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Post by guest also on Apr 11, 2006 11:02:50 GMT -5
Obviously the doo-doo stirrers haven't been doing their homework. I don't feel like taking my time to help those whom do not want to be helped. What ever goals you guys are after...you're not gonna get them accomplished messin' with me. I'm not the one. Good for you Carrie. They are not here for help anyway, they only came to pick apart everything we say just like they used to do. They will soon tire of their childish games, kids always do.
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Post by Carrie♥ on Apr 11, 2006 11:09:46 GMT -5
Thanks Guest also...that makes me laugh. Puts things nicely into perspective.
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Post by Guest on Apr 11, 2006 12:10:58 GMT -5
You've messed up my thread, with whatever motivated your fun and games, but that's all fine and good. Last month British scientists made a huge stride with something that I, and millions of others, suffer from, THAT HAS NO CURE. Although I have been in remission for years, except for the asthma, but since becoming disabled, it has improved in many ways. Asthma kills a lot of people. Mary Leitao's son's doctor had diagnosed him as having eczema, originally, but she chose to not believe it, and founded MRF. This message board has a welcome posted to sufferers of any skin disorders/diseases, to feel free to participate. I thought I had something to contribute. There were some misunderstandings, by several, pertaining to this mutated gene and the implications, and I tried to help clarify it, as well as explain the diseases it causes, and how it does so. I don't know you from the man in the moon, Carrie, but you made such lenghty posts here, and sounded very confused and distraught. Now, seeing anyone take my post and run it into a direction that it didn't belong, like wondering-how-the-gene-mutated, and all that kind of talk, you appeared to really want to understand that at first. Then, you said you basically don't give a flyin' freak how it muted. So what happened here, anyway, and who sidetracked my thread, and if you are able, explain to me what motivated the interference.
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Post by Carrie♥ on Apr 11, 2006 12:28:09 GMT -5
It wasn't me yo...it was the ding dong duck. Wait, maybe it was me, I can't seem to find myself, maybe it was the joyful music of the angels as they flittered upon my shoulders causing me to be blinded by the man on the moons glitter beams shining through the holes that rocketed through space taking me with them!?!
Please don't bash...and then get serious. If you want to be serious...don't play. Don't come here, disrespecting me, my people and then expect to engage in serious conversations. You sound like my people as well...I've been a very sick beotch in the past. You sound like you are still there, in that sick beotch place. However I have compassion for all my people. If you can accept that, and would still like to engage in conversing with me, I will be so gracious as to do so. I will not tolerate disrespectful, on going, Jekyll and Hyde behavior though. I may get a couple kicks in here and there but will quickly be back off to business. I have nothing to gain by this nonsense...I have sick children, I really don't have time for this. I'm just letting you know. If you want to be serious...this is it. One more sh@tty thing out of your mouth that I can recognize from you or yours and I will completely ignore anything you have to say from this point on. No matter how much you bash, throw stones, or point fingers. I know very well how to consider the source.
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Post by Guest on Apr 11, 2006 12:42:59 GMT -5
Joined: Mar 2006 todays date: Apr 11 Posts: 1,146
You have time...I don't. Scientists made a historical discovery that millions stand to benefit from someday, I felt welcomed to announce it here, and you turned this into something else. It's all yours.
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Post by skytroll on Apr 11, 2006 12:59:00 GMT -5
Guest,
It is too bad that you do not think mutations mean anything. This is the cause of most diseases. Why a mutation in the first place? That is the source of the disease.
You are bluffing here, and your intelligence is based merely on Western Medicine that is highly in contention right now.
This is a process we are going through. One article which could be so propagandized, will not give us the answer.
Gene modification is taking place. Which means mutations will happen.
What do you know about Promoter genes? Reporter genes? Enhancing genes?
If we cannot find the basis of the mutations, we will not find the answers.
Exzema and polio, any connection? Would you know?
There is more going on here, and our research has a lot in the wings. But, we do see what kind of reaction we are getting.
What do you know about DOP?
Do you know how it is treated? There is no Protocol.
Also, we are doing our own research, our own investigations, our own media coverage, because you see, we are CITIZEN SCIENTISTS. Maybe look that up.
We will find those professional scientists who will be knocking at our back doors.
Any test can be altered, we know that. All the Lymes tests have, when Lymes is endemic.
So, do not come on this board, and attack and say you have the answers. This is a bandaid and we know it.
Skytroll
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Post by Your Momma on Apr 11, 2006 13:05:28 GMT -5
Whew...it's about time the mutation genius arrived !
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Post by jeff on Apr 11, 2006 13:06:27 GMT -5
you obviously dont understand consensus science. In which many through a bunch of ideas out and the ones that keep popping up the most are the ones you investigate..I still subscribe to the s maltophila...but never agreed it was from french drinking water..I think it comes for your pipes..maltophilia is a opportunisitc organism so the two could go hand in hand..and the proctive layer post was just a wild shot...and Your lame..
