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Post by kiki on Nov 19, 2008 0:19:41 GMT -5
A sleeper is an unexpected hit-- like a movie that gets so-so reviews but turns out to be a hit. I'm gonna show my age but Woody Allen movies come to mind....
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Post by kiki on Nov 18, 2008 23:57:52 GMT -5
Toni you explained what I was trying to say perfectly! You are too cool for school ;D Im gonna do the baking soda/conditioner tonight. I'm wondering though how long I'm to keep it on. Minutes, hours, overnight? I have a pack of hair conditioning caps- they remind me of the shower caps in motels. Should I wear one of those? Also the only conditioner I have has tea tree oil in it. Maybe I should use different base?? Hey! I got a bottle of glycerine to experiment with. Do you think that could replace conditioner?
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Post by kiki on Nov 18, 2008 23:12:20 GMT -5
I get colds and if an intestinal bug is going around, sure as the sun rises I'll get it. But the strange thing is I stopped getting cold blisters. I have always believed it has to be related. I know whatcha mean being encouraged by a cold. It's a sign of normalcy!
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Post by kiki on Nov 18, 2008 22:39:59 GMT -5
A while back I posted about a weird experience I had with barium. It was like carbonated chalk and burned so much I couldnt finish it. The tech doing the test just shrugged and said Well you probably drank enough for the test. I thought something was wrong with it but maybe it was a reaction from too much barium in my body.
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Post by kiki on Nov 17, 2008 18:13:08 GMT -5
I wish there WAS a crazy question about this crap! No its pretty much non-stop(dont know what it does when I sleep). I can can only SEE them in with that therapy light but feel em all the time. When it started I thought it was b/c of shaved scalp--itchy but I think the shaving disrupted them or something. My scalp was my first sign of this but always looked healthy so I was baffled that they saw something I didnt (hah! thats a switch) but now I see a red spot but could be nick I guess.
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Post by kiki on Nov 17, 2008 17:24:27 GMT -5
Toni, bess your heart I tried the yogurt treatment but sadly for me it didnt help. I tried a few times too cause I really wanted it to work. Chalk it up to the contradiction of morgs. Ya know morgellons is really a show-offy kinda bug. Just when ya think ya see a pattern SURPRISE ...it proudly says look what else I can do
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Post by kiki on Nov 17, 2008 17:08:58 GMT -5
Until I get the pH strips you use (oops that sounds kinky!) I mean the brand ;D Anyway can I use the strips my husb uses to test pool?
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Post by kiki on Nov 17, 2008 17:03:00 GMT -5
My scalp biop isnt for a couple days and all they said was to not use anything on it day of appt. I was under the LED light and saw that the popping I felt/feel on my head are teeny tiny hair looking things. Except since when do unattached hairs just spring out of your scalp? I'm terrified of spreading all over me and clothes, house etc. I'm trying to find that Viodine shampoo local but no luck. Still have 2 places that may have it. But I need to do something NOW. The reason I was asking about alkalining scalp is I hoped it would calm this down at least. I am going to get those buffer thingie capsules and work on body as well but I need to do something immediately. thanks
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Post by kiki on Nov 16, 2008 20:41:22 GMT -5
I know my brain is in slow gear but is there a difference in essential lemon oil and lemon juice as far as how it affects skin pH when applied topically? I read that essential lemon oil WILL alkalize skin but rubbing a lemon on skin will NOT. I'm in trouble if I have to give lemon oil up. I've tried soooo many products and lots work for a while--you know that song and dance but my fall backs remain Dr Bigelow lemon products to which I add calendula oil and extra lemon oil. Burts Bee also has some great products for our symptoms. It's funny I used to turn my nose up at "drugstore" skincare. Oh how little I knew...
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Post by kiki on Nov 16, 2008 20:16:28 GMT -5
From the start I assumed my immune system was whacked out but tonight out of no where the saying God doesnt make mistakes popped into my head. What if our immune system is actually PROTECTING us by expelling the stuff from our body??? Maybe this has already been brought up? And what if some of the drugs (oral and topical) we've tried were kinda getting in the way? I was so close-minded about "natural healing". Oh I thought it was great for some illnesses but...not this. Nope I was convinced I needed the newest, strongest med available. Now I havent thought this through but what do ya think?
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Post by kiki on Nov 15, 2008 23:18:10 GMT -5
I'm wondering if this has really messed up my brain. I don't like heights and I'm scared silly to get in the ocean over my calves. Im totally cool with planes and boats tho. Whats weird is recently at the ocean my husb said he wanted to para-sail. I said Thats cool I'll wave to ya from balcony when you go by. He knew better than to even consider I would do it. About an hr before reservation I walked past window and looked out at ocean and in a flash I knew I was gonna do it. He was low key about it and I know he was skeptical cause he kept giving me "outs" and maybe even testing me. They offered 3 hts (400,600,800 ft) and he told them he'd change to lowest since we were going tandem. Someone opened my mouth and said No what difference does it make that high up? Why would I do something like this?
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Post by kiki on Nov 15, 2008 22:15:08 GMT -5
My scalp has me in tears. It feels like things are popping out of it and it itches so much it actually hurts. For some reason the only thing that consistantly makes my skin feel better is lemon oil but is that making my skin too acidic? Should I try to block my pores or will that mess up biopsy? I called back to r/s it but now I'm miserable and wonder why I'm a glutton for punishment. My family says I'm so brave, determined, yida,yada,yo. hah! The way I see it I'm in denial or stupid (both probably). What intelligent person would continue to set themselves up for disappointment? That's me... chasing that ellusive aha! discovery.
