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Post by itchin4answers on Jan 8, 2016 2:25:36 GMT -5
Hi Itchin, It sounding like you're not allowing (others to get the best of you) which 'imho' is a good thing, because you know the score, and you're doing things that make YOU feel good and happy, which in turn, makes one stronger to face a world of negativity. Yes doing the best I can. Not feeling well, but push myself to do more than I ever have. I believe sickness can be a state of mind. I have no faith in doctors not even those who pray for me, they are now questioning there own faith. Stupid questions. The doctor put me on Keflex today said the big red LUMP on my right cheek, the usual "shingle" site was not shingles but didn't say what it was. I weighed myself, gained 1 kilo but I've eaten crap and consumed alcohol, though balancing everything. I ate the best meal tonight and I'm just thinking!! ab0ut the things I have to juggle. Gosh I hope these recent bloods will snarl the b a s t a r d s. Sorry to see a child with lesions on his face, and the "talk we have to talk"....is something you can't explain to any lay doctor. They don't know Lyme they don't know nothing. There is no communication between this towns medical services and our government because I've covered eveyr corner of this crime and I have nothing to fear. Strange you know toni the internet thing all started for me too with the skin needling a dermatologist told me to go GOOGLE the skin needling then he punctured my face as a test with antibiotics then I got it checked, then I never had the needling. My skin literally flipped inside out. Seeing is believing things on the outer are on the improve and yes I still drive a tank in my mind. This lump is so painful on Keflex for it. Where the heck is the disease going?
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Post by itchin4answers on Jan 7, 2016 4:21:41 GMT -5
Hi Itchin, It sounding like you're not allowing (others to get the best of you) which 'imho' is a good thing, because you know the score, and you're doing things that make YOU feel good and happy, which in turn, makes one stronger to face a world of negativity. Yes doing the best I can. Not feeling well, but push myself to do more than I ever have. I believe sickness can be a state of mind. I have no faith in doctors not even those who pray for me, they are now questioning there own faith. Stupid questions. The doctor put me on Keflex today said the big red LUMP on my right cheek, the usual "shingle" site was not shingles but didn't say what it was. I weighed myself, gained 1 kilo but I've eaten crap and consumed alcohol, though balancing everything. I ate the best meal tonight and I'm just thinking!! ab0ut the things I have to juggle. Gosh I hope these recent bloods will snarl the b a s t a r d s. Sorry to see a child with lesions on his face, and the "talk we have to talk"....is something you can't explain to any lay doctor. They don't know Lyme they don't know nothing. There is no communication between this towns medical services and our government because I've covered eveyr corner of this crime and I have nothing to fear. Strange you know toni the internet thing all started for me too with the skin needling a dermatologist told me to go GOOGLE the skin needling then he punctured my face as a test with antibiotics then I got it checked, then I never had the needling. My skin literally flipped inside out. Seeing is believing things on the outer are on the improve and yes I still drive a tank in my mind.
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Post by itchin4answers on Jan 4, 2016 23:13:19 GMT -5
I'm all excited after getting a call this morning from my beautician I'd only just been woken by my boy....would have loved more sleep, but the pain is somewhat less today. Getting my face AND nails done tomorrow yay. My skin is coming along well I did a quickish needling last night, or the earlier hours of the morning rather. You know running the roller over my forehead and eyebrows relieved the pressure in my skull. I had to sort of zone out to over come the pain threshold, then when I did I could really feel the benefits. I wanted a bath and since we just moved in the new place I attempted to clean it but I could feel the biofilm on the bath tub and since I am unsteady on my feet and it was the middle of the night and I'd had a little party on my own whilst nesting in my new place. I thought safer to shower than do a Whitney Houston. Wow you know it's all go go go. I over indulged in the bad food department but I'm coping okay this morning NOW this afternoon. It's so nice to be busy and have purpose in my life. I know my boyfriend is busy too. I know he had to be up with the birds and do his community service work at the dog pound. He loves the doggies but not cleaning up the poop! My boy is SO happy, the freedom in this town is coming together, I'm just following what my son wants. The most amazing thing, since Jessie girl is still at my boyfriends house with the dogs, I am slowing doing the move bit by bit each day. Yesterday afternoon dropping 3 massive GARBAGE BAGS full of washing after being at the laundrette I pull the car up at the unit and see this cat. I think "WHAT THE?"....anyway I see the little puss digging a hole for a wee and then sitting nicely to do her business. I couldn't believe my eyes I got out of the car I called "Jessie"...but the cat continued with her business. Yes, this cat is identical to Jessie girl. Cool huh.
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Post by itchin4answers on Jan 2, 2016 18:25:03 GMT -5
Hi toni and Ruth, I am somewhat excited about my skin because it is looking great!! However, the Neova products, the creams that is, are finished. Not to worry, they did wonders. I still have the face mask and the gel wash, but that's for just in case. My beautician up the road, what beautiful ladies they are, and we're on the same page!!! I started to feel so ill, AGAIN.....!!!....on New Years EVE so I phoned up and got booked in for a Microdermabrasion. After flying to Melbourne and back and the stupid psychiatric hospital stay my skin was feeling dehydrated. Living in Mildura is HOT HOT HOT but I love it. The insides of my mouth were sore and ulcerated and no matter what I did I felt like a couldn't breathe or get saliva. The dermabrasion was wonderful, gosh I almost drifted off to sleep. Now I am on a completely new range of products and these have DNA repair in them. I won't say which products because they are a SECRET I was given lots of freebie stuff too, so I came home with a big bag of things and at least I felt pretty on New Years Eve when I took Will down to Nowingi Place by the River for the Fireworks display. It was hard to know what to wear because my breasts have gone bye bye again. I had bought a dress last year from the second hand store for $4. Knowing how I feel inside I said to myself "well Gillian there is no time like now if you think you're going to the great big kahuna in the sky live it up baby!!"....so that I did. I stuffed my face with all the wrong food, but it was fun. William had an absolute ball, they had jumping castles and little rides and seriously for $30 it was money well spent. Next week I am having something else done to my face, not the medical grade needling, I am booked in for " " coz my girlfriends at the salon are right with me and are trying their utmost to get my FACE well. And then the really exciting part is that I am getting my nails done the following day!!! However these nails will be house work friendly ones. I had my nails done in September when we went to a wedding they cost $65 and within a couple of days of having them done they flew off. I naturally have beautiful strong nails, that grow and look like false ones. But with the morgs I don't like to have my own nails grow long. I am moving house today!!! so excited, the house (my boyfriends) home looks like a bombs hit the place. The washing machine died 2 lives, long story so I haven't been able to do any washing and running out of clean undies. I haven't unpacked since getting back from Melbourne, and for some reason have lost track of what day it is. Thing is though, this is something some other people have mentioned to me also, they too seem to have lost a day. I've had so much trouble sleeping and that is purely normal when people keep phoning child protection on me. You see I was a rather naughty girl the other morning when I presented to the doctors at 8am in my dressing gown. As I departed the doctors surgery, I paused in the entrance and screamed at the top of my lungs "wake up you money grabbing beep beep beep beep"...... Hence my having to fill a bucket of my wee. I did do a weigh in with my General Practitioner who quizzed me about why did I scream. I said to her "look I am sick and when I am told 8am I expect to see a doctor at 8am". The doctor tells me no start till 10am, well I am very sorry doctor but I am SICK. The doctor was too recording my conversation with the mobile phone. I was weighed in at 44 kilo and told to keep a food diary. Yes doctor sure, I will do that whilst JUGGLING!!!! was given a pathology slip for blood tests and sent on a wild goose chase in extreme temperatures to find that everyone was giving me the wrong information, so I say "God what to do now?"....God said "Gilly go home and get the bloods done when they all go back to work after New Year". I also had my conversation recorded by child protection whilst waiting my turn to do my supervised URINE TEST. Nothing like having a stranger WATCH YOU URINATE. I did hear the child protection worker talk on the phone and mention "vehicle".... No I drive a TANK and it is MASSIVE
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Post by itchin4answers on Jan 2, 2016 17:52:57 GMT -5
Thank you Jo. Signed!! PLEASE WATCH THIS VIDEO. I am from an extremely gifted family whom I MISS SO MUCH. My cousin is the one with the short hair, what a beautiful man. I love YOU. www.youtube.com/embed/uxwwp4MszEkI was able to sign this petition since I have dual citizenship (aka dual nationality). I am English born and hold a British Passport as well as being an Australian citizen with an Australian passport. Sometimes I have to wonder IF this is what got my in trouble in the first place. I was detained in Atlanta Georgia in 1992. I had been travelling around Europe and back home to England. I decided to change my flight plans on the way home to meet my then boyfriend in Hawaii. Unbeknown to me Qantas airlines had not put on my air ticket that I was to do a change over flight at Atlanta. I was the last to go through customs at Atlanta airport and a customs officer looked at my passports and said "why do you have a German passport?". I said "I do not it is a British Passport". Then I was detained....the entire customs area was empty and I was told to stand and wait. Well I was getting ever so anxious about my connecting flight and back then smoking tailored cigarettes I was busting for a smoke. They were kinda like a life line then. I don't take no crap never have, and also was a sweet young woman, so it sure got some attention when I lit up cigarette in customs and starting puffing away. "YOU CAN'T SMOKE IN HERE!!!!".....came a voice....Oh well at least it got some ones attention. So I say "oh ok...."....As I take a long drag on the smoke and butt it out on the ground. I was then taken to a room and given the Spanish inquisition by a female customs officer. She looked through all my belongings. She took photocopies of all my personal documents. She asked the same questions, inside out back to front and over again.....THREE TIMES. ** Where are you going? ** Who are you meeting in Hawaii? ** Where have you come from? ** Where do you live? ** How much money do you have? ** How much money does your boyfriend have? ** Why are you in Atlanta? Strange. Yes, you can imagine it was quite a harrowing experience.
