sage
Full Member
Posts: 116
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Post by sage on Aug 23, 2012 15:53:23 GMT -5
OBam, Did you have your EDTA therapy done at the VA? If so, How did you convince them to do it? Was it General Medicine or a Specialty Clinic? Specialty Clinics are very secretive places where the Agent Orange people reside. VA Fresno had put up a new sign. AGENT ORANGE. How's that for admiting that it indeed exists after 18 years of denial? Then, three weeks later, the sign came down!?! Well, It now reads...Specialty Clinics. Covering their tracks, I guess. LOL sage
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Post by Baraka Obam on Aug 24, 2012 21:14:41 GMT -5
They are secrative because the fellows that are dying of it, you will see they have our problems. Here is a picture of a Asian man with three interesting items, he has a lesion on his face like mine, he has a spot of involvment over his neck vein and I am sure you can see the FANG mark LOOKING, do you see the word looking, many people get these big and small dots, only these look like CHERRY ANGINOMA, look at them closely either way, looking at what he is showing I would either say the doctors are all lying to us and we have cancer or this guy has morgellons and maybe cancer also.. commons.wikimedia.org/wiki/File:Basaliom2.jpg
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Post by homeworld on Aug 26, 2012 20:36:54 GMT -5
...fibers in the blood? Poppycock! If you had fibers like that in your blood, you would be dead! [ yeah, I got this speech from a demigod..umm.."MD". All my beautifully focused microscope pics meant exactly ...nothing. Well , he did want to keep one for his "matchbox sign" giggles collection.] curezone.com/upload/_M_Forums/Morgellons/FHW/Blood/blodacetic10sep11.jpg...nothing unusual..sadly..about this pic. carefully clean finger..prick finger with the needle..poking gadget..drop of blood on slide.. ...hmm...whats that?..a suspicious..lump of some sort.. dissolve red blood cells with acetic acid..and another fine fiber begins to reveal itself. ...PFM. [pure "freaking" magic!]
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Post by violet on Aug 27, 2012 7:54:28 GMT -5
...fibers in the blood? Poppycock! If you had fibers like that in your blood, you would be dead! [ yeah, I got this speech from a demigod..umm.."MD". All my beautifully focused microscope pics meant exactly ...nothing. Well , he did want to keep one for his "matchbox sign" giggles collection.] curezone.com/upload/_M_Forums/Morgellons/FHW/Blood/blodacetic10sep11.jpg...nothing unusual..sadly..about this pic. carefully clean finger..prick finger with the needle..poking gadget..drop of blood on slide.. ...hmm...whats that?..a suspicious..lump of some sort.. dissolve red blood cells with acetic acid..and another fine fiber begins to reveal itself. ...PFM. [pure "freaking" magic!] Homeworld, I've printed this out for my internist to look at the next time I have an appt. with her. She had asked me if anyone had their blood checked and whether they found anything in it. She is open-minded, but I'm pretty sure has no peer support. I admire and appreciate her that she listens to me and takes notes and asks questions about morgs.
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Post by violet on Aug 27, 2012 9:04:32 GMT -5
I kept flunking my CBC test so while in Mexico I got a 200.00 bone marrow test. It shows I have 7% plasma cells when should be in 2.5% range. In the states this is a 1200.00 test. Got a wonderful MD doctor who also did 3 treatments of Biomagnetics. So will keep watch if can get it back in range. Your picture looks like you have too many blood cells? IMPORTANT TO ALL MORGIES:Headbee, I wonder too if Blue has too many red cells. If so, Blue, you could have a condition that I have called "polycythemia rubra vera," which is a majorly serious condition if not kept under control. I have several times posted that morgies would be wise to go to a doctor who knows about this condition (if you need referrals, let me know). Many doctors/hospitals never heard of it and thus would not be able to help you. I'm wondering if a lot of us morgies have the involvement of PV. It is essentially a genetically identified disorder where the bone marrow makes too much blood, usually because of too many red blood cells, but in some cases, also the white cells and platelets (which I have). PV is caused by a mutation in one of the JAK genes. I'm suspecting that I have many white cells and platelets in addition to the red cells because of the morgellons complication, and white cells and platelets cause inflammation. which is extremely unhealthy since it can cause all kinds of very serious problems. PLEASE morgies--get checked for PV, because if you have it and don't get help, your blood will continue to get thicker and thicker because of the buildup of red cells, and that can cause not only profound fatigue, aches, and brain fog, but potentially (and probably) strokes/heart attacks, because the red cells do clump together and form clots. I get my blood thickness (hematocrit) checked every 6 weeks and get a pint of blood drawn off when the thickness is such that it requires a draw off. PLEASE--GET CHECKED, FELLOW MORGIES!!!!!!!!!!!!!!!
