josej
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Post by josej on Jun 3, 2007 1:04:39 GMT -5
OK ladies. I'm a husband. (Not Mr. Buginarug) I'm someone else's hubby. But, maybe I can shed some light on the fairer sex as to why we big guys don't always step up to the plate.
By the way, please be gentle on me and don't all of you pounce on me just 'cause I'm one of "them". It's kinda scary since this board is mostly run and by women posters... so, here goes nothing:
First, the basics: Men and women are vastly different. Women need to talk-talk-talk and talk some more about each and every facet of every blessed thing! Men only have the capacity of a dixie cup to absorb all of that and we are quickly overwhelmed by it. (Here's a secret that you may not be aware of: We men feel that somehow what's happened to you is our fault.) Yep, crazy, I know. But deep down inside, us guys feel like we let you down. Who knows, maybe we did... and if we'd been more alert you wouldn't be sick. That's one of our issues. But, we won't tell you that. Nope. Instead we'll get all impatient when you start talking us to death... and so we reach for the TV remote and pretend to be watching some stupid movie for the eighteenth time. I know I do that. So maybe Mr Bug doesn't want to deal with any guilt feelings. Women want to bond; men want to watch James Bond.
Men are single-minded. (I didn't say simple minded... I said single.) What that means is that we're goal oriented. We go to the store to buy a pair of shoes. We don't stop by the sock department, we don't browse through the shirts, pants.. shorts... caps... we fly right by all that stuff. Why? Because we came to buy shoes, dammit. So we're in and out in less time than it takes a dermatologist to say you're delusional.
Women.... ok do I really need to go over your shopping habits?
By the way, I digress here for a moment only to offer a word of sympathy and understanding to all you women who only wish you could go out shopping. But, you're too embarrased to go out, or you're too sick and lifeless to get out of the house. And I'm here to say I am so sorry for that. How I wish you were the "old you" who could be out and hit Target, Bed Bath & Beyond, The Gap, Old Navy, and maybe if you were in a good mood even hit specialty stores like Williams Sonoma and Pottery Barn before coming home to make supper!!!! Those were the good-ol-days and you probably think they'll never come back.
Well, guess what? Mr Bug wishes the same thing too. Only he's too dim to express those things to you in a gentle and loving way. No, instead he gets indignant and acts like he's the victim. HE'S THE VICTIM? Poor guy just doesn't get it. You're the one with the disease, and he pouts around like a spoiled child. See deep down inside he wants to fix you and make you all better (someone already pointed that out) but he can't. He ain't God but he wants to be "like" God to you. And, trust me on this one: he feels just as powerless as you do. Only with men, being powerless is a sign of weakness. That doesn't sit well with men, so we do and say really stupid things.
Its been said that women are the weaker sex. Yet, I've seen my share of women who handle these extreme trials much better than we men do.
But, cheer up Mrs Bug. Us guys, we can still learn. Yep, it's not too late for us. After a while, we do come around and begin to appreciate what you're going through. And then we might even pick up the banner and be on your side. On some cases, we may even surprise you by actually doing husband-things like protecting you and shielding you from idiot doctors and uncaring family members. And the biggest miracle is that we finally wake up and appreciate what a wonderful human being you are... what a undeserved gift you are in our lives.
I only hope that for all those husbands and wives who are butting heads over this disease, that there is still a marriage left. That this partnership we entered into is still held together, even if by thin shreds. It can be rebuilt. It can actually be stronger than ever before. Mrs Bug, and all other Mrs' who may be reading this thinking "hah, not in my home, this can't happen", I ask you to give the big lug one more chance... maybe two more chances... to redeem himself and come around. Do it for yourself.
I'm here to tell you that it happened just like that with this grateful husband.
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josej
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Post by josej on May 31, 2007 0:42:53 GMT -5
Yea, my wife had these flies coming out of her early on. The health dept took a specimen to an I.F.A.S. entomologist who identified it as a phorid fly -or- fungus gnat. And yes, they do fly very droopy and stupidly. Fortunately they flies stopped exiting her body.... only to be replaced by other bugs. Click on the link to see the actual specimen viewed at 100x. pandelican.multiply.com/photos/photo/1/13
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josej
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Post by josej on May 28, 2007 19:54:08 GMT -5
Apple Cider Vinegar. (I've been told that its superior to white vinegar.)