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Post by kiki on Nov 14, 2008 2:39:02 GMT -5
Crazy thing is I'm not scared. I should'nt say this but I find myself thinking that with cancer you know what your dealing with so you at least know what to try. I mean a name does'nt make it worse. Ugh I know how horrible that sounds but ... not knowing if you're on the right track takes its toll. I will r/s appt. I dont know why I backed out. When they said they were going to shave my head to biopsy 3 areas I did'nt flinch but when I got home and saw no hair it must have weirded me out. I look like a freak. My hair has always been white blonde and my eyebrows are practically invisible so I look like a hairless green-eyed albino. Do you know if squama plasia and lichen sclerosus are similar?
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Post by kiki on Nov 14, 2008 2:00:08 GMT -5
I recall a post about peroxide and rubbing alcohol. It didnt help me either but I found that ethyl alcohol mixed with witch hazel does. Trouble is it has pungent smell. This summer I mixed in lemon oil and it helped but it took alot of oil to smell the lemon but it was nice to spritz on skin. I tried Hibiclens and Bausch&Lomb eyedrops w/ chlorhexadine but neither did a thing which really terrified me since I thought it would be great since hospitals use it but I guess the concentration makes a difference.
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Post by kiki on Nov 14, 2008 1:13:39 GMT -5
I have been half-heartedly using the light from Judy. At first I had what look like baby baby fine hairs come to surface of skin and seem to "waft" into the air. I could never see one land b/c they are so blonde. There were also tiny black and red fibers but not alot. I did notice that some mild scarring disappeared but my symptoms didnt lessen. Yesterday I came across some of the things I tried in the past- oils, silver, sodium perborate(that little tip from Tam Tam just about killed me, no joke). Anyway I must not have wiped all the bottles b/c peppermint oil got on fingers of one hand and lavender oil on the other hand. On a whim I stuck peppermint hand under light. It felt hot which was a first. Then put lavender hand under and nothing happened. Then a peppermint finger felt like it got stung. Without thinking I rubbed it with a lavender oil finger and on all I hold dear, both fingers looked like I dipped 'em in black ink. They wiped right off so I thought I'd experiment and covered both legs. Well all *!@# broke loose. Fibers and things Toni calls poppers won't stop coming out. My t-shirt is so fuzzy it looks alive. I ache, feel exhausted and now I have blisters on my lip, chin and ear. Dont know that its related since oil was only on hands and legs. I don't know if this is good or if it's killing me. I have no strength, aching joints and a horrible headache. I cant get to Judys forum to ask her--dont know why.
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Post by kiki on Nov 13, 2008 19:25:47 GMT -5
One of my dr said I have hyper squamaplasia and another said lichen sclerosus. I was to have biopsy but for the first time in my life I quit. I cancelled appt. I had every intention of going. No denying that since they shaved my entire scalp yesterday. I guess I need an attitude adjustment. Everything I saw about squama plasia is about basal cell, etc but he specifically said hyper squama plasia. He said it can do really crazy things if let go. His exact words. But I dont know why I cant find anything except the basal cell stuff.
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Post by kiki on Nov 13, 2008 18:48:35 GMT -5
Let me start by saying I was/am grateful for the kind words in response to my last posts. That said, I feel like a misfit. Anytime someone asked me something I responded right away- ex: was asked to send med info b/c they wanted to send it to R. Wymore, and another asked for the ingredients my dr recommended for skin, etc. It hurt my feelings but I did'nt feel unwelcome. But to my embarrassment till tonight I thought I was being rejected when I just wanted to do something nice. I thought wow it takes a special kind of loser to not be able to GIVE something away on the net. I don't know why but 2 people DID reply but for some reason they just now appeared. I'm so glad cause it destroyed my morale.
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Post by kiki on Aug 20, 2008 22:38:35 GMT -5
I had to drink barium recently -the thick chalky kind and it tasted carbonated. I was to drink 2 bottles but when I drank half of first one something just didnt seem right so opened other bottle to see if it burned too. It did. When I questioned it they said they never heard of that happening. My instinct said dont drink any more and they said they would go ahead with test anyway but can you think why this would happen? Ive had barium several times before -chalky kind and watery kool-ade kind and it never burned. Wonder if it was killing something?
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Post by kiki on Aug 20, 2008 20:54:29 GMT -5
hi mfromcanada. Ive been following your progress and was wondering if you tried the MMS topically. Also do you know if there ae different grades of sodium chlorite? Meaning is what youre taking the same used topically? Wonder if you can drink it AND use on skin or would that be too much of a good thing? Im thrilled for you - it sounds like youre responding at a nice steady pace and thats great. btw, you do a fantastic sum-up of your progress. I write like I talk---too much ;D and thanx for concern other day--was my own fault for letting frustration get best of me.
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Post by kiki on Aug 19, 2008 23:37:04 GMT -5
Skytroll you asked about blue streaks on body. This may not be related but anytime I used a tanning bed I turned blue right after I got out. The owner of the gym said it was because I worked out before tanning and my blood was oxygenated? but it happened even if I didnt work out. It was creepy.
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