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Post by toni on Apr 7, 2010 15:12:37 GMT -5
Jeany, thanks, but I'm not sure I see it that way that you've described, as adapt, morph, hide.
Maybe it does hide, I don't know.
I just feel that there's too much "unidentified" imho to say it hides. From what I have heard, (they see it) but can't ID it.
I guess I see it more: invade, morph, multiply.
Then after it's multiplied (and has a good hold), it's got the UMPH then to destroy any thing in it's vicinity or where it's established or lodged/embedded itself, be the tissues/organs/parts/cells.
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Post by kammy on Apr 7, 2010 16:47:00 GMT -5
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Post by kammy on Apr 7, 2010 17:11:40 GMT -5
I'm not saying that the "Far-Fetched Theory" is 'right on' - it's just an observation based on what's been seen, heard, told - as an explanation of how our disease appears to be operating inside of us. It is based on good assumptions, observations and what we believe we are seeing. It's really the only thing that makes any sense.
If we looked at our supposed pathogen list of what we believe is implicated in all of us and ran down a list of our symptoms - we all should be near or in the morgue. I was bed-ridden my first 6 months with the onset of my Morgellons with a form of central/peripheral nervous system paralysis/chronic fatigue, exhaustion, hepatic, etc. but after 6 months or so, I became stronger. I'm specifically talking about the first 6 - 9 months of evident Morgellons. I'm sure it takes it toll years down the road and I'm not saying this to make our disease seem insignificant, it's just an observation. I know you're sick, Violet, Toni... all of you. Hi (((Violet))).
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Post by morghunter3 on Apr 7, 2010 17:13:04 GMT -5
Hi everyone,this morgellons syndrome surely is a poser. When first sickened with this monster I became so exhausted any activity was nearly impossible. I have not had the lesions but do get the sticky sap on my calves. Also at first I was shedding fibers of many colors all over the place. Since morgellons uses our minerals and such to reproduce itself the blue fibers may have had copper in them. Anyway,besides feeling very ill most of the time,the fiber shedding is mostly very short black fibers. Does anyone think it possible that this thing slows down simply because it has used up most of the things we need to stay healthy? I really don't know what to think anymore except I hope Sidney's tests will bring us some answers. Kammy,your poor ear,it must drive you crazy with itching and stuff. Have you tried camphor spirits,the liquid kind? It knocked down my cold sore years ago. A belated happy easter to all.Morghunter3.
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Post by violet on Apr 7, 2010 17:22:25 GMT -5
I'm not saying that the "Far-Fetched Theory" is 'right on' - it's just an observation based on what's been seen, heard, told - as an explanation of how our disease appears to be operating inside of us. It is based on good assumptions, observations and what we believe we are seeing. It's really the only thing that makes any sense. If we looked at our supposed pathogen list of what we believe is implicated in all of us and ran down a list of our symptoms - we all should be near or in the morgue. I was bed-ridden my first 6 months with the onset of my Morgellons with a form of central/peripheral nervous system paralysis/chronic fatigue, exhaustion, hepatic, etc. but after 6 months or so, I became stronger. I'm specifically talking about the first 6 - 9 months of evident Morgellons. I'm sure it takes it toll years down the road and I'm not saying this to make our disease seem insignificance, it's just an observation. I know you're sick, Violet, Toni... all of you. Hi (((Violet))). Hi, Kammy!
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Post by kammy on Apr 7, 2010 18:09:11 GMT -5
Hi everyone,this morgellons syndrome surely is a poser. When first sickened with this monster I became so exhausted any activity was nearly impossible. I have not had the lesions but do get the sticky sap on my calves. Also at first I was shedding fibers of many colors all over the place. Since morgellons uses our minerals and such to reproduce itself the blue fibers may have had copper in them. Anyway,besides feeling very ill most of the time,the fiber shedding is mostly very short black fibers. Does anyone think it possible that this thing slows down simply because it has used up most of the things we need to stay healthy? I really don't know what to think anymore except I hope Sidney's tests will bring us some answers. Kammy,your poor ear,it must drive you crazy with itching and stuff. Have you tried camphor spirits,the liquid kind? It knocked down my cold sore years ago. A belated happy easter to all.Morghunter3. Hi Morg! I've tried 'Campophenique' (sp?) and Staphoseptic, which I think also has camphor in it - no, on camphor. No, it doesn't itch, unless I'm killing something in there at high speeds - and it doesn't hurt either because it's parasitized. When have you ever heard me complain of itching or pain? - never. It blocks the sensations of pain to the nervous system? to the brain?... it's approximately what the parasitic wasp does to its victim - however that process works, I forgot - it's been a while since I've studied it - I'd have to review it. It's pathogens are hidden from our immune system too - my ear should be full of infection, throbbing, hurting... etc., it's actually numb, it looks fairly normal most of the time - (except for the chewed edges look), and it never gets a secondary infection.
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Post by kammy on Apr 7, 2010 18:38:48 GMT -5
Quote=Toni
"When one phase goes away...the next 'phase comes'...which is why I don't think the same meds work from start to present."
Yes, Toni, I totally agree. We've all mentioned how we have to alternate products, that our Morgs tend to become immune in a few days, etc. This statement also backs up what I'm referring to.
I agree with both your and Violet's statements.
I just want to mention that I have a line of 'cones' that run across the top of the left ear. I didn't photograph my ear from that angle. I also have a smaller line that runs across the bottom of my chin. I have heard several of you say that you have embedded lesion pockets or a similar line that just won't quit producing specks, debris, etc.?
