Bluesky, This is great. I'm so happy to follow your trail and it's exciting to think that something might work to help improve our situation.
The practitioner on your last video said that you can see that some of the red blood cells are small and weak.
I go for live blood analysis this weekend and am very curious to see the state of the blood. It's unfortunate that not many practitioners in the U.S. do this blood laser therapy. I wonder how easy it is to train for it and how expensive it would be to do so, also how long a training period is necessary and if one has to already have some sort of health care validation or degree.
Found it unbelievable to learn about the U.K. health system. Had no idea that there was a financial incentive involved to keep people from getting tests. That is one broken system boy! Corrupt all the way. Thank you for enlightening.
Can you describe how you are given the treatment? Is it through an acupuncture point, or through needles?
This is valuable to all of us searching for alternative treatments. Thank you for sharing with us! Ayla
I hope you get a video of your live blood and share it here. It is easy to take a video, it can be recorded from the monitor with a cell phone that has a camera and sent to your email address. I am really excited for you, Alya! And really looking forward to hearing about what you see.
I do not have needles. The instrument used is attached via wires to a calibrated machine and resembles a digital thermometer, except instead of a pointed end, the whole length is the same width and light comes out the end -red, green and blue. The end is inserted in the belly button, as that area of the body is rich in capillaries and veins. The light penetrates all tissue -you can place the instrument in your palm and see the light coming through the back of your hand. As the blood flows through the umbilicus the light penetrates through the capillaries and veins, irradiating the blood. UVB treatment uses single colors of light or combinations of red, green and blue and last twenty minutes or longer.
Some patients getting Weber-needle UVB therapy have the therapy given with needles that have light emitting from their ends; the needle is inserted into the vein. Others have the therapy via leads with light (emitting diodes, maybe?) attached to the skin at one or more points. Other systems provide the same therapy but blood is removed and run through a machine that irradiates the blood with light before returning it to the body.
At every session, I get to see what blood blood changes have occurred since my last UVB treatment, and then I have another UVB treatment.
It has been nearly a week since my last UVB session and my energy levels remain high and sustained and I am sleeping fairly well, though not as long as I would like due to a noisy neighbor. My skin and scalp issues continue, and eager for my next session this week, in hopes of some relief from that, as well as to see what improvement has occurred with my RBC's since my last UVB treatment.
Don't know if I would call it 'great', but it is certainly better than it was. I was thinking to have live blood looked at at intervals after I do the number of sessions that this practitioner recommends because I don't know if the blood condition(s) is caused by what is in my skin and scalp, or the reverse. And I would like to check periodically that I am not losing ground.
I don't think that people who have this are ever really the same again, after getting it. It is a complete mind buck, some of it. I remember when I had 10 months respite from the scalp and skin symptoms. I never fully trusted that I was actually well. I was relieved, of course, but always in the back of my mind, I did not trust that it was over. Always waiting for the other shoe to drop. I know you say we never get "rid" of it, Baraka, and you're right, I hadn't; I still felt that something was wrong even though that crawling and itching and evidence of something in my scalp had stopped.
I have no idea if this therapy will help get rid of what is bothering my skin. The practitioner says that if my immune system can be improved to work better, then it has a chance of fighting this. So, in other words, maybe the UVB therapy will not get rid of what is in my skin and scalp, but a functioning immune system might have a chance to fight it and maybe whatever it is won't want to stay. I do not know why some people have symptoms and others don't, or take years to fully develop them; maybe a faulty immune system plays a part. Like everyone, I don't know.
What will I do if this does not work? Go onto the next thing, like everyone else, I guess. Try something else. We are certainly a die-hard bunch. I don't think a lot of people could cope with this illness.
At the moment, all I can do is continue and document results and report what improvements in my health that I experience. Before doing this I was not doing very well, every day seemed the same uphill battle all over again and I was very discouraged. I felt on some days that I was dying. I still have this horrible problem with my scalp, but I feel a lot stronger and healthier, and that is progress.
If I didn't answer your question please ask again or phrase it differently.
Have you come across any of your live blood images or video that we can look at? I would still like to see anything you have got.
