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Post by lostintime on Mar 2, 2013 12:44:50 GMT -5
I had to watch the video twice but I did not hear she has successfully treated 100's of people. Being successfully treated and being cured are two different things. It is obvious she is not a public speaker, which is of no great concern. I have been to lots of doctors that didn’t give a damn about me and just took my money. If I had to choose between two kinds of doctors I would rather see somebody that cares. Nobody and I mean Nobody has a cure for morgellons because there is no cure. By the time you figure out you have it is too late, you will suffer many years and possibly the rest of your life.
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Post by lostintime on Mar 2, 2013 3:13:07 GMT -5
I have not been a patient of Dr Uppal but I met her a couple years back. I believe she has a genuine concern for morgellon sufferers. I don’t know what her treatment would be but I am sure you could discuss your options and listen to your impute. She was working on getting a grant or approval to bring in a drug from India but I don’t think that worked out. She has no problem holding a two way conversation so I think it would be worth going.
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Post by lostintime on Mar 1, 2013 14:44:49 GMT -5
Hi Lynn, I completely understand where you’re coming from in regards to brain function. Yes it is very difficult to read and comprehend things. It is very strange to deal with on a day to day basis. My biggest problem with the brain is knowing what things need to be done and seeing things that need to be done but just feeling overwhelmed or polarized.
Everyone I have talked to on the subject of morgellons has had the onset problem of dealing with the mail. It piles up, we want to read it, we know there is stuff in there that is important but we seem to set it aside.
This is a major factor in uniting people and forcing this issue of morgellons to be addressed properly. It is how we correspond (or the lack of) with others. Physically tired with cognitive problems does not make for a very good worrier.
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Post by lostintime on Mar 1, 2013 3:39:55 GMT -5
Mr Holliday Newbie? Not sure what you’re referring to unless it’s the member status off to the side of this page. If so I would like to point out that there are lots of people that have made it to Ultimate member posting carly simon video’s and vacation pictures…doesn’t make them intelligent. Some of the most ignorent people I know just talk and talk and talk but never really say anything.
I deleted my account to this board and took almost two years off due to the garbage being posted and the fighting among its members. I reopened an account and mostly just read these days. You see I have figured out what morgellons is except for a couple of specifics. I don’t need to prove anything to anyone anymore. I’m just waiting for medical research to catch up. I do a flyby often just to see if anything relative is posted. Something that has a intelligent conversation I could engage in. I got morgellons disease Nov 2005, It’s not about posting on the boards its what you can prove that interest me.
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Post by lostintime on Feb 7, 2013 19:35:53 GMT -5
Whooooa Cowboy you don’t want to start with me, I am not your enemy. Could be if you want to, but I see it as a waist of my time.
Here is my point. Everyday more and more people come down with morgellons, this is a known fact. Some of those people gravitate to web sites such as this for help and answers, another fact.
Now I would like you to google Clifford Carnicom and tell me what you see on the page. You see when you promote Carnicom you do promote Chemtrails. This has always been carnicom’s goal and I see no sign of him changing now. The fact is carnicom recently promoted the Consciousness Beyond Chemtrails conference as his own, which it was not. He also wanted people to send in donations to cover his cost to attend the conference. These are facts. You can pitch for anyone you want to but I will post the facts whether you like them or not.
I am not part of, nor agree with the direction of The Holman Foundation as it stands today. I certainly don’t need to fight any of Cindy’s battles, as she is very capable of doing that herself. I have discussed my concerns with her and we agree to disagree.
Who am I you ask? I’m just a guy that has suffered horribly but has the fortitude to get out from behind my computer and meet with people face to face. Point out aspects of this disease that others were too afraid to talk about or didn’t even know. I initiated a support group face to face, didn’t see you there. I have been involved in a legal battle for three years that may set precedence for people fighting with private insurance companies over coverage. I also pay every month for web page so doctors can read how this has affected my life, pointing out that this is much more then a skin problem. I have lost my Job, my home, a wife and went bankrupt with medical bills. I no longer have relations with any family members and all the people that I thought were my friends have long since parted. Am I lost…
I fight on never asking for one dime or anyone to pay my way. I could never even think of profiteering from the sick or the needy. This disease has unmercifully robbed me of the life I once had. It is very much my business to be involved. If you disagree on where carnicom is going with his study then disagree,but it is my right to point out some facts to the new person that comes here frightened and confused.
