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Post by cozmikanjel on Mar 9, 2007 21:11:33 GMT -5
you are so adorable...i can see you now poking at your orange mini-blob ive found the prettiest fluorescent orange "chunks", chiseled-looking..... like burnt coal from your grill. in my bed. pretty freaky!
*try splitting in half put 1/2 in white vinegar, and the other half in baking soda water (approx 1 tsp/cup water.)
and see what happens and take notes after certain periods (intervals) of time!!!
(maybe split in threes in case you want someone to look at an untouched sample.)
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Post by See Jane Crawl on Mar 9, 2007 21:14:34 GMT -5
Cozmikangel,
Thanks for the torture tips! I do so enjoy torturing the little suckers once I get my hands on them! My favorite is pouring salt on them and watching the bastards squirm!
I think I need a life........
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Post by cozmikanjel on Mar 9, 2007 21:23:49 GMT -5
your funny Sidney!!!
See Jane...just saw that you already put "orange" in alcohol (and thats cool) its acidic just like the vinegar!
but do please try the soda water and watch what happens.....
just take out a little glob of it. you might want to do 2 tsp baking soda to that cup water (just for the effect)
((ratio not suggested for ingestion guys...just for experiments!))
now if it does what ive seen it do....just think what it'l do to the rest of these #$%!
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Post by cozmikanjel on Mar 9, 2007 21:28:35 GMT -5
lol
i see! u been playing GI JANE already!!!
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Post by toni on Mar 9, 2007 21:49:11 GMT -5
Sid,
hahaha that was funny (sex of the tree toad) haha! I just want to say thanks to you ladies for understanding that I can't help myself with my obsession of "the researching", and I know and will say to the world I'm sure no biologist, not even close, I just try, that's all...just try, and keep tryin! And if I'm way off, that's okay, I can wish, haha cause I sure will welcome open armed anyone who DOES know what this is.
And SeeJaneCrawl, really, that is the duration of that little sucker? I must have missed that, I really am curious...if it's not too much trouble do you remember where you read that? Thanks. I need to read up more, I'll sure check that out tomorrow, have a good night all!
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Post by reasonable on Mar 9, 2007 22:41:53 GMT -5
Tonie, did you ask for an opinion or a pep talk? Sorry, I did not mean to be rude, only to save you some time and effort.
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Post by See Jane Crawl on Mar 10, 2007 0:59:07 GMT -5
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Post by cyn on Mar 10, 2007 1:32:41 GMT -5
Tonie - Could be another possibility, though it would have to be the slow growing type. I can't remember seeing anything like this when I had my microscope. I just hope all this research doesn't stress you out or scare you unnecessarily. Otherwise, keep up the good work. For all we know, you are one of the very few who are digging!
Gertie - I too, upon onset of this disease was diagnosed with a serious staph infection, one the E.R. doctor thought I should be hospitalized with. And I had been working in newly purchased soil with open wounds. ah, so naive.
Sidney - You said it nicer than I would have, (to Unreasonable) and I agree with you about everything you noted.
See Jane Crawl - That globular stuff, I have not had many lesions, but the ones I have now in one leg, have produced the gold jello like substance, which I use to find in a much more liquid state. It is probably a good thing you can eliminate it. But, this might be a sign of bowel parasites.
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Post by flowerchild on Mar 10, 2007 8:42:25 GMT -5
I was hanging out with a fiend who had 5 greenhouses, and I was working on a wildfoods (from woods and water) cookbook when this started. Had little white worms on clothes in my closet I guess frommy well water. Greenhouse friend itched and scratched all the time. She kinda went crazy and moved, so I lost contact, but have always wondered if I caught this going with her to pick up plants at airport, etc.Or, swimming in her pool one time that felt slimey!Anyway, has about destroyed my spime (documented by MRI) in my 40's. And the granulomas described in this literature fit the Wegener's connection that made a hole in my nose, and was how this stared. Then, the staph aureus in my wounds.So, I think it could be part of the mix. Thank you, dear, smart, hardworking Toni the Tigress! And Reanonable, if you already know what this is or is not, please save us all some time and grief, and enlighten us.Some of us are just about dead, so tell us, please, what you think you know. I don't mean this sarcastically. Please just tell us...steer us in the right direction....What?