I think that what is going on with the blood is very important and may be important clues to why I am ill. Again, not sure if my illness caused these changes in my blood or if the changes in my blood, from many factors, caused susceptibility to my illness. But videos don't lie, and something serious is going on (at least with me -don't know about others 'til their blood is looked at). Getting images of our blood and documenting problems would be clinical evidence that this is a physiological illness, not a mental one, especially if the same or similar blood system and immune system problems are occurring with many people with the same symptoms as mine.
Of course, the last paragraph is full of assumptions. Do we all have the same illness? Is what has been wrong with my blood the result of what is in my scalp, or just many years of stress, poor diet and polluted environment?
Last Edit: Sept 4, 2012 17:13:56 GMT -5 by bluesky
Yea. Thank you Bluesky for the clarification of the treatment process. I ask not only for myself but for the world that is watching. I believe when people have some sort of success we all perk up and keep peeled for the next installment, thinking, "Could this possibly be a tool for all of us?"
I really like that your practitioner follows through with the blood analysis. It just makes sense to gauge the healing process.
I'm with you in that I too think when is the other shoe going to fall?! One thing this disease shows us is that our condition can change radically and suddenly. I've never felt betrayed by my skin before getting Morgellons. Thought of it as a solid protective unit that was constant. Now I see it as a more reactive organ. I don't trust my skin and although I live a "normal" life now and don't have too many problems with lesions, I often wonder if I can trust this calm space to continue. When you walk around and know the skin is spitting out particles and fibers, it's hard to settle into comfort.
My bet is that the problems with your blood are caused by the disease which in turn derails the immune system. Let's hope that the work you are doing can turn the switch back on to immune function. If it were me, I'd definitely want to go for booster treatments after the initial 10 visits. I'm keeping my fingers crossed for you.
Will definitely take photos and movies of my blood analysis. I don't own a cellphone (WHAT! ), but am going to bring a camera with me. The guy that is looking at my blood is a microbiologist and is doing it out of a live foods store. At the very least, it will be interesting.
Irradiation..hmm. Is that like chemo? Sounds kinda scary, but what's living in and transforming us is frightening too. For all the money I've spent it would seem you got the bigger bang for your buck. If I don't see results with my latest plan of attack I'm gonna start savin my nickles and give that a shot (unless it's outta my reach of course). What Baraka Obam said about "industry standard" was exactly what the head of Logos Nutritionals said in a snail mail reply to my on line complaint about an enzyme they sell thats supposed to help remove this slime. They ought to have to list ingredients if not their supplier. That enzyme as it turned out was cellulose and rice flower (probably loaded with pesticide). I remember reading somewhere that the morgs feed on cellulose- no wonder I got worse! Any how, I wish you great and LASTING success.
no, not like chemotherapy, which is toxins taken by IV in the blood stream. And no, not like radiation therapy, where someone is exposed to radioactive isotopes or rays, like x-rays (gamma rays).
What is meant by "blood irradiation" is that the blood is exposed to light, just light, not radioactive light or anything radioactive, simply light of various colors or combinations of colors.
One definition of 'irradiate' is : "to expose to or treat by exposing to X-rays, ultraviolet rays, radium, or some other form of radiant energy". LIGHT is another radiant energy, and in this case, used in the weber-needle therapy.
I am with you, though!! I don't think I would want my blood irradiated with radioactive ANYthing!
Update: another live blood analysis (and videos) and another UVB session.
Here are two more videos of my live blood after 3 UVB sessions.
The first shows the current state of the blood as of this week. It is improving, but still detoxing fat. Two symptotit bacteria were seen in this analysis, as well as two candida-like yeasts.
The second video shows an aggressive bacteria that was also found in this same analysis. Two of these were seen and observed for several minutes. I noticed that neither of them inflitrated any red blood cells and that no white blood cells moved toward them or engulfed them.
My scalp issues continue, energy levels are moderate but not sustained. I feel as getting a cold (not common for me, and have not been sick with the usual things since this scalp and skin condition began) -maybe immune system is working, or having detox symptoms?
I am away from the computer until Thursday or Friday next week. When I return I will post another report and video, and reply to any comments.
Those who want to learn more about pleomorphic bacteria can read about Gunther Enderlein's theories here:
Looks like the black rope thing was trying to break down or feed off a blood cell. Your cells look so good not hopefully that black thing was having a rougher time destroying what it wanted. Has a Dr. said what that might be. It moves like a worm with purpose of body movement. Not just a thing floating and settling and attaching.