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Post by itchin4answers on Jan 2, 2016 6:52:04 GMT -5
Thank you Jo. Signed!! PLEASE WATCH THIS VIDEO. I am from an extremely gifted family whom I MISS SO MUCH. My cousin is the one with the short hair, what a beautiful man. I love YOU. www.youtube.com/embed/uxwwp4MszEk
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Post by itchin4answers on Dec 30, 2015 16:14:47 GMT -5
Hello troops A quick check in. I am going through the most horrific time. We flew to Melbourne on 16th oh I told you that. Well I do not know what day it is. I can not sleep. What the hell have they done to me with the Zyprexa. I need to weigh myself I am skin and bone and seriously I feel I am dying. I was taken to the ER today, I did show at the doctors at 8am as they play games and for them to do a switch on me and say the doctor was going to be in at 10am I show up in my nightie and dressing gown, looking as gorgeous as can be, but they are bad people. I have learnt that these doctors are interns from overseas. They come to this town and they practice on people like me go back to their own country and continue the genocide. I don't die easy if you could see me BO and toni your heart would break. My heart is breaking too. The effect on my son is be so profound. Would someone tell me what the hell Lyme is and Morgellons and the stupid MTHFR gene mutation. I speak to my parents on the phone and it is gobbled talk. The lies....I don't get it the story keeps changing and you people know I speak the truth other than go the long way around falling in a heap and shame for what? being raped drugged sodimised by scum and that is MY FAULT. I had child protection turn up today, another drug screen. By all means happy to give a bucket load of my pee and find out what the heck is going on. No drugs in me other than the doctor drugs. I can not remember a lot since my discharge. I was voluntary why did they force a wafer Zyprexa on me. It melts instantly in your mouth. You know me I will fight every which way, to avoid the poison My son has broken out on lesions on his face since our return from Melbourne. This evening as I was watching him cross the road to play with friends he said "mummy I do not like what this trip to Melbourne has done to you" NO S H I T!!! in the hands of medical people. Eating their garbage food in the psyche ward. I ended up in the ER gosh I see I just said that. I am screaming in pain my body on fire. What the hell is wrong with people, get off the GMO food. I am not hallucinating so my mother tells me and said it is from smoking weed for years. Oh really mother you can keep, but I do love you like I said on the voice message since I couldn't get a word in coz of your screaming. Yes mother I am on facebook and yes mother the military people I speak to are real and yes mother GOD is real. I pray every day, told you that too. It was torture in the ER. NO tests. I am labelled and they ask me stupid questions. I collapsed on the floor in the ER....they play mind games...."come on Gillian jump in the wheel chair" I said "don't you think you should help a woman up off the floor"....are you see their GMO speaks to me...I dunno but it's rubbish from their mouths and it is so hurting me. I said get this flippin IOU out of my body, it's probably attached to my cervical wall. I have a hard time sitting in the bath coz of the bones in my butt. My husband to be well he can not see me but he has...and he sobbed, he said you are so beautiful and I can not bear to see this happen to you. He said I will not give up on you.....oh this is so frightening. I think I may have to visit you later. I am a mess though the doctor in the ER said I am scattered. He said and she said we will need to read your history. They leave the room and I say "well take your fn time cause it'll take about 5 years". I am a saint and proud to admit. I want blood for blood taken. An eye for eye isn't the way. As my Tony said "take no prisoners"....why are they doing this to me. Oh I mentioned the spider nevi as it seems the hospital in Melbourne that love to experiment on me, you see I mentioned this to the doctor today. But to them I am delusional and that is what is wrote on the not so professional letter from the hospital to the doctor. I don't care if I die exposing this utter rubbish of a medical system how dare they do this to me. And mum says I am unfit mother....oh lord....cu splat. Hi Itchin, Geeze, I just had a post written, and hit something with my finger, and apparently deleted the whole thing. Sheesh. Itchin, if the doctors aren't making you even a "itty bit" better, (because it doesn't sound like it at all) sounds like you're not doing as well as you "were in the past", I'm wondering if you could go to a naturopath instead? Sometimes the "human body gets polluted with medications". I know someone right now, and he's all messed up from the "ALL the meds the doctors give him". He sees a doctor for this and that doc gives him "whatever" med. He then goes to see another doctor for another problem, and then "that doctor" gives him what he sees fit. By the time the guy is done with everything, he's on a multitude of meds! And today...this person, a friend of my sisters, well, he doesn't even act like a normal human nor feel half way like one either, he's more ill than ever now because his poor body is truly "poisoned" from everything he's taking. He doesn't see that, he is "programmed psychologically" to BELIEVE what a doctor says, when he should be the judge of what makes him feel better and what doesn't. But, he's caught in the loop and can't see it. And I look at this, and actually have thought "maybe they ARE experimenting" on him, because "it sure as hell doesn't seem like the right hand knows what the left is doing" as far as doctors with all the different meds, and seriously, one has to ask themselves, what are all those meds really really doing to the body, "since they're definitely not making any improvements". Is there a way you can see someone else who might be more into (building your immune system, and cleaning out all the junk)? like the naturopath? It "seems" and I say 'seems' because I'm only here and not with them, that "the people I've talked with that are doing much much better today, and myself included, are those that stopped ALL the meds, and went full force basically in "eating right" and taking immune building products/herbs/vitamins, etc. I SERIOULY don't know if that's for you, but with all that's going on in your life, it's not looking like you're doing better. So maybe try a different path, because no one knows what's causing morgs or how to really treat lyme either for that matter. Do what "makes your body feel better". If taking those meds don't make improvements, please look at that. WE (us Lymies or Morgies) are not going to prove to anyone anything, as (THEY) believe they know what is best for "another person" ...and the truth is, ONLY YOU know what is best for you and it's easy to know what is, it's what makes you feel right, what makes you feel like yourself again. If you're not getting that from these doctors, don't allow them to practice on you. Just my thoughts, because it's like you're going through the absolute nightmare with the doctors ON TOP of what is already ailing you. ((((Good morning)))) Hi toni I'm talking from my tin can lol. Honestly I feel totally shocking as in so ill. Last night we got to bed early. My poor boy people have been directing him in the wrong direction eating the wrong things, like candy. Will has refused supplements the last couple of days, and stupid me had mixed his supplements the other day and took by accident, then realized and spat it out. Things went so crazy, and the strange thing is I am the one who has been doing all the right things. Crazy crazy stuff this spraying of our skies and weather people control. I think you're right about the nautropath. My body doesn't like rubbish food I know as soon as I put it into my mouth, there is a certain taste and it is yuk. I eat so much but where is it going and why can I not put weight. People say stress makes you lose weight, oh really let me meet stress please coz I'd really to strangle that bugger So I only realize today that it is New Years Eve and I am in the process of moving house too. Oh goodness Gilly you don't do it by halves!!! This disease is totally agonizing where a child is involved and I love my boy so much, but people don't get it. We were in bed early last night and because I have lost the Melatonin prescription there was non for me only for Will. I was still unable to lose that feeling inside me so I had no choice but to take some Seroquel!!!! It's the Seroquel XR 150mg tablet and I took 3/4 of tablet. This morning I feel so bloody terrible my head is fuzzy however as I got into bed last night, right on cue Jessie the cat at the window so up and out of bed, get her inside with her food, I turn the light out, then next thing Jessie does it again! she pounced on my head and bit me so hard. Well I did hit the roof and Jessie spent the night outside, but she ok this morning. I WOKE up this morning to find that Jessie must have bitten me quite hard because there is blood on my pillow. The doctor yesterday at the hospital said what have you done for your condition to help you along the way. I said to him "please don't laugh but music has been my healer". I wish you all a Happy New Year when it comes around. I shall leave you lovely people with my 2 top hits for the incoming year. www.youtube.com/watch?v=MTwq1_9VH68&index=11&list=RDLW2RlaC6nAswww.youtube.com/watch?v=lQhalve_Ov4&list=RDlQhalve_Ov4