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Post by toni on Mar 10, 2007 12:02:54 GMT -5
Flowerchild, Thank you for your kind words. Yep, digging is all we can do, and hopefully something will give in what we need. See Jane Crawl, I'm so glad you brought that up about the "ancanthamoeba" which is "initialed" GAE in which the 120 day applied to. Got me really diggin away, which I understand this better, "I think"... Here's what I saw that you were referencing: Granulomatous amebic encephalitis (GAE) is a subacute diffuse meningoencephalitis, usually with an insidious onset. The incubation period is unknown but is probably weeks to months. The duration of illness until death ranges from 7-120 days. www.emedicine.com/med/topic10.htmNow that got me really looking into the Balamuthia, which was a good thing. I learned that this (other ancanthamoeba, the (BAE) could take up to 2 years to develop, even though they're "in the same family" basically....they're different. Because BAE is a chronic disease taking as long as 2 years to develop, there is ample time for generation of a humoral antibody response to the presence of the amebas. (Copied from article below. www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1169170Then from many articles too, I found out that this truly is a "recent" discovery of this "trophozite/amoeba" just 1990, identified, and most cases reported in the USA have been from either Texas or Calif. (isn't that a kicker) Doctors also are so very in the dark still and much research is needed, which only a few seem to be able to do. path.upmc.edu/cases/case402/dx.htmlwww.encyclopedia.com/doc/1G1-120848287.htmlwww.ajnr.org/cgi/content/full/23/3/486These are very informative articles too, and I'll find the one about (the vegatative matter found in the biopsy). Sure don't know, but it seems that this "may" have possibilities, because of the many same-same symptoms.
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Post by toni on Mar 10, 2007 12:35:37 GMT -5
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Post by reasonable on Mar 10, 2007 13:37:15 GMT -5
Guys,
I was never secretive about what I think this is: exactly what we all see, Mary L described and all biopsies found: a fungus-plant-like web growing in our bodies. I agree with Jane and Sid's posts on this thread and many posts on others: the morgellons symptoms are due to superinfections by a multitude of plant pathogens found in your specific environment. You and your favorite researchers are fixated on this zoo, which includes amebae, insects and nematodes -- to name just a few -- and that is an unreasonably long way to go, in my opinion.
Again, I believe that this infection is very widespread and has been around for at least 30 years (according to the posts I've seen here and elsewhere). Which does indeed coinside with the beginnings of gene tweaking. So, it may be a product of a genetic experiment gone bad; however, the base organism had to be only a little modified. If it were modified more than a little it would not be able to function and survive. As simple as that.
It is not due to flukes, because no fluke egg was ever found and shown by fluke theory proponents.
It is not due to a transgenic nematode, because that is yet another plant/insect parasite to add to the morgellons zoo.
It's not due to nano or fiberoptics, because that idea was just plain stupid.
My interest in solving this riddle has always been practical: I want a cure and I am very motivated, because I want it for myself. If it helps you and others, so much better but I am not in it for the glory. I thought I had a cure but it turned out premature (see albendazole). I thought that I could discern the physiology of this thing from learning from you how a variety of drugs affect your symptoms and the well known mode of action of these drugs. However, you as a group do not wish to share this very valuable information in a useful manner, apparently wanting someone more worthy than a goof like myself "to find the answer". Well, from the exchange on this thread I see that I am partialy to blame, for I too, it turns out, lack in good manners. Oh well. Live and learn.
The only thing I have learned so far, and I came to this board knownig it, and you know it too, is that the thing thrives on sugar and the drugs that impede glucose absorbtion are effective but not specific enough and must be taken for long, long time and at high doses. This ain't good enough for me and I am sure ain't good enough for you either, but, who knows, you may eventually get dividends from sitting on your data and keeping it all to yourself and your chosen champions. (whoops - I think I goofed again but guess we all have personality issues very few of us are able to transcend)
So, speaking of secretiveness, that's you as a group and not me. IMO the smart thing to do with research and data is to hang it on every lamppost and hope and scream and pray that someone - anybody - would please figure out this disease. But that's just my opinion.
Anyways, it's been good even though not particularly productive talking to you. Let's lighten up cuz doom and gloom are bad for immune and good luck to all of us!
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Post by toni on Mar 10, 2007 14:32:42 GMT -5
Reasonable, I don't want to argue with you, NEVER, but I have an opinion too, and since you've expressed yours, I'll say mine. But arguing or insulting...NO, I don't have the desire or the time and especially cause there's sure nothing to gain. But you're talking extremely opinionated, in that you are on this thread blatently stating that some theories are "stupid" and how I should go back to "my reaching out campaign"...I don't know if that's just "your personality/disposition", but I don't like it, okay... and talking about what "this" mess (infection) is or isn't....how do YOU know? And if you know, I for one want to know then what this is. I KNOW you are not any different than any of us, and just because I or anyone doesn't think like you, is still no reason to blatently say their theory is stupid.
