I feel like I should share the e-mails I had with Dan Rutz from the CDC- They begin with his reply-
Anne Dill
Anne: Thank you for sharing your views. CDC remains committed to pursuing the questions you raise through unbiased scientific inquiry. That process, while necessarily deliberate, offers the best chance for finding the answers we all seek. I wish you well and request your patience as we work through this problem. Sincerely, Dan
Dan Rutz, MPH
Associate Director of Communication Science (acting)
National Center for Preparedness, Detection, and Control of Infectious Diseases (NCPDCID)
Centers for Disease Control and Prevention (CDC)
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From: Anne Dill [mailto:AnneMarieDill@msn.com]
Sent: Wednesday, July 12, 2006 10:53 PM
To: Rutz, Dan (CDC/NCID/OD)
Subject: Fw: Anne Dill
Dear Dan Rutz,
I thought I would send you a copy of the e-mail I sent to ABC news who will be airing our story soon.
Anne Dill
----- Original Message -----
From: Anne Dill
To: Berczuk, Carol N
Sent: Tuesday, July 11, 2006 12:11 AM
Subject: Anne Dill
Dear Carol,
First, I want to say that I did get your message and thank-you for the call. I also know that you have been very busy flying all across the country. I hope that you are doing well and taking care of yourself too. I am sure that just being involved in a story like this is very draining on you both physically and emotionally.
The girls and I have been trying to keep busy so we are not constantly thinking about what it is that we are dealing with every day. This seems to be getting harder now that as time goes by we see more and more of this strange stuff happening to our bodies and still no answers. I am starting to panic though because school is starting here July 31. My kids want to go to school but are now afraid of how this will be tolerated by everyone else. Living in a community that is small, word has spread and already this has affected the way they are treated. Sarah's boyfriend has not been aloud to see her for three months now- his mom has quite a big mouth and not afraid to say just how she feels. She actually threatened to sue for putting her family at risk. Personally, if she could prove this I would be thrilled for then I would have a case against the medical community.
The Fourth of July was another lonely holiday- this was our biggest party time with all the fireworks on the lake and people everywhere. We did invite a few close friends but not a one showed up. I am ready to run but don’t have the energy to do so. How do I keep facing their big eyes when they are so disappointed. For some reason they have been given this gift of humor and a spirit that just wont give up. That I thank God for every day.
When I heard the comments that Dan Rutz had made on forming a committee I wanted to scream for I heard that over a year ago. It amazes me how they can drag their feet and really not do anything at all. I did want to approach them though with one question. Can they compose an official statement that says my children are not contagious and can attend school? I can guarantee this will be asked and don’t know how to handle this one. I shouldn’t have to be worried about this too at the time of our lives we most need the comfort of other people.
Carol, I am not used to being angry or insecure. The size of the stuff that comes out of my head is not just fibers anymore and this scares me daily. I posted some new photos on a web site- There is no denying that something is there and why this isn't urgent I will never understand. We have rights as citizens or I thought we did anyhow. O.K. I am done rambling on and on.....
Thanks again for all you have done and forgive me if I am a little relentless with my attitude. We pray that we will someday return to society a little stronger and wiser to share with others.
Love, Anne
MAD COW!
Jul 2, 2006 by anne
(this one is a silly interpretation )
If you are having problems viewing this email, copy and paste the following into your browser:
picasaweb.google.com/annedill22/MADCOW picasaweb.google.com/annedill22picasaweb.google.com/annedill22/MADCOW Dear Dan Rutz,
Thought you might enjoy reading this one too.
Anne Dill
----- Original Message -----
From: Anne Dill
To: annemariedill ; Morgellons mary
Sent: Tuesday, June 27, 2006 3:27 PM
Subject: Dill Family wont give up!!!
Every night I lie there and think of the numerous letters I want to write to find the help my family needs. Then my time is so limited because of catering to everyone and lack of energy on my part. I really don’t feel like I am being unreasonable when I am asking for answers that my children need to function in society. We have been isolated long enough!! We are not alone because I refuse to do anything, we are alone because people are afraid to be around us- and have said so. The schools would like to know how to answer if they are asked if we are contagious. My girls want to go to school this fall and I have promised them they would! The reason they were home schooled was the fact that their energy level is so low- headaches- and they have such a hard time catching up when they miss school. These children have always been straight A students- athletes - and very social- why have they been able to just slip out of society without anyone raising an eyebrow!!!
I do live in a area where it would be a common thing for my child to be seated next to a physicians child. Maybe even a dermatologists child!! Are you so sure now?
How long can you make your pubic statements without actually doing something for these patients? After hearing the comments Dan Rutz from the CDC has said I now know why our system doesn’t work and has failed so many. Why would a doctor report anything to the CDC when they are going to be treated with such a skeptic attitude from their peers? Why are they allowed to make such drastic decisions about our health when they really don’t know all the facts or want them for that matter. I have played the game and done all the jumps that were given to me and still no answers. Now I have lost my husband and our insurance and see close friends going thru the same exact pattern of illness that my family has been thru. When will it be enough to get the respect that we so deserve?
I am willing to address any medical issue that you see is the cause of this illness-even psychological - but don’t label us until you know this for a fact to be true. If you honestly looked at my photos and said nothing was there- that would be one thing I would have to handle- but I have had so many say other wise. Why don’t we deserve a answer to what it is that we are seeing? Don’t tell me it isn't there- tell me what it is!!!! Then write me a letter to give to the schools that states we are not contagious just crazy and I will be satisfied with that.
Anne Dill
Lake Mary, Florida
www.annedill.funtigo.comannemariedill@msn.com