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Post by overandover on Jul 27, 2009 13:55:19 GMT -5
My friend down in Georgia was treated by her and he love's her, said also "she's a very down to earth, understanding lady"
Good luck to your husband and your a pretty great lady by the way, for sticking by him.
Luck and love to both of you. Suebe
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Post by overandover on Jul 23, 2009 13:18:16 GMT -5
Bannanny's I'm so sorry your having such a bad time with your teeth. I lost all of mine to Morgellons, Josh too. It was heart breaking to watch his beautiful teeth go. Prior to becoming paralyzed we were taking him weekly for root canals, He was so brave, so so brave. The dentist told me what it would cost to do all of my teeth and i told him pull them out. But with Josh, he was young, so handsome and if he was willing to do the canals that was fine by me. Josh never thought of himself as dying of cancer, always in his mind he would get better, so he wanted nice teeth in his future. I'm truly not saying this because I was so blessed to have him for a son. But he was so BRAVE, I can't even rap my mind around getting root canals at the same time as dealing with Morgellons and doing Chemo. but he just saw it as another set back he had to work through and in the end he'd be his whole healthy self again. I'm sorry I got off track there, but won't erase it because my son was a example of the very brave spirit and strength WE ALL have and live with daily because of this horror disease. And you my Bannanny's always here for all of us even though your poor body has been through pure hell, God I love ya sweetie. I wish I new of some good treatment to offer up. My teeth also disintegrated from the inside out in just 1 year, went from a great healthy set of choppers to fake ones. Morgellons really love our mouths and they can melt their way inside our teeth like lazor magic. It's so scary what this horror can do. But We are the strongest of the strong, we will win. I love ya xoxoxoxoxoxoxoxoxSuebe P.S. Have you ever heard of this guy? zakdental.com/Dental_Plan_Savings_specials.aspMight be worth calling about a payment plan?
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Post by overandover on Jul 23, 2009 12:07:18 GMT -5
Hi Lamb and Everyone, I'm not on the computer to much anymore, mostly in my recliner and heating pad loaded up with Oxycontin and Mary's mouthwash. But before I run my mouth for 20 mins (I type slowwwwwwwww) I wanted to respond to this post and later I'll do a thread on my treatment. Lamb what I said about her needing our help one day Re: Lyme band 41 Back when I was first tested for Lyme it came back only positive for one band and that was Lyme band 41, the doctor told me that band means nothing so I've wondered for almost 5 years why is it in the test then, whats the meaning of band 41, what? Still don't know But I have heard that all Morgie's test positive for Lyme Band 41. Who knows maybe every person in the world test positive for band 41, I sure don't know. A few years before I had Josh I got myself covered in deer ticks, was in the woods looking for my pregnant cat, found her in labor, she'd run off most likely to have some peace from 6 little eyes (my three little girls) starring her down and waiting for the little kitty's, so I got her home in a box and took the girls skating. It was later that night I felt something crawling in my hair and some wonderful ladies there at the rink helped me to get out 40 or so ticks. I was in a nightmare but felt it was over once we got them all off and I got home and showered. Although I did find one in the South land a few days later. But it was not over, I remember a high fever, had the flu or so I thought. I remember vomiting so loud my neighbor could hear it and came over to get the girls and call my husband at work. I also remember crawling on the floor to my patio sliding glass door just to put my face against it and feel the coolness of the glass. I was one sick puppy and forever thankful that my neighbor came to our rescue. When I told that case of the flu to my Lyme doctor she told me it was not the flu but was Lyme. I was never treated for it and like I said I only tested positive for Band 41 but she said I have chronic Lyme and that it was the cause of the chronic pain and numbness I've had in my back, legs, hands, feet for years. I also remember a Hugh lump on the left side of my neck way back then the year before I had Josh I was pregnant with another little girl, so my GYN looked at my neck and said I had cold that had set in my neck. To this day I've never heard such a thing like a cold settled in ones neck, but almost 30 years ago we tended to not question our doctors. I do believe I have chronic Lyme because I've had every symptom of it all these years. You could ask my daughters about Lyme rage and how their momma could scream at them like the best Italian momma in the world. Thank GOD our children forgive us. Again long winded me But I love ya big time. I'm sure someone here who understands Lyme better then me (well heck that'd be everyone here, hee hee) could explain Lyme Band 41 cause I'd love to understand it myself. And I promise to let you all know whats going on with my treatment later on, like I said I'm slow typing so feel like i just wrote a novel, hee hee But I'm here. I'm fighting right along with you all. And we will win. Love to all, xoxoxoxoSuebe
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Post by overandover on Jul 20, 2009 11:33:54 GMT -5
Thanks Ed for posting it, was so up-set to have missed it. Should have known someone here would get it up for us to see. ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D ;D Love ya, Suebe How sad those de-bunkers are. Wonder if the 41 stands for his/her Lyme band? Might want to be careful, may need our help one day. And the 666 fellow, well he/she need not say more. What a putz.
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Post by overandover on Jul 2, 2009 19:55:08 GMT -5
OH Lamb I didn't know you also have cancer, I'm so sorry. I feel there is a direct link to Morgellons, OH Dear Lord help us.
You are in my heart and soul my friend and I'm hurting so bad for you, for everyone who has this horror disease.
Have you taken the letter CDC wrote to the health Departments. And there is other good information to take to your Oncologist. That at long last got the DOP off my medical records and a diagnosis of Morgellons on them.
But to be real honest it helps me but yet I can't bring myself to talk to them, open up about Morgellons with them.
