adill
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Post by adill on Dec 4, 2008 19:27:26 GMT -5
Am i not getting the dig at the dates on your reply? cause that was quite a while ago......
Im a little slow.....
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adill
Junior Member
Posts: 70
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Post by adill on Dec 4, 2008 19:21:45 GMT -5
See, i am sorry..... didnt mean to make anyone upset- I am just sad as i approach another holiday season in this mess- and it very well could be my last.
forgive my smart mouth- it seems to be all i have left!! Ha Ha!!
Anne
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adill
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Post by adill on Dec 4, 2008 18:43:23 GMT -5
This post makes me real curious and i dont expect answers - this was just a out loud thought....
How many have had either some sort of test- or sample looked at with no answers from Dr. Wymore>
I am not trying to bash someone who is "trying" to help our cause- but my family has all never heard anything positive from there- even autopsy samples were sent...
O.K.- yes, maybe i would like to stir things up- but this sit back and wait attitude isnt working- people are dying.
To much has been shut down- or discontinued without any explanation- even on this board (now I've done it again) I really am not a trouble maker but when i wanted to raise some hell in the past i have lost friends who were heading up research foundations who did not want to shake the system and make any enemys. The thought of taking "baby steps" makes me want to throw up! Maybe we could do a study of hot water heaters....never mind that has already done. .....
My girls and i call this the Sailor Disease sometimes because we tend to swear like a sailor sometimes.....You all have such important stories to tell - thats all.....
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adill
Junior Member
Posts: 70
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Post by adill on Dec 3, 2008 17:09:21 GMT -5
OMG dont you hate it when you read thru your posts and you sound like a idiot? I know that I could do much better than that and all i really meant to say is i am sorry for your neuropathy and i really understand all that neuro-jabber so if ya need to ask, ask!!!
The past 5 years my family has had so many different but the same diagnosis' its not even funny! CMT,Parkinsons,Picks, ALS (2), Tremmors, Twitches, sensory loss, and a lot of muscle wasting, Lupas, ITP, CFS and now the kids have been told Mono for the 5th time.
Love, Anne Dill
I am having trouble understanding why things have been allowed to get this bad without any help from the medical community. I am now frozen with fear and don't where to turn now that we have been rejected from county and state health departments, CDC, Florida Senators, Mayo Clinic, Shands Hospital, Arnold Palmer Hospital, MDA, and the ALS society. each one passing us on to the next. Who is responsible? How about those physicians who pubic-ally claim it is all in our heads and they have never even seen us? Then you do have the doctors that believe you are very ill but think the CDC is following thru on its promises they have made repeatably for the past 3 years. Isn't there a medical term "Timely manner" , especially when there is neurological damage done? Doesn't an infectious disease exist when the same pathogen is found in everyone and causing similar symptoms? This "pathogen" is not only found in everyone but also exists in our environment. Are we not entitled to answers as U.S. citizens? I was even able to accept the fact some things are unknown but this is seen with the naked eye and there is no excuse for not being able to find out what is causing my entire family to be so ill. anne dill 5/10/07 4:41 PM
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adill
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Posts: 70
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Post by adill on Dec 3, 2008 17:00:04 GMT -5
Dear Marie,
I skim thru once in a while anymore-I really dont leave posts much but have noticed all that you have been thru and everytime i get a lump in my throat because i know exactly what your next step will be with the neuroligist. I feel like i am watching a train wreck over and over and no matter how hard i scream it will not stop.
I guess that i just want to say that i understand all the weird pains that you are feeling- My body is now starting to cripple up just like my Husband's and Dad's did. I really dont think i have much longer to walk- entire legs are now numb and so thick with this stuff that they glow too!! I really think the balance has to do with the thick mass on top of my head- it works its way around the head- from back to front- and so painful.
You know we were the first ones contacted to do the Mystery ER show- but we had to have a doctor who would say they treated us in ER and back us up. Even after doing ABC we dont have that. After seeing that show my daughter said "oh well, another story?" very missleading to the public- just like everything else.
I was told that i tend to make a lot of negative comments and this probally hurt the most when i realized it was true- but come on.... when does someone have a right to scream for the train to stop!!!!!!!
(I love the comment foolish neuroligist)
From the beginning i have stated that if i were a terrorist I would definately go for something like this!!!!!!! Our country is was to slow!!!!
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adill
Junior Member
Posts: 70
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Post by adill on Sept 8, 2008 10:34:55 GMT -5
I have to agree with Judith. I have given up on the idea that somehow the media would actually care about the people they are making money from. Since our media nightmare I have lost my dad to this disease. I finally hit the bottom when my truck was repossed and I lost my home due to my incapability to maintain our dreams any more. Honestly, I still hope and pray that that one of these times something will work- if only for the children.
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adill
Junior Member
Posts: 70
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Post by adill on May 13, 2008 12:04:08 GMT -5
I was just looking thru some interesting comments and found this one. This was very weird to read about myself. Look what our country will settle for instead of answers now!!!! Maybe I should sign up for this procedure now!!! Can I get on a list at the NIH that i dont know about? anne sfdphd1/17/2008 2:50:34 PM Nightline had an informative report on this last night. They hired a forensic CSI expert to examine the fibers with a microscope and the fibers matched nothing in the database. They were unlike all other chemical, natural, and manmade fibers. There is clearly a medical mystery here. In the family profiled in the report, the father died from this, and now the mother and all the children have it. So it may be contagious in some way. The physicians claimed that the father had ALS (Lou Gehrig's disease) but he did not have all the symptoms of ALS and his skin problems and fibers were never considered. An autopsy was requested but never performed. The mother now has similar neurological symptoms to her husband. If she dies from this, an autopsy will hopefully contribute to scientific knowledge. Scary stuff.... Hopefully the NIH can now study it... Recommend: (7)(0)[Report Abuse]
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adill
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Posts: 70
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Post by adill on May 13, 2008 8:54:45 GMT -5
Gee, when this hit my family of atheletes, my husband was a body builder, softball coach, and hands on dad who didnt lay around and smoke (he wouldnt go in a room if a smoker was in there) This was an infectious organism who sucked the energy from us- gave us all the look of gloom on our face- changed our sleeping patterns and pretty much just made us feel like poop!
sounds to me like your the one smoking something.