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Another Mommasame as the first
Guest
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Post by Another Mommasame as the first on Apr 11, 2006 13:19:10 GMT -5
Now I feel bad. After my one last reply as Carrie, right before the one before Skytroll, maybe she does want help and does want to talk about this.
Since Skytroll has arrived to save the day. I will speak my peace. Only after saying I didn't do nothing. You said that I turned it into something else. Yeah, so I was loopy late night loops but still clear in my verbiage. Anyway...want to give you my piece.
What do you think is causing the genes to mutate? What is is about asthma and eczema that there could be in common along with elevated esonophils?
The medical community cracks me up when they bash me for telling them that I can see things happening with in the skin...but tell me that is impossible because you can't see bacteria or fungus. And then tell me that the skin afflictions that my son has on his face are one doctor put bacterial and the other Doctor will call it yeast. When in all actuality, they tell me you can't see either.
The parasite infection that is causing the mutation in the gene is caused by the same parasite that causes the asthma. The parasite that is causing asthma is leaving ectopic deposition of its eggs in the skin causing eczema. That is the MOST CRUCIAL part of the disease...is the bodies response the the eggs these parasite leave in the body. If the eggs don't leave via sputum or feces, and they in fact get trapped in our tissues, our immune system responds forming an granuloma surround the egg, parasite or stage, which ever the case may be. That is how our body is protecting itself. The granuloma is to STOP the egg from hatching, the parasite from migrating, or the stage from progressing. Once the immune system is compromised, compressed of over burdened, the egg, parasite or stage will complete in the body. Hence the over burden of infection. Hello...allergic asthma. Hello skin ectopic egg deposition ezcema...granuloma. Can we image what our insides must look like now?
Psoriasis and eczema are generally thought to be handed down in families. As is so much of this nonsense. What is handed down thread starter? The parasites or the mutated genes?
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Post by skytroll on Apr 11, 2006 13:41:36 GMT -5
Carrie,
Good pressing questions. You, our fellow scientist, in training, as we all are. The big scientific guns are out there, just hang tight. Keep doing what you do.
Your analysis leaves questions unaswered by our most intelligent guest there!
Be cool!
Skytroll
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Post by skytroll on Apr 11, 2006 13:43:09 GMT -5
Guest,
Incidentally, I know all about Muscular Dystrophy and genes.
Skytroll
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Post by london2146 on Apr 11, 2006 13:46:54 GMT -5
When are they gonna dish out the chemotherapy they have for us to get these f-ing parasites off us?
I swear I'm stuffing some in envelopes today.......sick of this m-f ing disease.......
and I don't care if it offnds a damn soul........this is nothing more THAN A M.F-ING DISEASE!
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Post by Guest on Apr 11, 2006 14:23:03 GMT -5
Excerpt from mission statement:
Welcome To LymeBusters!
We are a group of friends and strangers, all coming together to share our stories and find help for Lyme disease and Morgellons disease (which often go hand in hand), as well as other infectious diseases and various skin afflictions. We turn no one away....we don't even ask that you register your name with us. Our only request is that you try and be as cordial to your fellow posters as you would like them to be with you.
PEOPLE? MAKE A NOTE OF THIS PART: "...as well as other infectious diseases and various skin afflictions. We turn no one away....we don't even ask that you register your name with us. Our only request is that you try and be as cordial to your fellow posters as you would like them to be with you."
My gosh you guys, overrunning my thread and turning my disease into YOURS. You all had better check yourselves.
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linda
New Member
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Post by linda on Apr 11, 2006 14:27:53 GMT -5
Hey all, I had a difficult time wadding through the variety of arguments, but it does seem as if we have some educated naysayers on board, eh? Guest, I thought your original posting was interesting. My problems is that, while I know I have a real disease, I don't have ashama, allergies, or eczema. Go figure? Some of my children have been diagnosed with eczema, and they do have Morgellons, but I've learned that the "eczema" responds to essential oils and DIAPER RASH CREAM (zinc oxide). Only one child has noticeable seasonal allergies while none have ashama. I think what Carrie is saying, while it might seem nonsensical, is right on. The way we have been viewing and studying the human body is flawed. There's a good book out by Paul W. Ewald tinyurl.com/g8cl3 . I'd recommend giving it a look. Not all biologists and medical scientists think the same about our approach to healing and disease. The standard approach has certainly failed the Morgellons sufferers. Yes, it's true, I'm no doctor or scientist myself. I just have a genetic make-up that allows for good reasoning skills. Take Care, Linda
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Post by Yo Momma on Apr 11, 2006 14:29:45 GMT -5
Thread starter, I didn't want it as you stated I can have it. I hope you didn't go away. I think you should come back and dig in.
I didn't mean to offend you with the beotch analogy, that's just what it was...my type of analyzing things. I'm a very proud b-e-ooo-t-c-h today. My apologies if I did offend you.
