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Post by Hope on Jul 12, 2005 1:14:09 GMT -5
Dear iit2, Here is a post by JEFF. Please view the link and welcome to the board. "triple dose septra ds.=6 pills a day...double dose avelox...even spacing throught the day but not on same swallow. eat raw greens....ive only done the septra and im doing great but from what i hear the combo works like a charm...Dont waste your time anymore with the rocefin...they are resistant to it now..Please contact a medical professional do seek their advice before taking any medication...But from what I hear this 10 day chemo..has like a 90% cure rate for morgellons..so im really shocked poeple wont listen.. " lymebusters.proboards39.com/index.cgi?board=general&action=display&thread=1120850319Peace, Hope
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iit2
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Post by iit2 on Jul 12, 2005 20:47:35 GMT -5
What strength (milligrams or whatever) was the Septra that you tripled? They come in different strengths. The ones I ordered are 960 milligrams. Six times that would be 5, 760 milligrams a day. Are we talking about that much?? By the way, thank you for your help. I have only been dealing with this for a couple of months, but the depression is sometimes overwhelming. I have a new grandbaby and another one on the way, and I am literally grieving over the fact that I can't be around them much less hold them until I have this under control. I hate to think what forms of self-treatment I might be led to by desperation if this continues much longer. My worst symptoms are the crawlies in my nose, sinuses, ears and on my face, with an occasional outbreak of 5 or 6 mosquito bite-looking places, mostly on the backs and inner sides of my thighs, that itch ferociously for several days. Don't have the crawlies quite as much on my scalp since I started using the Selsun Blue menthol shampoo. So, that's my story...part of it, anyway. I greatly appreciate any help any of you can offer. It's good to know I'm not in this alone, but then sad to know that so many suffer. It's like nothing I have ever even heard of. The psychological effects are as bad (maybe worse) as the disease itself. Best to all who visit here...
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Post by Hope on Jul 13, 2005 3:10:37 GMT -5
I have restocked my ammo and I'm back on the Septra. I swear just one pill and I begin to purge. Today I had red fibers, blue ones, and a lot of black specks. Had a few clear ones but they were mostly on my hair. One black spec had wings but since I was out side it could have come from an alternative source. Now if I see another I'll pass out for sure. This is war, I am fighting the battle as hard as I can, and it has been the hardest thing I have ever done in my life. Send me your prayers and energy(if ya still have some). Peace, Hope
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iit2
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Post by iit2 on Jul 13, 2005 17:43:04 GMT -5
Still need to know milligrams for Septra...please, anyone? I understand triple dosage, but WHAT dosage are we tripling?
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Post by Hope on Jul 13, 2005 17:54:39 GMT -5
MF”er, I’m hatching out real live ones! Good God almighty I’m a wreck!!!!! I can’t say that I was in denial but I never ever ever saw one until yesterday. The high doses of Septra must be kicking them out. The one I just saw today was so extremely tiny that I still can’t believe I saw it. It looked subterranean and that is the best I can do because I don’t know my bugs, at least in that way. My skin had no sensation what so ever as I watched this micro bug walk across my hand. Man, I freaked, and I dare tell no one that I’m being eaten alive and completely infested with insects. Yesterday a black spec had wings so I don’t know how much more I can honestly take. I’m real close to a nervous break down but some how I feel more determined than ever to KILL this evil entity. I guess God does only give us as much as we can handle because had I seen these things a few months ago, I can honestly say that I wouldn’t be here today. I feel like a human compost pile and it’s a horrible feeling. How in the world could I have not noticed these things before? I feel really stupid. If they feel like bugs, then they probably are. Duh. May the Schwartz be with you. Peace, Hope
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Post by JLR on Jul 13, 2005 17:56:45 GMT -5
I'm taking the alternative brand to septra, and its a regular dose. Twice a day, not sure if it's helping but thats all my doctor gave me. She said we'll see how this goes and take it from there. Just wondering if the bacteria will become resistant to the septra from the low dose. I'm also still taking the garlic pills, msm, pomogranate and a multi-vitamin pill... avoiding sugar, less carbs, working out, etc. I also have a candida cleanse program I want to start, so thats a whole other pill. So many pills so little time.
ack! JLR
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Post by Jeff on Jul 13, 2005 18:59:14 GMT -5
Hope,
Are you on the Avelox, too? I can't seem to figure out where to obtain any. Can someone explain to me how antibiotics would expel bugs?