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Post by homeworld on Aug 27, 2012 11:36:57 GMT -5
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bluesky
Junior Member
In memory of Dorothy
Posts: 63
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Post by bluesky on Aug 28, 2012 13:48:09 GMT -5
Thanks for that, but I know what polycythemia rubra vera is; I had a friend who had it, still has it, if she is still alive; she was in her 70's at the time. The only treatment she was offered was to have her blood drawn on a regular basis to reduce the volume. It is very scarey for the patient and uncommon.
I am pretty sure that that is not my problem. One noteworthy symptom of the condition is that one's skin feels as if it is on fire when it gets wet, and mine doesn't. Additionally, my only symptom is the white sticky blobs, tiny brown/black itchy specks that come out of my scalp and burrow under any skin they fall onto or come in contact with. People with polycythemia rubra vera do not have this symptom.
In any event, for a variety of reasons it is highly unlikely that any doctor in the UK would run these tests. They don't like being dictated to, they are highly offended when a patient starts 'talking about medical things'. They get their funding to run their practices from a government pool of monies; what they do not spend on patients or medicines or tests is in their pocket. They have little financial incentive to go looking for problems. It was once queried if I had von Wilebrands but the GP refused to order the test because it is too expensive he said.
Any patient/person in the UK with morgellons or scabies that does not respond to traditional scabies treatment is Labeled as Delusional. These patients are simply written off as nutty; those that change doctors are often met at first consultation with an appointment to mental health services --the GP sometimes makes the appointment before meeting the patient. In my case, admitted to hospital for possible colitis (turned out to be diverticulitis), the attending Dr assumed that nothing was wrong after speaking on the phone to my primary, and his mannerisms were to treat me like a child.... I had to raise a stink to get assessed and diagnosed, but they were adamant that it was all in my head. Doctors in the NHS actually get a financial incentive for referring patients to the mental health people. Doctors in the NHS wrote 50 million prescriptions for antidepressants last year alone!! The population of the UK is 60 million, to give some perspective to that statistic.
It is unfortunate, but patients in the UK have very little say in their treatment as patients and they are not treated as participants in their own health matters. That is just the way this institution over here works (social medicine).
It is not uncommon for doctors, nurses or other people in the health field to say one thing to a patient, and for that same healthcare provider to write something entirely different in the patients notes. This is very much true for patients who have been labeled as mental health cases -and those medical records are not available to the patient (as deemed to "not be in the patient's best interest" to view them.)
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bluesky
Junior Member
In memory of Dorothy
Posts: 63
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Post by bluesky on Aug 28, 2012 14:05:31 GMT -5
In the next day or two, I will have an update on my blood and how it is doing. Currently, I have had two laser sessions.
Since the second one, I have more energy and stamina, and my eyesight and cognition are much improved. I have lost a lot of weight, which is good for me. Currently, I am back to the clothing size I was when I was in my 20's and my muscle tone has improved, too. I am not sleeping well again, and the white matter and itchy specks from my scalp have increased a lot. I have only been doing these treatments for 1/5 the average time that most people do them (10 sessions).
Will keep posting as I go... thanks everyone for your comments, I appreciate them very much.