We put it into a spray bottle and dilute with water and spritz everything. Furniture, baseboards, bedding... and in the rinse cycle.
I only smells like a Vlasic dill pickle for a few minutes... then funny enough, the smell goes away. But if you're used to keeping a Kosher home, then who knows (?) that might be a nice odor for you ! haha
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josej
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Post by josej on May 21, 2007 9:07:09 GMT -5
Well, what I'm thinking now is that we all should sue Lionsgate for royalties.
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josej
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Post by josej on May 20, 2007 13:27:47 GMT -5
OK, this is going to put all of us a huge step backwards in the public's eye. There's a movie coming out next week called " BUG" starring Ashley Judd, Michael Shannon and Harry Connick Jr. It's about a woman who has bugs coming out of her skin. See link below to watch the movie trailer. ... so far so good... right? WRONG !!!! From what I understand, this turns out to be all in her head. I can already hear all our dermatologist and psychiatrist friends chuckling away. And even if the movie were to portray the "bugs" as real, it's still a black eye to all of us fellow sufferers. As one of our own (Toni) pointed out to me, this is going to make all of us seem like paranoid nut-cases. Kinda like when JAWS came out and everyone developed a psychotic fear of sharks... Well, I'm not happy about this at all. ... and speaking of being paranoid... what if this movie was funded by the government or by some big bio-engineering corporation set out to "shut us all up"? Nahhh.... that couldn't happen www.youtube.com/watch?v=Slg59ufLKXk
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josej
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Walls
May 17, 2007 14:01:46 GMT -5
Post by josej on May 17, 2007 14:01:46 GMT -5
Hey Pez, Quit talking to my wife, will ya? Her and I go round 'n round on this same topic. (her) "Jose, everything's contaminated in this house". (me) "No, honey... not everything... come on get a grip." (her...glaring) "You know, you could be just a tad more supportive" (me) "Huh? Not supportive? Not SUPPORTIVE? Are you nutz?" ouch.. I shouldn't have said that. Why can't I learn to keep my stupid mouth shut!(her) "........" (me, knocking on the door which was slammed shut) "Hey honey, I'm sorry, I didn't mean that... can you please unlock the door?" (her) "........" (me) "Look Kath, I'm really sorry... it's just that I can't understand how it's possible for every thing in this house to be full of bug pieces, fibers, mold, algae, and all this other junk. I mean we just vacuumed and mopped and sprayed apple cider vinegar everywhere. Our house smells like a dill pickle! How can it be full of crap already?" (her) "I don't want to talk about it." Later that day we both calm down and methodically start to re-clean everything. Along the way we discover that our clothes drawers are full of some strange stuff... like sand. And, underneath our bed there are little pieces of tiny hard things. Where did that come from? We just cleaned yesterday. So, yea. I understand. Actually I'm not as clueless as I appear (above) and I've removed our carpeting, thrown out half our furniture, redone both bathrooms, new air-conditioner, cleaned the a/c ducts, no more pets, no plants, we sleep on covered matresses, etc etc. And for all that, there is still all this s chmutz all over the house. It's enough to make one go over the edge. A word of disclaimer: I was skeptical until I saw all of this with my own eyes... and saw my wife's bugs through a microscope. That's sad, but that's how it is. People (even your close loved ones) will be slow to come around until this stuff hits them right across the kisser like a two-by-four. But I'm on board now, 100%... trying to convince others too that this is all too real.
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josej
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Post by josej on May 16, 2007 8:12:32 GMT -5
Yes, the cavalry might not be coming...... but,
CALVARY came 2000 yrs ago. That's what keeps me going.
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josej
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Posts: 140
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Post by josej on May 2, 2007 11:28:57 GMT -5
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josej
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Post by josej on Apr 26, 2007 12:15:34 GMT -5
Hello all, I just spoke with Patrick and got a little inside info. This may not mean much... probably just a bit of trivia. About 10 years ago the Miami FOX station WSVN purchased the Boston station WHDH. Patrick says that the Boston station uses a lot of the stories furnished to them by the Miami station. But... one of the persons interviewed in the original BODY BUGS program refused to give permission and would not allow it to be aired outside of the South Florida market. That's basically why the Boston station (nor any others) have been able to put it on their local programs. On the other hand, the video clip is on the internet and has travelled across this country and even beyond thanks to people like TONI. Patrick and team are doing the final shooting today and he just confimed that the next segment will air on our local WSVN Channel-7 on Tuesday (May 1st) at 10 PM and again on Wednesday (May 2nd) at 6 PM. I will post the internet link as soon as it becomes available.