And when with a group, those kinds of comments REALLY AREN'T welcomed, because that is only your opinion as we all have them, but we refrain from stating words that might be insulting to others, ONLY because that's the "kind/nice" thing to do, which is silly for me to tell you that, you should know that, which you are not making ANY efforts in consideration to others. When you don't like something, you then insult. Which that may work for you somewhere else, but not here, we all could let our mouths go, (believe that one) but that isn't "NICE". And you say "we're rude", when actually "not refraining" statements that "may" step on anothers toes (like saying something is stupid) is really about the rudest thing to say, as you have.
So yeah..lets get on with it, and try and figure this out, but try to keep your sarcasism out of it all - cause that's the biggest waste of time.
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Post by See Jane Crawl on Mar 10, 2007 16:14:05 GMT -5
Toni,
Yep, that was the article I was referring to. I wish I had your power of concentration, my mind shuts off after a few paragraphs!
Thank God there are people like you to help us do some research. Thank you for dedicating so much time to reading!
Before I got this crap, I used to read 2 books a week. I miss that sometimes.
Reasonable,
I do think this thing is a combination of things, maybe a bacteria or virus that seems to attract parasites to us, (this is all just my opinion), but the things I see passing through me, there is no doubt a worm like thingy involved!
Again I would like to say ~ all of our opinions or theory's are valuable, each little piece of info gets us closer to the cure. I don't see the need to argue with anyone on this board, we are all friends here right? There is enough people out there to call us looney toons, I don't think we need to be slamming each other. We are all here for the same reasons, to help each other find the answers.
So play nice or you are going to the corner!! ;D
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Post by toni on Mar 10, 2007 16:43:46 GMT -5
See Jane Crawl,
Honest to goodness, no thank you's are needed...I'm only wishing I had an ounce of background in biology! hahaha Heck, this stuff is hard, hahaha I understand this less than "a car engine" (that might be easy in comparrision) and I don't get that stuff either. And all you said I sure agree, we all contribute pieces to this puzzle.
I know what you mean about the "concentration" part. I went though a couple of weeks last year where I couldn't think at all, I mean I was forgetting everything, even in the middle of a sentence...would blank out completley, and saying things backwards...it was awful.
I do know that "if" I forget to take "antioxidants" like grapeseed extract daily and Vit E, or my B-Complex supplement...I'm out of it...sluggish, and wiped out shortly after I get up. Those I have noticed are critical. I don't know if it's just me, or if they're needed especially more with this "infection/contamination" whatever it is.
But I truly cannot function "when" I forget those supplements, which is what reminds me when I do forget, because I'll think how dragged out I feel...then it hits me...oh, I forgot those supplements, then once they're taken, I feel fine again.
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Post by Carrie♥ on Mar 10, 2007 21:02:29 GMT -5
And Tonisue...I so love you! It is not due to flukes, because no fluke egg was ever found and shown by fluke theory proponents. Look Reasonable...you've missed the question. Do you still think it's a cestode? Tell me...no show me one article that says any one drug kills a slf every time? Nope...it doesn't exist. IT IS OUR DISEASE! Tell me one "proponent" it doesn't propone? Not one...you've not done your homework...if you had you'd never say that...you don't have a clue. I don't have time tonight but I will let you know...I've already done that. There isn't one spot that don't fill and I think it's funny you can say that with out knowing...with out doing any homework about them. It is flukes...the blue fibers are related directly to their reproductive systems. The other fibers are related to their excretory systems. Read. Do your homework...find out about it before you tell me/us it's not something it is especially when you don't know what you're talking about. You obviously don't know what you are talking about or you wouldn't open your mouth to say them words. I live for the day to come across a professional that'll tell me this isn't our disease...I'd love to do this with them. I thought you may have been the one...ewe and I was ready. There's only one thing I crave in life more than that confrontation and then that's even questionable which is more desirable . I could have said you we're p@ssin' me off because at one point you were but that was just because I didn't realize you were/are one of us. Now I know you are so for what it's worth, maybe this isn't for you but you can not p@ss me off. Why don't you take a minute to read something so maybe your smart ass can help us all instead of just sounding like a smart ass . The threads are here that will show you exactly why flukes are this disease...they fit every profile. Input I receive from the people I love and people from here for some reason it is a hard concept to grasp...for whatever reason it is hard for people to see. I dig it but that isn't going to stop me from trying to show it as being what it is. Every thing Reasonable...they do it all. There isn't anything else out there that does that...even our "strange" things...they do that. They do it all...they are our disease and again...whenever you're ready. BKS...back at you. Ang...I'm not an jerk. I can be a beotch at times...and again don't care who thinks what about whatever but please know if I'm being snappy with some one there's a history/reason...something. Hope you're doin' alright. Orion...I've been disconnected from the net. I saw a little something about a master thread you're concerned with...please post the link or lead me to the right place. I still love and think of you often. I think the majority of them are dead. Now I've got to clean up the cancerous remains because that is the other part to my Morgellons. SLF at the skin...cancerous response. The difference...the skin heals nicely...not like before. The "on-guard" response seems to have been let down a bit...the invader may be dead. A slow process but I am finally beginning to see after three months since I'm very, very certain they've been dying. I will call you soon.