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adill
Junior Member
Posts: 70
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Post by adill on Jul 24, 2007 11:12:02 GMT -5
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adill
Junior Member
Posts: 70
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Post by adill on Mar 8, 2007 19:02:37 GMT -5
tinyurl.com/23jeg2O.K. this is really gross but my head reminds me of the sloppy joes my mom used to make with white rice. I did a week of antbiotics and the outer layer of fiber stuff and granules has peeled away leaving more chuncks, My delusions are growing bigger every day!!!
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adill
Junior Member
Posts: 70
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Post by adill on Jul 1, 2006 16:58:45 GMT -5
some of these are a little gross but I had some fun with lighting. You might like this web host- it is new and very easy!!http://picasaweb.google.com/annedill22 tinyurl.com/quxe3
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adill
Junior Member
Posts: 70
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Post by adill on Apr 4, 2008 18:11:34 GMT -5
gr8tale.blogspot.com/Thought I would share a silly comment page that I know all of us suffering would agree with. Well, I really dont mean all of us, as not to offend anyone, this is just my opinion.... Ha=Ha this was a joke and only a joke- I pray for all of you.
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adill
Junior Member
Posts: 70
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Post by adill on Apr 4, 2008 18:44:10 GMT -5
I also suggest looking at the parchment worm and spagetti worm who are also in the same family. I have looked at mr. peaunut several times (ha-ha)
annelida
annedill- kreepy huh?
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adill
Junior Member
Posts: 70
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Post by adill on Feb 15, 2008 16:35:34 GMT -5
I know that this is a litte late but feel like making a comment. I have said before and really feel like brainwashing on society begins in school where they teach us from a younge age that the CDC is always there to swoop in and protect us if any danger is detected in society or our enviroment. This simply is not true. I know that in the beginning I was so sure that when I explained to the physicians what was going on they would be all over this. (HA-HA) If you look in any science and biology school books you will find this information. I even had doctors make reports to the health department and CDC, still nothing. No wonder nobody believes us when they believe they are protected from disease in our country- they would have to give up that security and face the truth.
Would the WHO investigate the CDC if there were enough complaints and data thrown their way? I would love to see another society turn around and discredit them. Just wondering?
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adill
Junior Member
Posts: 70
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Post by adill on Dec 19, 2007 21:04:56 GMT -5
I have some old CDC letters on this website. I also have more around here somewhere. I even have some that Dan Rutz wrote my daughters boyfriend saying that he did not think there was any reason to think this is conatgious. Honestly, I have such a large paper trail and would love to put it into a lawyers hands so I dont have to think about it anymore. I also have so much proof coming out of my head that I must be crazy to still be in the humiliating condition. Anyhow, if you want them let me know. I dont care who see's them. Anne morgellonsheadache.blogspot.com/
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adill
Junior Member
Posts: 70
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Post by adill on Dec 13, 2007 16:08:54 GMT -5
tinyurl.com/2c64h4HOPE THIS WORKS! turn up volume- It starts out slow and bumpy but gets a little better....?!
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adill
Junior Member
Posts: 70
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Post by adill on Dec 12, 2007 10:48:38 GMT -5
Yes KMarie- I saw this article yesterday and started to sob!!! If you look at the replys I did even leave a letter. This is to much to bear sometimes!
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adill
Junior Member
Posts: 70
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Post by adill on Dec 12, 2007 20:38:20 GMT -5
Well Mr. GODOG,
Maybe you bring the smartazz out in people. I simply (for your sake) replied that I have done the media thing- traveled the country for research- offered my husband for autopsy.
When you come at someone like that how would expect us to reply? I have been on this board for 3+ years- Shared photos, stories, and ideas. Frankly, I have trouble understanding why more arnt screaming for their rights! Maybe it makes me feel like i am still alive.....
kindly keep your opinion to yourself on my parenting skills unless you know how I have keep it together thru all this. I know how sick others are and most of the time i read their stories and close my computer for my heart aches for them.
Anne
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adill
Junior Member
Posts: 70
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Post by adill on Dec 12, 2007 19:22:51 GMT -5
Why would I want to hurt anyone? All I have ever wanted was to help everyone- but I was right when I said I am sorry that I wasted anyones time. Maybe I am way to sensitive for I am close to going over the edge.
All most of us reallly need is to vent and know someone is listening, at least that is what i thought. I am sure I am not the only one who has said how they really feel and then someone comes back at them like they dont have the right to complain once and a while.
I am just tired. So very tired.
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adill
Junior Member
Posts: 70
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Post by adill on Dec 12, 2007 18:49:43 GMT -5
You know what- you are just mean!
So Sorry to of wasted your time!
Just one thing, I dont like to complain, I am crying so hard as I write this because I can no longer walk because of this stuff and I am really embaressed that i wasted my time complaining on this board. These stories need to be told over and over till someone hears and wants to make a difference. I am at the point where I cant do anything else and still want to save my family.
Your hints were well taken and I promise not to waste anyones time anymore- I also would not say anything unless I knew for sure what I was saying, So many promises have been broken/
Signing off,
Anne Dill
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