In Light Lynn/TorpedoLynn Have a great week and look forward to your response next week.
In the aspects of eternity everything else is but a grain of sand. If I remember this then I can get through some pretty big pieces of sand.
Hi Bluesky, I'm dropping in to share that I had my live blood analysis today. Very glad I did this and felt the microbiologist, Rick Panson, was very knowledgeable.
There were many problems seen. I'm going to put a webpage up on my site in the next few days with photos and some of his commentary. Will post the link when it's up.
One thing that came up in the blood was a very large "object." It was long and strandlike and looped over on itself. He told me frankly that he had no idea what it was, and in all the time he's been doing live blood work, he's only seen this one other time. He said it could be "lint" caused by something that inadvertently got on the slide. It looked to me like a fiber. Since he's never worked with anyone with Morgellons before, he has nothing to compare it to. He did not discount that it could be a fiber. Unfortunately, I didn't get many clear shots of it, just the part where it looped over itself but I also had my little coolpix camera aimed at this screen to record our conversation. Hopefully I will be able to get some screen grabs of that artifact.
Other things he found were lots of ghost cells, neutrophils, yeast, rouleax, heterogeneous symplasts, fibrin spicules, some heavy metals, bowel toxicity, yeast, candida, bacteria. I'll explain more about all these things on my site when I get all the info. organized.
It sounds to me from your last post, that the changes you've seen previously from the treatment have slowed down. What does your practitioner think of the symptoms you are experiencing (feeling like you have a cold)?
Hope you have a great few days away from the computer!
Lynn- the black rope thing is a bacteria, a rather aggressive one. I will be looking for more of them when I go for another live blood analysis this week. Hopefully, they are all gone, but I want to see if that is so. The blood is looking better, but still not healthy. Fat is still being detoxed from the blood. But you ARE right, and I forgot to say, that the red blood cells do look fatter, plumper and healthier. Now to get the immune system working...... hopefully!!
Morgticia- I am really keen to see your images, can't wait. Looking for your li nk to your site and comments about your LBA. So, from what you describe, we have some striking similarities in our blood! Yeast, rouleax, fibrin spicules, and bacteria. Roleaux is an indication that there is fat in the blood; it is the fat that makes the RBC's stick together. Yeasts are an indication of glucose trapped in the blood, glucose feeding the yeasts. It is not being utilized by the mitochondria to manufacture ATP, equating in tiredness and lack of energy. But you are not tired, are you?
Yes, the changes seem to have slowed down, but the changes are still occurring -- the blood is still detoxing fats, and the liquid iron supplement is restoring some health ot the RBC's. So progress, even though slow.
Hi Bluesky, I'm still working on the page for my site. It will take a while. A lot to show and talk about. I was unaware that the Rouleaux was caused by fat in the blood. He did tell me the ghost cells were because the RBC had 'popped' and lost there outer protective member which is two layers of lipids (if I am getting that correct).
The fibrin spicules were disturbing because he said they come when the bacteria gets advanced and act like a protective defense for the bacteria. So that did not please me.
He also said the body is very acidic. I don't want to say more because I think I'm getting it wrong. However, there was a lot of yeast and I'm going to start using olive leaf extract, caprylic acid and glutamine powder to help the gut patch itself up. Will start that after I get retested by metametrix.
One good thing is that my immune system appears to be strong. We watched a white blood cell have a lunch of yeast. Problem is there are so many yeast I don't see how the white blood cells can manage that.
My energy levels shift. All day today I was zooming around and now I feel like I can fall asleep on my feet. Not sleeping well at night and doing dual shifts of sleep. Very disruptive.
This is exciting to see similarities in our blood analysis. As I said before, the bacteria, yeasts, Rouleaux ("spread out on a surface like coins"), fibrin spicules, in the main.
Looking forward to your site update and your comments and explanations about your LBA images.
Rouleaux, Rouleaux....... FAT, yes, fat in the blood is the cause. I have no videos from this week -- the LBA shows more rouleax, or a return of rouleaux... Why? Because I ate bread that I suspect was made with vegetable oil, although I was assured that it had none in it. In addition to that, there are a few more yeast and a few more bacteria!!
The good news was that the RBC's are looking plumper and healthier from the liquid iron supplement. And my practitioner is still asserting that this state of my blood is resolvable, and this is just a temporary setback.
