|
Post by in tokyo on Apr 7, 2006 0:12:35 GMT -5
Oh- Thanks, Guest, I wish their website still said that, because that could be our key to getting some kind of credibility with doctors when our CBC's are 'normal.' My doctor saw elevated ANA, tested for lupus, and considers problem solved at negative lupus test.
I just found this on the Mast Cell Disease CU thread, (good thread, thanks!) regarding ANA/ antigens:
"Mast cells fire in response to antigens (invaders, real or perceived) that come into your body either by contact (skin), inhalation or digestion. Antigens are also produced within the body by other factors, such as inflammation or systemic illnesses such as cancer, thyroid disease or lupus. "
It seems like doctors rely so much on initial CBC that we need a way to point at one of those variables, and say "This indicates Morgellons." Otherwise, they won't give us the serious tests we need, or schedule us with specialists. [[ It takes more patience and hand-holding to work with doctors than 4 year olds. I just feel I'm back in the classroom when I visit these guys! I know the answer, but I have to guide them with Big Hints to a point of them being able to suggest it. 4 year olds with medical degrees! God help us all. ]]
|
|
|
Post by in tokyo on Apr 6, 2006 22:33:43 GMT -5
Oops! pushed return- It posted.
Continuing, here are mine:
Antinuclear Antigen (ANA): High, Positive- this shows a number of auto-immune disorders, lupus, arthritis, etc [160] Double-stranded DNA- Negative (this is used to confirm lupus- but, oh, morgellons isn't lupus?) Homogeneous: High [160] White blood cells: low (through multiple tests) [3.9] Red blood cells: high [5.02] Lymphocyte: above high (through multiple tests) [53] MCV: low [83.9] NEUTR: below low average [39.5] Ch-E: below lowest average [3301] r-GTP: below lowest average [12] T-cho: below lowest average [123] T-G: much below lowest average [36] UA: low [3.5]
The numbers listed after are Japanese measurement results. Perhaps a cc system? I'll need to clarify that.
The rest of the CBC tests are within normal range: have had complete work done 3 times in the past 3 months. I've tried researching if anything is significant about the abnormal results above. Anybody have any input? Want to compare? Other than Morgellons, my health is (was) great. I'm curious what our CBC results are showing? Is there a pattern? I got sick with Morgellons in November, 2005. Results listed above are from January through March.
|
|
|
Post by in tokyo on Apr 6, 2006 22:14:41 GMT -5
Hi I've tried a couple searches, and can't find a place where we've compared our blood test results. Is there already a thread for this?
Anyway, it might be useful. Here are mine:
|
|
|
Post by in tokyo on Mar 25, 2006 22:01:41 GMT -5
Yes, Please! What lab was that Becky, where tests are actually successful? All of mine, 3 hospitals, all of mine are negative. And when I walked into the lab yesterday, the technicians had never heard of the tests they were supposed to do on me- I had to wait in the chair 20 minutes as they looked online!!!! Now, imagine when they look through the microscope.
|
|
|
Post by in tokyo on Apr 12, 2006 17:32:19 GMT -5
Thanks QH- I look forward to reading the articles you recommended. I'm on my way out the door right now. The chicken analogy is good. We have to wonder how much has been lost all through history- probably the crystal tip of human achievement is repetitively shaved off? Also, I'd be very interested to hear your reports about the ACE therapy etc that you're doing- can you start a thread on that? Or maybe there already is one- Will look forward to hearing how you're doing.
|
|
|
Post by in tokyo on Apr 11, 2006 0:41:24 GMT -5
I really enjoyed reading Dr. Martin's papers. I've tried to find as many as I can, and what he says makes sense. It seems like a very good explanation for our Morgellons fibers, and also the connections between stealth virus and nervous system, stealth virus and autism... This stuff makes sense to me. But I wish I could find research similar to his being done by other doctors in other places. Right now it's hard for me to decide if I'm naive to believe Dr. Martin, or if I'm naive to believe the medical industry.
To believe Dr. Martin would mean believing I have an incurable, eventually fatal stealth virus which causes a lot of serious problems- and that I will pass it to my family, and not be able to have kids. Thus, trusting Dr. Martin necessitates huge life decisions based upon fear. How valid is his research? Is it in the realm of crystal therapy and alternative healing? Or is it being explored and developed by other doctors in other countries?
To believe the voice of mainstream medicine that discredits him would be a relief. But how viable is it to actually be a person with Morgellons and trust the medical industry? How can I believe that the bigger decision makers are any smarter or observant than the doctors which dismiss me as having nothing wrong? How can I not suspect a coverup?
Anyway, it's hard to choose how to be "reasonable." Hard to know how to protect my family and fiancee and future babies, when the only protection we can depend on is not seeing them.
|
|