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Post by adapted on Jun 30, 2005 16:35:40 GMT -5
In my personal opinion, ignorance is not always bliss, but knowledge can always be equated, in some sense, with power. In brief, some of the forever-expanding, far-reaching science behind the technological advances in biogenetics has similar, if not identical, implications to an attack of biological warfare on our planet and on those of us who inhabit it.
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Post by bugsalive2 on Jun 30, 2005 19:38:59 GMT -5
Hello,
I don't think the name of this condition should be changed at the present time. I think that would just cause confusion. I especially don't think that Dr. Schultz should change anything. We don't even know yet, whether or not he is correct in identifying the pathogen. The fact that Septra helps some of the group doesn't mean a thing, as far as identifying Morgellon's pathogen is concerned.
Respectfully Yours, Bugs Alive
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Post by jodyann52 on Jun 30, 2005 19:57:32 GMT -5
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Post by jeff on Jun 30, 2005 22:36:14 GMT -5
you know I can tell you even though there is SOME reimergence of the condition when I go off the septra..the reimergence stems from any reamaining lesions..over time the lesions are getting less and less..and I have started pulsing septra..and am able to go longer and longer off it as time progresses..I never did the full swartz protocol with the avelox..which from what ive been hearing from several poeple...wipes this thing off the map in one HUGE swoop..end of story..so the whole bugs thing is from a by gone era..living a by gone same ol mystery parasite...thing...it never got me no where..nor has it you..the truth like it or not..lies within good doctors and good sceince...it is here now and is being done by....the reasearcher dr swartz...he knows more about this condition than all of us combined..he even is also a psycolgoist..and knows why we think we have bugs..we are so lucky to have him. he has saved my life..
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Post by JLR on Jun 30, 2005 23:44:38 GMT -5
I planned to talk to a urgent care doctor tomorrow whos helped me before and let her know about Schwartz and his protocol but after searching and reading about septra and avelox I'm really nervous about going through with this, especially with the higher doses. Plus the word chemo scares me.
This sucks, how did I end up this way?
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Post by special guest star on Jul 1, 2005 0:07:35 GMT -5
Does anyone know how to get septra without a scrip, my Dr won't give it to me or any tests ? I don't know why, but I feel the need to point out that this wasn't me who posted this. It doesn't matter, except that I've made a few Septra posts and this would be incongruent with my other posts. It's confusing, so I hope this person picks a new name. I'M everyone's "special guest star." ;D
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Post by Mickey1 on Jul 1, 2005 2:45:35 GMT -5
I find sulfur ointment 10% got me about 90% cured so far since Jan. '05. I've had about 20 to 30 lesions on each of my arms and legs. So 4 months of this treatment did this for me; I still have an area on my right lower calf & ankle, and my right inner elbow, and some between the fingers of my right hand, and between 2 toes on left foot. But this derm Dr. was thinking I had mites. Some days if I run out of the ointment, I use Rid spray (has 50% permithrin) (it's really for furniture for lice treatment) on my sores......wow! KILLS THE ITCH INSTANTLY!!! And it does NOT burn me at all!!! Kills the crawly feeling too.......if I feel the tickly itch in my hair or scalp, I just spritz the whole top of my head.......aahhhhhhh!!! If I feel tickly itch in my ears......spray some on my finger and squish it into my ears........yes! Same for the nose.......any of you keep feeling tickley hairs in your nose all the time through this thing? Am sneezing alot too.........Wanna hear how really DUMBASS these derm Dr.s can be???! This one that's got me on the sulfur stuff first suspected mite infestation for 2 months........next he changed his diagnosis to ECZEMA (WHAAAA? ?!??!)........2 months later.....back to the mite theory........then ONE MORE TIME HE CHANGED the diagnosis back to the eczema theory........this dude just can't make his mind up!!! What a moron. How can a doctor ever look at the HOLES and SCARS all over me and say the word eczema???! I was so flabergasted I was speechless. But I have done alot of studying on this "fiber" thing........I use a hand magnifier with a tweezers (Walgreens or hobby stores have 'em) and I've borrow my neighbor's kid's microscope........these "fibers" look weird looking, glittering tiny worms that flex and flinch rythmically. Like out of a science fiction horror movie.....almost can't believe what I'm seeing. I'm scared shitless, but hopefully this thing will end for all of us soon, especially if President Bush gets it.......or some other politician or famous person. --Mickeyrltr@aol.com.