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Post by lostintime on Feb 4, 2013 1:50:17 GMT -5
Torpedolynn did you read the page?
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Post by lostintime on Feb 3, 2013 22:56:21 GMT -5
Hey Holliday. Why do you feel the need to get people all worked up over Chem Trails? This theory has been debunked over and over again. This is such a dead end, not to mention promoting somebody that wants to do research in two areas of the medical field that he has no expertise in. Here is a tid bit on the world of chem trails and what there doing for you farmwars.info/?p=9202I welcome serious ideas and constructive conversation that will lead to a positive result
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Post by lostintime on Jan 13, 2013 17:37:11 GMT -5
Why did you pull your post? These are the vary things we all need to be talking about. Finding out where and why there is so much resistance from officials and the medical community on this subject. The CDC report on the subject of morgellons was bogus. The funds for that project was nothing more then pork in a labor bill, nothing more. There was no intent on solving a medical problem of this size by only spending 600k. Congress just under funded the study by design. It was nothing more then appeasement meant to look like something is being done. So they kicked the can down the road by coming to no conclusion. There is a lot of that going on in congress these days.
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Post by lostintime on Jan 12, 2013 19:39:31 GMT -5
Contacting the White House is a waste of time. A good place to start is The U.S. Senate Subcommittee on Primary Health and Aging
Members: Members: Sanders, Bernard (VT), Chairman Mikulski, Barbara A. (MD) Casey, Robert P. (PA) Hagan, Kay R. (NC) Merkley, Jeff (OR) Whitehouse, Sheldon (RI) Harkin, Tom (IA), Ex Officio Paul, Rand (KY), Ranking Member Burr, Richard (NC) Isakson, Johnny (GA) Hatch, Orrin G. (UT) Murkowski, Lisa (AK) Enzi, Michael B. (WY), Ex Officio
Please be professional when contacting the Senators. Be straight to the point and be courteous. All correspondence to this subcommittee is read prior to them getting it, so any kind of rant or negative language put fourth will never make to their desk. I encourage everyone to make an effort to contact at least one person on this list. This is the new committee and we all must try again, even if being turned away in the past.
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Post by lostintime on Jan 7, 2013 9:29:29 GMT -5
Hey Holliday, can you post the letter that was sent to the White House and who you addressed it to?
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Post by lostintime on Nov 8, 2012 3:52:15 GMT -5
This just happens to be the first of it's kind. It will be up to the group when and what day the next one will be. I know a lot of you have talked about getting something going in the past. Hope to see as many of you there that can attend. It will be a great chance to have your voice heard.
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Post by lostintime on Nov 6, 2012 0:09:52 GMT -5
Just wanted to post a reminder about the support group. Look forward to meeting with all you that attend.
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Post by lostintime on Oct 9, 2012 12:02:12 GMT -5
I am pleased to hear interest in a support group. I sensed a complete emptiness from so many people after the CDC report came out and feel a support group is exactly what people need right now. I know there are so many people ready to move on and agree to disagree. There will come a day when medical science will figure things out, until then all we have is each other. We are all just people from all walks of life. We all feel the same way when it comes right down to it. We want to restore our health. Were not so different. This support group is not affiliated with any one organization, does not subscribe to a particular theory with a door that is open to all. People helping people can and will produce a positive result. www.ted.com/talks/derek_sivers_how_to_start_a_movement.html
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Post by lostintime on Sept 22, 2012 13:46:48 GMT -5
Kansas City Morgellons support and participation group Kicks Off November 10th 2012 Horizons Buffet AMERISTAR CASINO HOTEL KANSAS CITY 3200 North Ameristar Drive Kansas City, MO 64161
PRIME RIB & SHRIMP DINNER - $19.99 Saturday, 4pm - 10pm
This group will be supporting the Midwest and looks forward to bringing together people from Kansas, Missouri, Iowa, Nebraska, Illinois, Oklahoma and Arkansas. Farther outlying areas are also welcome.
