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Post by bugged1 on Jul 18, 2005 0:28:43 GMT -5
Hey Y'all!
Just thought I'd start a thread NOT related to this monster so I can get to know you all better! I know I can come off as being quite the jerk sometimes - I'm just really frustrated with this whole damn thing and what it's done to not only my life but all of yours as well. So I wanted a thread to get away from all that and to see what you all like to do in your spare time?
I like to ride mountain bikes in the summer - both XC and downhill (and since getting Morgs I go WAY bigger on jumps that I used too! ;D LOL!). In the winter I live for snowboarding and snowmobiling. I have four of each! I live in Portland, OR and grew up in Michigan. When I first got this I was suicidal but doing the sports with my friends helped me thru it. I'm single and don't have family within 2,000 miles so it's been... difficult to say the least. My social life was ruined but hopefully that will change now that i am getting better.
Thanks for reading,
Chemist G
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Post by Orion*** on Jul 18, 2005 0:59:54 GMT -5
Since this bug drains me so--I find it difficult to keep up with every day chores and doing what i need for myself I have no energy for much else...My webtv has become my main activity as of late... They will find a cure , hopefully before we all die. The days of trials and tribulation is upon us and for the next seven or so years we will find ourselves pretty well taken up with life in general. I see so many people in trouble right now and it is bound to get worse,,,Be thankful that you have only yourself to answer to,,, Woe be unto those that find themselves with child in the last days, One day at a time from here on out.
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linda
New Member
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Post by linda on Jul 18, 2005 1:21:22 GMT -5
Hi Chemist, My first hobby has become raising kids mostly because once you have them, there's no way around it--you have to raise them 24/7. Prior to having kids, I was into music, clubbing (dancing) but no drugs, traveling when money was available, acting, and I was a school addict. I spent far too many years going to school which has yielded me no good job prospects. I just love learning. Part of my fears with this disease is that it will dissolve my brain and render me stupid I don't know about y'all, but I wonder if I'll ever achieve those great things I dreamed of now. I'm sad because I just don't feel like I finished what I was suppose to finish, but I feel like the clock is ticking. I grew up in Michigan too. I think that is where I might have gotten this thing. Thanks for asking Chemist, Linda
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Post by susiebelle on Jul 18, 2005 3:42:22 GMT -5
Chem Like I told everyone at my 30th class reunion I have had the most boring life but I have loved it. One husband, one job, and one house. I have two sons 27 and 23 and they are the joys of my life. The oldest is getting married in April and the younger just got his MBA and CPA and is looking for job in Chicago. I worked at GE (who brings good things to life). HA I started having health problems about 8 years ago and the skin stuff 6 years. Two years ago GE was having a layoff due to sending jobs overseas so I was able to take early retirement to save a job for someone else. Now I'm a political junkie and like to shop on the net. I like to do home interior decorating and some minor gardening and landscaping, so hopfully I'll get my energy back one of these days.
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Post by justice on Jul 18, 2005 5:48:44 GMT -5
Hello Chemist How kind of you to inquire as to our interests. I have many. I was also a school junkie. I studied what interested me (which covered a lot) yet never earned a degree. I am a carpenter. I love to create. I prefer to be outside gardening or building something. It has been a real struggle to even make it to work on some days. My energy, strength, and mobility have been steadily dwindling. In the winter months ( I also live in Portland, OR), I love to craft and make jewelry. I used to make really small and intricate pieces, but I often suffer from slumbering hands and fingers which is more than a little frustrating. Oh yah, don't forget our newest: Morgellons. hoping you're coping Justice
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Post by SpecueLatin on Jul 18, 2005 6:07:42 GMT -5
nice thread G!
My hobby was going to be my career, which was photography, that was my first college degree and my life's plan. Then my hubby took my hobby and all the other things I ever hoped for and trashed them, me and my kids, leaving us in absolute ruin. My reputation in the photographic community was ruined as well.. by my affiliation to this self-destructive man, my then husband. So I eventually took a job as an Office Manager for a D.O. and left my hobby/career behind. Can't really be gone all evenings and weekends anyway when you are the sole parent of adolescent boys so close in age!