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Post by reality on Jul 1, 2005 10:11:03 GMT -5
I never did the full swartz protocol with the avelox..which from what ive been hearing from several poeple...wipes this thing off the map in one HUGE swoop..end of story... ...he knows more about this condition than all of us combined.. life Jeff, It would be nice if these people with these miraculous results would come forward and share. I know that is "easier said then done". I guess that statement applies to "wipes it off the map in on full swoop" I have spoken to people personally who have gotten relief and find themselves more able to function which is VERY IMPORTANT. But that is a far cry from wiping it of the map. Hope is good. But false hope is just the opposite. As far as "Schwartz knowing more about this condition than all of us combined", there is no way any practitioner could know as much as all of us combined unless they have suffered the longest themselves and have conversed with most all sufferers with all symptoms off this multifaceted condition.
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Post by Sandra on Jul 1, 2005 12:00:58 GMT -5
Well I finally got a srip for the Septra and have been on it 1 week, low doses . He prescribed 800 mg 2 x a day, but I am up to 800 in 4 pieces during the day. My arms are almost clear face too. I am working on the deeper ones and they are flattening. I was using and still am Paraherb from Michaels (tried all the others) but maybe didnot stay on long enough or my hubby gave um back. But we are both on it and our dog. I bathe in salt scubs and then sulpher soap. You don't feel a parasite is part of this but I know I have had and seen them, enter my nose and ears, nats, collembola and the rest. I do feel it is somehow Lyme-like in it's co-infections. The tape worms associated with all mites and the reported cases of them recently. I also feel just a tad degree of Global warming may be making a world problem, like bacteria growth in our water and more bugs. Tropical climates have 10 thousand more bugs than we do . Some of us may have gotten this from our water supply and hence here come the bugs, like we are magnets and now hosts for a world of other fun things. But wanted to share here that after 10 years of this disfiguring mess, I feel almost good as new. Can't wait to see if I can go back to work in a few more weeks. Thanks Jeff for being soooooooooo persistant. WE have all suffered so long and are so sceptical as we have spent thousands of dollars try to get well by ourselves. XXOO again thanks Sandra
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Post by JEFF on Jul 1, 2005 22:20:02 GMT -5
I think there are too things going on with the poeple on this post...their is reality and there is not reality..The realality is that most doctors except swartz and a few think we are all crazy..The cdc knows about us and thinks were crazy..every doctor you ever brought a plastic baggy sample into thinks your crazy..and it is all getting tied to this morgellons name..You are simply not in reality on this and many other issues...Reality is hard and painfull but it still is reality,,and those of you that accuse swartz of the name change for fame purpose..are evil back stabbing slime balls,,you dont know him and you say these things..how do you think god would feel about you saying accusations..I know swartz he cares about us and is just trying to help..You really bite that hand that feeds..and continue to wallow in your sorrow..reality sucks..and thats just the way it is..grow up
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Post by Hope on Jul 2, 2005 4:55:21 GMT -5
The reality is that we all want Bush to get this! ;D ;D
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Post by JJhere on Jul 2, 2005 10:26:22 GMT -5
and those of you that accuse swartz of the name change for fame purpose are evil back stabbing slime balls,,you dont know him and you say these things............ I know swartz he cares about us and is just trying to help..You really bite that hand that feeds.. Jeff, Gotta say sometimes your posts sound like words coming directley out of someone elses mouth. Especially in reference to Schwartz. Here in this thread you say you know him but elsewhere on the board you state you have not spoken to him ................... As far as "biting the hand that feeds", Why dont you ask him where the proceeds are going for his new book about Morgellons? Any of that going for further research? Ask yourself when he first came into the picture how much of an authority he was on this condition? One patient with symptoms that relapse when taken off meds. Now a few months later he has written a book and has the cure all to something no one has been able to find an answer to for over 15 yrs at least. Would any of this happened if the MRF didn't exist and drawn attention to this condition? ............ Changing the label that has drawn way more positive feedback and attention than you could ever understand with sufferers and the science and medical community is a bad idea. ........... Who's feeding off of who? Call ME slimey and back stabbing all you want. Tell me to GROW UP all you want. You need to stand back and look at the whole picture and MAYBE like the title to your thread you might "Get a GRIP." .......... Still hagin, JJ