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Post by violet on Aug 28, 2012 15:06:58 GMT -5
Thanks for that, but I know what polycythemia rubra vera is; I had a friend who had it, still has it, if she is still alive; she was in her 70's at the time. The only treatment she was offered was to have her blood drawn on a regular basis to reduce the volume. It is very scarey for the patient and uncommon. I am pretty sure that that is not my problem. One noteworthy symptom of the condition is that one's skin feels as if it is on fire when it gets wet, and mine doesn't. Gosh, I've never had that happen, Sky. Additionally, my only symptom is the white sticky blobs, tiny brown/black itchy specks that come out of my scalp and burrow under any skin they fall onto or come in contact with. People with polycythemia rubra vera do not have this symptom. Well, I know that is true, although the two conditions can co-exist in people, like they do in me.In any event, for a variety of reasons it is highly unlikely that any doctor in the UK would run these tests. They don't like being dictated to, they are highly offended when a patient starts 'talking about medical things'. Sounds like here in the U.S., although that is changing, as medical students are being taught how important it is to listen to their patients and that it is the patient who can best tell them what they are feeling, etc.They get their funding to run their practices from a government pool of monies; what they do not spend on patients or medicines or tests is in their pocket. That is awful!!!!!!!!!They have little financial incentive to go looking for problems. It was once queried if I had von Wilebrands but the GP refused to order the test because it is too expensive he said. Yes--too expensive for him, huh?!!!!!Any patient/person in the UK with morgellons or scabies that does not respond to traditional scabies treatment is Labeled as Delusional. These patients are simply written off as nutty; those that change doctors are often met at first consultation with an appointment to mental health services We're all familiar with that treatment here in this country, too!--the GP sometimes makes the appointment before meeting the patient. Unreal! My gosh. I had no idea about a lot of these things you are telling us about the medical system there.In my case, admitted to hospital for possible colitis (turned out to be diverticulitis), the attending Dr assumed that nothing was wrong after speaking on the phone to my primary, and his mannerisms were to treat me like a child.... I had to raise a stink to get assessed and diagnosed, but they were adamant that it was all in my head. Those dummies. Irresponsible dummies, too.Doctors in the NHS actually get a financial incentive for referring patients to the mental health people. Doctors in the NHS wrote 50 million prescriptions for antidepressants last year alone!! The population of the UK is 60 million, to give some perspective to that statistic. Awful!!It is unfortunate, but patients in the UK have very little say in their treatment as patients and they are not treated as participants in their own health matters. That is just the way this institution over here works (social medicine). I'm glad to hear you speak up about these things and wish that more people here in this country understood about it. One never knows when things could change here. They are changing very fast, in many ways.It is not uncommon for doctors, nurses or other people in the health field to say one thing to a patient, and for that same healthcare provider to write something entirely different in the patients notes. This is very much true for patients who have been labeled as mental health cases -and those medical records are not available to the patient (as deemed to "not be in the patient's best interest" to view them.) Well, morgie friends, we could give Sky an "amen!" to this, couldn't we!! So many have been treated as such in this country as well as England, for sure.
