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Post by liz on Aug 4, 2007 6:16:31 GMT -5
I hate to bring this up cause its just damn gross..I have a huge lesions on my forehead ..huge one on my chin...I know Toni knows what I am talking about here...anyway I put the Iveremectin paste on them and they just hate that and start bleeding but the lumps travel around....kind of like giant underground zits of the good old days.. ..So all the sudden after I did that.... a huge lump (size of a large walnut was on my neck) I said screw it and lanced it and oh my god what came out...more clumps of fibers and atleast a good 3 inche long worm of some kind as well as some smaller ones and other varieties..I am going to the docs on Monday ..she wants to see them and then I am mailing them to Carrie to post! I promise.. I have two large bulges right under my knees..almost looks like I have two knees....this makes it so my legs can't go straight...when I covered them in ivermectin paste and dmso..a bunch of crap came out but the bulge traveled down my leg and them my feet and ankles were all swollen...so bad I could not even wear flip flops.. l also have a huge Bulge (lump) at a the base of my skull but I don't mess with that one as I am afraid that if I put something on them they will go into my brain and I will have a siezure and die... One time I passed a large slug like thing..Probably a fluke..I messed with it for days and ended up disecting it...at its core was a big thick fiber... My question is could these worms be forming around the fiber and the fiber is the core of the worm? or parasite...could that be why the fibers move and they just are in their first stages and then tissue forms around them? And are we going to need surgery to get some of these large bulges and lumps cleaned out..I also have one at the bottom of my spine and I swear if that one and the ones below my knees were removed I would be able to walk again.. I just do not think I have MS anymore... This wednesday evening I am having a spinal and brain MRIi with the contrast dye so I will keep you posted...just had a mamogram show lumps and needle biopdy proove no cancer... So don't panic if the doc or you finds lumps and tumors...I think they are fiber and parasite clumps and bumps...and lumps..and eggs and larvae and cocoons...pleasant thought..hah! My face is a mess and can't go out at all this weekend.. and will need plastic surgery to fix this mess when and if we get cured! T went to get us dinner last night and I said "do you want me to go with you" and he oh no! Thats OK...in his sweet way! ;D I guess I am grounded for the weekend for doing self surgery again!
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Post by felixwillford on Aug 4, 2007 6:53:14 GMT -5
OMG, Liz............you are a brave one. Gosh, this is all over inside of us.
I too have the swollen lower legs. One is worse than the other and I got a FLUKE out of it. It was a lump and surfacing so I pulled it out.
This disease NEVER ceases to amaze me with all it's inner workings. (though your are right Liz, it's gross.......... but we are getting used to it and it is not so gross to us)
Unaffected people would probably still have a hard time understanding why we do what we do. But after the suffering, we want to know what the F---- is inside of us and we are basically forced to perform our own surgery due to no adequate medical help.
Hey, do I call you Sybil now? Just kidding Liz, Lizzard, Joy. You will always be Liz to me.