I'm not religious in an organized sense, but I'm sending you all the good thoughts I can muster. I know that human compost pile feeling.
Stay strong.
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Post by Hope on Jul 13, 2005 20:59:00 GMT -5
Thanks Jeff. Taratula uses freedom pharmacy and says it's very reliable. The Avelox is pretty expensive and I'm not sure if there is a generic brand or not. Google "avelox without a perscription" and see what you get. Please let me know what you find. I took the Septra at lower dosages and found that it did something but a higher dose seems better for me. "Can someone explain to me how antibiotics would expel bugs?" Chemist, Do you care to enlighten us on this question?
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Post by Jeff on Jul 13, 2005 21:14:40 GMT -5
Hope,
Freedom does not have it. There were some results. The best deal I could find is $85 for 10 doses.
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Post by Chemist G on Jul 13, 2005 21:47:00 GMT -5
Just use Cipro if you can't afford the Avelox - same class of antibiotic.
Septra works by blocking internal folic acid production that bacteria need to survive.
The first sulfa drug, Prontosil, was developed by Gerhard Dormagk working out of Bayer's labs in Germany in 1932. He would screen chemical dyes for anti-microbial activity and found sulfanilamide to be quite effective against strep. That spawned the development of about 20 other sulfa drugs (out of more than 5,000 compounds screened) and they were the dominant source of antibiotics until Penecillin's discovery and widespread popularity in the '50's. Gerhard won the Nobel Prize in Medicine in 1939 but Nazi Germany would not let him leave to accept the award. You know, most of the great drugs that save millions of lives were developed by chemists but they certainly never get the credit that the medical profession gets. Do I sound bitter? Well after being told the other day that I'm only suffering from post-scabies pruitis and this is coming from the same doctor who said I didn't have scabies in the first place... you can just label me delusional. WON'T be gettin any antibiotic scrips from her anytime soon! Where online is the best place to order drugs??? ;-)
Chemist G
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iit2
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Post by iit2 on Jul 13, 2005 22:20:52 GMT -5
freedom-pharmacy.com is where I got my Septra, and, no, they don't have the Avelox (or however you spell it). I don't mean to sound petty, but I've posted the question more than once about the dosage in milligrams that Dr. Schwartz uses in his regimen and can't seem to get an answer. Hope, how many milligrams in that triple dosage? Pleeeease....?
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Post by Hope on Jul 13, 2005 22:27:49 GMT -5
Dear JLR, I'm not sure if doing a cleansing program while on the meds will help or hurt. I read somewhere that this could drastically reduce the effects of the drugs. On the other hand it could be just what we need to flush this out. It really sucks not knowing for sure but please keep us posted as to what you decide. Chemist, Are you saying that the bugs are looking for greener pastures now that the bacteria is clearing out? Thanks for the bit of history too, that was cool. Anyone who has a need to know, This is the company I used and I shopped around so I don't think you can find it much cheaper than this. If you do, then let us know. My meds came from India and took approximately ten days to arrive. Everything is in blister packs which is nice and the home page will give you a coupon code for five bucks off. There is a place to click on for referring people but I can’t seem to get that page to come up. www.worldremedium.com/cgi-bin/ecommerce/ac/agora.cgiI had a very disturbing thought today. If my imagination is running away again please say so. Just a thought but what if the “hair” like fibers really is our hair? Could something be dragging it in/through our skin? Could the itchies in our scalps be taking our hair to other places in our bodies through our skin? Somebody please tell me no. Peace, Hope P.S. Dear iit2, Sorry not to have answered your question sooner but I don't know if I have the correct ones or not. I'm taking the 40/800 because I think it might be the strongest one. If you ask JEFF then you'll know for sure. I'm winging it the best I can.
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Post by Chemist G on Jul 14, 2005 1:22:26 GMT -5
>>Are you saying that the bugs are looking for greener pastures now that the bacteria is clearing out?<<
IF they are bugs! The two logical theories would be that it's just the bacterium with flagella are on the "run" (if you buy Dr. Schwartz's explanation), or the bacterial die-off is causing a collembola infestation to look for food elsewhere on the body (they eat bacteria). I'm starting to believe the latter - at least in my case. A symbiotic relationship with bacteria and collembola.