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Post by itchin4answers on Dec 30, 2015 2:57:42 GMT -5
Hello troops A quick check in. I am going through the most horrific time. We flew to Melbourne on 16th oh I told you that. Well I do not know what day it is. I can not sleep. What the hell have they done to me with the Zyprexa. I need to weigh myself I am skin and bone and seriously I feel I am dying. I was taken to the ER today, I did show at the doctors at 8am as they play games and for them to do a switch on me and say the doctor was going to be in at 10am I show up in my nightie and dressing gown, looking as gorgeous as can be, but they are bad people. I have learnt that these doctors are interns from overseas. They come to this town and they practice on people like me go back to their own country and continue the genocide. I don't die easy if you could see me BO and toni your heart would break. My heart is breaking too. The effect on my son is be so profound. Would someone tell me what the hell Lyme is and Morgellons and the stupid MTHFR gene mutation. I speak to my parents on the phone and it is gobbled talk. The lies....I don't get it the story keeps changing and you people know I speak the truth other than go the long way around falling in a heap and shame for what? being raped drugged sodimised by scum and that is MY FAULT. I had child protection turn up today, another drug screen. By all means happy to give a bucket load of my pee and find out what the heck is going on. No drugs in me other than the doctor drugs. I can not remember a lot since my discharge. I was voluntary why did they force a wafer Zyprexa on me. It melts instantly in your mouth. You know me I will fight every which way, to avoid the poison My son has broken out on lesions on his face since our return from Melbourne. This evening as I was watching him cross the road to play with friends he said "mummy I do not like what this trip to Melbourne has done to you" NO S H I T!!! in the hands of medical people. Eating their garbage food in the psyche ward. I ended up in the ER gosh I see I just said that. I am screaming in pain my body on fire. What the hell is wrong with people, get off the GMO food. I am not hallucinating so my mother tells me and said it is from smoking weed for years. Oh really mother you can keep, but I do love you like I said on the voice message since I couldn't get a word in coz of your screaming. Yes mother I am on facebook and yes mother the military people I speak to are real and yes mother GOD is real. I pray every day, told you that too. It was torture in the ER. NO tests. I am labelled and they ask me stupid questions. I collapsed on the floor in the ER....they play mind games...."come on Gillian jump in the wheel chair" I said "don't you think you should help a woman up off the floor"....are you see their GMO speaks to me...I dunno but it's rubbish from their mouths and it is so hurting me. I said get this flippin IOU out of my body, it's probably attached to my cervical wall. I have a hard time sitting in the bath coz of the bones in my butt. My husband to be well he can not see me but he has...and he sobbed, he said you are so beautiful and I can not bear to see this happen to you. He said I will not give up on you.....oh this is so frightening. I think I may have to visit you later. I am a mess though the doctor in the ER said I am scattered. He said and she said we will need to read your history. They leave the room and I say "well take your fn time cause it'll take about 5 years". I am a saint and proud to admit. I want blood for blood taken. An eye for eye isn't the way. As my Tony said "take no prisoners"....why are they doing this to me. Oh I mentioned the spider nevi as it seems the hospital in Melbourne that love to experiment on me, you see I mentioned this to the doctor today. But to them I am delusional and that is what is wrote on the not so professional letter from the hospital to the doctor. I don't care if I die exposing this utter rubbish of a medical system how dare they do this to me. And mum says I am unfit mother....oh lord....cu splat.
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Post by itchin4answers on Dec 26, 2015 5:18:19 GMT -5
This written article I have had in my database and thought it needed to be shared. If the reality is that 90% of us Morgie's whom are tested are testing positive for Lyme and company, then yes I do believe Morgie sufferers need this information. If you don't think you are a candidate for Lyme and company, I still suggest you read this, as it will give you an overview of the immunilogical effects that can very well take place in a similar fashion with other diseases.
Whatever we all are going through on this board, it is none the less a cascade of events taking place in our bodies, whether we all suffer from the same entity or not.
This article names supplements and such, and I caution, not all things are effective for each of us because of the difference in the presence of genetic mutations, differing bacterial loads, differing viral loads, differences in our hormonal status, organs affected, and most importantly, differences in our detoxification capabilities.
This article also names doctors. I have x'd them out of the context, but the link to this article is provided above the title. I did however leave the authors name as stands for quotation and credit purposes, even though he is an MD.
Its a long, in-depth article in which includes an introduction to the history, occurences, prevalence, and some of the politics of Lyme disease in which the author offers us his insights. It is brief considering the length at which he attempts to explain how Lyme affects our bodies and the cascading events that occur. I have had to break it up into seperate posts because it is so long, but it is so good. Happy Reading!!www.autoimmunityresearch.org/lyme-disease/[glow=red,2,300]LYME DISEASE (Borreliosis) A Plague of Ignorance Regarding the Ignorance of a Plague © Copyright 2004, Dr Scott Taylor, DVM, All rights Reserved[/glow] My objective for writing this report is to help inform the layman and the medical community about the extremely complex infection called Lyme disease. I have recently been infected with Lyme disease and I will share my experience and what I have learned about the complex nature of Lyme disease in this report. I continue to update this report and I foresee many revisions of it in the future as more information regarding Lyme disease surfaces. I have recently been introduced to a major medical breakthrough discovered by Dr. Trevor Marshall, research director at the Autoimmunity Research Foundation in Thousand Oaks, CA. I have updated this version of the report to include this vital information.
Lyme disease (LD) is a seriously complex multi-system inflammatory disease that is triggered by the bacterial lipoproteins (BLPs) produced by the spiral-shaped bacteria called Borrelia. Borrelia are difficult to isolate, grow, and study in the laboratory. So, our technical knowledge of this pathogen is poor compared to our understanding of most bacteria that cause disease. Transmission of Borrelia occurs primarily through the bite of ticks. The disease affects every tissue and every major organ system in the body. Clinically, it can appear as a chronic arthalgia (joint pain), fibromyalgia (fibrous connective tissue and muscle pain), chronic fatigue, immune dysfunction and as neurological disease. LD may even be fatal in severe cases.