Beside the drama that was created, I think that you've raised some valid topic that is worthy of discussing. I can squash things like "snap!" Hope to see you can too. If you have something to bring to the table...or can even stir up enough concern to make us think, spin the wheels, dig...I'd like to hear from you.
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Post by Carrie♥ on Apr 11, 2006 15:02:59 GMT -5
Linda...how are you...you know I like you don't you? There is such logic that emanates from you, I so dig it. What about what I am saying that seems even remotely nonsensical? I realize you were not stating that in a questionable statement. I think everything other that what I've stated is pretty much nonsensical!? May be narrow minded but the way I've viewed this disease in my family and begun to view it around me once I became aware...I can't help but see it any other way. I am asking you because you seem much more aware of things from a "accepted" realm than I have a clue too. I didn't begin to educate myself about many, many health topics until I was forced too. Since asthma and eczema were never a concern to me before the disease, in which we've had bouts of both since...I'd not questions where now I have had to do minor research. Thanks for sharing and I'd appreciate your thoughts.
Oh and I didn't start it...or even really engage in it either, but I have to stick up for myself a little don't I!? If I recall correctly your old man may have came in here telling us how our CBC's will show we have a parasitic disease. I'm done bickering, really, it doesn't make any one look pretty. But I didn't start it...neener!
So...thread started, what shall I call you? The CBD doesn't mean anything. Not only from my personal health experience but from numerous upon numerous of documents that I've found there are often, many, many times the blood levels look beautiful. If you'd like for me to locate a few documents and post them I will.
I think one of the most interesting significant things regarding Morgellons is the long list of unknown caused diseases in this country is that they are obviously connected to all the people who suffer from it. We all have several of this or that "unknown" other diseases. The list is too incredibly long to entail...I'm sure ya'll can get the drift. They can break things down, level after level...but they still can never tell you why, what, who where and when!!!
Because...why? They are in fact not given all the tools! When I was really getting into the swing of the worm thang I had found this fabulous article regarding Crohns. During some exploratory procedures they'd found some eggs of Ascaris. I wish I'd have saved that page, I may be able to find it again but haven't even looked. They were a bit surprised to have found the Ascaris eggs in the Chrohns sufferer. Were certain that the patient had some how accidentally come to ingest them and didn't even consider they had anything to do with the disorder. I'm certain, if the medical community, scientist, and biologist were aware of the very facts that the CDC dishes out if you know where and how to look for them...they would themselves be shocked. If they'd even view the article I posted in the Bad Bug thread and found that the rate of infection with Ascaris in the US is high...they would again, be shocked. They are not taught these facts because these worms are not thought to cause disease in humans. Bacteria and fungal pathogens are what they consider to cause our disease. I don't get it.
Just like they can't find a link to mold, asthma, and health. Hello...because they don't look or consider worm parasites...because we don't have them but in the gut!!! What...that is so not the case. They migrate through us like they migrate through our pets. Especially the roundworms...I'm not even thinkin' about flukes.
Consider talking with some adults that have Psoriasis or Ezcema...what are some other major symptoms? Gut symptoms; bloating, gas, my old boss used to say, something isn't right in his head. And he was a big shot attorney with a nasty case of Psoriasis.
The medical community can break things down to the teeny weeny microscopic level all day long. Our county has been here a long enough time for them to have established a little more commonality than a mutated gene in my book. What causes that gene to mutate. Why some family members get it passed down and how come some don't? I'm not an educated woman. I don't plan to make a big name for myself and see it in lights in the sky or on the front of a magazine gazette somewhere. I only want my children to be healthy. So I will look beyond the teeny weeny microscopic level of the medical professionals that have denied me the help of helping my children. That is until they are twenty-five being tested for prostate or cervical cancer. I will continue to look at my family and family history as a whole, I will learn from my peers and society. If I'd have entrusted my life in the hands of that woman that told me she thought I was obsessed and it was all in my head...I wouldn't be doing what I am doing today...today with no pain in my knee, back or head.
Step out of the box...it is very cramped in there. Once you realize what our doctors do and don't know, it changes the whole scope of perspective of the way they practice and study medicine.
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Post by glitterbug on Apr 11, 2006 15:03:10 GMT -5
So what is the parasite causing all of us to have asthma?
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Post by skytroll on Apr 11, 2006 15:07:46 GMT -5
Guest,
Your evo devo is showing.
Skytroll
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Post by skytroll on Apr 11, 2006 15:08:30 GMT -5
Guest,
Do you have the well-learned technique of compartmentalizing everything too?
Skytroll
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Post by Carrie♥ on Apr 11, 2006 15:17:32 GMT -5
Hey Glitterbug...nice to see you here.
Do you have asthma? I don't. My daughter has had a couple things that I'd considered in that category but never taken he in. For what right!?
There are tons of documents regarding Ascaris and Strongyloids and asthma. Strongyloids and arthritis, Hookworms and scabies. I know different topic. I'm gonna start a couple threads. Dear old thread start got me started diggen in my files.
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