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josej
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Post by josej on Apr 25, 2007 15:59:42 GMT -5
Hi Toni,
First a word of correction... You addressed your letter to "Lillian Rivera" and news team. The News Team part is alright. But Lillian Rivera is not alright. She heads up our local Miami-Dade Department of Health which has been absolutely worthless in their efforts. During the taping of BODY BUGS the Health Dept team gave the impression that they wanted to investigate and get to the bottom of this problem. Sad to say, that's all it was, just a facade. Maybe they meant well, but they did didly-squat. I have contacted the same team of investigators who came to our house several times... by phone... cell phone... emails... etc. Not one single response from them. So, my gut feeling is that this is yet another example of our government agencies' ineptness. Lillian Rivera is their boss. I can still see her face on camera looking all concerned. Well, don't hold your breath waiting to get a reply out of her or her workers.
That said, the "news team" people, which is basically Patrick Fraser-the reporter, Dianna Reed-the producer, and "Johnny"-the cameraman. Those guys are worth their weight in gold or platinum or whatever is on the stock market these days. Patrick actually cares !!! He's not just after a hot story. He calls us regularly just to check up on Kathy and see how she's progressing. I'm not naive enough to disregard that he has a professional interest in her, but I am 100% convinced that he is a righteous guy who may just turn out to be our best friend in the media. Keep this guy in your prayers.
Yesterday they came into our home to do another segment on the BODY BUGS story. This will air locally here in the South Florida market on WSVN Channel-7 next Tuesday (May 1st) at 10:00 PM and again on Wednesday (May 2nd) at 6:00 PM. I love the Tuesday spot because it comes right after the TV show "House" which is a big hit. I know there'll be a lot of people watching. We received approx 250 responses directly after the original segment was aired. Patrick has also included interviews with other fellow-sufferers and is hoping to get an interview tomorrow with Dr. Smith from Gainesville GA who has this disease as well as his wife. That ought to be another pretty informative presentation. I hope everyone watches who is able to. If not, I'll post the link to the story afterwards.
So, if the Boston FOX station is wanting to tag-team this disease, all I can say is the more the merrier. I just want someone out there to come up with a cure..... and soon.
Thanks for all your great work. JoseJ
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josej
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Post by josej on Apr 18, 2007 11:16:07 GMT -5
I forwarded to my brother "Bert" several emails and websites on Agrobacterium (etc) which I've received from Tony, Greg, and others. My brother was trained at Univ of Fla microbiology dept, specializing in electron microscopy, and he actually discovered an avian virus which had before that been unknown. He's been out of circulation for several years, but has the capacity and understanding to make intelligent comments. Here's what he just sent me.
"This is fascinating. The capabilities of Agrobacterium to insert genetic information into insect and mammalian cells was a total surprise to me. Then, all the agricultural applications with these organisms is another surprise. I had no idea they were using these “materials” (living organisms, really) as pesticides. There is certainly ample room to hypothesize all kinds of connections.
Summarizing the info you sent me, you have on the one hand a set of hard-science facts about the Agrobacterium and the BT. On the other hand, you have a statement about people with Morgellon's testing positive for Agrobacterium.
What's missing first of all is some documentation of that statement. Where was the testing done? What % tested positive? How were the subjects identified as to morgellon’s or other syndromes? That kind of thing. Secondly, you need to establish a “bridge” that connects the known mechanisms of action of Agrobacterium, BT, etc. with the symptoms exhibited by the people affected.
There is certainly ample material here for a scientist to bite into and write grant proposals to study this."
Does anyone have answers to the two points he brings up? Thanks for your replies.
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josej
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Post by josej on Sept 12, 2007 21:04:31 GMT -5
If an invisible tree falls in the forest.... etc...
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josej
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Post by josej on Apr 7, 2006 10:21:41 GMT -5
I'll keep this as short as I can because I really need some good advice and wisdom from you.
