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Post by zabrubon on Dec 13, 2007 16:25:19 GMT -5
Adill, I am listening to you. I hear your heart. I hope you will realize that some people have a hard time processing hurt. My church say's hurting people hurt people.
Not to worry, you are cared about here and we are for you. You can voice your concerns here. This web site is designed to hear all, good bad and ugly.
Take care and if you need to talk privately pm me and we can chat.
Blessings, ChicagoBonnie
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Post by zabrubon on Dec 13, 2007 16:28:41 GMT -5
Grady, i was negative for Lyme but Lyme doctors still have treated me for my symptoms. Please keep trying to find a doctor. Please look to lyme doctor. There have to be a doctor that will treat you that lives close by. Where do you live?
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Post by godog on Dec 13, 2007 16:36:05 GMT -5
Treated for cancer? Are you kidding me? She died, period. And skipped the last "treatment" cause she didn't want to feel that bad in her last days on earth. There is no cures for cancer. That's why I don't hold my breath for a "cure". There won't be one.
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Post by ebgbgms on Dec 13, 2007 17:22:51 GMT -5
My,My..........this is what I have been missing? I can't believe this. Dr. H has helped all of us, this thread shouldn't be here, venting is one thing being mean and using this board for anger is not the place. Just makes everything worse. God Bless Love Glenda Something is in the air.........Tense around here too this disease is like that, fight it, I am doing that this very minute. If effects are moods when "it" wants to. If it doesn't want us to drink, I can tell, on and on. I love you all. Next we will here someone grabbed a carrot from a snowman and used it as a weapon. (still struggling, my child is still very ill too. ) He got in trouble today because he got snippy at school this witch could fly through the school windows right now. He has the ear infection in both ears, has been going through extensive blood work and test, they know that. witches ha ha
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Post by liatris on Dec 13, 2007 20:39:48 GMT -5
Grady - Does Dr. Harvey have parasites ? From how you worded the below, it sounds like he has his meds - you mean for others to take ?
Grady said : "But rest assured, he's got his meds, everythings fine and rosey ... Stop over at my house Dr Harvey and look my children in the eye and tell them why they must live ruined lives because they cannot get 80$ worth of medicine, shame on you.."
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Post by godog on Dec 13, 2007 22:04:20 GMT -5
Egbg, haha, someone stealing a snowman carrot and weilding it like a weapon. Funny. Yes, we are all squabbling like crazy. Christmas season, they say more suicides and dysfunction. Sigh. We all are only human. I went out tonight and got DRUNK!!! That right Bitches, I'm Drunk!! Tell your momma!!! Hahahahaaaa, I'm in a Dave Chappelle mode. GoTellYourMommaI'mCussin'InTheHouse!!!!
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Post by grady on Dec 13, 2007 22:26:33 GMT -5
Dr. Harvey supposedly has Morgellons (or now is cured). He stated that they found 2 or 3 parasites, have you not seen that post, I can give you the link if you need it. It was posted and then pulled.
Rock on ... godog , wouldn't it be cool if getting drunk or eating chocolate cured Morgellons ...
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Post by grady on Dec 13, 2007 22:31:44 GMT -5
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Post by godog on Dec 13, 2007 22:36:43 GMT -5
Thanks. I include myself in those terms. Merry Christmas everyone and I'm sorry for seeming mean. In real life, I'm not mean. I'm fun. But, I am trying to be tough. Not easy that. We must all be loveing and tough and forgiving and unforgiving. It's hard. But I do love you all here, everybody and Prevenge too. Merry Christmas Sisters and Brothers and may next year be better.
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Post by Niels on Dec 14, 2007 1:53:23 GMT -5
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Post by liatris on Dec 14, 2007 1:55:31 GMT -5
Dr. Harvey supposedly has Morgellons (or now is cured). He stated that they found 2 or 3 parasites, have you not seen that post, I can give you the link if you need it. It was posted and then pulled. Rock on ... godog , wouldn't it be cool if getting drunk or eating chocolate cured Morgellons ... Grady - thanks for your reply. I knew about all except for the part about him having it.
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Post by Niels on Dec 14, 2007 1:58:08 GMT -5
btw, i don't think harvey abandoned anybody. didn't he post a retirement announcement a while ago, plus some kind of responsible continuity plan about for his current patients. if he gets out a paper soon enough, that'll be more important for everybody than just helping a few.
after all, understand that the delay they're planning at the CDC is going to be for two years. here's my suspected timeline: (1) get the word out to the derms that have been malpracticing to stop DOPing patients and just give out topicals and pain meds. (Jan 1 2008) (2) wait for kaiser to waste some time for two years (3) put out official guideline Jan 1 2010 for proper morgellons treatment. This 2 years "timeout" on DOP misdiagnosis prevents dermatologists from getting sued for malpractice due to statute of limitations expiry.