The kids were 9 and 11 when my NOW EX blew town, so I put their social needs to grow and mature first, since there was so little to go around. It has paid off because they both have become quite strong, confident and capable individuals. My oldest is getting his engineering degree, I think he calls is a Triple ET, from NMT. The younger is an entreprenor and a fleet manager with auto sales.
Being a single parent, I got to be a boy scout leader with my oldest son, but with my second son, they just didn't want me as a wrestling dad.
So, I thought by now, I would be going about making a life of my own, but now this! Actually 9 years of this. I am going for a Bachelors in Accountancy but what a bear when Lyme disease is riddling the brain. Thank god natural ginesis sent me here when i asked for more information, or I would still be getting antidepressants for a brain that needed de-lyming instead.
One thing or another. Don't really like to talk about this at all.. it is mine to deal with, but didn't want you to think I was ignoring your "hobbies" post there, Big G.
I do think the answers will come and we will be well. I really do.
spec
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linda
New Member
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Post by linda on Jul 18, 2005 8:52:35 GMT -5
Wow Spec, my hat's off to you. You're a determined woman. Sounds like you moulded some great people. I hope you still persue your photography as a hobby though. Good luck on that BA. During the time I've had this I earned a BA and an MA. In some ways, I think the tickled brain can be more creative (could there possibly be an upside to all of this?) I get flashes of creativity that I wonder if they could be a result of coping with toxins from this thing--quick ups and downs. I'm saying those unnatural highs I feel naturally may actually be my body dealing with toxins, then I later experience the hang-over that follows; I get really tired. It's just another of my many theories about what may be going on.
Take Care, Linda
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Post by Dr Jekyl on Jul 18, 2005 9:22:40 GMT -5
I used to love to write. Im just now getting my groove back somewhat.
Below is a sample of a poem...
MEND MY BROKEN PIECES....
I stared into the depths of the river, As the moons' reflection danced across the water, A reflection broken by the ripples, as the tide rolls out, And I pondered the thoughts of life ....of love, of lessons learned and challenges brought, I thought of pains, of losses and gains, the celebration of accomplished things, And the total sum of who I am, And what I am, And why I am I watched intently as the waters lapped gently against the rocks below, And listened to the wind in my ears as my tears fell to the water beneath, I felt the tears of antagonism, the years of judgement, the plight of harshness, the sagacity of waste, I cried for what didn't, And wouldn't, And couldn't, And the tears kept coming, And I felt my spirit fading, I closed my eyes, waiting for the tears to abate, Not relenting, they flowed And flowed, And flowed, As I do sometimes, well most times, I went over the script in my mind, The script of the movie that played in my head, The reel of the picture, that is my existence, And I found myself wistful, then livid, then hurt And all I want to do tonight, is mend these broken pieces, Just as these waters shimmer with light, And undulate at their intervals of change, I so want to be a ripple, and drift away On peaceful waves of harmony, Not pain. I begin to consider all I have done, The battles I fought, The joys I brought, And I find my heart yearning to just be, Be powerful, Be contented, Be complete, Just be, And wake up tomorrow and everything is poles apart from the way it is tonight, The tears pesist unabashed, and I am unwilling to comply, with the plan that was given me, Of the way I should live, And how I should strive To subsist in this life. What havent I given up? What haven't I lived up to? Yet still I do endure. I think of all I should be, Could be, Will be, Maybe? Even through my struggles with life, I find myself realizing I have acumen, And that drives me on, That wills me on, To a providence that is the summation of my life. I inhale deeply, catching my breath, And move my hand to wipe away the tears, But feeling that my eyes are dry, I realize it's not my eyes, It's my heart that is crying. And I long for a sense of peace ...of justice, to enter into my reality, Then I become conscious of the fact I too have cast a show upon the water, It is a reflection of my soul, My spirit, My being, That shimmers also in the moonlight, I can feel the rising up of an eagerness, to let the pain flow away with the tide, Along with the secret wounds that held my spirit captive, And caused me to disbelieve, what I've always known, What I've always felt, That I am the sum of this equasion, The answer was always contained by me, And now all I want In my life, Is to mend my broken pieces.