My wife has been having all the classical symptoms. I don't know if it's Morgellons or some other bug (it really doesn't matter at this point). This problem has completely ruined her life and our marriage. We've thrown out our furniture, carpeting, changed washers and dryers, have had multiple pest-control companies come out and fumigate, discarded almost all of our clothing, changed beds, put in new wooden flooring... etc etc etc... all to no avail. She still has the bugs in her skin. And they are all over EVERYTHING in our house.
I've taken her to many many doctors, dermatologists, allergists, infectious diasese docs, and all deny she has any bugs. No matter how supportive, my efforts are never enough for her and she's now convinced that I don't care about her and that secretly I want her to die. (For the record: That's not true. I love my wife and would do anything for her.)
But, now it's too late. She's given up all hope. She knows she's going to die and nobody cares. She knows she'll never see her grandchildren again. She no longer wants to eat. She just wants to stay in bed and die. She doesn't want me around. And now she's talking about taking her life to end all this misery.
I know all about the "Baker Act" and about putting people in a mental institution against their will, but I also know that this will be the biggest act of betrayal that I could ever commit against my wife.
What do I do? I have no answers.
Surely somebody out there has run across a similar problem. Please help me. I don't want to lose my wife and I'm really afraid that it's going to happen. She's either going to die from this diasease - or she's going to take her own life.
Please. It's Friday... time is not my friend right now. I need some help now. Thank you all.
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josej
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Post by josej on Dec 21, 2005 15:45:57 GMT -5
Is there any support group in the Miami area for people with morgellons ?? Is there anyone in the Miami area who could lend some moral support.... or some enlightenment to our family? Thanks in advance.
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josej
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Post by josej on Dec 21, 2005 15:04:35 GMT -5
This is my first post. I've just read everything in the first nine pages of this site. Now I'm even more confused. I need help please. I'm ok. My wife (KJ) is not. Please tell me what's going on in our house! For the past 4 months KJ's had these bumps on her skin that have gotten worse each day. Will someone please tell me what's going on with her health? Here are her complaints and findings: - Tiny black protrusions that come out of the bumps on her skin. They're sharp and very hard. She refers to them as shark teeth.
- Seed-like granules, whitish or beige in color, that also come out of her skin. We find them on the bed every morning when she wakes up.
- Pieces of fuzz and fibers coming out of her skin. They itch and sting her like needles.
- Sensation of things crawling underneath her skin.
- Weird stuff in her stool. Indescribable to me, but she collects them now and them and shows me. I'm clueless as to what they are. Some are small roundish objects, about the size of the head of a pin, egg-like. Some are stringy things. (She thinks she has worms but I can't see how that's possible.)
- Also, of late there are a lot of tiny insects that look like miniature fruit flies. They're in her hairbrush, on her skin, and she's convinced that they're coming out of her!
- Plus, it seems like our dog has the same affliction. I've been taking him to our vet, going again this afternoon. But KJ's already told me that the vet won't find anything wrong.
KJ has become somewhat like the guy on the TV show MONK. These past few days she's been on a tear cleaning and throwing out stuff that's "contaminated" Last night she was up til 5 in the morning going through everything in our kitchen. The food, the drawers, the silverware, the cabinets.... she threw a lot of stuff away in the garbage. She wants to tear out all the carpets and take down the window curtains. She's already thrown out our pillows and bedding. We'll probably have to buy new mattresses this weekend. And so it goes. It seems like everything in our house has these little fibers.... fuzz.... pupa's.... bugs..... bugparts.... and it's all got to go. I confess that I'm overwhelmed. Yes, I do see these things with my own eyes. But part of me has been slow to accept it as REALITY. And my wife has taken this as my lack of emotional support of her. (That's the absolute last thing I ever want to do and I'm embarrassed to admit to my hesitancy.) We've already gone through over a dozen doctors. Each one sends her to the next specialist. No one has an answer except to hint around that she's mentally deranged. Her present doc, the dermatologist, said she has something like pimples and prescribed tetracycline. This diagnosis went over like a lead balloon. One doc said she had "dermatitis". I'm sure we'll get a nice bill for that brilliant office visit. So, as you can see we're still in the loop of innumerable doctor visits. Neither KJ nor I can see any light at the end of the tunnel. So, I guess I'm asking for any impossible answer. Can you tell me what she has? If it's delusionary parasitosis, then where did all those bumps and stuff on her skin come from? I could go on and on with my post, but I ought to stop here and wait for a hopeful reply. Thanks for listening to this newbie.
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