The diagnosis of Lyme disease is primary based upon clinical evidence. There is currently no laboratory test that is definitive for Lyme disease. Many tests give false negative results. Physicians not familiar with the complex clinical presentation of Lyme disease frequently misdiagnose it as other disorders such as: Fibromyalgia or Chronic Fatigue Immune Dysfunction Syndrome (CFIDS), Multiple Sclerosis, Lupus, Parkinson's, Alzheimer's, Rheumatoid Arthritis, Motor Neuron Disease (ALS, Amyotrophic Lateral Sclerosis -Lou Gherig's disease), Multiple Chemical Sensitivity Syndrome (MCS) and numerous other psychiatric disorders such as depression and anxiety.
Lyme disease is a familiar name to most people, but their knowledge of it is very limited. Unfortunately, this is also true for most professionals in the medical community. There have been numerous reports in the media about it in the United States over the past 25 years. These superficial articles report something about small deer ticks transmitting bacteria called Borrelia burgdorferi. The tick vectors are said to be mainly restricted to certain endemic areas of the United States, which are the Northeast and the upper Midwest. Frequently mentioned is the bulls-eye skin rash that develops following the bite of an infected tick. The disease is reported to begin with flu-like symptoms that progress to an arthritic and fibromyalgic condition. It is often said that Lyme disease can be readily treated with standard regimens of antibiotics. While these reports are partially true, they are also critically erroneous and very misleading!
This report is an urgent warning for everyone. Lyme disease is devastating the lives of hundreds of thousands of individuals and we are all at risk. Many patients are suffering with chronic Lyme disease and continue to be misdiagnosed and mistreated. In many cases of Lyme disease, a correct diagnosis doesn’t occur until after several months or more often many years of suffering with the disease. By then it has caused severe illness, disability and permanent damage. The disease is widespread and the prevalence is significantly higher than reported by health officials.
It is very unfortunate that most physicians don’t know how to recognize and treat cases of Lyme disease, especially the illusive cases of chronic Lyme disease. I’m not just talking about general MDs being ignorant; I am also referring to specialists such as: rheumatologists, neurologists, orthopedic surgeons, cardiologists, psychiatrists, and the most ignorant actually seem to be infectious disease specialists. I was extremely surprised by this plague of ignorance after I began my investigation of Lyme disease.
There are some key factors that exist in the medical community regarding Lyme disease; they go a long way in explaining why LD is often misdiagnosed and mistreated:
LD is frequently misdiagnosed. Physicians frequently overlook cases of Lyme disease simply because they don’t know the complex pathogenesis of the disease. They don’t understand that Lyme disease causes well over 100 different symptoms; the common arthralgia (the medical term for joint pain) is a LD symptom that most physicians are familiar with; however, it is only one of many symptoms caused by Lyme disease. The clinical presentation of Lyme disease can be very subtle and complex. Most doctors don’t know that laboratory tests are often useless and misleading. Results are frequently negative or inconclusive in individuals with borreliosis. The technology we have to deal with borrelia species is in need of significant improvement. The isolation and identification of borrelia is rarely successful; and no clinical laboratory test exists that can definitively diagnose Lyme disease. This is why a diagnosis of Lyme disease is heavily based upon clinical information such as history, symptoms, and response to therapy. There is an art to medicine when dealing with Lyme disease. Lyme experienced physicians must use keen clinical skills and judgment when dealing with suspect Lyme disease patients. They thoroughly evaluate the patient’s history and symptoms when seeking a diagnosis and are able to recognize even the subtle symptoms of complex Lyme cases. Most physicians don’t recognize the symptoms of chronic Lyme disease and will rely solely on laboratory tests to confirm a diagnosis. Frequently these lab tests are negative and mislead the physician and patient to search for another cause. Most MDs don’t know that borrelia produce a large variety of toxic bacterial lipoproteins (BLPs) and they aren’t familiar with the way these BLPs cause disease. Lyme disease specialists must use very keen clinical judgment when diagnosing cases of Lyme disease. In defense of the ignorant physicians, much blame can rest on health officials and the medical establishments that are not giving clinicians the appropriate information they need to diagnosis these difficult cases of Lyme disease. The criteria being used to report Lyme disease by physicians is often set by state health officials and is often based upon the rigid criteria established by the Center for Disease Control and Prevention (CDC). This CDC criteria was established for an epidemiological survey, which was designed to study the distribution of Lyme disease. The two-step method of the CDC uses a screening immunoassay for all patients followed by a more sensitive and specific Western blot only if the screening test was positive. Unfortunately, this approach was originally intended for surveillance of Lyme disease in potentially asymptomatic patients, not for diagnostic purposes in patients with symptoms that are potentially related to Lyme disease. This criteria was not intended to be used as a standard for the clinical diagnosis of Lyme disease; the CDC has clearly stated this. Unfortunately, ignorant health officials and physicians continue to use these criteria for the clinical diagnosis of Lyme disease.
Unfamiliar pathogenesis. Lyme disease has a complex pathogenesis that I’ll discuss later in this report. Only a few medical professionals understand the pathogenesis of Lyme disease. Actually, very few MDs that specialize in Lyme disease understand this pathogenesis very well. This detailed information is not taught in medical schools or even in the general medical conferences or in post-resident seminars. Thus, most clinicians practicing medicine don’t understand how borrelia causes disease. Without this knowledge, it is difficult to properly recognize, diagnose, and treat Lyme disease.
LD is caused by many borrelia species. Another major oversight by the medical community regarding Lyme disease is that Borrelia burgdorferi is not the only bacterium that causes Lyme disease; there are many pathogenic borrelia strains; many of which cause borreliosis (Lyme-like disease). The causative agent, Borrelia burgdorferi, is a type of spirochete. When Bb was first discovered in 1982 it was thought that there was just one strain. Since then, about 100 U.S. and 300 worldwide strains of the bacterium have been discovered. In the mid-1990's genospecies were formed to group the many variations into subcategories.
Borrelia burgdorferi sensu lato is name given to the overall category. In North America there is just one genospecies variant - Bb sensu stricto. In Europe there are three categories Bb sensu stricto, B. garinii, and B. afzelii. Asia has B. garinii and B. afzelii. Japan has B. japonica and B. miyamoto. These groups are evolving as new research discoveries occur.
A new pathogen causing Lyme or "Lyme-like" disease has been reported. While not culturable, it has been named B. lonestari sp.
B. andersonii, B. lonestari and B. miyamotoi have been identified by PCR and DNA sequence analysis as likely human pathogens in the U.S. Unfortunately, the criteria for clinical Lyme are set for only Borrelia burgdorferi; they were not designed for any other borrelia species. The reason that Borrelia burgdorferi is tracked by health officials but not other species is because it’s the primary borrelia species that laboratories are able to identify and study. I admit that Borrelia species are very difficult to grow (fastidious) and work with in the laboratory. In most cases, laboratories are not even able to isolate and identify Borrelia species. Some other known strains of borrelia include: B. valaisiana,
