|
Post by morgellonsmoe1 on Aug 5, 2008 3:49:34 GMT -5
Great JOB CHEETAH! Do you have a poster or pamphlet I can print out and pass around to the many Bikers in Myrtle beach SC? They'll love this .. Ill ride my tricycle around and pass it on if you get a printable pamphlet please? Lots of biker -places here may even have another rally since Myrtle Beach is trying to out do the biker rally next year ! thanks Moe
|
|
|
umm
Aug 5, 2008 3:47:26 GMT -5
Post by morgellonsmoe1 on Aug 5, 2008 3:47:26 GMT -5
I have been on 1000 mg of tetracycline a day for almost two years . It keeps the morgies away and most docs who treat Pt's with morgellons say this is the way to go . Nothing as of today will cure it but antibiotics gave me my life back and until what Morgellons is .. is found this is the best thing I found after years of trying everything .
3 ccs of ivermectine every two week and 2x a day taking probiotics too
|
|
|
Post by morgellonsmoe1 on Aug 5, 2008 3:41:43 GMT -5
"According to Knilans, all of the lab tests and biopsies performed on her came back normal, causing doctors to claim that it was all in her head."
from the article .. Ya! all tests are normal cause they are testing Known pathogens . No known pathogens have been found , so why don't we look for zebras lab techs and stop looking for horses please.
We really need to put the money in the hands of researchers who are looking to find the difference between morgellons folks and those without it until no one is a non morgellons person folks thats the only thing thats gonna put morgellons in the text books these lab techs use
They simply have nothing to look for cause what morgellons is has not been found as of yet and with no funding it wont .
|
|
|
Hi Gang
Aug 4, 2008 12:37:00 GMT -5
Post by morgellonsmoe1 on Aug 4, 2008 12:37:00 GMT -5
I came back after a bit of a break .
After the timentine trip I have decided to keep any treatments between my doctor and I ( we haven't found anything to kill off the fibers as of yet )
I Had two polyps removed with a colenoscopy ( the doc was so not interested in Morgellons and refused to wear gloves ) His staff was very interested and looked through my microscope to see the fibers and thinks they have the key to another case they had a few months ago
My doctor asked if they saw any fibers .. I said no ones looking for fibers but I did poop a birds nest after wards and feel a bit better . He laughed and not too big a deal . Glad to be back hope everyone is okidokie Thanks administration for allowing me to leave for a bit then to come back ((Hugs)) Moe
|
|
|
Post by morgellonsmoe1 on Aug 9, 2007 21:59:07 GMT -5
:ohttp://www.cnn.com/video/#/video/health/2006/06/22/cohen.morgellons.mystery.cnn might br old ..im dloe
|
|
|
Post by morgellonsmoe1 on Aug 15, 2007 18:20:11 GMT -5
My thought on the scratch like looking wounds It appears to be a fiber entering the body for some ( that will make the straight scratch marks ) the other kind appears to be hatching from something on the top of skin in linneir streaks when they hatch the scrath will look like lil dots all in a row forming a scratch looking thing but you will see individual dots on the scratch . I found this out by accedent one day my back was beyond itchy so i grabed some plain yogart and smoothged it ON top of my skin cause I knew yogart kills fungus ( like a peal off mask) an hour later walking around in total releif . I walked past a mirror and notest lines of the white specks stuck to my back . One of those were tested in my state lab and determind to be a miget fly egg ( flys lay eggs in lines ) still doesnt compute .. something I am infected with perhaps attracting flies ? No one knowes what yet . I stopped trying to figure this out cause it looks like everything so it could be a mixture but what attracts the mixture ? Thats the answer we are all waiting for . So today I just treat the symptoms cause the cause hasnt been found yet.
|
|
|
Post by morgellonsmoe1 on Aug 15, 2007 10:43:56 GMT -5
One quick question does any one know him? PM me Please cause I do not want to flood this place with the answers out of respect for the administrators . You could help me perhaps answer a question Thanks
|
|
|
Post by morgellonsmoe1 on Aug 15, 2007 10:45:57 GMT -5
sing it to what tune please?
|
|
|
Post by morgellonsmoe1 on Aug 15, 2007 18:32:43 GMT -5
No one knowes what this is So we go for a bi opsy or ultra sound and nothing that is known to man is ever found Because it aint known to man yet . Many of us have had the fleshy tumors Best to get them checked for what is known though like Cancer But when it comes back fibers , Thank God it wasn't Cancer I drove a gal crasy but thank God for her friendship and do to this day cause I was in terror and run mode for a long time and the more I tried to figure this out the crasier it made me . I still have bad days and thank God she is there for me .. cause no therapist can solve this either
|
|
|
Post by morgellonsmoe1 on Aug 15, 2007 11:04:11 GMT -5
This helped me clear off my scalp May or may not be of interest but ID like to share ( everyone found a way here is the one I used and now only when I feel a crawly ( note : I have often wondered if this bug makes fibers like a spider weaves a web many insects do create silk like fibers just a thought )
The gold colored mouthwash like Listerine cheep dollar brand and any other color will dye your hair I tried the blue so no need to re invent that experiment get the gold colored ) This has the kind of alcohol thats not toxic to your liver in minute qualities and it has menthol in it .
This will sting like crazy until your scalp heals so crank music and your soars will burn but will heal as you put this step in your daily routine ) In the beginning you'll do this up to five times a day but eventually you'll only need to as you feel a crawly .. I now maybe have to once a month .
I have a crew cut so adjust for hair length
Take a capful of the mouthwash after you blow dry your hair remember moister keeps fungus alive and reproducing washing your hair with baking soda has helped .
