|
Post by zabrubon on Nov 26, 2010 13:40:29 GMT -5
Ant, this is CB.....thank your for the information on how to delete my statements, most appreciated.
I don't apologize for my way of thinking or way of life. I am what I am and darn proud of it. For those who want to remain private, I say, kudos to you. The less people know about you, the better off you will be. To put it all out there invites problems. If someone would have told me that the world could read my thoughts here on board, I would have been careful with my words and I definetly would have chosen a different name to post under. Hence my heed of caution.
Now back to the gist of this thread.
Best, CB
|
|
|
Post by zabrubon on Nov 26, 2010 4:10:35 GMT -5
Pdidit, yes, i think it wise to put as much on the table as possible. I do use my nickname on my facebook. Hence friends and famly could google chicagobonnie and come up with a significant amount of info. Scary! I am English and very quite about my personal information. Except here, seems like I felt safe. Well, that is until i realized my comments were now able to be read world wide. Yuck! I will let you know if I find the secret to deleting all my CB statements.
|
|
|
Post by zabrubon on Nov 24, 2010 21:41:25 GMT -5
It is frightening for me to have all my personal information made public.
Fact is that I just changed my name from ChicagoBonnie to Zabrubon because if i google my nickname, ChicagoBonnie, the Lymebuster shows up for all of humanity to read. All my stories and personal comments are made public. Not a good thing. I say if you don't want the world to know your state of origin, don't post it here.
Moderator, how do i delete all my personal comments or keep them away from public? I tried to modify my account but my personal comments still show up to the public.
Thanks
|
|
|
Post by zabrubon on Nov 23, 2010 4:35:53 GMT -5
Land of Lincon, Illinois.
|
|
|
Post by zabrubon on Nov 21, 2010 6:35:05 GMT -5
Frisk, no tub, well, rap yourself in a large leaf bag, add milk and shake well!
|
|
|
Post by zabrubon on Nov 16, 2010 0:36:25 GMT -5
Welcome Summer time, sorry that livin aint easy.
I have had this disease for about ten years now.( Wow how time flys) Seems like yesterday when I started to search the net in hopes of finding a solution to my brain fog, pain all over my body and of course, the feeling of crawling on my face. I thought I would lose my mind. I thought I was in the twilite zone. I was wising I was crazy and that this was not real. I did not understand it and the doctors could find nothing wrong. Finally after finding this board(I was with NUSPA) prior to this board, started to get answers and help. I got a lyme doctor to help me. I got on antibiotics and had no more pain or crawlies. I went off the antibiotics and the pain and crawlies came back. Go figure. I went back on the antibiotics and have been there ever since. I think this disease is created from within, hence the different but similar symptoms in each of us. What ever it is is killing us. Kind of like a cancer or aids. I sure wish I knew what it was/is. Anyway, I have found relief from vitamines, antibiotics and Organic foods. I no longer eat red meat. Others on board here have different protocols that work for them. You just have to find the right one for you. There are so many great people here. Just reach out and one or all of us wil be ther for you. I hope we all can add to your life and make you feel lke this is is your second home. THere is a lot of love here and we welcome you with open arms. Best to you and see you around the board. ChicagoBonnie
|
|
|
Post by zabrubon on Nov 15, 2010 0:50:25 GMT -5
Ahh! There's my Freaky! Your a blonde too, just like me. Is it true blondes have more fun? Well, maybe when i was young. Haha. I did dye my hair red once and wow, I turned some heads. Nanners is that you on the swing. Some kids never grow up. Peter Pan sydrome. Oh after my own heart. Your Tom is cute too. Lots of love to you all, CB
|
|
|
Post by zabrubon on Nov 14, 2010 2:05:59 GMT -5
Barb, I forgot to tell you I asked my eye doctor to put the drops in my eyes that supposedly stick only to fungus, he said no.
At first he said he did not see fungus so he was not going to do it. I insisted. It was a yellow dye and when applied would stick to the fungus. Well guess what? After he put it in my eyes, it DID stick to LOTS of fungus. Surprise, surprise, surprise.
