|
Post by headbee on Nov 12, 2011 18:00:37 GMT -5
I get those all over, usually after I have done a session in the sauna then took a shower. Have not been able to figure out if that is a good or bad sign. Pops out like a fuzz ball on top of your skin then if you pull on it the other end is really long. or just wait long enough and the whole thing pops out and is shaped like a minature bar bell made out fuzz. Other times I get them graphite grey/black color when they are bigger.
One thing to check if you have them and not at 1st obvious: just as the skin has dried, rub you arm and it looks like it is snowing all the colors !!!!!! Best to have a bright light on the opposite side of you so it illuminates them. Very Freaky, I got a black light and my bathroom walls just glowed......
|
|
|
Post by headbee on Nov 8, 2011 10:41:30 GMT -5
I dont get from her or the Healing Grapevine but use some of the same or similar products. I use the same Quinton Marine Plasma, but I bought a different brand Far Infrared Sauna that was way cheaper, has a seat and hole for my head and hands. I use enzymes but a different brand that are actually more expensive, I have considered trying the ones they have to save some money. I do believe melting them with enzymes and sweating it out is great. Her website states to only use thier sauna as anyother encapsulates them but I figured the cheaper one was better than none, but maybe I should had spent the bucks....
I had to take the Quinton as my Hemoglobin dropped to 8.3. I now been on the Quinton for 2 months and have lots more energy.
|
|
|
Post by headbee on Nov 4, 2011 20:21:37 GMT -5
Contact your US state rep: writerep.house.gov/writerep/welcome.shtmlYou are required to put in the full 9 digit zip code but if you don't know the +4 extension click on the "+4" and it sends you to another website but just click back once you see what it is. You know what they say about the Squekey Wheel
|
|
|
Post by headbee on Nov 4, 2011 19:36:24 GMT -5
I can't go to Atlanta but maybe if put pressure on your home state health department. Something may happen.......
I looked on the Texas Dept of Health and they have dedicated department for Lymes:
Lyme Disease Zoonosis Control Branch Jim Schuermann Eric Fonken
512-458-7255
I am calling them 1st thing on Monday!!!!
|
|
|
Post by headbee on Oct 30, 2011 14:01:37 GMT -5
I found 2 cups Ebsom Salt and1/4 cup Arm and Hammer laundry detergent with Oxyclean works well for a tub soak to help clean out skin debri. Soak for about 40 min in the hottest water you can stand. I soak towels then place on the exposed limbs while soaking (also keeps you warm). Dry off, Then slather Palmers cocoa butter.
May need more or less depending on how big your tub is, mine is med sized.
I discovered how well the laundry soap pulled out skin debri when doing laundry. I pushed down the towels in the washer then saw the fiber "pop" out of my arm.
|
|
|
Post by headbee on Oct 23, 2011 20:27:30 GMT -5
I take a jigger of 240 ppm Colloidal Silver (not Nutra Silver) It works faster and better than any antibiotic. Last Dec I could barely walk due to one on my buttocks and on close inspection found on top of it being very large, it was green! Next day after taking the silver it was 50% better. Now I take the silver when I can feel one start flaring. There was a young lady on You Tube in the UK that hers got so bad they did surgery. Mine was that bad but the silver cleared up the infection completely in a few days.
For the Silver I have found Silver Mountain Minerals to be the best for my system, they show it will kill 650 species where antibiotics will only kill 6 . Nutra Silver turned me into a big black all over bruise. There are alot of collidal silver products, just make sure it is a reputable company or make your own.
Don't ever use any silver on topically as it actually makes it worse when put directly on a lesion.