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bluesky
Junior Member
In memory of Dorothy
Posts: 63
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Post by bluesky on Aug 30, 2012 14:42:28 GMT -5
This is the results after two UVB blood irradiation sessions. Note that the bacteria and candida-like yeasts are gone. The RBC's are no longer stuck together or being attacked by bacteria; some are small and weak, though. The WBC's are healthier and this one has captured many bacteria. My energy levels are way, way up and sustained throughout most of the day. Lymph nodes no longer swollen, sense of smell returned, sweating and smelling 'like me' again. Sleep is better, but not as good as after first session. Appetite is great, and have lost a clothing size (which is good for me). Bones and joints not so painful. Sadly, the scalp issues remain, and actually are worse; whether this is progress or not, I don't know. The first time I had this skin mess I had a super-shedding phase about 6 months in --this second time around, again at the six-month marker, the illness seems to be following the same pattern. The day that this video was taken, I had a third UVB session. I will get those results next appointment, just prior to having a fourth UVB session. I will post them shortly afterward, so have a record of what is happening with this therapy. Thanks everyone for watching and your on-going comments! Here is the direct link to the vid of my blood after two UVB sessions: s1049.photobucket.com/albums/s388/blueskysunislove/?action=view¤t=fcf50cb4.mp4
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Post by violet on Aug 30, 2012 15:30:14 GMT -5
This is the results after two UVB blood irradiation sessions. Note that the bacteria and candida-like yeasts are gone. The RBC's are no longer stuck together or being attacked by bacteria; some are small and weak, though. The WBC's are healthier and this one has captured many bacteria. My energy levels are way, way up and sustained throughout most of the day. Lymph nodes no longer swollen, sense of smell returned, sweating and smelling 'like me' again. Sleep is better, but not as good as after first session. Appetite is great, and have lost a clothing size (which is good for me). Bones and joints not so painful. Sadly, the scalp issues remain, and actually are worse; whether this is progress or not, I don't know. The first time I had this skin mess I had a super-shedding phase about 6 months in --this second time around, again at the six-month marker, the illness seems to be following the same pattern. The day that this video was taken, I had a third UVB session. I will get those results next appointment, just prior to having a fourth UVB session. I will post them shortly afterward, so have a record of what is happening with this therapy. Thanks everyone for watching and your on-going comments! Here is the direct link to the vid of my blood after two UVB sessions: s1049.photobucket.com/albums/s388/blueskysunislove/?action=view¤t=fcf50cb4.mp4 This is so exciting, Sky. Can you let us know what the moderator said about the most recent video? His comments got cut off. Thanks!
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bluesky
Junior Member
In memory of Dorothy
Posts: 63
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Post by bluesky on Aug 30, 2012 15:34:15 GMT -5
Well, the comments were that the blood cells are looking more normal and healthy and are more active. Thanks for letting me know, Violet; the sound card in my pc is not working, so I didn't know that!
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Post by Lynn on Aug 30, 2012 16:20:49 GMT -5
Hi Bluesky
This is so amazing. It all looks so much better then it did before. There are supplements on some site of course too expensive that corrects deformity in blood cells and if I remember right everyone does not realize how deformed our blood cells get when not treated with proper diet and non-polluting foods. Would you like me to find the link?
Hope you kick this whole thing for good.
In Light Lynn/TorpedoLynn
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bluesky
Junior Member
In memory of Dorothy
Posts: 63
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Post by bluesky on Aug 31, 2012 14:33:56 GMT -5
The improvements that be seen in the last video are solely from UVB therapy and eating brown rice, pasta, fruit and veg, some coconut oil and seaweed. That is all I eat, nothing more.
You are right, Torpedo; most of these supplements are way too expensive, and the ones that are reasonably priced are junk, like Vit C made from corn, probably GM corn, at that!
Time will tell if this is going to help clear up this mess. The shedding today was much better, but I have some signs that it might be a long night.
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Post by Lynn on Sept 1, 2012 9:18:03 GMT -5
Hi Bluesky Unfortunately the ground does not help provide the balance of stuff our bodies need to stay healthy so we are stuck taking herbs, minerals and vitamin especially when sick. I know without my vitamins I would have be cooked. lol. I love the the menu you eat. I wonder if the fruit raises your blood sugar to high to help the Morgellons grow? I wonder if the chicken I eat so often gives the Morgs components what it wants to grow. If I could physically prepare my foods more from scratch I would eat mostly dark greens. Before the Morgellons blow out I went on a diet to eat to my body type and I was mostly only allowed to eat dark greens. I felt very healthy and had lots of energy, but was too crippled to keep up with preparing everything fresh and stay away from the foods I had to make for others to eat always being around me. I also tried one day a week putting everything in containers ready to eat and nothing stayed fresh long enough to make it to the next pay day. A lot of spoiled food in the garbage before money was available to replace it. I would have lost a ton of weight. 