Well, back to the drawing board and the strict diet. Hope to re-gain some ground after this week of stringent self-denial LOL. Gosh, it is hard enough without sugars of any kind, not even honey!
But looking back on the time when I first got ill with this, my diet was rubbish. A lot of fats, a lot of sugar. Had I known that deleting these entirely from my diet would have stopped this from happening to my blood, I would have gladly given them up. That such a poor diet was literally causing my blood to die, no wonder I was a magnet for creepy crawlies looking for lunch.
Last week saw the results in my blood from eating a small amount of bread that contained vegetable oil. The RBC's were stuck together again, many many more active bacteria and yeasts were seen. I felt awful. Tired, achy and toxic. I had another weber-needle UVB session and went home to rest. Back to the diet and stringent avoidance of all fats and oils, except coconut oil, and no sugars of any kind.
Another view of my live blood today. Sorry no video. More fats are gone from the blood, the RBC's are no longer stuck together and looking plump and healthy. That said, there were a few that were overcome with bacteria, but the healthy ones are doing their job. I can discontinue the liquid vitamins with iron, the RBC's (most of them) and immune cells look good. The white blood cells are big, healthy and actively catching the few remaining bacteria. The yeasts are still present but in lesser numbers. There were no fibrin spicules seen and no aggressive bacteria. No basophils seen, though that might not be an advantage as my scalp is very active since last night.
I have had three days with very little scalp activity; many of those hours no activity at all. This is very different from the onset of the 10 months of respite I experienced last year when I had gone to bed for three days during a cold snap with the heat off and windows wide open. When the symptoms of crawling, itching, biting and stinging stopped that time, it was sudden; when I woke up on day 3 it was simply gone and did not come back until I encountered something crawling on my arm ten months later. This week, the lessening of symptoms was gradual, tapering off to nothing for day 2 and 3. But it recurred with a vengeance last night.
Is it the UVB that has caused this change? In the three years that I have had this, I have not experienced any let up for more than a few hours or so, except for the above mentioned experience. I do not know if this latest respite is due to the UVB or not. I will have to wait and see.
Overall, my energy levels are not very good. I am tired and tire easily; feel as if I cannot wake up. Perplexing, as the RBC's are larger, plumper, individual with surfaces exposed and getting oxygenated. I wonder if it is the recent explosion of bacteria that is causing me to feel so dragged down.
I suspect that I am not metabolizing fats properly; perhaps that is why even a tiny bit ends up in my blood. I wonder if eating olestra hidden in many foods over the years has anything to do with this?
I had another UVB session today after seeing my live blood. Next week I will have another live blood analysis followed by another UVB session. I will post results following that.
I have a huge list of practitioners in the US and Mexico who do photoluminescence blood irradiation therapy (not weber-needle; still looking for those in US, Canada and Mexico).
Photoluminescence blood irradiation therapy is done by closed loop catheter and irradiates the blood in an external chamber before returning it to the patient. Weber-needle does the same thing, but irradiates the blood through the skin or through a needle inserted into a vein; blood never leaves the patient. Both methods have the same goal and effect on the blood. Photoluminescence blood irradiation therapy is very expensive compared to weber-needle, and sessions are longer.
If anyone wants the list of practitioners in the US and Mexico who do photoluminescence blood irradiation therapy, please message me and I will pop it into your inbox.
Thanks, Torpedo! Energy levels up today and sustained, though bored with the limited diet, it seems to give me a lot of energy.
You are correct, Baraka. Regular scopes can show the fibers, whereas dark field do not.
The Live Blood Analysis (LBA) that I get every week is done with a phase contrast microscope. Do you know if a phase contrast microscope will show the fibers seen in this illness? I have seen no fibers related to my skin yet.
I am not seeing things that other people report, such as fibers, spirochetes, mold or any eggs of any sort, no nematodes or micro filaria. All good, but perhaps none of these can be seen with phase contrast. Don't know. Do you?
We will see if this treatment helps or works. I have a few more weeks to go. Currently, what is scurrying around in my hair is partying wildly; I expect the rock and blues bands to show any time now. That said, my practitioner remains optimistic, encouraging me to see the progress that is being made -and indeed, I am better, except for the scalp. So, I continue, and my practitioner is compassionate and cheering me on. I am very very lucky to have been given his name and that he is only a short distance from my location, and he wants me to be well, too.