The line on my chin doesn't even begin to compare to what's happening with my ear. I know my chin is doing the same thing that my ear is doing, but on a smaller scale - I assume that what is happening with your facial lesions is along the same line? If I did not have the ear lesion and only had my chin or a facial lesion - I doubt that I would have been able to grasp what has happened to me.
I will attempt to take some photos of my chin and the top of my ear to show you what I am talking about. I just assumed everyone knew all this time...
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Post by morghunter3 on Apr 7, 2010 18:53:19 GMT -5
Kammy,you are right,I haven't heard you complain about itching. Mine do and it is really distracting especially when out in public. That is probably what made me feel yours would itch too. Never the less I wish you success finding something that will help. We need personal victories to fortify our spirit. If you try the camphor spirits good luck but it takes a few days of application to work. In fact I'm going to try it myself as the itch is worst at the entrance of the ear canal. Later morghunter3.
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Post by kammy on Apr 7, 2010 19:06:52 GMT -5
I don't know which one is worse, to itch or not to itch - as far as what's happening? Mine have itched when I put something on them they don't like or when I think I'm killing them. If we aren't itching - they are living?
I have itched briefly and I know it's a deep, maddening itch, Morg - no fun at all.
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Post by toni on Apr 7, 2010 20:01:35 GMT -5
Kammy, many of us could be saying the same thing but just saying it different too. I sure don't know. And oh...there seems to be so many variations too -it's unreal. Like some have the "white tracks under their skin"...and Bannanny with the gel stuff, (which I think that's in my lesion tunnel) and as it hits air, it seems to solidify, and make "icecicles" or root looking things. And the darts ![:'(](//storage.proboards.com/forum/images/smiley/cry.png) Whatever this stuff is...is 100's rolled into one big mess, it seems....and frightening, because of the many facets it consists of. Just a bit ago in the shower, I felt my hair, and one would think I had wax melted onto the back of my head, it just keeps on never ending. And your chin Kammy, I didn't know you had this on there too. This stuff (morgs) is as insidious as it gets. PS, that spikey looking specimen..where did that come from? Was it within the skin...or on the surface. Thanks.
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Post by toni on Apr 8, 2010 11:17:46 GMT -5
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Post by toni on Apr 8, 2010 11:53:11 GMT -5
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Post by kammy on Apr 8, 2010 19:43:00 GMT -5
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Post by kammy on Apr 8, 2010 19:55:36 GMT -5
Yes, Toni - I agree, they look a whole lot alike! This is from one of our member's urine samples. What is that 'thang'? I haven't read about it yet - it looks like a duck-bill platypus - I remember someone else had a platypus-looking thing?... was it Barb? I've been asking for people to look at their urine or to send me their photos so we can see if any of us have the same organisms? I think some of us have the same things but, then again - there seems to be a variety - as usual ![::)](//storage.proboards.com/forum/images/smiley/eyesroll.png) Let me read about this parasite you've uncovered...
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Post by kammy on Apr 8, 2010 20:00:53 GMT -5
This one looks phallic - I remember this one, Toni! - lol... wasn't Barb asking about this one recently? BARB... here's the penis-looking one: species.wikimedia.org/wiki/File:C_wegeneri.JPGA photomicrograph of the acanthocephalan Corynosoma wegeneri. (I'm starting to sound like Frisky... just kidding ya' Friskies!) (Hey Barb, I noticed "Dragonfly" has the exact same claws and some very good photos on the other site.)
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Post by kammy on Apr 8, 2010 20:10:49 GMT -5
So, are these Acanthocephalan parasites from eating fish or shimp, Toni?
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Post by ctbarb on Apr 8, 2010 21:28:48 GMT -5
Kammy, This particular specimen has been coming out in my stool since the beginning of this disease. I have pieces that are as large as 3" x 4"...when dried, it is very bumpy and there are sharp points coming out of some of the bumps...more as they get more mature. This is what the skin of the Schistosoma looks like...and I just recently read where they have spikes coming out of the surface...that's what makes it feel like sandpaper. Your photo is the first I've seen with it so pronounced. But, look at the pattern on the skin...that's what defines it. It's a very distinctive pattern...it's very prominent in both the male and female. The whitish/creamy hairy specimen looks just like the miricidia of the Schistosome. I'd cut and paste for you, but I think I'd probably screw it up...but you can see what I mean. Take a closer look at these...they appear very much alike to me, but then I've been seeing this same pattern for years now. And the miricidia is very distinctive as well. Thanks for the great photos...did these samples come from you? Love, Barb ![:-*](//storage.proboards.com/forum/images/smiley/kiss.png) Attachments:![](//storage.proboards.com/1086817/thumbnailer/BQN5FJ7lE5kknObsAR3G.jpg)
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Post by kammy on Apr 9, 2010 4:40:07 GMT -5
No, Barb, they didn't come from me - I'm afraid to look at my urine. lol But, I will soon.
Well, we have 3 ID's on this parasite and that's ok. I was on the other site and stated that I believe it is more important to identify our original artifacts now before the next generation of Morgs gets here and we don't know what we started with. That what we're doing is very important in the scheme of the big picture to come. Even if we don't identify them properly, and we might as well put "-like" on the end of everything, we at least know what we're talking about. We have to name things in order to have a vocabulary - isn't that what has happened since day one?
Barb, let me ask you this. How long have you had evident Morgellons and how long into your disease was it very apparent that you had some sort of parasitical involvement?
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Post by toni on Apr 9, 2010 7:46:28 GMT -5
Kammy, yes the (Acanthocephalan) there's several different species, and there's a great similarity in appearance between them all - I don't really know what the difference is though.
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Post by toni on Apr 9, 2010 9:11:36 GMT -5
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