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Post by bugsy on Aug 4, 2007 8:17:59 GMT -5
Damn Liz that sounds terrible. Thank you for your very descriptive post. It sounds like they are trying to exit? Did you do something different lately to bring about this dramatic....happening? Out is good. Swollen not good. Fiber balls eh. Interesting. I've had a deeply embedded lump at the base of the back of my neck for quite some time and was wondering what it was. It seems to change in size with various treatments. Thought it was a lymph node. It is NOT...I always kinda figured that it was some sort of parasitic nurse cell. Always thought if I can get rid of that then I'm on the right path. You are describing things very well and I appreciate that. Try not to dig into your skin Liz......i know it is tempting...but it could get infected...and you don't want Staph or septicimia...spelling? You have the cutest avatars. xoxoxxoox ~Bugsy
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Post by bugsy on Aug 4, 2007 8:32:03 GMT -5
P.S. The swollen feet and ankles worry me. I was researching that "buffalo gnat" which Sidney was speaking of on the "Where did this all begin" thread by lymernick. Well, while looking this damn buffalo gnat/black fly...I read about it causing all sorts of problems. I'm NOT saying that THIS particular gnat is OUR parasite but the article talked about it causing TOXEMIA...... Then I rememberd others in this board talking about swollen feet........and saw that news footage of Anthill....and a lightbulb went off. IS THAT TOXEMIA? I know it is usually associated with pregnancy....but not always....hmmmm below is the article I refer to. thanks for listening to my ramblings. ___________________________________________________ Unfortunately, the effect of black fly bites can be more severe for animals. According to Drs. Johnson and Koelkebeck, "livestock and poultry are sometimes killed by the flies when bitten by large numbers of them. Death can be due to anaphylactic shock, toxemia, blood loss, or suffocation when the flies are inhaled." The bites of certain species of black flies are also responsible for transmitting a blood-borne parasite that affects poultry called leukocytozoon. _______________________________________________ www.aces.uiuc.edu/news/stories/news4053.html___________________ Toxemia: www.bartleby.com/65/to/toxemia.htmlI don't want to scare you but this is nothing to take lightly. ~Bugsy
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Post by liz on Aug 4, 2007 8:46:34 GMT -5
WE had a lpt of those flys for a long time in the middle of winter..they have now left...what I think of these lumps and buldges are parasites and fibers all balled up ...and when you put something on them they don't like they move...right down from under your knee to your ankles..I have watched it happen..looks like white masses under the lumps....Ramone once showed a video of it happening on his arm but I will look those linkss up...Thanks bugsy!
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Post by toni on Aug 4, 2007 10:20:23 GMT -5
Oh Liz!
I know exactly what you mean!
Question for Carrie, (cause I don't know) - do flukes "congregate" under the skin like that and move around?
Now something I have read, last year, and again this year, is about Spirometra/Sparganum. I'll post a couple of links and what IS really weird, is how they "clump into lumps too" under the skin, and move around EXACTLY as you said Liz.
I had a long lump...under my breast in the "fold/crease" underneath...and that long lump use to move back and forth, very slowly... it would be on the right side, then itch like crazy as it moved to the left. Looked like a giant long hive that traveled.
Spirometra "they" the docs etc, don't KNOW much about this parasite! I've read all I can find on this sucker too.
(They) say the only way to rid one of this sucker is "extract it physically)
I'll get the links, because the part about you too having these lumps move is very indicative of what these do...which is why or how I came across this too, because I thought it was so bizarre how my lumps "traveled" too.
And Liz, the MILK dabbed and dabbed on that open lesion, then followed with the waterless handsanitizer is the ONLY thing or the BEST thing I've found that KILLS these instantly!!!
Then you can take a fine needle and lift them out.
But the more you dab, like you're tapping the lesion, "which works best to bring them up to the surface" not rubbing...no, you must dab, like tapping on the spot, that will cause them to rise up so you can get them out. There ARE 100's in those lumps.
Like I'm at about 500 things I've lifted out of ONE SINGLE lesion already! I've got them all too! And until all those "things" are out of the sore, it will only continue to mulitply. So please use the milk and antimicrobial, (waterless handsanitizer) and you'll see, they'll surface so you can somewhat easily remove them all. Takes many many days to do this...and when you're done for the day, I've found that placing "hy-tape" over the lesion till the next day when I work on them...helps also cause them to surface, because they can't get air.
Hy-tape is a zinc oxide based tape and it's impermeable of water or air.
I buy it at Allegro Medical Supplies, the 1/2" X 5 yards. It's less than 3 bucks. Sid too now uses this...and I think many others now too. I always get at least 5 rolls at a time, cause the shipping is more than one roll. And it's great tape for skin injury...better than bandaids, you can shower with it, etc, and it won't get water underneath too. But these "things" in our skin don't like it either, which is the best part.
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Post by mfromcanada on Aug 4, 2007 11:00:23 GMT -5
Liz, Thanks for descriptive explantion. How big was the "worm" you pulled out. I have never seen anything wider than a hair. I am glad you wrote about the lumps. I keep getting them in my armpits, some small and some big. I have never lanced them. I have squeezed them but only my persperation comes out. I have huge swellings behind my knees. I too have swollen legs a bit. I cannot sit on my knees nor bend my knees like I used to. I am nowhere near as flexible.