The DOP diagnosis put on my beautiful son and myself being called his crazy mom who put Morgellons in his head making him DOP while he had cancer has done something very bad to me. I just can't trust them even though they seem to believe me now.
I feel like I have post traumatic stress syndrome. I just can't trust them. They broke me 4 1/2 years ago.
But if you take the current info. into them it will I hope get the DOP off your records and that helps.
Lamb I'm so so sorry. Lets be positive together, we can't beat this. We are powerful strong women and after Morgellons I feel like cancer is a breeze. The treatments are tough but at least I'm killing the bugs and i hope the Chemo/Radiation fries each and every bit of it.
God be with you. I'm sending you every ounce of strength I can.
One day we will met and we will feel like queens, we will. I love you xoxoxo :-*Suebe
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Post by overandover on Jul 2, 2009 19:07:09 GMT -5
Toni, I've heard that, back when I was pregnant, another pregnant lady said she'd been craving clay. The nurse told her what her body needed, can't remember what it was but the clay craving told the nurse what the lady needed.
I love celery but it's hard to eat with no bottom teeth, (have em in my ol lady cup) but still have lesions on my bottom gums that hurt to much to keep teeth in.
The bottoms don't even fit anymore. Now the tops hurt because my moth is so inflamed from the chemo.
Please enjoy a stalk for me xoxoxoxo :-*Suebe
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Post by overandover on Jul 2, 2009 18:41:12 GMT -5
Great Read.
Way To Go MRF
xoxoxoxo :-*Suebe
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Post by overandover on Jul 2, 2009 18:23:31 GMT -5
Great Video's mfromcanada and yes WOW is all I can think also.
I don't have any clear case box like that but want to find one now, have seen in my little clear round cases that it seems just about ever fiber in my bathroom makes their way to the outside of the little sample cases, almost like they are trying to get inside with the samples.
This is so beyond strange.
Great work and a great daughter TOO!
Love xoxox :-*Suebe
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Post by overandover on Jul 2, 2009 18:14:02 GMT -5
Jill, Sure sounds like your on the right track to me. Josh was first diagnosed at age 17, hospital lab at Suburban Hospital in Bethesda MD said it was a grade 2 Oligo/Astrocytoma. When I heard the word cancer I went into NO YOUR WRONG and had the hospital send the slides to Sloan Kettering in New York. They said it was a grade 2 with a 3 center Astrosytoma. So then I was angry and still in denial because two places saw "different". So then I had them send it to the ARMY at Walter Reed in DC. They also said it was a grade 2 with a 3 center Astrosytoma. After surgery and a 30 day radiation he was clean with no tumor left. He was in remission for 5 years, we were planning his 5th year cancer survival party when it came back with a vengeance within a month of full blown Morgellons. It was then a Glioblastoma stage 4 and then they tried the chemo. study at NIH, after 3 treatments the Morgellons crawling did stop, he stopped feeling them, however the lesions and black specks continued till he died. Even after his death he got a few new lesions on his forehead. Thats when I decided to have my baby cremated. I had to kill the fibers, bugs, all of this horror disease. I would have never put my beautiful child in the ground with this horror still using his poor body. It gives me comfort to have Josh next to me at my bedside. When I'm gone I will be cremated and we both will go to St. Croix, in the sea, our ashes forever on vacation. That thought gives me peace. But I won't leave this world until I get to hold my Dec. grandbaby and UNTIL I have answers to take to my child and the others who Morgellons has taken from us. Thanks for calling me brave for sharing you guys. Really I'm not so brave. But talking to you all and having your love and strength and a place to share what this horror had taken from my family. That makes me feel brave. I thank you all for giving me that. I love you all with all of my heart and soul. xoxox :-*Suebe
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Post by overandover on Jun 30, 2009 20:50:14 GMT -5
I'm screaming girl, Thank God you, your momma and home are safe.
Yes listen to your Momma sweetie, we old gals KNOW.
I love you, hugging you so tight and thanking God tonight.
Goodnight xoxoxoxoxoxoxo :-*Suebe
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Post by overandover on Jun 30, 2009 20:40:53 GMT -5
I posted a few pictures on the Picture Board here at Lymebusters, I had posted one on the Morgellons at last at CDC site thread last night.
I thought I'd better use the Picture Board because of space. Please go have a look, I was so shocked to have so many come out of my hair because I don't even feel movement there anymore.
I also have several lesions on my head after my hair came out.
I hope I'm killing this off and not making them angry.
I love you all, Goodnight, xoxoxo Suebe
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Post by overandover on Jun 30, 2009 20:33:50 GMT -5
This came out of my tongue today after I have Radiation, Chemo. and back to Radiation 6 hours later. I gave them a hard day. Will post more tomorrow, pooped. I love ya's Suebe
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Post by overandover on Jun 30, 2009 20:30:04 GMT -5
This one looked wormy
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Post by overandover on Jun 30, 2009 20:28:25 GMT -5
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Post by overandover on Jun 30, 2009 20:26:50 GMT -5
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Post by overandover on Jun 30, 2009 20:25:39 GMT -5
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Post by overandover on Jun 30, 2009 20:23:53 GMT -5
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Post by overandover on Jun 30, 2009 20:22:42 GMT -5
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Post by overandover on Jun 30, 2009 20:16:41 GMT -5
The above were all dead, this one springtail lived a short while, but died too ;D
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Post by overandover on Jun 30, 2009 20:14:19 GMT -5
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