He was surprised. Then he gave me antibiotics for my eyes. But it made my eyes itch so I stopped using it. CB
|
|
|
Post by zabrubon on Nov 14, 2010 2:02:32 GMT -5
Barb, oh my your eye look like it is under stress. Those are brokend blood vessels? Do you have floaters too? I had this for some time. It happened about three different times to me. It will most likely clear up. Do you use eye wash? I used to think that I could see the fibers coming out of my Iris. When you pull your eye lid down do you see black spots on your skin? I sure hope you get better soon. Keep us posted ok? Take care and give that eye some rest. CB
|
|
|
Post by zabrubon on Nov 9, 2010 0:59:35 GMT -5
My dear Frito, you go girl! I did the same thing. I was stuck, really stuck in the quick sand of Morgellons. My whole life consisted of going to work,then I would hurry home, curl up next to my laptop and research like crazy. Searching for answers. Five years ago I was put on meds and I got much better but I was stuck. I could not break out of being a recluse. I had to make myself go out, and hang out with friends. My old buddy Gary woudl call me every three months to get together, but I always said "no" Finally about five months ago, I made a decision, I was going to "break out" (Frito's words) The next time Gary called, I agreed to go. Gary knew I had withdrawn but he kept on after me. I used to be a socialite and he was one of my pals. I took him up on the "going to dinner" and I even went to his church. I have been going ever since to his church and met lots of nice people. In fact you all may remember the story recently where I said that I had been praying for my old doctor(the one who saved my life) I could not find her. She was gone. Later I found out she was in Africa. Anyway, I went to church with Gary and looked over across the people and guess who I saw. Yep, you got it, my old doctor.There she sat with her mom. I almost fell out of my chair. I have since got in touch with her and had a doctors appointment with her. Yes, Frito, I was "Stuck in the Morgellons quicksand" (Frito words) It has not been easy. Occassionally I come back here to my home and shut the door to be alone. But I am much better than I used to be. Now I am working three little jobs and going to church, dinner, occassionally a walk in the bright sunshine. I visit my grandkids.(Oh by the way, ladies, the community colleges typically have a women's program that will pay for a class or two for free for you) I also heard that you can get a Pell grant to pay for some college courses. You don't have to pay that back.) I know a lot of us have lost everything because of our illness and we need an ego boost. So when the time is right and you feel better, if possible, get some help, and get out there and take a class or some sort. The colleges will supply you transportation and you can exercise there for next to nothing(thats my next step) They will give you free legal aid and sometimes free shots and check ups(if you are a student) I am all in for the free stuff. I need it and I am taking it. The library has been instrumental in my life. I go there and read and hang out. Lots of free classes too. I just finished my Certified Nursing Assitant class at the Commuity College. I met lots and lots of nice people. I go to almost daily for a bagel and coffee with class mates. I am enjoying life, one step at a time. (No love life though! ) I am beginning to smile and laugh again.(I had forgotten what that was like ) The sparkel in my eyes is coming back. I can actually say this, inspite of the fact that I may lose everything I have left. My house is in foreclosure and I owe eveyone. But I live. I have given life all that I have, body mind and soul. I have I have worked till I dropped in spite of this nightmare. I have been let go more times in the past three years than ever before in my life. My real estate life was quashed with the economy but I still live. My prayer is that God, would give me enough health to work, and I don't end up on the street. I pray that not matter where I end up, it will be clean and safe and I will have friends. Oh we so need friends. Now I know how ill people feel and I will be visiting many people in the hospital to give them some company. I am still ill with Morgelons, however I do have more energy. I think the Morgellons is remission, kept there by the meds. I don't know what lies ahead, but for today, I live. I say Kudos to you my dear friend Frito. You go girl and you keep going. You make yourself live. We here on this board love you and want you to be happy. You go do what you need to do. Just live! Blessings to you. May God Almighty give you strength and courage always to keep on keeping on. May He cause you to smile once again. Love you lots, ChicagoBonnie
|
|
|
Post by zabrubon on Nov 7, 2010 3:26:40 GMT -5
Well that's not too far from me. Perhaps I will stop by and meet her. I willl let you know if I go and what happens.
Thanks for the info.
CB
|
|
|
Post by zabrubon on Nov 4, 2010 0:04:23 GMT -5
Aware, I don't know if this is helps or not but when i first had Morgelons, my doctor tested me for silicone. It came back with none. I had it tested because i had implants when I was in my twenties and I thought it was leaking and causing my illness. My doctor tested my blood and said NO silicone detected.
|
|
|
Post by zabrubon on Nov 3, 2010 23:56:11 GMT -5
Hello Glenn, yes, matter of fact, i have had that problem(pain in the arch of my right foot) for about four months. It was soooo bad that even lying in a supine position was no relief. I started to wrap it up in hot towel. Then I would wrap it firmly with a pair of panty whose(could use bandages purchased from store but I wanted to save money)
I was getting concerned because it wasn't going away. I went to library and researched about feet. I learned quite a bit. In fact if a person does not walk correctly, their feet will not only ache but it will also affect their knees and back. But I think mine was from the Morgellons weakining the muscles of my foot.