36 pounds in two weeks but I just could not physically keep up. So knowing how polluted vitamins are I really had to dig to find what I could take and there are very few companies out there that look out for how vitamins are made and what is added into them or contaminated them. There was a story told to me by a person who sold clean vitamins and they had toured a factory for vitamins and was met by a guy with a big cigar hanging out of his mouth. The screened vats of vitamins in liquid state had wood beams over head with mice running across and their pee and poo could drip right down into the vats that had just screens across them. Let alone the bugs that could get in. Then the heavy metals and fillers and then not making sure the mg. strength is actually going to be there when the product was sold. Gosh I was all over the map with eating right and no vitamins to eating so-so and taking vitamins. Once the health started to fail and I had to had vitamins to help in my struggle I had the idea that something was better then nothing. Now I think back to all the heavy metals and contaminate in those store bought cheapys instead of researching them first or just deciding I knew better. I was better off without the vitamins. Then when I got this Morgellons in the blow out form it was vitamins that brought me near the finish line of getting out of this mess. But I made sure I got them from those who also did not believe in just selling you just anything. Back during my initial blow up of the disease I could hardly eat I was soo sick and I am the type that could eat when sick. I lost 50 pounds in a few shorts months and it was nice but scared the heck out of me. I knew if I did not find the breaks I was going to crash at some point. It was herbs and vitamins that got me to where I could eat and brought me new stages of health I had not had for many years. Once I could eat again though my weight all came back unfortunately. Is the food plan you eat helping you out of this mess. I will be so glad if it does. I know for so many what we eat really effects this whole mess. So sad that even the food we should eat is outrageously priced, but so is medical and if we don't try here and there then our health suffers from the lack of better nutrition and the money is spent anyway trying not to be ill. It is like we are condimmed if we do and condimmed if we don't type situation. Any how I do know there are a few who control this whole mess with diet, but I am not sure if I know anyone who got rid of it with diet. I do know 5 or more right off who got well doing both diet, with minerals, and vitamins and some with treatments of other things like infro heating pads and other such things we all talk about here. Sorry so long here I was worried that I gave you the wrong impression on the vitamins though and wanted to toot their horn a little though carefully. Well I have talked your eyes right out of your head. More later.... In Light Lynn/TorpedoLynn
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bluesky
Junior Member
In memory of Dorothy
Posts: 63
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Post by bluesky on Sept 1, 2012 13:45:38 GMT -5
Glad for your comments, Lynn, and you are 100% right about cheap supplements being rubbish with a big price tag, the pocket and health both suffer. You didn't give the wrong impression, it is a really important topic, and needs to be said. The vitamins I take are liquid by Floravital and nothing like I have ever used before. I used to take Solgar 2000 vit and mineral combo and it was excellent, but I think with the digestive system issues not as well taken up by my body in the past few years.
The short answer to "is the food plan you eat helping you out of this mess? is, well, kind of. It has certainly got the fats out of my blood so the red blood cells can be more oxygenated, and got the glucose out of my blood so that it can be used by the mitochondria of the cells to produce ATP (adenine triphosphate; the cell's energy). I do have a lot more energy, overall. And the veg and fruit has lots of vitamins and minerals, so that has to be good. Mostly, the vitamins and minerals that my body needs to get well are a mystery to me. I took a lot over the last 3 years, and sometimes got more ill. I found out that having the mitochondrial testing can tell a person which vitamins and minerals he or she needs, but I do not have the resources to have that done.
Interesting to read that you also had difficulty eating when most ill with this. I have a lot of trouble with that right now, though for a different reason, maybe. The B vitamins do increase my appetite and I actually feel hungry for the first time in ages, but being around anything wet or in the kitchen or damp food makes the scalp issues really worse.
It isn't about not wanting to try all these other things that helped people get well. I would love to do jwf's protocol, but I can't afford 16 supplements a day for a year or more; and getting them would be a nightmare. It is about expense and also about getting the products. Here in the UK lots of things are regulated, or restricted, or not allowed/approved, or if you have them shipped by a company from outside the UK you have to pay customs and excise tax as well as additional delivery charges when customs hands them over to another delivery service. Some things are available on the uk amazon site, but not a lot. For example, we can't even get borax, or boric acid or Lugol's iodine here --they aren't allowed under the EU's Codex Alimentarius. I decided to do the UVB for several reasons. The cost is very reasonable here. It is given in my area, so not far to travel. The person doing it was recommended by someone I highly regard. The practitioner is very compassionate, educated about helping people get well, and he has very high integrity. Also, someone else with this mess is doing it and saying that it helps.