Even though this was written in a darker moment.....sometimes it helps to center me when Im off on a tangent.
My dreams of interior design are on the back burner these days but theres always tomorrow.....
Chemist may I ask how long you have been infected?
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Post by jj on Jul 18, 2005 10:10:01 GMT -5
Nice thread Chem G. We all are frustated and show it in many ways. It is a blessing we have each other to share with. ............... Gotta say I am not surprised so many are artistic types. How bout you? I also have dabbled in photography, interior design, metal jewelry fabrication, and beading. My career WAS centered around child development. ............. Still hangin, JJ
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Post by Jeff on Jul 18, 2005 10:55:38 GMT -5
Hi all, Mostly my only hobbies of late are scuba and coin collecting with the stepkids. I like underwater photography, but haven't gotten to clear waters lately. Been stuck in the cold quarries - which, by the way, tends to lessen the itching and crawling or a few days. If I can get this thing subdued enough, I'm going to Mexico in December. I used to play and write music a lot (classical, blues, punk - yes, strange combination of musical taste - I try to think of it as being "well rounded.") , but really cannot sit down and do it now with all of the itching, and lost a lot of free time with baths and showers, etc. I like going to Atlantic City, but I'm a real small-time gambler. Hate putting money at risk. I end up spending most of the time there visiting band members I know and staying for a set each, trying to hit them all so nobody's insulted.
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Post by Hope on Jul 18, 2005 11:52:13 GMT -5
Great Thread Chem! Thanks to everyone for sharing as well.
I love sex, drugs, and rock-n-roll! Lol I really do! Yes I’m an old hippy chick kind of girl and enjoy protesting the war and the bush regime whenever I can with professors from Youngstown State University. I even got to go to Columbus Ohio to see Jessie Jackson, David Cobbs, and Congresswoman Stephanie Tubb-Jones in January for a rally about the very crooked election. I make great protest signs and was human art once in front of the court house in down town Youngstown when I dressed up in a black sheet with a black pointed hood, stood on a box, and taped wires to my fingers. Yep, that was me. ;D
I also am a very excellent artist and can work in just about any medium but clay is my forte. I love the potter’s wheel, have taught in the past, and sell my pieces in specialty shops locally. My small studio in my basement used to be my sanctuary. I still have some plans to work with thixotropic clay but lost my formula for that recipe and still searching for a copy. Raqu is my favorite way to fire.
My world revolves around my kid as he has been the most precious gift the Goddess has ever given to me.
Morgellons has robbed me of almost all of this and I want my life back.
Peace, Hope
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Post by Dr Jekyl on Jul 18, 2005 13:13:46 GMT -5
Hi all, Mostly my only hobbies of late are scuba and coin collecting with the stepkids. I like underwater photography, but haven't gotten to clear waters lately. Been stuck in the cold quarries - which, by the way, tends to lessen the itching and crawling or a few days. If I can get this thing subdued enough, I'm going to Mexico in December. I used to play and write music a lot (classical, blues, punk - yes, strange combination of musical taste - I try to think of it as being "well rounded.") , but really cannot sit down and do it now with all of the itching, and lost a lot of free time with baths and showers, etc. I like going to Atlantic City, but I'm a real small-time gambler. Hate putting money at risk. I end up spending most of the time there visiting band members I know and staying for a set each, trying to hit them all so nobody's insulted. Oh hell you live in NJ. So do I. I was in AC a few months ago and had fun too. What a drag this is...