I have not taken any antibiotics since diagnosed 2 years ago but my lesions are getting smaller and further between with other remedies, new report from Carnicom show that internal enzymes are beneficial and I concur!! Just melt them away but depending on your involvement it could take a few years. I expect to be on them for at least another year but can see I am getting better. Antibiotics can just send it into remission. I am working to be completely rid of them. See post for Best Research
|
|
|
Post by headbee on Oct 22, 2011 12:15:34 GMT -5
This is why I state it is a blood disease: 3 parasites found in the same blood cell. "I" shaped cells, other cells shaped like a cog. I cant get them to post from my phone but will work on doing it. Disease oxidates and depletes your blood cells as stated in the research. Earlier Carnicom papers show the same bacteria shapes in blood as what I had. I agree it possibly starts in the gut then passes to the blood. Once your blood is involved, you are in for a fight. Skin lesions are just a symptom, I think most ulcerated lesions are from when they are coming out of the body, but possible we are more attractive to mites, lice, scabies and other small burrowing things. I have been told to stop wearing BT cotton, wear only organic. I have on occaision worn a new colored T-Shirt and when removed my skin was covered in fibers from the shirt like something came out of me to feed on the shirt. Once systemically evolved our bodies are one big Nano-Wire. I have trouble sitting on old apholstry and going to movie theaters as will start feeling the crawlies. en.wikipedia.org/wiki/Bacterial_nanowires My opinion is it possible transmitted by mosquitos that bred where arsenic was present: www.nasa.gov/topics/universe/features/astrobiology_toxic_chemical.html That would help explain Gulf War Syndrome as they are acknowledging it is possible contamination from trying to kill the sand fleas contributed to the problem. But those same soldiers were given vaccines and anti gas treatments so not the only cause. Why could it not be spread like Malaria, most thinking is Morgellons starts from Lymes and you can only get Lymes from a tick. I think we need more research to see if it can be spread from Mosquitos. Regardless you have to fight from all angles, start with the gut, the enzymes, internal treatment (salt/vit C is the best bang for the buck), sauna and that Alfafa bath above is great. It will take years and no progress over night. I wash all my clothes in Arm & Hammer with Oxyclean and think it may kill what ever may be lurking in clothes and towels. Confirmed it was Morgellons 2 years ago then took me 6 months to find a Dr to help. I had been to 2 MD who kept telling me it was scabies but some good friends brought out thier microscope and we figured it out. Now seen 2 ND and will cont to be under treatment for at least another year but way better than 2 years ago!!!
|
|
|
Post by headbee on Oct 21, 2011 23:41:59 GMT -5
www.carnicominstitute.org/articles/bio2011-6.htm Above link is a must read for everybody, can't say I understand it all as I barely passed 11th grade biology but can recognize enough to see it is on the right track. Below is just my opinion and what I have tried. Morgellons is a blood disease not a skin disease. The skin is just a symptom. (I also think we attract other bacterias from our environment that compound the problem) I have had acute symptoms for 4 years and the 1st problem I noticed is my blood had changed. When cut or a "hole" formed it just congealed and produced little balls. Went to a ND that specializes in blood and she states I have had it more than 10 years and may explain Kidney anurism in 2002. Major problems with low iron (8), ph (6.0) and hemoglobin (8.3) that this disease depletes due to oxidation. Enzymes and Vitamins are great combators. I have been on Enzymes for 16 months and see major improvements to the quality of my hair, skin and nails and there are way less bacteria in the blood. Skin is not "tary" like it was. Lesions are smaller and don't get a new one everyday. Enzymes "melt" them away. There are several websites that have Enzymes specifically for Morgellons. See Healing Grapevine and Logo Nutritionals websites. I am using Transformation Enzymes but to use those you need to see a ND to ensure you are taking the right ones and enough of them as may need more than the general directions. If anyone has a better option, please post it!!! I had been taking 35% FG H202 and now see that may not have been such a great idea. Will study up on that. I did help for awhile then started getting "burby" Earlier we had a debate if taking iron was a good idea as it would just feed it more. I am not taking iron but lots of Vit C and the rest of the Alphabet. Also taking Quinton to help build my blood up. Been on it for 3 weeks and do have more energy, waiting another week or so to recheck the iron. Also taking alfalfa, Red Root, Zinc, Artemisinin, Cowden Protocol Nutrmedix and much more. Colloidal Silver when lesions start looking green. Also done lots of salt/vit c as recommended from: lymephotos.com (especially when lesions are flaring can see it help push them out) Far infrared Sauna twice a week, salt bath when lots of lesions. Also found if mix tea tree oil into olive oil and massage in slow circle motions into lesions to pull out debri to speed healing. Put it in a squirt bottle and keep adding oil, they will keep coming to the surface then wash well and spray with H202 to disinfect. I also use Morgone and sometimes mix with Neosporin + pain relief cream (not the ointment). I can see that one day, things will be back to normal and this disease will not consume my whole thinking, but will always be part of me. Scored 48 on 1st CD57 test last March and 75 last month - making progress!! Good luck to all and what works for one will not work for all but love this site because we can have a place to share!!
|
|
|
Post by headbee on Sept 21, 2011 13:14:11 GMT -5
Started on Quinton Marine Plasma yesterday, will keep you updated as to how it goes.
|
|
|
Post by headbee on Sept 19, 2011 0:04:55 GMT -5
Another thing that helps to slow the amber liquid/crystal formations is Vit C. Either by itself or with 1 tsp salt. Take with food.