B. lusitaniae and B. bissettii.
There are more carriers of LD than just the deer tick. There is a tremendous misunderstanding regarding the vector (carrier) that transmits Lyme disease. First of all, the familiar tick vector called the deer tick (Ixodes dammini) and black-legged ticks (commonly called deer ticks) (Ixodes scapularis) are more prevalent and spreading wider than reported. Secondly, these ticks are not the only vector able to transmit Borrelia species. Several other tick species such as the Lone Star ticks (Ammblyoma americanum), western black-legged ticks (Ixodes pacificus), and wood ticks or dog ticks (Dermacentor variabilis) can transmit it too. Unfortunately, this critical information is not being reported by health officials to the public and medical community. The widespread distribution of these tick vectors greatly increases the prevalence of Lyme disease well beyond that of official reports. The public needs to understand the potential danger of all tick bites, not only that from the deer tick. LD is more common than we think. The true prevalence of Lyme disease is much higher than is being reported by health officials. It is difficult to know how many cases are unreported but estimations suggest that the prevalence is actually 10-15 times higher than what is actually being reported. I personally believe it is much higher than that. Why are health officials under-reporting cases of Lyme disease? Again, the answer is because physicians don’t recognize and report most cases. These misdiagnosed cases go unreported even though Lyme disease is a mandatory reportable disease (in the state of Iowa). So, a futile cycle exists causing numerous cases of Lyme disease to be misdiagnosed and unreported. That is, since most cases of Lyme disease go undiagnosed, health officials under-report Lyme disease; thus, physicians that read their official reports believe that the prevalence of Lyme is rare and place it low on their list of possibilities when faced with clinical cases that could be caused by Borrelia. Patients need longer and more comprehensive treatment. The standard therapy of 4 -6 weeks of antibiotic treatment is not sufficient to treat chronic Lyme disease. Chronic Lyme disease is often a life-long illness. Months, years, and often indefinite antibiotic therapy may be necessary to manage the disease. Ignorant physicians often use the standard treatment and consider the patient cleared of Lyme disease afterwards. Often these patients are not treated long enough to clear the stubborn Borrelia from the body. So, when the standard regimen of antibiotics is finished, the patients relapse with Lyme symptoms soon after the residual Borrelia reemerges. Unfortunately, the relapse is often not recognized by doctors and the patients are misdiagnosed with a different disorder. Not only does treatment be directed at the infection; it must also manage inflammation, help eliminate the BLPs produced, support the immune system, and many other associated problems such as hormone deficiencies. Wrong diagnosis leads to wrong treatment. Another critical point that needs to be highlighted is that Lyme ignorant physicians often administer medication that is contraindicated in patients with Lyme disease. The therapy most often prescribed that is extremely contraindicated is the use of steroidal anti-inflammatories; usually the glucocorticosteroids (such as prednisone). Lyme patients suffer with many painful inflammatory symptoms. MDs, not knowing that the patient has Lyme disease, think it is appropriate to treat these patients with steroids to reduce the pain and inflammation. Unfortunately, steroidal therapy is very deleterious to Lyme patients because it suppresses the patient’s immune system causing it to tolerate the presence of Borrelia instead of attacking and killing it. This harmful treatment significantly diminishes the prognosis of Lyme patients; it prolongs the course of the disease and makes it more severe in the long run. Lyme Wise Medical Doctors: The Few, the Knowledgeable, the Harassed
The plague of ignorance surrounding Lyme disease makes it very controversial within the medical community. Most MDs are ignorant about the complex nature of Lyme disease and are frequently irritated when confronted about it. There are only a few MDs in the country that are knowledgeable about Lyme disease; they are often called Lyme literate MDs (LLMDs) by the Lyme aware public and by their Lyme patients. Most LLMDs know about Lyme disease because they have studied it independently. The MD’s formal training in medical school and from the established medical community regarding Lyme disease is meager.
LLMDs have been and continue to be harassed by the medical community, by health officials, by their peers and colleagues, by state medical boards, and by insurance companies for diagnosing and treating Lyme patients beyond the standards set by the establishment. Unfortunately, some of these LLMDs have discontinued treating Lyme patients due to the harassment. A few LLMDs have actually had their medical license revoked because they have treated Lyme patients beyond standards set by the medical community. For example, treating patients with antibiotics for longer than the standard 4-6 week period of time can lead to harassment.
If Lyme patients are lucky enough to find an LLMD and get the proper diagnosis and therapy, guess what? Many health insurance companies are declining to pay for the appropriate antibiotic treatment. Why? If it’s not the standard therapy established by the ignorant medical community, the insurance companies won’t pay. The Standard therapy for Lyme disease, which is considered to be a 4-6 week course of antibiotics, is too short for most Lyme cases. A basic treatment for chronic Lyme disease usually requires at least an 8 -16-month period of appropriate antibiotics.
Throughout my studies of conventional and alternative medicine, I often encounter the shortcomings of conventional medicine. Their ignorance surrounding Lyme disease (LD) may be one of conventional medicines biggest failures. In fact, I’d place it up there with their disastrous low-fat, low-calorie diet recommendation. I am extremely disappointed by what little they know and what little they do regarding Lyme disease. This ignorance should not exist. I have been able to educate myself about Lyme disease. There are plenty of good resources on the internet that are full of helpful information regarding Lyme disease. I have placed some links about LD on my site that can be found at: www.myremedi.com. The medical establishment needs to connect the complex clinical picture of Lyme disease with the evidence already present in the scientific literature. I know they won’t consider anecdotal evidence which is very helpful in understanding Lyme disease clinically, but isn’t considered scientific. Unfortunately, there isn’t enough clinical art mixed into conventional medicine.
Clinicians need to slow down and listen carefully to their patients; the patient will usually tell them what’s wrong. Doctor must use their best clinical skills to rule out Lyme disease when dealing with a patient presenting complex symptoms suggestive of Lyme disease. They must educate themselve about Lyme disease. The CDCs criteria is not a crutch for them to use to make clinical diagnosis. The History of Lyme Disease
Lyme disease has a relatively young history in the U.S. The first reported case of borreliosis in the U.S. was made by Dr. Rudolph Scrimenti in 1970. He noticed a skin lesion called erythema migrans (EM), a rash that Borrelia can cause soon after a tick bite. Scrimenti diagnosed and treated the patient who had been bitten by a tick and acquired LD while hunting in Wisconsin. Lyme disease was later rediscovered in the well-known Lyme, Connecticut outbreak that began in 1975 by Dr. Allen Steere. He misdiagnosed this outbreak as juvenile rheumatoid arthritis near the community of Lyme, Connecticut. At that time the condition was named 'Lyme arthritis.’ Then, in the early 1980s, B. burgdorferi was recognized as the causative agent of the Lyme outbreak and the name was later changed to Lyme disease.
Although the disease was named for the town in Connecticut, Lyme disease (borreliosis) actually has a long history taking it as far back as the 1800s. The first reported case of clinical Lyme disease was made in Germany by Dr. Alfred Buchwald in 1883. He described a degenerative skin disorder now called acrodermatitis chronica atrophicans (ACA) that is known to be caused by Borrelia. Thus, a great deal of information was already known about Lyme disease prior to its rediscovery as Lyme disease in the United States. However, most of this early medical history of LD comes from the European scientific literature. The U.S. still lags behind the Europeans regarding their understanding of borreliosis.