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Post by Jeff on Jul 18, 2005 13:53:08 GMT -5
Dr. J- Actually, I live in the middle of Pennsylvania now, but grew up in the Philly burbs, and never weaned myself off of the Jersey shore. We're going back to AC in August for a concert at the new House of Blues. Only the second time in that town with a kid. We usually go when the kids are at their "real" father's. But this is his concert - I'm afraid to tell him that I like the band, too (although I think he knows - found the CD in my car).
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Post by Lisa on Jul 18, 2005 14:03:01 GMT -5
Well s**t Dr. Jekyl, you have me all choked up now. It's as if you were writing for me. It is truly a beautiful poem. I'm sure it speaks to more than just the two of us. I hope you don't lose your groove and continue to write.
Things are different now, but before the major symptoms hit, hiking was the biggie for me. My favorite places to go are Big Bend and Guadalupe Mountains. I love to travel. Doing Route 66, in the jeep was one of the most memorable. We stopped at every odd and unique attraction there was. I had an awesome flower garden at one time, but that has slowly fallen by the wayside. Love to listen to good music and live bands. Playing the game Guesstures with my son....what a riot we are.
Great idea Chem. Thanks.
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Post by jodyann52 on Jul 18, 2005 15:06:14 GMT -5
i sure am with a bunch of smart people...let me think what am i good at. i love to cook, can food.i can beans tomatoes,corn,anything i can get my hands on.i have raised 3kid of my own ages34,daughter31daughter,30son, and helped with my 3 grand kids.16g-son 13g-son 4g-daughter i take care of her every day since she was 4 monthes old.... with my husbands help.god bless u moms that have to do it by your self.i have been married 35yrs.to one man also.i have been sick with this bug for more then 3yrs.i also have diabetes.my hobbie was dance ,or should i say that is what i like to do.i would go out with my daughters..young people love me and i love them they all call me mom.....so we have to keep on going. so we don't get down to low.maybe we should say something good everyday here at this post. oh by the way im from virginia....... skyline va......
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Post by Dr Jekyl on Jul 18, 2005 16:06:58 GMT -5
Dr. J- Actually, I live in the middle of Pennsylvania now, but grew up in the Philly burbs, and never weaned myself off of the Jersey shore. We're going back to AC in August for a concert at the new House of Blues. Only the second time in that town with a kid. We usually go when the kids are at their "real" father's. But this is his concert - I'm afraid to tell him that I like the band, too (although I think he knows - found the CD in my car). Im going down in august too. For about for days. Im going to soak myself in the dirty ocean...lol. I will be wearing plenty of sunscreen and Im not planning on doing any sunning. Its in the water and back to the shade for me. Cant anyway on antibiotics. But if you see this very shapely medium height latin/black woman with an Erica Badu headress on.....just holla out DR J is that you!!!! hahaha
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JLR
Junior Member
Posts: 61
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Post by JLR on Jul 18, 2005 16:24:36 GMT -5
Southern California desert area here, close to Palm Springs (108 degrees today). I work in the new media field and pretty much eat and breathe anything to do with graphic and Flash based web design. Being that my workspace at home is the main place I feel these things pounce on me, I've had to put off alot of freelance work and online communication. I'm currently paying a broadband bill that I now use sparingly in the past few months and will probably be fired for checking my email and posting to this site from work. lol.