From the research I gleaned information about the importance of inserts. I tried putting inserts purchased from the shoe store(not walmart or pharmacy) and it helped tremendously..... However if you have the extra bucks,see a podiatrist. They will prescribe you the correct fit.
Just a fyi about me. When my Morgellons was at its worst, my right foot would drag(footdrop)and make me stumble. I read where inactive muscles could cause y muscles to atrophy.
I am not saying this will work for you but it sure did for me. I am now mostly pain free in that right foot arch.
Hope you get some relief. Take care, ChicagoBonnie
|
|
|
Post by zabrubon on Nov 1, 2010 2:24:51 GMT -5
JJ, Rhorn, Fritto, you are and will always be loved and missed.
|
|
|
Post by zabrubon on Oct 30, 2010 23:39:15 GMT -5
Rhorn has been wanting to leave for a while. We(the board) talked him into staying a while back. I am all for letting people fly in the direction they so choose. I say, peace to you Rhorn and may God bless you in any direction you go. We will all miss you. ChicagoBonnie
|
|
|
Post by zabrubon on Oct 28, 2010 2:08:55 GMT -5
To those who have recently decided to leave. I pray that you will do well and you are always surrounded by much love and support. We will always think fondly of you. You will be missed. God be with you and take care of you always. ChicagoBonnie
|
|
|
Post by zabrubon on Oct 24, 2010 2:33:48 GMT -5
Kitkat, I have been reading your post for a few days now. I am sorry to see you go. You are relatively new to this board, and I have, unfortunately, not had a chance to get to know you. I am sorry for that because the few of your posts I have read have been informative, funny and interesting. I encourage you to think before you act. It takes much courage to tolerate adversity. I am sorry you feel the moderator is unfair with you. I personally do not know if that is true or not, therfore, I can not voice my opinion. I believe you can work this out. I truly believe that no matter what, not matter if it is you, me or anyone else on this board, that there will always be adversity and hardships. THere will always be disagreements and upsetting remarks from others. In fact the biggest problem on the face of this earth is communication. Just look at history and all the wars. Mostly from lack of commuication or misunderstood communication.(or a woman, but of course, that is worth it) Recently, while at school clinical, the instructor pulled me aside and talked to me about an issue. I was embarrassed, humiliated, mad, and felt picked on. I felt innocent of the accusations. Was it me or was it her? I have no clue. Maybe it was both of us. She did respect me enough to hear me out. Everything in me wanted to quit. I thought, "forget it" I'm moving on. Then I remembered my friends in the program, and I thought about how they feel. They would be hurt, I would be hurt. I decided to stay and work things out and I let it go. I finally got my grades yesterday, an "A" imagine that instead of an "I" for withdrawal. I nominate you to stay on board and get past this tough time. Maybe you and the moderator could have a pow wow. That may help. Maybe someone else could sit and listen and make a determination or help with a resolution. That would help. Kitkat, "Stay the course" with us. You have made a lot of nice friends here. You will be missed if you go. Bite the bullet and stay with us please. I know that is tough to do. I know you are probably saying why should I when they were in the wrong. Why? Because you are loved and accepted here and we don't want you to go. Think about your friends here. I am sure you will make the right choice. With love and respect, ChicagoBonnie
|
|
|
Post by zabrubon on Oct 19, 2010 22:03:01 GMT -5
Sidney, I am deeply sorry for you loss. Blue Skies John is correct, nothing can compare with love. You and Tom were life partners shared so much together. This is not going to be easy for you, but remember that you are loved by all of us here. We will always be here for you. May God Almighty who created life, give you the peace that passes all understanding to go through this very sad time. May Tom rest in peace and may he now walk hand in hand with his Maker. God be with you little one in this sad time. WE all love you, ChicagoBonnie
|
|
|
Post by zabrubon on Oct 15, 2010 16:11:48 GMT -5
I posted there under Zabrubon.
|
|
|
Post by zabrubon on Oct 15, 2010 16:06:33 GMT -5
Nanners didn't you see Dr. M? I thought his protocol was good and it really helped me.
|
|