Soak your hair with the mouthwash and use a dog comb called the "sheddender coming your hair head down over the sink to get any dead bugs and fibers out .
This has to be repeated and is tiering to kill off the infection as the different stages hatch and such . My head was covered with sores . It wont happen overnight , and it will depend How long the infection has been there to grow.
I am also on an antibiotic so the stinging sores after a few months could heal with this treatment and not fester with infection .
Others may have done different things , I just wanted to share this way Key is consistency this morgie infection is smart and keeps adapting .. so I have found slacking off makes it worse .Good luck
|
|
|
Post by morgellonsmoe1 on Aug 15, 2007 18:02:47 GMT -5
I stoped saving specimines long ago They seem to be able to multiply and currently no one can analise them cause no one knowes what they are, not even the FBI They have looked ( remember the ABC special ) Just concentraite on finding your way to better the specimines will just keep you exposed and at a dead end with this hun I didnt belive better was possible But many of us have found our way through this. We are not all better just have most of our life back You will too I found when I could get past the fear ..better was not expencive (lots of nuts out there taking advantage of us and promising us the Moon to get our last penny . all the Methods have been tried so please don't go that route . We have all tried and still here You will find your way follow some of us ( we have you in our prayers )
|
|
|
Post by morgellonsmoe1 on Aug 11, 2007 19:59:53 GMT -5
LOL If I took my clothes off , I would be arrested for assalt with a DEAD weapon. ( Ill look for falling stars Lots of good ideas you all making me get out of me here . (huggs)
|
|
|
Post by morgellonsmoe1 on Aug 11, 2007 14:47:55 GMT -5
thanks for sharing so far . I am in SC not where you are .Please anyone keep posting the compasion Lifts a heavy heart .
|
|
|
Post by morgellonsmoe1 on Aug 11, 2007 10:33:17 GMT -5
Hi Gang: I live alone and do not have money for cabs or a car . I have watched every TV show made by everyone , my home is spotless and its sometimes getting to 114 degrees outside.I only have three outfits . I am just plain lonely .. anyone else ? or what do you do? I am simply not able to work due to Multiple sclerosis and Morgellons symptoms. Any suggestions? Thanks
|
|
|
Post by morgellonsmoe1 on Aug 12, 2007 10:21:21 GMT -5
Hi Vivi: Let me start off by taking my hat off to you for your courage and thank you so much for sharing. I broke out in a head to toe spotted rash a few years back so itchy I carried a hair brush that I constantly scratched my entire body with .( though it was scabies ) went away on its own . Finished my nail tech license and then my eyes started going bad. and my teeth started rotting ( all symptoms I thought were other things. 6months later I bumped into things that were right there like door jams and I would get lost on the road and stuck in ditches . I thought "this is how dementia started . I was useless and in and out of hospitals cause I couldn't walk My legs just would not be communicating with my brain . I went through DX of stroke and then MS but the MS meds never made me feel anything but worse and then the lice that wouldn't die episode that made me run from a paid for home and be labeled crazy by every doctor including my Nero . I too felt the crawlies or something in my head . I would tell the doc it felt like popcorn was popping in my head . I have lost allot including my family and friends but you dear give me hope . Each time I feel nuts , I see a courageous person like you . I have a doc that is treating my morgellons and is open minded but we all do not know what to do . MRI's are being linked to a deadly liver problems but I had one a few months ago cause I woke up blind . I feel in my heart after talking with others that Morgellons is beyond anything ever seen , Please keep us posted and hats off !
|
|
|
Post by morgellonsmoe1 on Aug 11, 2007 14:35:15 GMT -5
Please tell us .. I have the white matter too but have only gotten dismissal looks and hatred from doctors . I had a DX of MS and have never been convinced ,
Please type out what your doc said cause Before the CDC put this on its web sight many of us have suffered the disbelieving opinions of this horrid illness. I beg you from my heart . Nothing is shocking to us . Nothing . We are the ones who need too hear this . Please ( I am praying for your courage and help to type this out .I understand how scatter brain comes with stunned excitement.)
Like when you first find out your pregnant . Who do I tell and you cant spit the words out cause your so in shock when you find someone.
Here there is no fear we appreciate you . Thanks in advance . The MS meds make me sicker and steroids put me in a hell you could not imagine please share .Thanks
|
|
|
Post by morgellonsmoe1 on Aug 10, 2007 16:09:33 GMT -5
I personally think taking a fungus when you know you have a funguslike infection is like taking EX-lax for diarea .. IMHO
|
|
|
Post by morgellonsmoe1 on Aug 10, 2007 16:13:07 GMT -5
If its written about and pictured and named .. Close but no cigar weda been diagnosed with it
|
|
|
Post by morgellonsmoe1 on Aug 12, 2007 11:30:21 GMT -5
no one can treat us cause no one knows what it is they need to treat .. no one knows what the pathogen is that causes morgellons. As soon as we accept that , we will all support the researchers that are looking . No one could treat AIDS till someone found the virus .. aids still infects people they haven't gotten a vaccine yet .Now you see how long research takes? And AIDS research is supported by the Government cause it has the research behind it saying this or that drug does this or that . ( but its not curable)
When we stop complaining about why they wont treat and accept that no one can cause you can't treat what you do not know .
That would be like taking a squirt gun to the attack on 9-11 it has water .. and water kills fire .. but just that knowledge wont stop that attack. get it?
|
|
|
Post by morgellonsmoe1 on Aug 12, 2007 14:26:34 GMT -5
note: most cellphones these days can tape things and media will buy self filmed happening news
I am to broke to go but will and have been praying for all May the good Lord show favor to you all and thank you
|
|