 too, but again, am wondering if he is guesstimating or is he tracking this somehow? Maybe with his stats software, he can tell how many have hit his site, although still not confirmation that these people have it--maybe just curious people. Wish we really knew. I think that the MFoundation just updated their number to around 15,000...and to complicate the issue, Randy Wymore left this Mfoundation [right?] to start his own registering process with Oklahoma State U so maybe they too would have a number for us, but I see nothing making reference to this on their site. While not to play down the severity and infectious spread of this disease, I am just trying to keep a balance of what we are told, what we assume and what we see--there are seemingly so many healthy people, especially where I live with no signs of this disease--or any disease. Want to be part of that group again...don't we all! Love Pdidit Pdidit!, I posted this on three site's so far, will you guy's copy & paste this stuff on other place's you go to?, if the President's office get mass Emails & letters this would help, and keep in mind I'm still planing a New Petition so see if you two can get the word to others. Thank you and i hope you folk's keep feeling better, because in time I did, hugs Doc Holliday
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Post by Harry on Jul 29, 2011 20:56:34 GMT -5
I've got my stories all over the internet... and have sent them to the White House, Congress, Senators, you name it. Will continue to do so too. I remember when I first found this board there were only about 300 something people registered at MRF with morgellons. So that right there tells you how it's continuing to contaminate us and everything around us. I still don't believe it's contagious tho... I think we're feeling the effects becuz we lack that gene that enables the body to fight off all these new environmantal toxins. But I also believe that after the first 5 years of the nightmare, your body CAN begin to balance itself out again. Mine did when I changed my attitude and stopped obsessing and stopped putting everything and anything into my body to try and fight it off. Anyhoo, didn't mean to get off subject there! love ya's ~~ bannanny P.S. I hope you feel better pdidit... give me a call if you wanna talk ok? Bannannay I'm so glad your doing so much to make a difference Bless you Bannanny, & your right about the MRD it seem they stopped registering since 2007 I think it's broken, it has 14,000 plus households, I'll check it again, I know the Holman Foundation has a registration of Morgie people also. hugs Bannanny
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Post by Harry on Jul 29, 2011 21:04:35 GMT -5
Ok, will do thanks Bannanny. I keep thinking about how your attitude change has helped you...yet don't think I can ignore this protozoan infection. I believe it was killing me with each year taking over more and more metabolic functions within my body--it left me weak and frail after dropping about 25 llbs. Otherwise, if just morgs, would try to do just what you are doing! Will talk to you soon Love Pdidit ps/ have you talked to Freaky lately? Good for you Pdidit you have a good attitude also, maybe just maybe we can get other's to do the same, Love ya back Doc Holliday
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Post by Harry on Jul 29, 2011 21:41:50 GMT -5
some interesting news >>>>>>>>>>>>The Morgellons Research Foundation is designated by Six groups of PhD level scientists have submitted formal research proposals to the MRF, totaling $581,600. These dedicated researchers, who work at three different universities, two private microbiology laboratories, and one research institute, require funding to continue their investigations of Morgellons disease.
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