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Post by skytroll on Dec 14, 2007 2:58:04 GMT -5
I think Dr. Harvey needs to jump on the ship of the Disclosure Project and the bacteria he talks of could be from outer space? Not talking?.........come on...........He knows more than he is telling us.
And guess what those Lovely creatures may have some answers for us.
There is a cure to cancer. We need to break into the Rockefeller Institute and get it. Or protest on their doorstep.
Skytroll
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Post by skytroll on Dec 14, 2007 3:02:01 GMT -5
I am here for you adill, always have been ALS key to it all. N-junctions. Cutaneous amyloidosis.
Some of the info is getting out now. Calcite! anyone?
Silica anyone? Amyloid fibrils? anyone? Melanin deprivation? anyone?
Skytroll
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Post by skytroll on Dec 14, 2007 3:06:57 GMT -5
Polio began in the waters? From what spaceship? Or was it the Simian Virus found in the kidneys of the Simian Monkey. Live virus, where did it come from? Salk and Sabin. Govt operation right around the same time as the lovelies were found. What a Plan!
Those lovely friends we have in high places, I mean higher places.
If we could ONLY ACCEPT OUR DIFFERENCES and in fact REJOICE IN THEM < WE WOULD ALL BE HAPPIER.
IT IS ABOUT DIFFERENCES. WE SHOULD ENJOY THEM! THAT IS WHAT MAKES YOU YOU!
Not sameness, how boring!
Love you all,
Skytroll
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Post by liatris on Dec 14, 2007 10:35:05 GMT -5
Niels - the underlined portion is probably very ture. These manipulating scumbags.
"after all, understand that the delay they're planning at the CDC is going to be for two years. here's my suspected timeline: (1) get the word out to the derms that have been malpracticing to stop DOPing patients and just give out topicals and pain meds. (Jan 1 2008) (2) wait for kaiser to waste some time for two years (3) put out official guideline Jan 1 2010 for proper morgellons treatment. This 2 years "timeout" on DOP misdiagnosis prevents dermatologists from getting sued for malpractice due to statute of limitations expiry."
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Post by grady on Dec 14, 2007 10:38:03 GMT -5
#3 doesn't make sense at all. That would assume there are no new patients between now and 2010.
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Post by grady on Dec 14, 2007 10:39:36 GMT -5
Folks, the only reason Dr. Harvey made any discovery at all is that he brought in an open minded parasitologist who found the parasites. This is the crux of the problem ..
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Post by Carrie♥ on Dec 15, 2007 13:24:22 GMT -5
#3 doesn't make sense at all. That would assume there are no new patients between now and 2010. Yes Grady...Liatris is saying that the patients being treated between now and 2010 will be treated with tropicals and pain meds to eliminate the DOP diagnosis. We don't have a case ya'll anyway. As passionate as we all feel we should as our lives have been completely demolished we just don't. Even now if they still handed out the DOP diagnosis I don't think there would be a case. Doctors are so protected! Most of the Doctors we've encountered have done what they are taught to do...diagnosis from the textbooks they were taught from. How can they be held accountable for something they didn't know about...regardless to how we ALL feel about it...we wouldn't win.
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Post by ppy18 on Dec 15, 2007 15:13:07 GMT -5
they are accountable to those who being diagnosed DOP because they have not only failed to follow the required protocol for making that dx, most never requested a psyche consult to evaluate us before they plastered a label on us that is beyond their area of expertise. its not just a case of being misdiagnosed, it has all kinds of other negative implications for us. those records can be used against us in custody hearings, divorce proceedings, employment opportunities, the right to own a gun.....etc. and just try to get proper medical treatment when other doctors get a look at those findings. EVEN IF we are able to have this stuff eventually expunged from our personal records, its not like you can just wipe the slate clean with our private relationships. yeah you can say the docs were wrong and that it was all just a big mistake but people will never look at you the same even if they want to. we have been dealt a catastrophic injury by these doctors in that our lives have been irreparably harmed and our lives forever changed by their negligence! now put that in your peace pipe and smoke it sista. ;D thats right , i win. you poor little naive thing. did you really think you were smarter than daddy? keep trying carrie, your almost cherry
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