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Post by toni on Mar 10, 2007 21:16:02 GMT -5
CAAAARIE! hahaha There's my girl! Good to see you.
I love you too!
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Post by cozmikanjel on Mar 10, 2007 21:36:12 GMT -5
just to clarify Carrie....never called anyone a jerk.....just wondered why u were so mad at someone (now i know ) reasonable stated... "but, who knows, you may eventually get dividends from sitting on your data and keeping it all to yourself and your chosen champions. (whoops - I think I goofed again but guess we all have personality issues very few of us are able to transcend)"
"So, speaking of secretiveness, that's you as a group and not me. IMO the smart thing to do with research and data is to hang it on every lamppost and hope and scream and pray that someone - anybody - would please figure out this disease"interesting perspective ..... cuz i seem to get pooped on when i share my secrets .... nahhhhh
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Post by gertie on Mar 11, 2007 1:07:19 GMT -5
I hope that I am not repeating a post I just made, but I don't see it so.... Cyn, I laughed because there was nothing I loved more than playing in my dirt, compost and manure! I loved landscaping and still occasionally garden, but you better believe I am wearing gloves! Wierd about the staph infections. Toni, as I have told you before, I appreciate soo.... much all that you do to try and find answers. There is absolutely nothing anyone should have to say about someone who is trying so hard to help us. Putting ideas out there for us all to research and talk about. Someday, hopefully, one of them will be the solution. Thank you, again. Reasonable, I feel there are many different aspects to this disease. It affects us all in a different way. You personally, feel that it is fungal. That is because it may affect you that way. But, we all have our own symptoms. See Jane Crawl, when I first realized that all my symptoms I had for years matched with Morgellons, I wrote MRF a letter. Didn't know if it would be read or filed in file 13, but in it I listed all my symptoms and findings. One of them was the fact that I had these orangish gel sacs that came out of my body. I compared them to mini salmon eggs. One had black dots in it. Mine came from my ear canal and scalp.
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Post by toni on Mar 11, 2007 9:34:44 GMT -5
For a long time I've been wondering what these "triangular" shaped looking tiny things with a itty bitty thing that stuck out of the end of them, almost like a tiny hair. Flat triangular shaped things I'd asked many months ago were in my facial pores, which that seemed to be the beginning of the disaster happening on my face. I'll look back at posts later, because there were many who also saw these triangular tiny things with the "hair like" appendage sticking out from the end too. I found this link (below) and almost fell off my seat! ( Does anyone recall if you or a family member had been in a hospital environment "prior" to the onset of Morgellons)?This "ancanthamoeba" which has many "strains" one being Balamuthia and is "incubated by MRSA. ((Found in hospitals)) www.toseeka.com/subject/Acanthamoeba...Acanthamoeba is a genus of amoebae, one of the most common protozoa in soil, and also frequently found in fresh water and other habitats. The cells are small, usually 15 to 35 ìm in length and oval to triangular in shape when moving. The pseudopods form a clear hemispherical lobe at the anterior, and there are various short filose extensions from the margins of the body. These give it a spiny appearance, which is what the name Acanthamoeba refers to. Cysts are common. Most species are free-living bacterivores, but some are opportunists that can cause infections in humans and other animals. (The short filose extension on the triangular body) in that paragraph got me. There's pics too on the link.
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