The meeting will be held in a casual forum with open discussion. It will not be focusing on theories or speculations of the disease but rather on how we can become a more cohesive group to strengthen the morgellons community as a whole. It is also encouraged that family and friends of those who are affected attend.
We will address the goals of this group and the direction it will take for future projects. There are so many areas to discuss but this is to give you some ideas just to name a few. Topics to discuss: Raising Awareness Political action Financial needs Finding medical help Family support
This illness has consumed the lives of so many people and I personally understand the seriousness of the disease. I would also like to encourage everyone who attends to try and have a nice time. Enjoy meeting other people that have like minded goals and make new friends. This is a support group focused on the needs of people in the surrounding areas, but it is also an action group. There is no cost except what the buffet charges for dinner. Advise the hostess that you would like to be seated with the KC Health Group. For more information email sufferingmorgellons-kc@yahoo.com Hope to see you there
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Post by lostintime on Aug 18, 2012 2:28:23 GMT -5
The report dr. demento refers to said nothing about GMO's. The report points out similarities to lyme disease and suggest morgellons could be contributed to an unknown spirochete infection. dr. demento has written his article adding information that was not fact in the original report. The fact that the report points out that we are suffering from a real etiology is a step in the right direction. www.omicsonline.org/2155-9554/2155-9554-3-140.php?aid=5477
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Post by lostintime on Jul 11, 2012 14:48:59 GMT -5
Contrails can persist for a considerable time after an aircraft has passed and their appearance can vary depending on atmospheric conditions. While research has indicated that contrails can potentially affect climate through cloud formation, there is no evidence that contrails are harmful to human health or the environment Amen
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Post by lostintime on Jul 7, 2012 1:56:17 GMT -5
Hi Toni, What are you using as the pointed object under your scope? I have been looking for a small long needle with a handle. I would like to look at some of the goo clumps to see if I can find mites. I take Ivermectine a couple times a month so I should not have any, but if I find them then its not killing anything. The only thing I have to combat this is Ivermectine and Dawn dishwashing soap. I don't have leasions like most but still find colored fibers comming out of my body and I am still very sick. Anyway back to the pointer you have?
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Post by lostintime on Jun 21, 2012 12:58:49 GMT -5
Thank You Sunny, The F1000 faculty and readership will be a great benefit to us.
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Post by lostintime on Jun 20, 2012 1:33:39 GMT -5
We will have to agree to disagree. I just call it as I see it. I met Clifford two years ago and have looked at some of his presentations on morgellons. Clifford’s knowledge of morgellons is based on whipping up some petri dishes in his lab…Oh sorry he doesn’t have a lab. I meant his home. He has no medical background that anyone is aware of and is basing much of his claims that chem. trails is the source of morgellons disease. If you wish to send him your money that’s fine but I wouldn’t give him a nickel for his time. The study he wants you to pay for is what morgellons has done to the mind but he holds no degree in mental health. Money given to a non-profit can be used to run a non-profit. It is legal to spend money on things like transportation, utilities, new computers, web fees and even food as long as it is turned into the IRS as such.
hildegarde staninger is another person I have a problem with. The selling of products claiming to benefit people with morgellons is a big no no in my book.
Dr Karjoo also sells a product line of soaps and such claiming to help people with morgellons which is nothing more then fraud Not to mention naming this disease after himself.
Profiteering from peoples suffering is nothing new in this world. I have seen time and time again, new people showing up on the boards directing people to a web site asking for your money or out right selling products.
Most of the people suffering from morgellons have endured great financial losses. Please consider you own financial situation carefully before giving.
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Post by lostintime on Jun 18, 2012 20:30:05 GMT -5
Carnicom Institute...What a joke. This is another Profiteer hiding behind 501(c )(3) non profit with a paypal account. Corporation! This is nothing more then a legal way of setting up a scam and protecting oneself from lawsuit. The only institute here is one designed to supplement Clifford’s retirement.
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