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Post by JEFF on Jul 2, 2005 12:20:44 GMT -5
LET ME PREQUALIFY MYSELF BY SAYING IVE BEEN IN SALES FOR 15 YEARS AND TALKED WITH 20-30 OR MORE POEPLE PER DAY FOR 15 YEATS...THAT WOULD BE LIKE 10,000 PEOPLE A YEAR TIMES 15 OK SO THAT IS APPROX 150,000 PEOPLE..DEDUCT SOME WEEKEND AND UNEMPLYMENT TIME CONSERVITLY SPEAKING IVE TALKE WITH 50,000 INDIVIDUALS IN MY LIFE..TRYING TO SELL THEM FURNITURE, WASHER DRYERS, HOMES, ...PEOPLE THAT KNOW ME NOW THINK IM PSYCHIC..BUT IM NOT I CAN READ POEPLE LIKE A BOOK..WHEN I SAY I KNOW SWARTZ...I KNOW HIM FROM QUOTES FROM OTHER POEPLE AND MY OWN 45 MINUTE PHONE CALL WITH HIM....FOR WHAT IT IS WORTH AND MY OBJECTIVE OPIONION,,,THE GUY IS ON THE UP AND UP, I WOULD STAKE MY LIFE ON IT..HE NAILED IT OVER AND OVER WITH ME...HE IS GENIUNE RARE FIND..I DIDNT EVEN KNOW HE IS WRITING A BOOK..YOU MY FREIND SHOULD BE JUMPING UP AND DOWN ON THE STREETS WITH THIS NEWS...DONT YOU KNOW WHO HE IS....OH MY GOD WHAT IS WRONG WITH YOU..THIS IS INCREADABLE NEWS..THIS GUY IS A NATIONALLY REGONIZED AUTHOR OF THE BOOK PRINCIPALS AND PRACTICE OF EMERGENCY MEDICINE..USED BY DOCTORS ALL OVER THE COUNTRY..THIS IS FANTASTIC NEWS...THIS GUY WAS AWARDED ONE OF THE TOP SCIENTIST OF THE 21ST CENTURY....THE GALLOP AND GIRAFF AWARDS...YOU DONT KNOW WHO YOU ARE DEALING WITH HERE.....IM SERIOUS..[quote author=JJhere board=general Jeff, Gotta say sometimes your posts sound like words coming directley out of someone elses mouth. Especially in reference to Schwartz. Here in this thread you say you know him but elsewhere on the board you state you have not spoken to him ................... As far as "biting the hand that feeds", Why dont you ask him where the proceeds are going for his new book about Morgellons? Any of that going for further research? Ask yourself when he first came into the picture how much of an authority he was on this condition? One patient with symptoms that relapse when taken off meds. Now a few months later he has written a book and has the cure all to something no one has been able to find an answer to for over 15 yrs at least. Would any of this happened if the MRF didn't exist and drawn attention to this condition? ............ Changing the label that has drawn way more positive feedback and attention than you could ever understand with sufferers and the science and medical community is a bad idea. ........... Who's feeding off of who? Call ME slimey and back stabbing all you want. Tell me to GROW UP all you want. You need to stand back and look at the whole picture and MAYBE like the title to your thread you might "Get a GRIP." .......... Still hagin, JJ [/quote]
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Post by jodyann52 on Jul 2, 2005 12:31:25 GMT -5
jeff..... i don't think u know what u r talking about he charges 250.00$ just to talk to your dr.so u better have some $$$$$ if u talk to him.i'm not saying he don't know what this is but. someone is making $$$$$ off of this.i just think it is sad.we r suffring people here.that is fine with me write all the books u want .and make $$$ but i think if u can help people then u should.that is just the kind of person i am.......so did u go to him or did he talk to your dr. for free?simple as that.
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Post by adapted on Jul 2, 2005 17:20:49 GMT -5
I'm saying it again, with conviction as strong as Jeff's vehement advocacy for Dr. Schwartz. I had severe symptoms of Morgellons Disease and something other than Stenotrophomonas Maltophilia threatening my life several years ago. And I kicked it on its you-know-what. It almost took me outta this world in a cyclonic explosion of rapidly overlapping symptoms over the span of a two month time period. I didn't take any antibiotics of any sort. There are far too many things to factor into the equation of Morgellons for it to be so simple for all who are plagued with it. Had Stenotrophomonas Maltophilia been the causative factor for me...oh, y'all know the rest of this statement.