The terminology used to describe Borrelia infections and the disease caused by them is not clearly defined. The name "Lyme disease" has been used to describe the illness specifically caused by only B. burgdorferi, not other Borrelia species. However, the term Lyme disease or Lyme borreliosis is commonly used to describe the infectious diseases that are caused by many Borrelia species. More appropriately the name for the disease caused by borrelia infections is borreliosis. However, borreliosis isn’t commonly used and is not familiar to most, so I will often use the more familiar name, Lyme disease. However, please note that I will use borreliosis, Lyme disease, or Lyme borreliosis interchangeably to describe the complex disease caused by borrelia infections.m.youtube.com/watch?v=JsVgSqAwSEI Part II cont. in next post.... m.youtube.com/watch?v=JsVgSqAwSEI
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Post by itchin4answers on Dec 26, 2015 5:07:11 GMT -5
I got to make this quick, not much time left on this computer at the Library. We went to the doctors late yesterday, my son is sick another throat infection and more antibiotics. I spoke to the doctor about my concerns. I handed her the CT scan results. She drew me a picture of where the sphenoid sinus is situated, which is at the back of the skull. I said that I had been worsening and having more seizures. She said in light of the scan results and my seizures I qualify for a Neurologist. Now she instructed me to go home and Google a Neurologist in either Melbourne or Adelaide. My next concern to the Doctor was my weight loss. I said my weight loss is ridiculous. So I hop on the scales and the doctor says "add to 2 kilo"...ok so I did it said 45 kilo so I add 2 kilo to make it a whopping 47 kilogram. I am skin and bone. The doctor asked if I was eating. I said I am eating 3 meals a day and protein drinks. I said there is something very wrong with me and my neck is very stiff and sore. So she instructed me to find my own Neurologist one that can see me as soon as possible and the Neurologist will decide if they put something down my nostrils to clear this cyst. Of course I wasn't happy once we got home and I text my Mum! poor Mum she was so worried about William not being well and the doctor even pointed out the abnormalities in William's bloods....I know! but they do nothing. The doctor said my bloods were fine, so yeah there has to be nothing wrong with me. I replied to Mum's text saying "I would rather be dead, all these years of not being believed, I am over it!". Then I text her back asking about her Neurologist and how soon can he see me. So Mum (good old Mum!) phones me explaining that it's like trying to get through hells gates when booking with a Neurologist you have to have a referral. The doctor I saw last night said I was to find the Neurologist first, then she would do a referral. I am sure you people in the USA are jaw dropping at the stupidity of our doctors. Are they sick too? Yes I think they are all rather deranged. I have had a somewhat bad morning. A blessing my son was home from school, but then not, because he kept checking on me in the shower to make sure I hadn't collapsed. These seizures are changing and it's taken probably 5 hours for the knocks and ticks and weird speech to be under control. I feel I am losing my mind but then not. I have a touch of a sore throat too, and I have the shingle thing on the right side of my face. You can't really see anything, I can feel it inside me. My son had a little bit of a cold sore on his lip. So we're sharing this loving disease. Gosh 10 minutes left LOL Mum and I have decided to wait till I see my eye specialist as we feel this will be the quickest way for me to get some help. You know, I am prepared to beg this Doctor of mine next week. He has to help me. I have my son to raise. Well truth be known I am skin and bone. Seizures talking in tongues banging my head with my own hands only once. An ER attendance then psychiatric admission more forced drugging cult tricks. First do no harm. Facebook is causing unspeakable harm and youtube is full of paedophiles. I speak the truth. The plane ride was fun ? but how dare you people do this to me. Whatever morgellons truly is is killing me. I am skin and bone my pain is 150 out of 19 and people hack my phone. I walk with grace. So many lives lost already more as I tap from from a mobile device this is the most heinous crime. I believe in God so does my son and future husband. When I chose to read my prayer book in an airport and have private communication with military personnel via Facebook I say enough already....because this is REAL. I will not go down without this crime being exposed. I own this this has been my entire life. I pray every day and my post thanking Joni Mitchell which I composed whilst they kept delaying the flight home the flight ✈ that went to land then back up in the air and around again? ?? . My fear has me at 45 kilo though this is different I haven't died before but I believe. God bless us and lets get this done with peace and love to end the agony. Love ❤ you all Gillian Penkethman
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Post by itchin4answers on Dec 25, 2015 16:31:17 GMT -5
As I have told you before two of my G/F developed the alopecia spots soon after being with me, WHY. They never had them before. Here is a woman that has had all of the hair on her body disappear. Now in the article they said there is no cure for the disease, WHY, because they do not know what causes it, are you getting a little picture in your mind. Ahhhh, maybe they really do not know much about disease, they call it A disease, how do they know its not just a symptom of disease that causes so many horrible issues. Well, I know the answer to that but the rest of you sit there going, well that never happened to me, no but it happened to two of my G/F soon after being with me. YEAH, but it never happened to me, unless you call the WHITE SPOTS alopecia spots, Look up alopecia, its a formation of fibrous material, got it. sure don't I know your minds, really unable to decipher, the thought going through your head, I have bugs, they are all over me. Get over it, its a disease you caught by weenie, and the symptoms are different in different people. Hope you can wrap your legs around it. I think I hear them say 4.7 million suffer from this, and most people suffer from it at some point in their lives. WOW Then I have to listen to it again, maybe someone can correct me, oh wouldn't that be nice. www.msn.com/en-us/video/lifestyle/michigan-woman-with-hair-condition-has-an-inspiring-message/vi-AAd1bD1Nobody knows the trouble I've seen, nobody knows my sorrow. Ho HOOHO Boxing Day how are you BO. I'm on the up and up. Have a happy New Year mate.
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Post by itchin4answers on Dec 8, 2015 22:11:15 GMT -5
I got to make this quick, not much time left on this computer at the Library.
We went to the doctors late yesterday, my son is sick another throat infection and more antibiotics.
I spoke to the doctor about my concerns. I handed her the CT scan results. She drew me a picture of where the sphenoid sinus is situated, which is at the back of the skull. I said that I had been worsening and having more seizures. She said in light of the scan results and my seizures I qualify for a Neurologist. Now she instructed me to go home and Google a Neurologist in either Melbourne or Adelaide.
My next concern to the Doctor was my weight loss. I said my weight loss is ridiculous. So I hop on the scales and the doctor says "add to 2 kilo"...ok so I did it said 45 kilo so I add 2 kilo to make it a whopping 47 kilogram. I am skin and bone. The doctor asked if I was eating. I said I am eating 3 meals a day and protein drinks. I said there is something very wrong with me and my neck is very stiff and sore.
So she instructed me to find my own Neurologist one that can see me as soon as possible and the Neurologist will decide if they put something down my nostrils to clear this cyst.
Of course I wasn't happy once we got home and I text my Mum! poor Mum she was so worried about William not being well and the doctor even pointed out the abnormalities in William's bloods....I know! but they do nothing. The doctor said my bloods were fine, so yeah there has to be nothing wrong with me.
I replied to Mum's text saying "I would rather be dead, all these years of not being believed, I am over it!". Then I text her back asking about her Neurologist and how soon can he see me. So Mum (good old Mum!) phones me explaining that it's like trying to get through hells gates when booking with a Neurologist you have to have a referral. The doctor I saw last night said I was to find the Neurologist first, then she would do a referral.
I am sure you people in the USA are jaw dropping at the stupidity of our doctors. Are they sick too? Yes I think they are all rather deranged.
I have had a somewhat bad morning. A blessing my son was home from school, but then not, because he kept checking on me in the shower to make sure I hadn't collapsed. These seizures are changing and it's taken probably 5 hours for the knocks and ticks and weird speech to be under control. I feel I am losing my mind but then not.
I have a touch of a sore throat too, and I have the shingle thing on the right side of my face. You can't really see anything, I can feel it inside me. My son had a little bit of a cold sore on his lip. So we're sharing this loving disease.
Gosh 10 minutes left LOL
Mum and I have decided to wait till I see my eye specialist as we feel this will be the quickest way for me to get some help. You know, I am prepared to beg this Doctor of mine next week. He has to help me. I have my son to raise.