It is the turn of the season here, from summer to winter (very little autumn in this neck of the woods); a time when our symptom seem to increase. Thanks for your kindness, Baraka. I also hope this helps, better yet, works for me, and for others, too.
I see that this thread has now been read 478 times by people coming to this site. I gather that many of those readers are people who have the same symptoms (or some of the same) as I do. Thank you everyone who is following this, watching to see what happens and all the good wishes from people posting comments and replies. When my progress seems to lag or I have a day when I am tired or my scalp is particularly bothersome, your being here with me during this process helps me so much and gives me much encouragement. Thank you!
Last Edit: Sept 22, 2012 17:49:50 GMT -5 by bluesky
Sorry to hear you are struggling energy wise. I go through that. Hate it. Hope this treatment is going to work and finally get you free of this mess. I really appreciate your post.
In Light Lynn/TorpedoLynn
I'm with you in the "fatigue fight." I thought in my retirement, with all the time I now have, that I would be getting a lot done and doing some fun things. I'm fortunate if I have even a few hours to do so.
In relation to this time of increasing censorship of the Christian faith, we can remember: "But the fruit of the Spirit is love, joy, peace, longsuffering, gentleness, kindness, faith, meekness and self control, against such there is no law." (Galatians 5:22)
I have reverted back to falling asleep some while playing Pokemon with the grand kids and such. During any rearranging of characters or set ups on the bed to make a play area I snooze and wake up sudden to find a grand kid just staring at me in amazement. lol. I probably have that deer in the head lights look when I wake up suddenly like that.
Back when wanting to be able to enjoy little things in life it was so weird that some of that became a weapon. Like music or a t.v. show. I would want to enjoy it and did a little, but it was used to help me distract from the horrible attacks of biting, stinging and digging and movement of bugs under and on the surface of the skin.
In Light Lynn/TorpedoLynn
In the aspects of eternity everything else is but a grain of sand. If I remember this then I can get through some pretty big pieces of sand.
ChasSansc2: What does this all mean? I would suggest that anyone who has Morgellon to add 1 cup of LEMON JUICE to every load of laundry they do, start drinking lemon water and maybe even start taking baths with at least 2 cups of LEMON JUICE in it.
May 18, 2019 21:54:45 GMT -5
ChasSansc2: I used straight LEMON JUICE on my body, as well as Bragg's Apple Cider Vinegar. A word of caution, LEMON JUICE on the face can feel like Mace (it burns), so, you may want to dilute it before applying the LEMON JUICE soaked wash cloth.
May 18, 2019 21:57:23 GMT -5
ChasSansc2: Great - this won't let me scroll back up - STUPID.
May 18, 2019 22:00:11 GMT -5
poi.k,hjmv: I applied to this forum 2017 and still not approved why not tell them they are not approved??? you must enjoy seeing peoplesufferandleftfordead RUDE
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prson who agrees w poi.k,hjmv:: LOL @ poi.k,hjmv. . . so far same here. but hopefully not for TOO long
Aug 12, 2019 3:35:04 GMT -5
thinkwithwomen: what are women have health & fitness issues:)- we understood the importance of women health and fitness.we will discuss and share fitness stories and success stories we taken care of women for the age like premature and mature during pregnancy
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DAC: I have it, but it's not real bad for me yet. I do not have any sores on my body, but the stinging and moving under my skin is very bad. I had a friend who died from this. He got it from cutting down a tree by the airport. He
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Aitche: Check out images and videos of trichinosis think you will be
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does lymes make ur bones hurt : does lymes make ur bones hurt when u breath
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guess who guess who: Hello to my old friends. I
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guess who guess who: I run
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guess who guess who: I sure didn't know if people were posting here in 2020.
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Pipster: I've had success w/antifungal remedies...after trying others. The bugs might be fungus drawing them in? GMO's are made with a fungus that bonds the DNA of one species to another. Mild fungal & parasitic infections worsen w/EMF waves...weaken immune system.
May 2, 2020 1:01:44 GMT -5
Pipster: It is fungal related and many natural, antifungal remedies work best. It takes time but don't give up.
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lydski: I sure miss learning from many of the old members like Toni, Sydney, Abbienormal, Bananny, .
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carnesmt: Anyone still out there?
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