Meant to elaborate on the Red Root is to swish in your mouth, then swallow it very slowly so it trickles down
Good luck and hope it gets better
|
|
|
Post by headbee on Sept 17, 2011 22:06:47 GMT -5
Red Root helped with all of those problems and will you would do best to avoid the sugar in yogurt that will promote them to grow even more. It is an herb so be sure to get it in the liquid form, rub it on gums and swish twice a day. Be sure to use after brushing teeth and before going to bed so it can work all night, I have not found it to stain and my teeth are very sensitive but this has made them stronger and forced out the fibers and calcuim deposit like things.
|
|
|
Post by headbee on Sept 17, 2011 21:45:06 GMT -5
Some believe that Gulf War Syndrome, Lymes and Morgellons have many similarities. Here is a report just released on current research: blogs.dallasobserver.com/unfairpark/2011/09/gulf_war_syndrome_is_brain_dam.phpI believe it is contaigous as many spouses have also been affected that never went over there or were ever subject to Sarin Gas. They will keep looking, as I have more faith in thier research and backers. Ross Perot and Senator Kay Bailey Hutchinson have been instrumental in getting funding for Gulf War Syndrome and am hoping they find some answers for all of us. This is the most money spent on anything with these same symptoms. I called UT Southwest and they will not see Lymes patients and the operator had not heard of Morgellons. Guess I should have told them I had symptoms of GWS. Here is article about RP and GWS: www.veteranstoday.com/2010/03/04/gulf-war-illness-research-led-by-dr-haley-and-supporter-ross-perot-contributes-to-unheralded-advances-in-neuroscience/The above article mentions pesticides use to reduce the sand fleas could also be a factor. I have always wondered if there was a link from pesticides that grow a bacteria then a vector (Flea, tick, mosquitoe) will then pass it on animals and humans. Sounds very real! Nasa has found in California a bacteria that thrives on arsenic. www.dailyfinance.com/2010/12/02/nasa-discovers-bacteria-thrives-toxic-arsenic/What is in GMO corn: Agro bacteria I am not putting any faith in the CDC as some report they have turned everything over to the Military even making it more apparent that they also believe it is the same or has too many crossovers. At least we should expect more updates on GWS in the next 6 months.
|
|
|
Post by headbee on Sept 17, 2011 20:48:41 GMT -5
I have used both the Original and the New Version of Morgone Gel. It is great at popping out fibers but does not do much to heal lesions. 1st time I put it on, within an hour I was covered with fibers from every color of the rainbow, as time has gone on, use it less as nothing was coming out. Is good at helping clean out debri, also will mix it with Neosporin + pain relief CREAM (DO NOT use the ointment) and it will help lesions heal a little faster. Also the Morgone is good to put in your hair and did not think it hurt my hair color. Bert will even admit Morgone is not a cure and he is set on helping find one. Also note I have not found anything that looks like a mite or a bug on me, but know of some folks with that problem and for them this would be a good for that as a daily cream. Has Sulfur and aloe along with other ingredients.
|
|
|
Post by headbee on Sept 17, 2011 12:18:51 GMT -5
I had not read the 2nd page when I posted above. Deeply appreciate EVERYONES concern and input. We are a team, community and a family!!
|
|
|
Post by headbee on Sept 17, 2011 12:06:24 GMT -5
Bannany!!
Many thanks, could not get out of bed yesterday. PH was 5.0 - OMG
Coupled with the 8.3 Hemoglobin my body is in turmoil.
To get PH up, been taking 1tsp Baking Soda with 1 teaspoon organic salt in 4oz water and got it to 5.5 today. Head is feeling better. Still looking at other options than blood transfusion.
I am on a low acid diet, high iron diet and drinking oxygen water to compat the major problems mention in the reaserch that I have been experiencing for the last 6 years. The good news is the antimicrobials I have been taking seem to be working and now just need to heal the body and reset my systems. I went to an MD dr to run the tests for insurance to pay but he has not presribed or given any ideas on how to fix except the blood transfusion. The Naturepathic dr has been a godsend as he has me on a path to wellness but just taking time. I had this for at least 10 years before figured it out and only been in treatment since June 2010.
