I do have a really good Lyme Dr I have been seeing. We got rid of the babesiosis, which was really keeping me from doing almost everything.
I am just wondering basically what Schwartz view on this Lyme issue is.
Why do so many who have Morgellons also have Lyme, but then others who have Lyme dont have Morgellons..
Maybe I have just been sick too long.
I was an idiot.. I knew I was sick and getting sicker for years and still pushed myself almost to death working.
I just couldnt admit that this defeated me. Each day it got harder, I was dizzy, running fevers, had no memory and was in the end.. at an easier less physical job and when I was having a hard time even with that.. well, I was embarrassed.. humiliated.. felt no self worth.
And my family Dr just kept running test after test as I began swelling and the lymph nodes on my collar bones were the size of small breasts. He just didnt test me for Lyme.. so he didnt have an answer..so I kept pushing myself getting sicker and sicker..
Then I had some kind of weird seizure.. which Im sure now my brain was swelled.. symptoms of a stroke.
By the time I got to a Lyme Dr and found out this was what I had I had run my immune system down to nothing.. I currently have 2 killer cells.
My thyroid had turned autoimmune.. its trying to basically kill itself.
The muscles in my back had turned to rocks.. spasms that stay and never leave. My legs were hit and I could barely walk. I needed sun glasses even at night because I just couldnt see, and what I did see was black floaters..shadowy images.. I fell a few times misjudging the distance between my feet and the floor.
I was forgetting everything..couldnt even cook here without having someone watch me because my husband was so afraid I would burn the house down by forgetting to leave a burner on.
I had many other things.. would sit at work and the sweat would pour from my head..sunken in eyes.. to the point where the owners at work actually were telling me they were worried because the customers were all alarmed because it looked like I was dying.
I even went thru a period of time where I couldnt swallow my own spit.. I was scared to death it might even be ALS..
This would last a day or 2 and then end.. but would come every 2 weeks or so.
Finally I had to leave my job..
Keep in mind also at this time I was having Morgellon symptoms.
So here I was so sick..immune system shot.. trying to work full time and not sleeping a wink.. bad scenario..
I am alot better than I was 2 years ago back then. Havent had the swallowing problem since I started on meds except once during a babesia herx and it lasted only hours..
My memory is better (most days).
My eyesight is a lot better.
The dizziness comes and goes.. I know right in the morning if its going to be a dizzy day and just take it easy when it comes.
I do have some energy (again.. most days)
No other seizures or crazy paralysis of limbs..
I cant say Im not better than I was.
The thing tho I am concerned about is the pain. My legs are still very bad and swell like balloons.
Cant stand on my right leg at all.
My Back is still rock hard and prevents me from doing so much..
The large lymph nodes remain.
I sleep somedays back like I used to.. I can go somedays without a nap at all now.. but then other days I sleep all day and am groggy.
The depression remains.. probably because of the sickness that remains.
I want the cure for chronic Lyme Disease.. thats about all I can say.
I am still afraid the Morgellon symptoms will come back, even tho so far they havent. (Thank God).
But I am told if I can get rid of the Lyme.. and believe me we are trying, my immune system will come back up and my thyroid will be fixed as well.
I guess Im wondering about the pain and arthritis itself. Can I ever get rid of it? Is it possible?
I am positive for the HLA-DR4 gene.. which, if you have Lyme, its harder to treat.. the disease itself is worse on you pain wise, and it takes longer to treat.. and in the end some pain will still remain.
I can deal with some pain..I have no problem with that.
I am moreso wondering if I will ever be able to work again.. go to a job.. workout again..be active like I was.
I used to be hyper and never sat down.. workaholic.. its still etched in my personality base.. I dont think you can change that..
I sit here just thinking of everything I need and want to do but cant..
Maybe this Dr Swartz has some advice for someone like me.
As we all know.. some people get better from chronic lyme and some just dont.
Maybe if his concotion and ideas can kill off Morgellons Disease.. he also has some ideas about Lyme.
Maybe I will write him and ask him.
Sure cant hurt......
I am just afraid that he is one of these Drs that dont believe in Lyme..
I cant deal with that again..
I was hoping someone spoke with him and knows before I write him.
Kerry