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Post by JEFF on Jul 2, 2005 19:45:59 GMT -5
sorry swartz is already rich..and ready to retire..he has talked to me and many other poeple for free...You try talking to a doctor for 45 minutes for free..his time is worth $500 an hour...so he gave me $400 of free time..never charged me a dime or randy..maybe his insurance company found out and required him to make phone consultations more formal...why can you liberals think outside the box? jeff..... i don't think u know what u r talking about he charges 250.00$ just to talk to your dr.so u better have some $$$$$ if u talk to him.i'm not saying he don't know what this is but. someone is making $$$$$ off of this.i just think it is sad.we r suffring people here.that is fine with me write all the books u want .and make $$$ but i think if u can help people then u should.that is just the kind of person i am.......so did u go to him or did he talk to your dr. for free?simple as that.
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Post by eec on Jul 4, 2005 19:57:03 GMT -5
hey jeff thanks for the effort in telling the facts as we know them--we being people that are recovering--schartz's sulfur works--this s.malt thing has similar behavior as lyme(Bb) so it might work for both--i am back to work for 2 months now--quit meds for a week or 2 and it came back--taking meds again its going away--chronic lyme has same relapsing -- i have a 128 bowen lyme test--it will be a long road but there is improvement that is noticable--if these others want to do 100 loads of laundry a day and find uses for products not meant for human use so be it--i am using minocycline with my septra and i do pulse cycling-- i also am very aware of my diet and the herbs and supplements i use--i have a good family MD with a psych background--that has worked with me --schartz talked to me for free on the phone back in april--he is running his ow research center he answers the phone himself he is entittled to some payment--are these nay sayers bitchin when UCDavis bills $300 for an office visit to hear they are DOP?--
morgelleons is a tainted cult of DOPs in the real world and is not taken seriously by professionals there are no facts on morgelleons it is a myth a mystery an oddity-- a new name will help that said DOP is a symptom of s. malt and chronic lyme and other skin disorders--technically there is a parisite-- its just not a worm or arthopod or standard parasite
so to the people that are scared of and critcal of swartz JUST DONT DO IT --save your money -- go on diability -- eat an unhealthy diet ----- and you can bitch the rest of your life away as a member of the morgeleons suffers
together we have found a cure
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Post by ANTHILL on Jul 4, 2005 21:08:33 GMT -5
I think I'm going to have a Weeny roast and mabe some hot dogs for the fouth to night
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Post by fiberanna on Jul 4, 2005 22:43:22 GMT -5
Schwartz didn't do research on S malto. Or us. There is none to be found. He read some other peoples research on nosocomial infections and saw the word fibers......
Our fibers are very visible to the naked eye, unlike s. malt. fibers
Our problems might be caused by the boogyman's fingernail parings - and TMP-SMX would work regardless.
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Post by jj on Jul 5, 2005 9:13:14 GMT -5
hey jeff thanks for the effort in telling the facts as we know them--we being people that are recovering--schartz's sulfur works--this s.malt thing has similar behavior as lyme(Bb) so it might work for both--i am back to work for 2 months now--quit meds for a week or 2 and it came back--taking meds again its going away--chronic lyme has same relapsing -- i have a 128 bowen lyme test--it will be a long road but there is improvement that is noticable--if these others want to do 100 loads of laundry a day and find uses for products not meant for human use so be it--i am using minocycline with my septra and i do pulse cycling-- i also am very aware of my diet and the herbs and supplements i use--i have a good family MD with a psych background--that has worked with me --schartz talked to me for free on the phone back in april--he is running his ow research center he answers the phone himself he is entittled to some payment--are these nay sayers bitchin when UCDavis bills $300 for an office visit to hear they are DOP?-- morgelleons is a tainted cult of DOPs in the real world and is not taken seriously by professionals there are no facts on morgelleons it is a myth a mystery an oddity-- a new name will help that said DOP is a symptom of s. malt and chronic lyme and other skin disorders--technically there is a parisite-- its just not a worm or arthopod or standard parasite so to the people that are scared of and critcal of swartz JUST DONT DO IT --save your money -- go on diability -- eat an unhealthy diet ----- and you can bitch the rest of your life away as a member of the morgeleons suffers together we have found a cure SO PROFOUNDLY & ELOQUENTLY SPOKEN. It is words such as these that are the most influencial. Maybe it is the venomous hatered behind it that we all wish to possess? ............ JJ Still hangin
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