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Post by itchin4answers on Dec 6, 2015 22:45:08 GMT -5
Hi toni, I so appreciate your post. I feel like I'm bursting at the seams with this worry of Lyme and Morgellons. I had said to this doctor a visit or two prior to this one, asked if he'd looked into my story in the Age, newspaper article on Morgellons. He said he'd had a little look. When I asked about the sphenoid cyst, I did say to him "could this mucous retention cyst account for what has taken place in my face and the long fibers that come out"....I pointed to the sides of my nose. He said "NO"...pointing to the computer saying "that research shows it's psychological". So "he" was referring to Morgellons. I know what has happened to me, in 2003 I was diagnosed with a chronic sinus infection that had penetrated my skin and was on the Bactrim DS. It was terrible, grey and blue/green muck oozing out of my skin. I couldn't make that happen on my own, it just happened and it was as real as the nose of your face. What a fool, the doctor, does not know the first thing about what is going on with me. He knew I was on to him because I spoke to him like I would any other person in this world, who has an unshakable belief about me. I told him about the Rheumatologist and his bogus explanation of Fibromyalgia. I said to this doctor "you know and I know Mycoplasma is involved in fibromyalgia". To the doctors mind he has done the right thing because he has referred me to see a psychologist. Seriously, the look on this guys face is that he knows and he is clueless and he was scared. I wasn't rude to him, I stood up and continued to talk whilst slurring speech and limping. I said "my son and I have been to that many doctors and spent close to $60,000 of my dead defacto's superannuation to now get to here to be told psychological". I said "I shall continue to care for myself and you have a nice afternoon". He was red faced as a left the room, I wasn't rude I was firm and I was honest. We did have good doctors interstate but we have been unable to go with our lives falling apart because of another fool, boyfriend oops sorry fiancé who would rather think that I am a wanna be drug addict and my son is a pain in the bum. It seems to me now where we stand today that Child Protection who I have always feared because they took my son from me in 2008 because of the delusional diagnosis. Do people know what it is like to live in FEAR? Fear of having your child taken when you haven't done anything wrong other than be human and wish to God that someone would take the time to look, to care, to educate. Their denial is the worst fuel for this disease that I have ever known. What it is doing to my son, is bloody unforgiveable. I am so pleased to whoever phoned child protection to report me because you have done me and my son the biggest favour. Our child protection worker is not stupid and can see I am not well and is going to set things straight. So next week I hope things are a little different. Not that it takes away the pain and suffering we're going through right now. Wrong is wrong, and when it comes to misinformation and people with unshakeable belief and damage being caused to a child because "they" all have their head in the sand, well I am prepared to be patient and wait for such time that we will be vindicated from this terrible position we are in. The doctors comment of "psychological" well that's so interesting what you say toni because I came home with the exact same thought. I do not make the "knocks" and "ticks" happen with my head on purpose, I don't drag my leg for fun. It does leave one wondering about the "psychological" part. Does my head in. Hi Itchin, First off, I do want to say (it was not me) that called anyone on you. The reason I'm saying that, is because you put it in your post, and I would too if that happened to me. So I understand you're not pointing any fingers, but, just so you "know inside" your thoughts of wondering, ((( as I WOULD ALSO))) who in fact did. There's too many "wonderments" you have - and I'm not going to contribute to that. Okay, now about the S.Cyst. From what I'm reading, (it's important to get things correctly diag'ed and plan of attack, asap) on something like this. I don't want to scare you, but heck, IF this were me, I'd be doctor shopping right now. I mean (get at least 2-3 different opinions), as this is very important, (imho). www.skullbaseinstitute.com/head-and-neck-tumors/paranasal-sinonasal-tumor-endoscopic-surgery.htmlAnd seriously, that doctor you'd gone to, for him to say "any part of that S.Cyst" is psychological, he needs reported AFTER you see a couple other doctors. (the medical establishment has no answers as to : what the cause is). For that doc to throw out his implication or comments on "what he thinks", and referring to everything being psychological, well...I'd sure NEVER go back to a fool like that. I call him a fool because sitting here reading what he's said to you, sounds like he's just treating you like you don't know your head from the next persons head. I mean that's what I'm getting out of 'his replies to you". I know I don't know "the whole story", but....this doctor that's said that-about the S. cyst being psychological, is saying things one can look up on the internet, and he's the only one in the world with that kind of a stupid comment on the cause, because "they" don't know the cause. Is this guy licensed?? Hi toni, Thank you for your post and not for a minute would I ever think yourself would report me to child protection. Though thank you for saying what you did, because yes there is so much to wonder about. People need to get off their soap box, the pot calling the kettle black, heck you know there are so many people on drugs, people one would never think and these people don't have what I have. In saying that, this DISEASE is enough to drive anyone to drink or drugs, though we know that is only a death wish. I am guessing perhaps the school called child protection and I had to do a drug screen, which was clear. The comment from child protection was "we'll make sure to get this straight and prove to the school that you have a real disease and are not a drug addict". That comment made me wild inside because I had wondered why the school were so evasive at not wanting to know about my boys disease, he has more than Lyme disease going on, we both do. See how information gets around. Just because I fell apart last year. I am human and grief and despair does terrible things to people. Not that I'm going to try and convince the school of the unresolved grief William and I have gone through since Tony's death. Then a goof ball of a man comes into our lives "I'll take care of you both darling"....It's a down right disgrace, but the law can deal with him which they are. Though he too could well have put in a report. Apparently, because of my difficulty walking and rapid speech lead to "that person" believing I was drug effected. If I was, it is nobodies bloody business and I so wish people would get off my back. I am seeing my eye specialist soon and this guy is smart and I plan to show him my CT scan results. I have narrow angle lens glaucoma and from what I read, these cysts in the sphenoid can create more "pressures" in the eyes. I have already had 2 laser holes to each eye to release the pressure. With narrow angle lens glaucoma "one attack" is all it takes and you GO BLIND...simple as that blind and there is no turning back. I woke up this morning with awful dreams about that doctor, and the thoughts in my head as I awoke was "people like HIM are making people like me sicker". Yes the doctor is licensed, though the doctors at this particular clinic are from overseas, and they disappear for weeks at a time for further training. They are earning a great salary to tell LIES and put LIVES at great risk. On another note, I am currently at the library, oh yeah my new computer I got last year has died. Luckily I took it back to the store I'd bought it from as they have an outlet in this town and I have a product warranty so the whole computer is going to have to be replaced. If you don't hear from me, it's only because of the computer issue, but it's good to get out and I joined the library today and here I am using the computer. I will not be letting this "sphenoid cyst" just "go" and forget about it. Today I am thrilled because I am able to walk so much better. However yesterday was not good for me. In the morning I wasn't feeling too great with all the stress, and the heat, and then the next thing I know I was trying to talk to William and I started with the "knocks" and "ticks" and on comes one of those strange seizures. William was going out with a friend so at least he was in good hands. I text my Mum in Melbourne and said "I don't understand what is happening to me". She instructed me to rest. I don't understand it, the day before I'd started with a stiff neck, but then put this down to perhaps sleeping funny, I just don't know. So yesterday morning I took 1 Valium and slept until after 2pm. All I can say is that I felt strange and also I am flying off the handle, like getting angry easy. I put that down to many things, perhaps post traumatic stress, I don't know. What I do know is that STRESS does not cause DISEASE. I'll keep you posted, and thank you.
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Post by itchin4answers on Dec 2, 2015 19:08:27 GMT -5
Hi toni,
I so appreciate your post. I feel like I'm bursting at the seams with this worry of Lyme and Morgellons.
I had said to this doctor a visit or two prior to this one, asked if he'd looked into my story in the Age, newspaper article on Morgellons. He said he'd had a little look.
When I asked about the sphenoid cyst, I did say to him "could this mucous retention cyst account for what has taken place in my face and the long fibers that come out"....I pointed to the sides of my nose. He said "NO"...pointing to the computer saying "that research shows it's psychological". So "he" was referring to Morgellons.
I know what has happened to me, in 2003 I was diagnosed with a chronic sinus infection that had penetrated my skin and was on the Bactrim DS. It was terrible, grey and blue/green muck oozing out of my skin. I couldn't make that happen on my own, it just happened and it was as real as the nose of your face.
What a fool, the doctor, does not know the first thing about what is going on with me. He knew I was on to him because I spoke to him like I would any other person in this world, who has an unshakable belief about me. I told him about the Rheumatologist and his bogus explanation of Fibromyalgia. I said to this doctor "you know and I know Mycoplasma is involved in fibromyalgia".