I like your referring to getting ill like a crash, coz it is just like that, like a train wreck in progress. My eyes are still in my head.. ;D so keep writing, I love your posts!
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Post by tierracast on Sept 1, 2012 16:49:33 GMT -5
Hi there..It was unclear to me what exactly had been done to your blood that was able to produce such an amazing improvement, would you please elaborate? According to Carnicom the morgs attack the blood cells to feed on the iron within, but in so doing, it inhibits that cells ability to absorb nutrients and oxygen. Considering my roommate was taken to the hospital via ambulance because his oxygen level was critically low and once there diagnosed as malnourished (he weighs 193) it must be what's going on- among other things. I'm sure many of us would like to no what treatment/therapy you had done. Thanks for sharing.
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Post by Lynn on Sept 1, 2012 18:08:00 GMT -5
Hi Bluesky
I am glad you are able to gain back some health when so restricted. It is just terrible what boundaries government and polluted foods, and supplements make on us. Thanks for letting me yak at you.
It would be soo cool if you find your way back and better in spite of lack of access to things in your area. Well I am being booted off the computer. More later.
In Light Lynn/TorpedoLynn
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Post by Baraka Obam on Sept 1, 2012 18:15:22 GMT -5
IT is a fact that 99.9% of all suplament powders are made in CHINA, there may be so called supplament factories here but the factories may only encapsulate that powder or press it into a pill.
Then again they may just buy it formulated to fit their lie and buy it from another country that seems pure and beautiful.
ALL, business lie to you through their teeth, they are scum monsters and the fact that many people believe their is so called super this or that, hmmmm.
I used to sell a lot of Chinese stuff, it was all you could get, while some was excellent, others were down right garbage.
There was a term I would use with the complaining customer, This product is the standard of the industry, meaning most all of it is junk.
Yes of course I would give them their money back if the product was garbage and would not buy any more, unless it had to be used and was the only part with a little adaption that would suffice for a obsolete part.
Supplaments are no better, the price of the super biological, natural spring water rinsed gold standard multilevel scio biosphere gold standard supplaments are usually a lie people want to hear and will pay dearly for.
Give me one of those wimpy wilted natural carrots there will ya Clem, them there natural carrots just look dead, but they ain't no sir Bob, they are wrestin, I paid 2 dollars a piece for dem, they gotta be good, Clem asks, how come them unnatural carrots are so big, hard and juicy,...... them be the devils carrots, god is disguising the natural ones to look sick now so you know they are the real thing, thats right Clem, you can take that to the bank!!! LOL.
Clem says, I am gonna buy those disguised god natural carrots from now on and offer to pay three dollars. That will make them better.
This is the world we live in now, last time I heard such a story about supplaments I did a scam search on the product, they said they did not buy Chinese product, LOL, thats not what the Chinese company had put online, they boasted that their ingrediants were in the super stuff.
I guess that Chinese company never heard of being quiet about who they supplied their product to.
If we ourselves do not have a laboratory to test for led, mercury, pathogens, human waste material, or anything else concerning quality we are kinda just blowing smoke when we talk.
Give me a company name and I will take a little time to find out about it,
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bluesky
Junior Member
In memory of Dorothy
Posts: 63
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Post by bluesky on Sept 2, 2012 10:55:49 GMT -5
@ tierracast- I am having UVB blood irradiation (also called blood laser therapy by some) by this method: www.webermedical.com/en/home/I haven't followed Carnicom's work, just briefly looked at it. This is the first time that I have seen my own blood since I became ill 3 years ago. And I am shocked to see the initial state it was in, and floored that in the last three years 14 doctors here have told me 'there is nothing wrong, I can't see anything wrong". And my blood was repeatedly sent to lab, and results always came back "within normal perimeters".
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