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Post by toni on Aug 4, 2007 11:38:57 GMT -5
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Post by Carrie♥ on Aug 4, 2007 13:16:16 GMT -5
Hey Liz...that is exactly what Dr. Clark says we will find in our tumors. I'm sorry you're experiencing all this...nasty thought at first but soon becomes second nature. Except for Ant...it's so funny he still gets so grossed out by some of the things I tell and show him! I love it and I hate bugs. We make him get the big mosquito eaters out with out killing them and scream bloody murder when we see spiders for him to come and squish. I used to have to drag out the shop vac to suck them up...he's much better than a shop vac ! Sorry...didn't mean to ramble, I think it's funny how we, or I have become so immune to the terrors of worms on and in the body. I was amazed in disgustment in the beginning and talk about it like dinner today !?! And...hum...you keep talkin' about sendin' them but I still ain't got no mail! I can't wait to see a three inch worm and wonder what it can be. The one you expelled and think it's a fluke... please send that one too!!! The stuff Flutterby sends me are too big and solid for me to get into. If you've expelled it in the "proper" context of space and location then I want it and you GOT to send it to me!!! I so wish I had those few that I had expelled that way!!! Makes me mad every time I think about it. Toni there is NO literature that talks about the lumps moving under the skin that I have found but I think it prolly happens but not fast movement. They are generally pretty stationary ONCE they reach adult hood and begining to produce eggs. The immature fluke are mobile and I've felt them move under the skin many, many times. There is literature that talks about lung and liver flukes (SLF) in subcutaneous nodules but nothing about movement. I'm so certain this is our disease because it is the fluke that I have found time after time and the SLF eggs in the dogs eye ball boogers that have actually stopped since the last couple dosings of black walnut tincture. Tapeworm eggs don't look like the eggs that I've found so many times even though when I was scoping out with my old, first, kid type scope I found many more egg samples and cercaria because that was before I really started killing parasites on Dr. Clark's and Anthill protocols ;D!?! I don't find parasites at all anymore but still have issues that I'm still trying to clear up. Starving as I type this because I'm doing my second round liver cleanse this evening !?! Toxemia...yeah...I think that's a huge part of our disease! IBS, neurological and many more issues.
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Post by toni on Aug 4, 2007 13:38:04 GMT -5
Carrie,
I just saw your post...and yep there are...I'll find it and show you.
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Post by toni on Aug 4, 2007 14:00:38 GMT -5
Here's the links.. The itching lump under the skin moved, and has "thread like" extractions. Sorry that's in one of these articles. Copied this on here from my stuff I had. That's in the second link. These are very short articles, but ohhhh do they ALSO sound same same as us too (like Morgellons) but they're limited as "no one" has alot of data on this Spargnosis when man is infected. The larval worms usually grow into irregular nodules (1 to 2 cm in diameter) and surround tissues, becoming edematous and painful. These nodules may persist for months or even years without any symptoms then suddenly become painful. Some patients complain of migratory nodules that come and go for many years. www.koreamed.org/SearchBasic.php?RID=146745&DT=1(( This article here, under case report says how the lump moved from his back to his abdomen )) tinyurl.com/2djnpk[Open in new window] tinyurl.com/2zl46j[Open in new window] www.fdrproject.org/pages/disease/parasites.htm
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Post by flutterby on Aug 4, 2007 14:14:00 GMT -5
I have the lumps, also. Gained an abnormal amount of weight for me, 30 pounds. Mom was 5'10, slim and I have 5 sisters, 1 brother and we all have the same bone structure and body shape. The lumps I have are present in the rib area and around to the sides and back. I also have them in my arms and under my arms, very painful. My feeling, in my case, I feel the lumps are colonies of Morg organisms. Some lumps I've had on my hands showed movement under my skin. As this happens, white trails beneath my skin become visable, my veins protruding and at times the vein located at the inside of wrist actually turn black and blue. The tops of my hands and fingers, as well, often turn black and blue. I can feel the morgies under my skin marching on in line as I watch the trail as it moves on. I also have some very large painful breast lumps. Last mammo result was "dense tissue." Duh, I know that, but what does the dense tissue contain. During my showers, I always have little white morgs poke through my nipples. The skin seems to crack and then the white invader. These lumps also very painful. I have one on my rib below breastline, very painful. Feels like its on a rib. Just when you think you have a handle on this monsterous disease, it comes up with a new trick. God Bless Love, Flutterby
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Post by toni on Aug 4, 2007 14:27:29 GMT -5
The black and blue skin coloring under your skin IS also indicative of Spirometra/Sparganosis.