I also enjoy a variety of music with a major plus for interesting experimental fusions, love almost all food and take time to get in touch with nature through hiking and traveling. I practice Yoga and workout as much as possible lately in hopes that I can sweat these creeps off me. I'll let ya know if it works. lol
JLR
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Post by itchingntexas on Jul 18, 2005 21:38:04 GMT -5
Well I love this. Everyone is so interesting! Hmmm...what I'm 'good at'.... Without sounding like I think I'm just the major bomb, I have to say, I can sing my butt off. I've been singing since I was about 8 months old, to hear my mother tell it (who also has Morgs and visits the site from time to time). She says when I was 8 months old, I would rock back and forth in my car seat and sing, "Rock the Boat", the best I could, barely talking. I grew up in a musical family, where my folks always had a band, which practiced in our home. I fell asleep many, many times right beside a Marshall amp blaring! Discovered early on that I could sing harmony to anything...like Mama. I love all kinds of music, but jazz/blues/soul from all eras is my favorite stuff. I am not black, but I sing with a lot of soul. Probably because my Daddy is a fabulous blues guitarist. I've never heard anyone any better...not even Stevie! I had, at one time, a deal with an independent label in Dallas, and had a song out for a short time. Plus some offers on the table from some major labels. But the label was crooked, and things fell apart quickly. I loopholed out and went on the road for several months with a cheesy showband where I got to dance, sing, the works. Man, but it was a blast...but I was such a BAD girl out on the road (ugghhh...)! God later got ahold of me (and my husband) just before we were married, and now I am a little more calm!! haha as Stevie Wonder would say, "I hope while you were doin' it, it sure felt outta' sight..."! These days I do most of my singing at church, weddings, civic events, etc. But I still love it, and so does everyone else, so that means a lot. It's very rewarding. Perhaps my biggest fans besides my Mama are my kiddos. I sing to them more than anyone, and man, if it's not cool to have a baby smile real big atchya' for the first time---just because you start singing. That's on my top ten for sure... I also write. I love to write. I write from my life experiences, as I have all degrees of the spectrum covered in my young 31 1/2 years. I've written about being stoned in the back of a vehicle, with a stoned friend driving, and praying I'd be okay. Waking up beside someone I didn't know. And what it felt like to forgive my father--to have him forgive me, after years of tumult between us. I write devotionals about my Christian walk and how drastically I have been changed. I write about the people I have met from all walks of life. And lest I should forget, my precious children. All the hilarious things they come up with that just force you to laugh through your tears and say, "To hell with troubles. Look how blessed I am this day." I am also writing a cookbook. I love to cook. I would say this illness has robbed me of entertaining friends and extended family in our home, which I so enjoy. I have recently discovered raw 'cooking', and we are loving it! So much better than I ever would have dreamed! And while I have no moral qualms about eating meat, it certainly does create a large amount of acid in the body, so we eat it sparingly. So, anyway, the cookbook. I am enjoying writing it, albeit very leisurely. I took dance on and off growing up. I was very good at it. I was in the dance line in highschool, and always got tons of first place ribbons at camp in the summers. My ex-husband, whom I married at 17 (YIKES!) threw them all away. Yeah, nice guy. Most days I can pray for him...others...well... As a young adult, I loved to go dancing anywhere, anytime. I also love swingdancing, and during the swing craze a few years ago, my dance partner and I would go to competitions and stuff. I also sang in this GREAT swing band called Mack Malone and the Swing Machine. My writing has also paid off in other ways...I now correspond with a recently-found-used-to-be-lost young lady who is in jail, awaiting sentencing for numerous transgressions. She, too, is an aspiring writer, and our correspondences are deep and meaningful. Gosh, I guess that's my whole life story, eh?? Hahaha I am glad for this discussion, as I opine that we all need to remember that we are still people and not just an illness... That's hard some days, is it not??? Christ Bless you all, Heather (Itchingntexas)
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Post by ANTHILL on Jul 18, 2005 22:38:44 GMT -5
Hey guys I have worn many hats my hobby's are wood carving gold mining fishing boating silver smithing welding auto mechanics computers I am a Carpenter and I love building log cabins also I like to think of my self as somewhat of an inventor and tinkerer and practical joker I'd rather be in the mountains than the flatlands my favorite subjects sociology history and any kind of science
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Post by Lisa on Jul 19, 2005 0:35:06 GMT -5
Not that it makes a hill of beans, but I can't believe I forgot this. I guess I wasn't looking at it from a hobby viewpoint. One thing that I have a talent for and enjoy doing is dancing and choreographing. The only thing I don't do is ballet, and that's because I don't enjoy it. If you asked anyone that knows me, they probably would say I should have been a dancer (no, not that kind)....say it like Brando in "On the Waterfront"....I coulda been a contender....I mean dancer.
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