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Post by Lisa on Jul 14, 2005 2:07:02 GMT -5
I was prescribed Bactrim 800-160 - 1 twice a day and Biaxin 500mg - 1 twice a day (clarithromycin)
I thought Septra (Monarch Pharmaceuticals) and Bactrim (Roche) were the same, just different manufacturers?
They are a combination of two antibiotic drugs: trimethoprim and sulfamethoxazole.
So maybe looking for Bactrim would be easier?
I was having some scary side effects with the Bactrim. I looked it up and what I found convinced me to stop it immediately. I looked at the sheet from the pharmacy and it said, although rare, could cause death. I'm going to start up only the Biaxin soon. It's side effects were minimal.
With the Bactrim I had heart palpitations, skin felt super hot and I had what I would call mini strokes....they lasted for 2-3 seconds. I wonder if that means I'm allergic?
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Post by Chemist G on Jul 14, 2005 12:34:59 GMT -5
That is correct Lisa Bactrim and Septra are the same and STAY OFF of them - sounds like you have a reaction to them. Try tetracycline instead (or doxycycline but not quite as effective) along with the Biaxin. Actually I think Cipro would be a better choice than Biaxin but that's my own personal opinion.
Be Well,
Chemist G
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Post by jodyann52 on Jul 14, 2005 23:49:06 GMT -5
chemist.. i guess that is why i got some better, in march i had cellulitis. i was in the hospital they gave me cipro.plus iv antibotics.i think cipro would be beat for this.
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Post by Hope on Jul 20, 2005 18:38:37 GMT -5
Had a conniption fit with my PCP yesterday for not authorizing an appointment with a doctor willing to investigate my Morgellons. He wound up pacifying me with a small script of Septra and Cipro.
My Congresswoman’s office was only a few blocks away from my doctor’s office so I figured, “what the heck, let’s go pay her a visit!” I signed a complaint form and medical release so she could begin to look into this problem of not being able to get any serious help.
I’ve been feeling much braver now since I’m armed with the video footage of the fibers coming out (being pulled out). It’s amazing how my confidence level has grown with this undisputable evidence!!! I’m squeaking very loud these days!
Sorry I have not yet been able to get this footage on my computer yet but I’m still trying to figure that out.
We all need to pay our elected officials a visit!!! No joke!!
Peace, Hope
P.S. Two days of adding the Cipro to my Septra and I already feel better! It looks like we do need the combination. For a short time yesterday I actually felt like I didn’t even have this disease. Everything stopped for a while, EVERYTHING! No movement, biting, stinging, etc…. NOTHING!!!
May the Schwartz be with you.
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Post by Jeff on Jul 20, 2005 20:50:27 GMT -5
Hi Hope - what dosages of each are you trying?
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Post by Hope on Jul 21, 2005 0:29:21 GMT -5
Hello Jeff, Started Ciprofloxacin two days ago, one tablet per day at 500mg. I may up my dosage of this tomorrow since I have had no adverse reactions to this med so far. I am taking Septra 80\400 three to four times a day but I haven’t been very consistent. Sometimes the purging can be too intense and I will take a day off here and there and just take my Probiotics. The mental torture that this disease puts you through is at times for me, unbearable. I have found if I take a lot of Septra in a day I feel wired and sometimes too uncomfortable. This is not the dosage that Schwartz recommends but I’m letting my body tell me how much it can take and just trusting my instincts. I am still considering chopping some up into lines and snorting a little. ;D May the Schwartz be with you. Peace, Hope
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Post by Lorianne on Jul 21, 2005 9:16:15 GMT -5
Lisa, I agree that it's probably best for you to stay away fromn the Bactrim/Septra, though it's possible you were only experiencing a herx reaction. In those cases, doctors usualy have you start in the lowest dose possibled and work your way up, to see if it's actually a reaction or a herx. However, I imagine after having felt what you did, you might be a little leary to do so. I sure would.
lBut to the others just starting this, I would recommend you start the lowest dose and first see if you can tolerate Bactrim (many have an aversion to the components of it). If you do okay, then work up to the double dose of extra strength Bactrim or Septra.
I really do think there is a connection to the Lyme bacteria (not necessarily Lyme itself) and Morgellons. Just my opinion and I'm surely no expert but it seems like those whose Borrelia gets better also are seeing the Morgs symptoms get better. Cheers, Lorianne
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