Please read those articles. They're short and worth reading.
I'll find the other one, that's very important...just remembered it.
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Post by Carrie♥ on Aug 4, 2007 14:38:28 GMT -5
I was talkin' about flukes...there isn't any fluke literature that says the lumps move under the skin. I don't have and have never had migratory nodules but know others that have. I'll check out those links...sounds interesting.
Do many of us have migratory lumps? Do you Tonisue? How migratory? Where do they move to? How long and/or fast does it take them to travel what distance? What does that look like?
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Post by Carrie♥ on Aug 4, 2007 14:46:57 GMT -5
You know I've read this several times over but never really thought about it...a lot of our stuff looks like this on my family at times. The image posting ain't workin'. tinyurl.com/26b8cv it ain't workin'. "foreign body granuloma" www.merckmedicus.com/ppdocs/us/hcp/content/white/chapters/white-ch-008-s004.htmThat phrase was in PMID: 15531332 the eyelid link. Thought it was interesting how much of our disease is a granuloma disease. That's what was happening to me at the onset of my Morgellons and I can't get rid of the accumulation of those cells on my skin that make me look flat out old.
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Post by liz on Aug 4, 2007 14:48:13 GMT -5
Carrie Im sending them monday right after The docs see them...They are boxed and ready to go...be prepared to faint! Those lumps bulges under my kness when I could still hobble around a bit (one and a half years ago) would sometime go right on the kneecap and my legs would get stuck straight...(Ant know all about that) Yeah there is something alive in there..Sometimes I get movement in my stomach and it feels like if you were preggers..never have been and wish my first experiance was not a big old snake monster....this one that I lanced on my neck had so many fibers entangeld with so many snake and worm like creatures it was unbelievable... ..some were goldish fibers and I have dark brown hair....I always s thought I had lyphatic filairious but the doctor just laughed at me for even mentioning it!...thanks for all the info and IF I have to remove all these myself there will be nothing left of me...T is still in shock from last night and took my surgical tools away ...had a self surgery go bad once....never ever have they got infected or septic and that is curious to me...I have also never had a cold or flu since this thing hit! whats up with that? A needle toni...how bout a spoon for my big boy worms..I can't believe this is what I am discussing on a beautifiul Saturday afternoon....I feel like a total freak of nature! and I used to be hot !! hee hee! I HAVE ALSO USED A SHOPVAC CARRIE I THOUGHT THAT WAS MY PERSONAL SECRET!
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Post by Carrie♥ on Aug 4, 2007 14:54:46 GMT -5
I've never found a tape worm ya'll...I've seen they're eggs from stool sample though with my first baby scope. They're there though I'm sure!
Hey Liz...Ant has talked about the cold/flu/not getting to sick since hit with this disease. I don't know what to think about that. Maybe because we are constantly under attack by those virus so we don't react in the same fashion as "healthier" people? I still get sick but my onset only lasted about 6 months where I started getting better or not having the "onset" issues since that time really where others like Ant and Gretchen had those same "onset" type symptoms for years and years. I wonder if that has something to do with it?
I was just messin' with ya, you know giving you a hard time about sendin' them but I can't wait to see them. About Saturday afternoon...what about this whole summer Liz? What a mess huh!?! We've never had a summer like this that I can remember, we haven't been to the river once yet. It feels like a weird spring/fall mix!?!