To the doctors mind he has done the right thing because he has referred me to see a psychologist. Seriously, the look on this guys face is that he knows and he is clueless and he was scared. I wasn't rude to him, I stood up and continued to talk whilst slurring speech and limping. I said "my son and I have been to that many doctors and spent close to $60,000 of my dead defacto's superannuation to now get to here to be told psychological". I said "I shall continue to care for myself and you have a nice afternoon".
He was red faced as a left the room, I wasn't rude I was firm and I was honest.
We did have good doctors interstate but we have been unable to go with our lives falling apart because of another fool, boyfriend oops sorry fiancé who would rather think that I am a wanna be drug addict and my son is a pain in the bum.
It seems to me now where we stand today that Child Protection who I have always feared because they took my son from me in 2008 because of the delusional diagnosis. Do people know what it is like to live in FEAR? Fear of having your child taken when you haven't done anything wrong other than be human and wish to God that someone would take the time to look, to care, to educate. Their denial is the worst fuel for this disease that I have ever known. What it is doing to my son, is bloody unforgiveable.
I am so pleased to whoever phoned child protection to report me because you have done me and my son the biggest favour. Our child protection worker is not stupid and can see I am not well and is going to set things straight. So next week I hope things are a little different. Not that it takes away the pain and suffering we're going through right now.
Wrong is wrong, and when it comes to misinformation and people with unshakeable belief and damage being caused to a child because "they" all have their head in the sand, well I am prepared to be patient and wait for such time that we will be vindicated from this terrible position we are in.
The doctors comment of "psychological" well that's so interesting what you say toni because I came home with the exact same thought. I do not make the "knocks" and "ticks" happen with my head on purpose, I don't drag my leg for fun. It does leave one wondering about the "psychological" part. Does my head in.
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Post by itchin4answers on Nov 30, 2015 1:34:38 GMT -5
I could "delete" this thread however chosen not too.
You see, I took in what I read from those two articles. PubMed is reputable from what I know, all the doctors look to it?
I went to see my local doctor to try to understand my symptoms and took my CT scan results. Don't panic people, my doctor has a sphenoid cyst he says on his MRI and there is nothing to worry about.
To account for my symptoms...the doctor said they are "PSYCHOLOGICAL".
So glad we got that sorted doc! I'll go get on with my life now.
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Post by itchin4answers on Nov 29, 2015 18:01:03 GMT -5
After letting it all sink in I looked into what I have, not too far, enough to know. This is a basic explanation on the mucus retention cyst in my sphenoid sinus. Sphenoid Sinusitis: One of The Most Dangerous Sinus Infection
Symptoms of sphenoid sinusitis are also the same with other sinuses. The patient may experience colds, mucus discharge and weakened sense of smell. A person can only determine if the infection has reached the sphenoid when he feels the pain on top of your head or at the back of the neck. This part of the sinus cannot be infected easily. The basic explanation for this is its location. It would be hard for bacteria or viruses to reach it because the location is not that easy to penetrate. It is not easy to diagnose sphenoid sinusitis. The doctor needs to get a sample of blood or sweat to know if there are traces of bacteria and fungus in the sinus. Another way to know the condition of the sphenoid is by CT Scan. Sphenoid sinusitis should not be taken for granted because progressive growth of the infection can cause neurological damage. Of all the sinuses, the sphenoid is one of the most sensitive because of the connection between the sinus and the optic nerve. sinuscure.org/sphenoid.htmlwww.ncbi.nlm.nih.gov/pubmed/12563914
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Post by itchin4answers on Nov 28, 2015 15:19:57 GMT -5
The scratches toni, that is how my Rheumatologist diagnosed Fibromyalgia as well as pressing the pressure points. Back in the mid nineties when I saw him. He said fibromyalgia is caused from child abuse and not being able to say no. It was still in research then with the Melbourne University and they knew then that it disrupted REM sleep. Hi Itchin, I've got to say, (since your Rheumatologist) said that (Dermatographia) is caused by as you said he said- well...the only thing I can say is : That Rheumatologist has his head screwed on backwards - and "if I were you"... I'd never go back to some quack doc that EVER said anything so crazy as that. Actually, if you've got what he said 'in writing anywhere'...I'd get a lawyer too and put that crazy doc out of business or at least put a cramp in his life with a disciplinary action since he's dolling out comments that are absolutely from left field to say the very least. Just because some person is practicing medicine, as that Rheumatologist is or was, doesn't mean he can say such fool crazy things to you. Hi toni, No, I don't have that part in writing. Only have in writing that Fibromyalgia was still in research with Melbourne University and this was in 1996 I think. This Rheumatologist is still practicing and I worked with this guy years ago in the late 80's when I was a medical audio typist in a hospital in Melbourne. These doctors are living a lie. Fibromyalgia patients have many infections, mycoplasma being one I know. I did see this guy (Rheumatologist) again in about 2004 was referred back to him when I had green and blue muck coming out of my hands. He did some bloods and tests and was meant to call me back. I remember it clearly phoning him one evening for my results. He was so rude, saying that my results hadn't shown anything and he couldn't help me. He was so cold and rude and that was the end of the conversation. The Rheumatologists these days, that I know of, are ruled by one force only, the pharmaceutical companies. The entire thing stinks!
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Post by itchin4answers on Nov 27, 2015 3:39:23 GMT -5
By symptoms I mean slurred speech, walking difficulties, seeing things very differently, unable to do tasks at home without distress, severe short term memory issues, and confusion.
I did a home needling this evening and splashed on all the products. Just wish my in sides were feeling as good as the outer is sort of looking.
I looked like hell when I came out of hospital. It was like being thrown into the twilight zone being discharged into 39 degree heat with no keys to the house or car.
I took myself to the ER after shopping at the supermarket. I felt my left side getting weaker I was dragging my leg.
Child protection were contacted because there was concerns about my gait as in "drugged". At least those with eyes can see and thanks to child protection my scan result were released.
They need to scan my spine and neck, they keep looking in the wrong places.
I reckon I seizured in the ER for about 2 - 3 hours. Now if they isn't provoked brain damage well I'm a chicken.
They took blood, jabbed me with all sorts so it felt like. They had to give me an injection to stop the dystonia, but it continued until I literally passed out. I was on a saline drip and remember being woken at 3am to be put the CAT scan.
The next morning complete change of attitude and on your way sort of thing with no reason for what had happened to me.
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Post by itchin4answers on Nov 26, 2015 22:42:43 GMT -5
Started the new products 2 nights ago, even put the face mask on last night. Felt really nice. I really wanted to have a shower last night but I'm too weak. So wanted a bath but someone has stolen the plug, go figure. Don't you worry I've got a strong mind, but many are trying their hardest to break me. I got the brain scan results no bleeding on the brain.
It did say that "There is evidence of a likely mucous retention cyst identified within the sphenoid sinuses. No other focal abnormality is identified".
I wish I could understand that part of the results.
What ever has happened to me is the symptoms of a stroke.
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Post by itchin4answers on Nov 25, 2015 20:48:38 GMT -5
Is anyone else having this happen (anytime you scratch your skin) the lines get left for a while, and the scratch lines are made up of lots and lots of little raised bumps? Something *sort of funny* but I remember in the 70's when I had my first microwave oven, I also got my mom one too. Well, she was scared to death of it, saying " Toni, who knows what these microwave's can really do to a person, and that won't be known for years to come after many people have used them. This has been in the back of my mind, of course, because we know "microwaves or radiation" do have the ability to change DNA. And, the time line would fit too. Not that I'm now saying I think "microwaves are IT" but....WE would be ( the result of something not thoroughly known yet that was used in the 70's)- the timing would fit. Like cell phones, look at what they're seeing today, and when cell phones first came out, up until recently, (they) thought the cell phones were safe! The scratches toni, that is how my Rheumatologist diagnosed Fibromyalgia as well as pressing the pressure points. Back in the mid nineties when I saw him. He said fibromyalgia is caused from child abuse and not being able to say no. It was still in research then with the Melbourne University and they knew then that it disrupted REM sleep.
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