I will not be doing a blood transfusion unless death is imminent.
|
|
|
Post by headbee on Sept 14, 2011 20:42:39 GMT -5
They are concerned it will cause a heart attack if don't do something, see my post/question: Blood or Iron Transfusion, is it a good idea. I just know can't continue like this, more of a problem with women that TOM still visits as we loose blood every month on top of having it depleted by this disease. Major pain in legs, tightness in chest, can't stop drinking tea, dizzy ...... To answer Baraka, in 2002 I had an anurism in my Kidney and think that was the 1st real symptom I had, 1st lesion was Sept 2006 but took until Oct 2009 to figure it out and been downhill ever since. Interesting thing is the fibers are now barely present and that may be why - I starved them to death. But like someone responded to my prev post, Patrick Swayze tried to starve the cancer but did not do any good. We have spent 30k so far. Have wonderful husband who is in this fight with me. If thinks it will kill it, we have tried/spent it! Has anyone tried Quinton Marine Plasma???
|
|
|
Post by headbee on Sept 14, 2011 17:04:32 GMT -5
I concur and want to nix on the blood transfusion idea and working with the Dr to see what else may can try, I have been on B-12 and all the other trace minerals for more than 6 months. Now looking at taking Quinton or some other plasma replacement. Seems like the more supplements I take, just keep adding more as they are not absorbing or getting eaten as fast as they enter my system. Getting very frustrating.
|
|
|
Post by headbee on Sept 14, 2011 13:24:42 GMT -5
This week I came crashing down and having trouble functioing, this explains exactly what I am dealing with: 8.3 Hemoglobin - should be 11.5-15. PH 6.0 should be 7.0 or higher. Doctor is so concerned with Iron level he wants me to have a blood transfusion and checking to see if my grown sons are candidates for donation. I dont have them all but here is a list of symptoms of low iron: * Depression * Fatigue * Listlessness, weakness, decreased work productivity * Impaired learning and cognitive function * ADD and ADHD type behavioral disturbances * Developmental delay in infants and young children * Poor memory * Decreased attention span and increased distractibility * Impaired reactivity and coordination * Irritability * Dizziness * Appetite loss * Cravings for non foods such as ice, dirt or clay * Constipation * Difficulty swallowing (because low iron may cause a thin membrane to grow across the esophagus) * Joint soreness * Night time leg cramps * Asthma * Sores on skin, or itching * Poor wound healing * Can cause excessive menstrual bleeding * Hair loss (LOW IRON IS A FREQUENTLY OVERLOOKED CAUSE OF HAIR LOSS) * Headaches * Sore or burning tongue * Soreness in corners of the mouth * Brittle, flat, or spoon shaped nails * Longitudinal ridges on nails * Heart palpitations on exertion * Shortness of breath * Cold extremities, with decreased resistance to cold and poor regulation of body temperature * Tendency to recurrent infections * Chronic bladder infections * Anemia (hypo chromic, microcytic) paleness, weakness, drowsiness, fatigue * Numbness & tingling * Night sweats * Fragile bones * Growth impairment in children * Eye soreness * Vague gastrointestinal symptoms: belching, gas, nausea * Vitiligo (light blotches on the skin) * Swelling in the ankles * Bluish tint to the whites of the eyes * Visual disturbances * Papilledema (swelling inside the eye)
|
|
|
Post by headbee on Sept 11, 2011 20:01:19 GMT -5
PS lately I am feeling a little more tired, more pinching in my feet and legs, muscle cramps. Some heart palpatations and dizzyness but was able to take the dog out for 2 walks, made breakfast and dinner and watched football so overall I think still doing pretty good. (I also took a nap but who doesn't when they get a chance)
|
|
|
Post by headbee on Sept 11, 2011 19:57:47 GMT -5
Thanks for all the input, keep it coming!! I am seeing the ND on Tuesday and he seems to understand the Lymes more than anybody. It is the MD (not Lyme Literate) who ordered the test that says I need a transfusion. If an MD orders the test I can run it thru my insurance reason I went to see him in the 1st place. I encourage everyone to get that CD8-CD57+Lymphs as it is a good indicator to how you are doing. My last test scored better but the Hemoglobin went lower reason for the concern. I just don't want to "Feed Them" and explode into more lesions than I already have, this week is the full moon which always brings on more. I already eat well and suspect problem is when TOM arrives and is especially heavy and my body is not absorbing the nutrients like it used too. I am leaning on slow and steady Iron Pills if that will get me back in shape if the ND thinks it looks to be a safer option.
|
|