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Post by toni on Aug 4, 2007 15:08:54 GMT -5
Carrie,
Yes, I have migratory lumps too. And they itch like crazy when they move. Mine move about a half inch an hour when they're on the move!
One night watching tv, under my breast itched so bad I could have ripped it open. I mean it itched, and it was on the move is why the itching was so severe. Well...the lump "began" under the breast if you go straight down your cleavage, then right there under the breast where the crease is...
Well...as the movie we were watching continued, so did the iching. After the movie was over, the lump was then under the crease, but all the way over under neath, but on the outside of my breast. So it started on the one side of it, and totally moved to the opposite side.
That was when I went to emergency remember? For that absess under my boob?
Well..I applied hot wet compresses...for at least an hour.
Then it seemed to REALLY lump up in one spot under the breast.
Then I took a needle, poked it, and it was like it just split open about the size of the width of a pencil!
Then I squeezed from both sides like squeezing a zit. All of a sudden IT WAS LIKE SOMEONE SHOT A GUN!
The white crap shot out, I mean with speed an force! Like I shot it out!
I was sitting with the mirror on my thighs so I could see underneath what was happening, and the white sh*t hit me in the leg because I had my knees bent upwards to hold the mirror.
I've got it in a vial. Looks and feels just like dry wax!
Then I went to emergency because I then had this open hole!
They said to me, you are very brave, because you've gotten out all the absess. Yeah right...they had no idea it was "morgellons" absesss.
They said I needed to go to my PS (plastic surgeon) to get stitched back...but to allow a few days for it to drain before anything, and just to keep the guaze on it.
Which surprisingly...after using peroxide and fresh guaze pads daily, and neosporin, it healed perfectly.
Now...here's the kicker. A couple months after that EXPLOSION of that shooting out, which I never needed stitches, as it healed right up....it began itching again, and I saw the moving "lump".
So I was glad to know that "all I needed to do was extract that crap" and I did, and it's never bothered me since...this was last year.
That also is indicative of Spirometra, the only way to rid them is physically extract them.
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josej
Full Member
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Post by josej on Aug 4, 2007 15:32:28 GMT -5
(This is from KJ... I'm only doing the typing)
I know that everything started in my head. Flies started coming out from the top of my scalp. The sores started appearing on my head and coming down behind my ears, neck, and shoulders.
I had fairly long hair, but I cut a lot of it off, put it in a short ponytail and shaved about three inches up the back of my head. It was funny, Jose said that it wasn't very even (looked like the WW's on Charlie Brown's shirt) anyway he kinda fixed it. Once I did that and put my concoction on the sores, it stopped itching and the critters went away from there. (Sorry I'm being tangential)
Back to the lumps: I had a lump behind my ear and a very swollen gland on the side of my neck by my clavicle. My doctor ordered a cat scan. They found several lumps and "spiculated nodules" in my lungs. The doc didn't believe anything about the bugs and when my husband showed him the pictures I'd taken thru' the microscope he accused Jose of creating them on PhotoShop or some software program... that they weren't real... it made me so mad! A pet scan showed it wasn't cancer. So I gave these results to different doc, who recommended that I have another follow-up cat scan to see about the nodules.
The lump on the back of my neck is now gone.
One problem that bothers me (besides the bugs) is that I've been having small seizures and I am constantly tired. Sometimes I have to sleep the whole day. Dr Smith said that this was normal with people with our disease. But I had about five different parasites that came out the other night, and I'll admit that it really freaked me out. One came out alive from a lump on my skin that had become swollen. I agree with you that these lumps do move and leave tracks behind.
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Post by liz on Aug 4, 2007 15:39:27 GMT -5
River Carrie!...you like to go Whitewater rafting....I guess we could still do that with morgs..can't walk but I can swim like a freaken fish!~you talking Deshutes and Maupin area? or Snake River action? I almost felt normal for a minute! Sorry to go offtopic...I am reading all your hard work and research...It just felt good for a second rememeber what is what like to live life! yall understand!
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